感染后的心情 After infection of the mood

　　

如何面对疾病 How to face disease

　　

怎样融入社会 How to integrate social

　　

患者最大心愿 Biggest wish patients

　　社会的歧视和孤立，加强了艾滋病感染者的边缘感；消极和孤独又会加速摧毁艾滋病人的整体免疫力。

Social discrimination and isolated，To strengthen the sense of the edge of people infected with HIV；Negative and lonely and will accelerate to destroy the whole AIDS immunity。

　　在现阶段，歧视成为艾滋病防治工作的最大障碍之一，这使得无法找到感染人群是中国面临的最大问题。

At present，Discrimination against HIV/AIDS prevention and control work become one of the biggest obstacles，This makes cannot find infected people is China's biggest problems。

　　刘进依然被全村人孤立着。因为他是这个2000多人口的村子里，惟一的一名艾滋病感染者。

LiuJin still be whole village isolated。Because he is the more than 2000 population of the village，The only a people infected with HIV。

　　4年前，刘进被县医院确诊为艾滋病感染者。初期的症状与许多感染者相似：腹泻、发低烧。

Four years ago，LiuJin be county hospital diagnosed for people infected with HIV。The initial symptoms of many infections with similar：diarrhea、Low grade fever。

　　刘进不明白，为什么他没有告诉任何人，村里人却都知道他得了艾滋病。现在邻居看到他出来，会立刻把门关上；85岁的奶奶在路上走着，会有邻居上前跟她说，以后不要走大路了。

LiuJin don't understand，The reason why he didn't tell anyone，But everyone knows that he got AIDS。Now the neighbors to see him out，Will immediately shut the door；The 85-year-old grandma walk on the road，There will be neighbors come forward to say to her，Later don't to the main road。

　　在河南省永城市的一个普通农村，刘进的家像一座孤岛一样被人为隔离起来。

In henan province YongChengShi of a common in rural areas，LiuJin house like the same as an island quarantined。

　　

当HIV来临 When HIV coming

　　

50%的人选择沉默 50% of people choose silence

　　与刘进有着类似感受的还有风雷(化名)。

And LiuJin have similar feelings and hoop(aliases)。

　　风雷说，他当过兵，是同志，是艾滋病感染者。丝毫不掩饰。

Hoop said，He worked as a soldier，Comrade is，Is AIDS infections。Have made no secret。

　　《法制日报》记者见到风雷的时候，他正耐心地给一个中年男人讲鸡尾酒疗法的几种药怎么吃、有哪些禁忌，甚至连分装盒里的药片都帮他依次放好。

《Legal daily》The reporter saw hoop，He was patient to a middle-aged man speak cocktails of drugs how to eat、What are the taboo，Even repacking box all help he put in tablets。

　　这是一位刚被确诊的艾滋病感染者。透过眼镜，他的眼神有些茫然。

This is a just diagnosed people infected with HIV。Through the glasses，His eyes some vacant。

　　风雷说，被确诊的初期，每个人都需要一段时间来适应。这是他们心理最脆弱的时候，很容易想不开、容易钻牛角尖。有的人甚至崩溃了。

Hoop said，Diagnosed early，Everybody needs some time to adapt。This is their most vulnerable of the psychological，Very easy to want、Easily bore tip of。Some people even collapse。

　　艾滋病感染者普遍都会感到无助。在听了《法制日报》记者转述的关于刘进和风雷的遭遇后，天津志愿者陈冬给记者拿出了数据为证——在他接触的千余名感染者中，有50%的人选择沉默。他们不知道该如何告诉家人和周围的朋友。

People infected with HIV common will feel helpless。In the listening to《Legal daily》The reporter of conveying LiuJin and the experience of this about，Tianjin volunteers ChenDong give reporters took out data for card-in his contact with more than infected people，50% of people choose silence。They don't know how to tell my family and friends。

　　风雷就曾对记者这样说过：“我没有告诉家里人。我姐姐也只知道我是同性恋。”

Hoop had reporters have said so：“I didn't tell her family。My sister is only know that I am gay。”

