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90后重症女孩病情恶化 父母整日为医疗费奔波--亲稳网络舆情监控室
2012-08-10

  20岁,如花的生命,却遭遇“急性肾衰竭重症”病魔;在医院精心治疗、社会各界爱心接力救助、求生渴望坚强支撑下,病情曾一度出现“奇迹般”好转;时隔近一年,未料想病情再度恶化,父母及整个家庭再度陷入为高额治疗费用奔波境地。

20 years old,Such as flower of life,Has been“Severe acute renal failure”disease;In the hospital treatment、The social from all walks of life love relay relief、Survival eager to strong support,Illness once appear“miracle”better;After nearly a year,Not expected condition worse again,The parents and the family be thrown into treatment costs for high rush about situation。

  8月8日,新华网记者来到北京309医院,见到了在这家医院接受透析治疗的江西南昌90后患重症女大学生尚月梅。

August 8,,Xinhuanet Beijing 309 reporters arrived at the hospital,Met in this hospital receiving dialysis treatment for severe in jiangxi province nanchang 90 female college students is still months may。

  正值伦敦奥运会期间,记者走进病房的时候,尚月梅正静静地躺在床上收看奥运赛事。尚月梅告诉记者,这是最近一段时间自己最大的乐趣,只要不呕吐不难受,她都会认真收看每一场比赛,“看着运动员跑啊跳啊,心里说不出的羡慕。”

When London during the Olympic Games,The reporter walks into the room,On MeiZheng is quietly lying in bed watching the Olympic Games。Still month may told reporters,This is the most recent period of their biggest fun,As long as it does not vomit not uncomfortable,She will be watching carefully every game,“Looking at athletes run and dancing,Heart with envy。”

  目前,除透析治疗外,尚月梅还需到北京大学第一医院门诊进行治疗。在北京大学第一医院,记者采访了尚月梅的主治大夫曲贞。据曲贞介绍,尚月梅的呕吐一直止不住,除了和肾衰竭本身引起的胃肠道反应、营养不足有关,也有可能和精神压力有关,长时间的持续性呕吐给病人的精神状态带来了无限的影响。

At present,In addition to the dialysis treatment,On may still need to is the first hospital, Beijing university, outpatient clinic treatment。The first hospital in Beijing university,The reporter interviewed on the attending doctor mei is QuZhen。According to QuZhen introduced,On may still have been uncontrolled vomiting,In addition to and kidney failure itself that causes gastrointestinal reaction、Nutritional deficiency,May and stress related,Long time of persistent vomiting to the patient's mental state brought infinite influence。

  “尚月梅现在的原发病症(抗肾小球基底膜炎)比较稳定,但是肾功能无法完全恢复,需要继续做血液透析。等过了观察期,如果有足够资金和匹配的肾源,换肾是最彻底的办法,否则只能进行长年的透析治疗。”曲贞说。

“On may now is the primary disease(Resistance to glomerular basement membrane inflammation)Relatively stable,But kidney function can't fully recovered,Need to continue to do hemodialysis。Wait until after the observation period,If have enough money and matching of kidney source,Change is the most thorough way to kidney,Or you can only carry on the years of dialysis。”QuZhen said。

  尚月梅的姐姐告诉记者,“因为呕吐症,尚月梅刚好转一点能吃两口东西,就全部又吐了出来,主要靠输液维持基本体能,1米6的个子,现在体重只有35公斤。”

On may sister is told reporters,“Because vomiting disease,On point MeiGang is better to eat two things,All and spit it out,Mainly by infusion maintain basic physical strength,1 m 6 is,Now only 35 kg weight。”

  近一年,对于尚月梅来说,可谓“恍如隔世”。谈起治疗经历,尚月梅眼泪止不住地流了下来。

Nearly a year,For it is still months may,is“Seemed such a long time ago now”。Talk about treatment experience,On may still tears surge flow down。

  去年9月,老家在山西忻州市宁武县的尚月梅突感身体不适,随父母赴京到北京大学第一医院肾内科治疗,被确诊为患急性肾衰竭重症,“命悬一线”,医院经过专家会诊确定血浆置换和血液透析治疗方案。新华网记者获知后迅速赶赴医院采访,首发报道《90后女大学生身患能治重症却命悬一线》后,并推出追踪报道《90后重症女大学生牵动网友心》《网友寄语90后患重病女大学生尚月梅:“坚强面对,战胜病魔”》等。报道发出后,尚月梅得到了社会各界人士的关注。从北京的在校大学生到来北京旅游的游客,从北大医院的医生病友到微博上素不相识的网民,人们纷纷向尚月梅伸出援助之手,很多人专程赶到医院病房看望鼓励尚月梅,或送来各种贴心的小礼物,或留下数量不等的现金。

