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小儿癫痫莫擅自减药停药--亲稳网络舆情监控室
2013-05-13
(Gettyimages供图)
(For Gettyimages figure)
医生会根据患者癫痫发作的类型来选择对应的药物,只要规范用药,定期做好监测,是比较安全的
The doctor will choose according to the type of seizures in patients with corresponding drugs,As long as the standard medication,Ready to monitor on a regular basis,Is safer
本报讯 (记者莫冠婷 通讯员 林惠芳)4岁的迅迅有一次在幼儿园和其他小朋友玩耍时突然一声尖叫,倒在地上全身抽搐、口吐白沫,几分钟后呼呼大睡,送医院检查被诊断为癫痫发作。这个消息对家长来说如同晴天霹雳,妈妈关女士十分沮丧,非常担心孩子以后长期服用抗癫痫药物会对智力等造成不良影响。
Report from our correspondent (The reporter MoGuanTing correspondent Lin Huifang)4, rapidly once playing with other children in kindergarten a sudden scream,Fell to the ground the whole body twitch/Foaming at the mouth,Sleep in a few minutes,To a hospital inspection diagnosed with epilepsy.The news like a bolt from the blue for parents,Mother guan was frustrated,Very worry about children after long-term use of antiepileptic drugs can cause bad influence on intelligence, etc.
专家表示,癫痫的药物治疗一般需要2~4年左右,但家长不必过于担忧。医生会根据患者癫痫发作的类型来选择对应的抗癫痫药,只要规范用药,定期做好检查监测,是相对比较安全的。此外,一旦孩子患上癫痫,家长要注意摆正心态——癫痫是可以控制的。如果家长心态不够端正,也可能会对孩子的成长造成一定程度的负面影响。
Experts say,Epilepsy medications generally need 2 ~ 4 years or so,But parents don't have to worry too much about.The doctor will choose according to the type of seizures in patients with antiepileptic drugs,As long as the standard medication,Regular inspection of monitoring,Is relatively safe.In addition,Once the children suffering from epilepsy,Parents should pay attention to adjust state of mind - epilepsy can be controlled.If parents attitude is not correct,May also caused a certain degree of negative impact on the growth of children.
送患者去医院时
Take patients to the hospital
须保持呼吸道通畅
Must keep the airway open
广东省妇幼保健院儿童医学康复科主任常燕群主任医师介绍,癫痫是儿科常见的一种神经系统疾病,它是由于大脑神经元突发性异常放电,导致短暂的大脑功能障碍的一种慢性疾病。造成癫痫的病因复杂多样,包括遗传因素、先天性脑部发育异常、颅脑肿瘤、颅内感染、颅脑外伤、脑血管异常等。
Guangdong Chang Yanqun chief physician, director of the health care of women and children medical rehabilitation division is introduced,Epilepsy is one of pediatric common diseases of the nervous system,It is due to the sudden abnormal discharge of brain neurons,In short a chronic disease of brain dysfunction.Cause the cause of epilepsy is complicated,Including genetic factors,/The development of congenital brain abnormalities/Cerebral tumor/Intracranial infection/Traumatic brain injury/Cerebrovascular abnormality, etc..
当听到小孩突然尖叫一声,倒在地上口吐白沫、全身抽搐、两眼上翻时,不要惊慌失措,应保持冷静。
When I heard children suddenly with a scream,Fell to the ground foaming at the mouth/The whole body twitching/When two eyes on the turn,Don't panic,Should keep calm.
在把孩子送院前,可简单地做一些处理:1.首先让孩子平卧并把头转向一侧,检查呼吸是否平稳,呼吸道是否通畅,如果鼻腔内有分泌物要先将它们清除;2.观察孩子发作时持续的时间及发作时的表现,一般癫痫的孩子在发作时持续几分钟后就会自行缓解,等缓解之后再送院;如果超过5分钟还未见缓解,则要马上送院。在送院途中,注意保持孩子呼吸道通畅。3.医生接诊后,家长或目击者应冷静地将孩子发作时的表现及持续的时间、是否伴有发热等信息详细地反馈给医生,这些信息能帮助医生作出是否癫痫发作的重要依据。同时,医生一般会给孩子做脑电图,帮助诊断并且判断癫痫类型。
Before the child to hospital,Can simply do some processing:1. First of all, let the child lay down and turn your head to one side,Check whether the breathing is stable,Airway is obstructed,If inside nasal secretions to wash them away;2. Observe children onset duration and attack,General epilepsy of the children in the attack alleviate by oneself will last a few minutes,After easing to hospital again;If more than 5 minutes has yet to see relief,To hospital at once.In the hospital on the way,Pay attention to keep airway open.3. After the doctor,Parents or witnesses should calmly will children onset and the duration of the performance/If accompanied by fever, such as information feedback to the doctor in detail,If these information can help the doctor make the important basis of epileptic seizures.At the same time,Your doctor will give the child do electroencephalogram (eeg),Help diagnosis and judgment of seizure types.