　　社会的歧视和孤立，加强了艾滋病感染者的边缘感；消极和孤独又会加速摧毁艾滋病人的整体免疫力。

Social discrimination and isolated，To strengthen the sense of the edge of people infected with HIV；Negative and lonely and will accelerate to destroy the whole AIDS immunity。

　　一些感染者的机会性感染都是双重感染，比如同时感染淋病、梅毒、乙肝等。因为抵抗力差、心情不好，感染者机会性感染治愈的周期要比正常人长许多。

Some people with opportunistic infections are double infection，Such as infection and gonorrhea、syphilis、Such as hepatitis b。Because poor resistance、In a bad mood，Opportunistic infections cure cycle than normal to long many。

　　因此，适当的心理干预，至少能够延缓他们的生命，让他们有更长的存活期。

so，Proper psychological intervention，At least able to slow down their life，Let them have far more long。

　　在确诊初期，如果有社会学者或心理学者立即介入，让感染者能有一个疏导的出口，可以帮他们树立正确、积极的人生观，不去再感染别人。但艾滋病感染者的心理干预在中国是缺失的。

In the early diagnosis，If there is a social scholars or psychologist immediate intervention，Let infections can have a channel of export，Can help them to establish a correct、Positive outlook on life，Don't go to infect other people。But people infected with HIV in China psychological intervention is missing。

　　回忆4年前刚被确诊的情形，刘进说：“我当时不敢相信，根本不可能啊！”后来刘进才知道，他在外地打工时找的新女友，是艾滋病感染者。

Four years ago has just been diagnosed memories of the case，LiuJin said：“At that time, I can't believe it，Impossible！”Later LiuJin just know，When working in the field for his new girlfriend，Is AIDS infections。

　　“得了这个病，一想到85岁的奶奶和14岁的女儿，眼泪就往下掉。”刘进觉得那时候自己像神经病一样。

“Had the disease，The thought of 85-year-old grandma and 14 year old daughter，Tears went off。”LiuJin feel that the time they like a nut。

　　“两年前，刚知道自己得了艾滋病的时候，特别恐惧。因为不知道自己还能活多久。”风雷把自己关在家里连着打了几天游戏。

“Two years ago，Just know they got AIDS，Special fear。Because don't know how long you can live。”Hoop keep yourself at home for a few days playing with a game。

　　日子还得继续，风雷振作起来。他来到北京佑安医院的爱心家园，在这里，风雷成为一名艾滋病志愿者。

The day goes on，Hoop up。He came to Beijing youan hospital love, home，here，Should be a AIDS volunteers。

　　在爱心家园，对于那些刚被确诊的艾滋病感染者，风雷和其他志愿者都会与他们单线联系。

In love home，For those who just diagnosed people infected with HIV，Hoop and other volunteers will and they wired connection。

　　因为有着“过来人”的感同身受，志愿者们更容易取得病友们的信任与亲近。风雷说，我们会第一时间安抚他们的情绪，听他们倾诉，告诉他们对这个病的正确认识。

Because it has“A n experienced person”Of empathy，The volunteers more easily get ward mates of trust and close。Hoop said，We will be the first time appease their emotions，Listening to them talk，Tell them to the correct understanding of the disease。

　　“孤独、彷徨、恐惧、无助，这些感觉每时每刻都侵蚀着艾滋病感染者的心灵。可以说，艾滋病感染者都是在绝望中度过每一个夜晚的。”陈冬说。

“lonely、stray、fear、helpless，These feel every moment of eroding the heart of people infected with HIV。Can say，HIV infections are in despair spend every night。”ChenDong said。

　　

寻求温暖 Seek warm

　　

“请给我一个拥抱” “Please give me a hug”

　　电影《最爱》里，郭富城帮路人捡起掉在地上的烟，把对方吓得落荒而逃；章子怡蹲在地上收拾行李，婆婆朝她的箱子一脚踢去。这是中国第一部以艾滋病感染者为主人公的电影。

The movie《love》in，Guo fucheng help passers-by to pick up dropped in the smoke，Take each other frighten be defeated and flee；Zhang ziyi squat down in the ground pack up，The mother-in-law at her box a kick。This is the first Chinese to people with HIV hero for a movie。

