站上中国梦想秀舞台5岁女儿肝硬化晚期 On the Chinese dream show stage 5 years old daughter late liver cirrhosis

　　

母亲隐瞒病情5年 Mother hide condition for five years

　　

其实，我们也有一个梦想：她能等到合适肝源 In fact,We also have a dream:She can wait until the right liver source

　　“为什么我的肚子那么大？”

"Why my stomach so big?"

　　“因为里面有一条小虫”

"Because there is a small bug"

　　“为什么我肚子上有一条疤？”

"Why in my stomach has a scar?"

　　“那是天使留下的痕迹”

"That is an angel tracks"

　　站上中国梦想秀舞台

On the Chinese dream show stage

　　5岁女儿肝硬化晚期

5 years old daughter late liver cirrhosis

　　母亲隐瞒病情5年

Mother hide condition for five years

　　其实，我们也有一个梦想：她能等到合适肝源

In fact,We also have a dream:She can wait until the right liver source

　　也许，你在浙江卫视《中国梦想秀》的舞台上见过这个女孩———她叫熊嘉琪，今年5岁，来自重庆，唱歌跳舞特别可爱。然而，身体瘦小的她，肚皮却有点鼓。原来，小嘉琪出生起就患有先天性胆道闭锁，目前已发展为中晚期肝硬化。

maybe,You in zhejiang satellite TV[China's dream show]On the stage of seen the girl --, her name is XiongJiaQi,5 years old this year,From chongqing,Singing and dancing special lovely.however,Thin body of her,Belly but a little bit drum.The original,Small fine jade birth have congenital biliary atresia,At present has developed for middle-late cirrhosis of the liver.

　　被病痛折磨的女孩，为何到处登台表演，这里面有什么内幕？一时间，网上对此议论纷纷。

Be indisposition suffers girl,Why the stage show everywhere,Inside this what's the catch?time,This online comment in succession.

　　昨天，重庆晚报记者通过多方打探终于联系上小嘉琪的母亲漆家清，揭开了女孩背后特殊的身世与故事。

yesterday,Chongqing evening news reporter through the polytropic bug finally contact small fine jade mother paint home clear,The girl behind the special life and story.

　　

关于病魔 About the disease

　　

关于谎言 About lies

　　

先天胆道闭锁，目前中晚期肝硬化 Congenital biliary atresia,At present middle-late cirrhosis of the liver

　　漆家清和丈夫家住九龙坡区西彭镇西竹街，一栋居民楼的8楼，两口子感情一直不错。2006年，漆家清怀孕了。那年她33岁，是一名高龄产妇。

Paint home and her husband in jiulongpo district west peng town west bamboo street,A house of into 8 floor,The couple has always been good feelings.In 2006,,Paint home clear pregnant.That year she 33,Is one of the oldest woman.

　　2007年4月，在夫妇俩的期盼下，小嘉琪顺利地出生了。“我们都很高兴，对女儿的呵护也是无微不至，但很快，我们发现女儿有些不对劲。”漆家清回忆称，女儿生下来就特别爱哭，而且不爱吃奶。

In April 2007,In the couple's expected,Small fine jade successfully was born."We are all very happy,To her care is also meticulously,But soon,We found that something's wrong with his daughter."Paint home clear memory says,Daughter was born special crying,And do not love to eat milk.

　　刚开始，漆家清和丈夫以为是女儿太调皮，并没在意。不久，女儿出现了黄疸症状，他们才着了慌，马上将女儿抱到医院检查———小嘉琪被诊断为先天性胆道闭锁。

Just began to,Paint home and her husband thought is so naughty daughter,And didn't care.soon,Daughter with jaudice symptoms,They just the panic,Daughter will soon be held to the hospital the examination -- small fine jade were diagnosed with congenital biliary atresia.

　　“87天的时候，女儿就做了第一次手术，肚皮上留下了一条疤痕。”漆家清回忆，一岁以前，小嘉琪皮肤很黄，经常发烧，随时随地都要准备住院。

"When 87 days,Daughter was made the first operation,The belly has left a scar."Paint home clear memory,Before one year old,Small fine jade skin is yellow,Often have a fever,At any time and place to prepare in hospital.

　　“5年来，女儿住过了上海、北京的不少医院，病情却没能得到遏制。”漆家清说，目前，小嘉琪的病情已经演变为肝硬化中晚期，必须进行肝移植手术。

"Five years,Daughter lived in Shanghai/Beijing's many hospitals,The state of an illness is can't be contained."Paint home qing said,At present,Small fine jade illness has evolved to liver cirrhosis of mid and late stage,Must be liver transplant.

　　

关于谎言 About lies

　　

为让女儿更快乐，5年编织爱的谎言 For let daughter more happy,5 years knitting love lie

　　5年来，对于自己的病情，小嘉琪却一点都不了解。“女儿动第一次手术时，同病房的有5个孩子，现在走了3个。我总觉得，孩子们知道自己病情后，精神上受了打击。”漆家清说，为了让女儿的心态跟正常孩子一样，她打定主意将病情隐瞒到底。

Five years,For his illness,Small fine jade but do not understand."Daughter moving his first operation,With ward had five children,Go now for three.I always think,The children know that their condition after the,Mental suffering a stroke."Paint home qing said,In order to let her daughter's mentality and normal children,She determined to hide the illness.

　　“妈妈，为什么我肚子上有一条疤痕呢？”小嘉琪懂事后，常常睁着天真的大眼睛问。

"mother,Why in my stomach has a scar?"Small fine jade after reasonable,Often open the innocent eyes asked.

　　“那是天使留下的痕迹，天使才有的哦。”漆家清说。

"That is an angel tracks,Angel just some oh."Paint home qing said.

　　“为什么我的肚皮这么大？”小嘉琪又问。

"Why does my belly so big?"Small fine jade ask again.

　　“因为你的小肚子里有一条小虫，所以才那么大。虫子不除掉，你就不能像别的娃娃那样，吃冰激淋，吃酸辣粉。”漆家清说。

"Because of your little stomach has a bug,Why is it so big.Bugs don't get rid of,Can't you like other dolls that,Eat ice cream,Eat hot and sour powder."Paint home qing said.

　　“那为什么别的小朋友都不吃药，我要天天吃？”小嘉琪又问。

"Why do the other children do not take medicine,Every day will I eat?"Small fine jade ask again.

　　“因为打虫要动手术，不吃药达不到手术条件。等以后我们做了手术，就不用再吃药了。”漆家清说。

"Because play bug is going to have surgery,Do not take medicine can not reach the operation conditions.And then we had the surgery,Don't have to take medicine."Paint home qing said.

　　久而久之，小嘉琪习惯了每天吃药。“有时我忘记给她吃药，她还会反过来提醒我。”漆家清说。

As time passes,Small fine jade accustomed to take medicine every day."Sometimes I forget to give her to take medicine,She also in turn will remind me."Paint home qing said.