Last September,Their hometown in shanxi xinzhou city NingWuXian is of sudden feeling on May not fit,With the parents went to Beijing to Beijing university first hospital renal medicine treatment,Diagnosed with acute renal failure completely severe,“Hanging by a thread”,The hospital after specialists determine plasma exchange and blood dialysis treatments。Xinhua net reporter learned quickly to the hospital after the interview,Starting reported《90 female university students after suffering from severe can cure is hanging by a thread》after,And introduction of tracking report《90 female university students after severe affects the heart》《Net friend message for 90 female college students on mei is seriously ill:“Strong face,Beat the disease”》etc。Report issued,On may still get the attention from all circles。From Beijing college students coming Beijing tourism tourists,Hospital doctor patients from north to the blog complete web users,People in succession to still month may lend a helping hand,Many people here just hurried to the hospital ward visit encourage is still months may,Or send all kinds of sweet little gift,Or leave any number of cash。

  在此后的数月里,尚月梅在北京大学第一医院经历数十次持续性的血浆置换和血液透析后,病情一度出现稳定,进入非持续性血液透析和药物治疗的观察治疗阶段。

In the months since,On may in Beijing university is the first hospital experience dozens of times the sustainability of plasma exchange and blood dialysis,At one time there's stability,Into the persistent blood dialysis and drug therapy, the observed treatment phase。

  今年2月,尚月梅肾功能出现部分恢复,可以脱离透析治疗,代之以药物治疗。人们一度坚信,尚月梅从“鬼门关”走了出来。当时北大医院肾内科副主任周福德告诉记者:“尚月梅创造了一个奇迹。”

February,On may appear renal function is part of the recovery,Can from dialysis,Instead of drugs。People once firmly believe that,Is still months from may“Guimen pass”Came out。When Peking University hospital renal medicine, deputy director of the ZhouFuDe told reporters:“On may still has created a miracle。”

  6月,尚月梅曾短暂回家,未料病情再度恶化,迅即随父母再回到北京治疗。

June,On may still had briefly home,Not material condition worse again,As with the parents to come back to Beijing treatment。

  女儿是母亲身上掉下的一块肉。从尚月梅发病到今年6月,60多岁的父母亲一直守在女儿身边。看着女儿经常昏迷、呕吐高烧不止、用药浮肿脸变了样,母亲李玉莲曾告诉记者:“恨自己不能代替女儿‘遭这些罪’”。

His daughter is on mother drop down of a piece of meat。On may come on is from June this year,More than 60 years old parents have been kept in the daughter's side。Looking at daughter often coma、Vomiting high fever more than、Drug use bloated face changed,Mother LiYuLian had told reporters:“Can not replace the hate their daughter‘Sin by these’”。

  尚月梅的姐姐告诉记者,这一年,为给妹妹治病,家里把能借的亲戚朋友都借遍了,加上好心人的资助,前前后后花了四十多万元。父母在北京时曾一边陪着尚月梅,一边靠捡破烂维持生活。

On may sister is told reporters,This year,To heal for his sister,The home can borrow relatives and friends are borrow times,With good intention funding,Eureka moments spent forty more than ten thousand yuan。Parents in Beijing have side with is still months may,Side by JianPoLan to maintain life。

  “老人前几天离开北京,回老家想办法筹钱。父亲在家急得心脏病发作了。”尚月梅的姐姐说,“现在我还不敢把这消息告诉妹妹,怕她担心,影响治疗。我们咨询过,做肾移植费用大概在50万元左右。我们也不知道能不能撑到那一天。”

“The old man left Beijing a few days ago,Back to think of a way to raise money。Father at home very anxious heart attack。”Is the sister said on May,“Now, I can't put this news told my sister,Afraid of her worry,Affect the treatment。We consulted a,Do kidney transplantation in cost is about 500000 yuan。We also don't know if I can hold to that day。”

  谈起年老的父母,尚月梅流着泪说:“父母年纪大了,还要整日为我的高额医疗费奔波。一年了,病痛我不怕,但看着父母这么辛苦,有时候都很想放弃。”

Talk about the elderly parents,On MeiLiu is tears to say:“Older parents,And for my expensive treatment all day anyway。A year,Sickness I am not afraid,But look at the parents work so hard,Sometimes all wanted to give up。”

  记者握住尚月梅的手说:“你一定要坚强。相信你一定能战胜病魔。”

The reporter is holding on May hand said:“You have to be strong。Believe that you can beat the disease。”

  新华网将持续关注尚月梅的病情治疗进展情况。(附:尚月梅哥哥尚喜军联系方式 13367088883)(记者陈元 王湄)

Xinhua net concern on the condition of mei is treatment on progress。(attached:On may ShangXiJun brother is contact method 13367088883)(Reporter ChenYuan Mei king)


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