　　电影的表达源自现实。

The expression of the movie from reality。

　　艾滋病感染者和病人最害怕什么？

People infected with HIV and the most afraid of??????？

　　“身份暴露。”

“Identity exposure。”

　　为什么？

why？

　　“怕被歧视。”

“Afraid to be discrimination。”

　　在记者的采访中，所有感染者的答案都是如此。

With the reporter's interview，All of the infected people, the answer is so。

　　刘进甚至觉得，歧视有时候比死亡更可怕。“这个病已经让人很痛苦了，再被歧视心里受不了。”

LiuJin even think，Discrimination sometimes worse than death。“The disease has been painful，Be discrimination in the heart can't stand it。”

　　刘进说，他现在买生活用品都去镇里的超市，“因为镇里没人认识我”。去村里的超市，一看到他“人们都跑开了”。

LiuJin said，He now buy supplies go to the town supermarket，“Because no one know my town”。Go to the supermarket in the village，A see him“People run away”。

　　如果不是艾滋病，35岁的刘进不过是湮没在成千上万外出打工的农民中的一员。现在，正值青壮年的刘进基本丧失了劳动力，他的右腿经常没有知觉。

If not HIV/AIDS，35 years old LiuJin but is lost in the hundreds of thousands of working out of a member of the farmers。now，When the young LiuJin basic loss Labour，His right leg is often no consciousness。

　　“在村里，我们是被孤立的人，没人说话、没人来往。我们娘仨一般不出门，就在家呆着。”刘进觉得闷得很。

“In the village，We are being isolated，No one to speak、Don't associate with people。We don't usually go out niang sa，Just to stay at home。”LiuJin very boring。

　　半年前，刘进见到了杨毛党(化名)——外村的一名艾滋病感染者，惟一一个与他交流的人。“杨毛党让村里人拿棍子打出来不让进村，脸都打破了。”刘进说。

Six months ago，Liu JinJian to YangMao party(aliases)Outside the village-an AIDS infections，The only one to communicate with him。“YangMao party let everyone playing with a stick out not to let her few remaining，Face all broke。”LiuJin said。

　　对于村民的过激反应，刘进说，在我们农村，都认为这个病是传染病，得了就会死。我们农村也没有关于艾滋病预防知识的宣传。

For the villagers' overheated reaction，LiuJin said，In our rural，All think the disease is infectious diseases，Got will be dead。We rural, with no AIDS prevention knowledge propaganda。

　　2010年11月28日，旨在探寻“人与艾滋病关系”的“绝对距离”当代艺术展启动仪式在北京草场地国际艺术村举行。记者在现场目睹，一位艾滋病感染者套在羽绒服外面的白T恤上写着：“我是艾滋病感染者，请给我一个拥抱”。但始终无人回应。

November 28, 2010，Aims to explore“People with AIDS relationship”of“Absolute distance”Contemporary art at the launching ceremony in Beijing international art village good pasture, and the land was held。Reporters on the scene to see，A people infected with HIV set down in the outside, writing on the white T-shirt：“I'm people infected with HIV，Please give me a hug”。But always no one wants to respond。

　　事实上，艾滋病感染者需要的绝不仅仅只是一个拥抱，而是普通人真正从内心去接纳他们。

In fact，People infected with HIV need not only a hug，But ordinary people to accept their true from the heart。

　　他们看重的是权利，这个权利是个人尊严、社会地位、被团体接纳和平等地对待。

They value is right，This right is a human dignity、Social status、By the group and to accept。

　　歧视存在于生活中和工作中，甚至是就医时。这导致艾滋病病人和感染者得到的是有限的医疗和关怀。

Discrimination exists in life and work，Even when go to a doctor。This causes AIDS and HIV patients get is the limited medical and care。

　　特别是女性感染者，她们会比男性遭受更多的歧视和污名，承担更多的压力。

Especially women infected with HIV，They will suffer more than men of stigma and discrimination，Take more pressure。

　　“消除歧视，从根本上说应该先从医疗行业开始。”爱心家园的志愿者小段对记者说。

“Eliminate discrimination，Basically should start from the medical industry started。”Love the volunteers for small home told reporters。

　　去一般医院就诊，一旦被检测出感染HIV,医院会让感染者去几家定点医院就诊。但问题是，如果需要手术，几家定点医院并不是所有手术都可以包揽。

To general hospital，Once tested HIV infection,The hospital will make infected people go to a few designated hospital。But the problem is，If need surgery，Several designated hospital and not all surgery can be won。

　　“我们会联系其他医院可以做这种手术的医生，邀请他们给病人会诊。但80%到90%都会遭到拒绝。”小段说。

“We will make contact with other hospital can do this kind of surgery doctors，Invite them to patients consultation。But 80% to 90% will be refused。”The small segment said。

　　两年前，由于长期腹泻，刘进患了肛周脓肿。第一次，去县里一家医院，刘进主动告知医生他是艾滋病感染者。这家县级医院拒绝手术。

Two years ago，Due to long-term diarrhea，LiuJin had anus week abscess。first，Go to a hospital in the county，LiuJin active told the doctor he is people infected with HIV。The county hospital refused to surgery。

　　第二次，刘进隐瞒了病情。在另一家医院，刘进顺利地进行了手术。

The second，LiuJin conceal the illness。In another hospital，LiuJin smoothly carry on the operation。

　　为何在医疗机构也存在如此严重的歧视？“医务人员缺乏艾滋病教育和全面防护能力的培训，是医疗机构存在歧视的重要原因。”公共卫生(艾滋病防治)专家常山给了记者这样的答案。

Why in medical institutions also have so serious discrimination？“Lack of AIDS education and medical personnel comprehensive protection ability training，Is medical organizations are the important reasons for discrimination。”Public health(HIV/AIDS prevention and control)Experts gave a reporter supplying multinational oems' divisions that answer。

　　歧视，把普通人和艾滋病感染者割裂成我们、他们。而他们的故事，他们的世界，他们的生活并不为普通人所了解。

discrimination，The ordinary people and people infected with HIV lacerate into us、they。And their story，Their world，Their life is not for ordinary people understand。

　　他们中的一部分人有着两个不同的圈子：一个是正常的圈子，周围的人不知道他们是感染者，他们正常地工作和生活；一个是病友的圈子，他们在一起相互取暖、相互扶持。病友们习惯说，“圈子里的人”。

Some of them have two different circles：A circle is normal，The people don't know they are around infected，They normally work and life；One is the circle of the patients，They each other together for warmth、Support mutually。Ward mates used to say，“Circle to the people in the”。

　　

无歧视环境 Without discrimination environment

　　

“他们和我们一样” “They're just like us”

　　在爱心家园，记者看到，志愿者们阳光而亲和，他们脸上溢满微笑，他们友善地对待每个人。“可能我们血液里流着同一种东西，所以我们更加懂得团结友爱。”

In love home，The reporter sees，The volunteers sunshine and affinity，They face is full smile，They friendly with everyone。“May we blood flow to the same thing，So we know more unity and friendship。”

　　目前，中国艾滋病感染者和病人数约占全球的五十分之一，仍属于低流行国家。但是，中国局部地区和特定人群艾滋病发病率较高，特别是男性同性性传播上升速度明显。

At present，Chinese people infected with HIV and accounts for about one over fifty of the third world，Still belong to low popular country。but，China local areas and certain population higher incidence of HIV/AIDS，Particularly men spread gay sex rise speed greatly。

　　在现阶段，歧视成为艾滋病防治工作的最大障碍之一，这使得无法找到感染人群是中国面临的最大问题。

At present，Discrimination against HIV/AIDS prevention and control work become one of the biggest obstacles，This makes cannot find infected people is China's biggest problems。

　　对艾滋病的无知、对死亡的恐惧以及早期对艾滋病的妖魔化宣传带来的道德谴责，这是造成歧视的源头。

The ignorance of AIDS、The fear of death and the early stage of the propaganda of AIDS to demonize bring moral condemnation，This is cause discrimination of the source。

　　“其实，艾滋病与职业、文化程度都没有关系，它就是一种病。谁都有可能被感染。”志愿者小段说。

“In fact，AIDS and professional、Cultural degree didn't matter，It is a kind of disease。Anyone could be infected。”Volunteers paragraph said。

　　尽管政府在艾滋病防治方面的宣传力度不断加大，更多公众知道了艾滋病的传播途径主要是“性、血液和母婴传播”。但是，很少有人知道，通过长期服用药物，艾滋病感染者是可以维持寿命，并和正常人一样的生活。

Although the government in AIDS prevention and propaganda is increasing continuously，More public know the spread of AIDS is main approaches“sex、Blood and mother-to-child transmission”。but，Few know，Through the long-term use of drugs，People infected with HIV is can maintain life，And the life of the normal person。

　　也就是说，像糖尿病、高血压一样，艾滋病已经从一种致死性疾病变为一种可控的慢性病。“早发现、早治疗。药一定要按时吃。”这是风雷不断重复的一句话。

That is，Like diabetes、As high blood pressure，AIDS has gone from a deadly disease into a controlled chronic diseases。“Early detection、Early treatment。Medicine must eat on time。”This is the repeated this word。

　　常山多年从事艾滋病防治工作。他告诉记者，性安全非常重要，安全套是非常有效的预防措施。“除医疗场所传播艾滋病外，艾滋病是我们每个人可以预防的。所以，我们不需要对艾滋病有太多恐慌。”

Years of experience in HIV/AIDS prevention and control work supplying multinational oems' divisions。He told reporters，Sex security is very important，Condom is very effective preventive measures。“In addition to medical treatment place the spread of AIDS，AIDS is every one of us can be prevented。so，We don't need to AIDS have too much panic。”

　　他建议，学校要有性教育和艾滋病教育。娱乐场所、交友场所，要提供性安全，保证安全套随时随地很方便获得。

He suggested that，The school education and AIDS education to sex。entertainment、Place to make friends，To provide safe sex，Condom guarantee at any time and place for very convenient。

　　“感染者需要的是来自医生的更好的治疗、来自法律的无歧视环境、来自政府的更好的关怀政策，他们不需要正常人的特殊对待。”一位志愿者说。

“Infected people need is from the doctor's better treatment、From the legal environment without discrimination、From the government's better care policy，They don't need a normal special treatment。”A volunteer said。

　　然而，除去观念上的歧视，相关立法保护也依然薄弱。一些法律、法规与《中华人民共和国传染病防治法》和《艾滋病防治条例》中的相关条款存在矛盾和冲突，对艾滋病病毒感染者存在不合理限制。

however，Remove the idea the discrimination，Related legislation protection is still poor。Some legal、Regulations and《The People's Republic of contagious diseases》and《The regulations on AIDS prevention and control》The relevant terms the contradiction and conflict，HIV infections unreasonable restriction exists。

　　比如，《公务员录用体检通用标准》(试行)，将艾滋病和“淋病、梅毒、生殖器疱疹”等列为“不合格”。仅这一条体检标准，就剥夺了感染者成为一名公务员的权利。

For example，《Civil servants employed standard medical examination》(trial)，Will AIDS and“gonorrhea、syphilis、Genital herpes”Etc as“Not qualified”。Only this a medical standards，It deprived become a civil servants infected rights。

　　“他们(艾滋病感染者)和我们一样，就是生病了。谁都会生病，他们的痛苦一定有越来越多的人会懂。”一位80后大学生志愿者在3年的防艾志愿者工作中，开始了理性的换位思考。

“they(People infected with HIV)And we，Is ill。Who will be sick，Their pain there must be more and more people will understand。”A 80 college students volunteer after 3 years--the volunteer work，Start a rational empathy。

　　“只要严格按要求吃药，病毒就能控制住。其实，我们和普通人一样。”风雷说。(记者廉颖婷)

“As long as strictly according to requirements to take some medicine，The virus can control。In fact，We and man of the people。”Hoop said。(Reporter LianYingTing)