擅自减药停药
Reducing drug withdrawal without authorization
或诱发癫痫大发作
Grand mal or induced
“一旦确诊为癫痫,药物治疗的时间是相对比较长的,大概需要2~4年。”常燕群表示,很多家长最担心的是抗癫痫药物会对大脑智力或身体其他方面造成影响,其实大可不必过于担忧。医生会根据患者癫痫发作的类型来选择对应的抗癫痫药,只要规范用药,掌握好剂量和适应症,定期做好检查监测,还是相对比较安全的。
"Once diagnosed with epilepsy,Drug treatment time is relatively long,Probably need to 2 ~ 4 years."Chang Yanqun said,Many parents worry about most is antiepileptic drugs can affect brain intelligence or other aspects of the body,Actually don't need to worry too much about.The doctor will choose according to the type of seizures in patients with antiepileptic drugs,As long as the standard medication,Grasp the dosage and indications,Regular inspection of monitoring,Or is relatively safe.
他提到,一些抗癫痫药对神经系统功能有影响,但是如果把药物的剂量适当调小一些,就可以减轻不良反应。如苯巴比妥对认知会有一定的影响,但是该药对婴幼儿期癫痫的治疗效果比较好,而且比较便宜经济。所以,有些小婴儿需要长期用药时,医生可能会选择苯巴比妥,同时做好各项监测,等宝宝3岁后或者需要接受教育时,再考虑用其他药物来代替。
He mentioned,Some antiepileptic drugs have an effect on the nervous system function,But if the drug dosage appropriate adjustment,Can reduce the adverse reaction.Such as phenobarbitone on cognitive will have certain effect,But the drug for infants and young children period epilepsy treatment effect is better,And cheaper.so,Some babies need medication for a long time,The doctor may choose to phenobarbital,At the same time do the monitoring,When waiting for a baby or you need to accept education after the age of 3,Consider to replace with other drugs.
还有一些抗癫痫药对肝肾功能等有一定的损害,如果小孩合并有肝损害(比如肝炎等),或本身存在有遗传代谢性疾病,要避免使用对肝肾功能有损害的抗癫痫药。家长要相信医生的治疗方案,切勿因惧怕抗癫痫药物的毒副作用而拒绝用药。
Some antiepileptic drugs have certain damage on liver and kidney function, etc,If a child with liver damage(Such as hepatitis, etc.),Some genetic metabolic diseases or itself exists,To avoid the use of antiepileptic drugs on liver and kidney function is damaged.Parents believe that the doctor's treatment,Don't because of fear of the side effects of antiepileptic drugs and refused to drugs.
此外,有些家长见小孩用药后症状缓解,便擅自停药或减药,这有可能会诱发癫痫大发作或者癫痫持续状态,对孩子的治疗非常不利。癫痫的药物治疗是一个长期过程,医生、患者及家属均需要有充分的耐心。家长应该严格遵循医生制定的个体化治疗方案,切勿病急乱投医,到处寻找所谓的“祖传秘方”。
In addition,Some parents see children of symptoms after medication,He stopped without medicine or drugs,This is likely to induce grand mal or status epilepticus,Treatment of children is very adverse.Epilepsy drug treatment is a long-term process,The doctor/The patient and family all need to have sufficient patience.Parents should strictly follow the doctor's individualized treatment plan,Do not grasping,Looking for the so-called"Ancestral secret recipe".
家长端正心态
Parents correct mindset
避免负面心理暗示
Avoid negative self-talk
常燕群还提醒,癫痫发作有一定的危险性,所以对家长和小孩的心理都会造成一定程度的不良影响。有些家长听到自己小孩患了癫痫,就觉得是一件非常恐惧和丢脸的事。家长如果过多地关注自己的面子问题,可能会在孩子的成长过程中无形地给他们传递这样一种信息:他的疾病给父母带来了尴尬或让父母没面子,这样会使孩子在成长中充满内疚和自责,或者因这个疾病而变得孤僻。一旦孩子不幸患上癫痫,家长要注意摆正心态,其实癫痫是可以控制的。
Chang Yanqun also remind,Epilepsy has certain risk,So the parents and the child's psychological will cause a certain degree of adverse effects.Some parents hear their children suffering from epilepsy,Think it is a very fear and disgrace.If too much on their parents face problems,May be in a child's growth process invisibly send such a message to them:He brought embarrassment or disease to the parents let parents face,This will make the child in the growth is full of guilt and remorse,Or become withdrawn due to the disease.Unfortunately once children suffering from epilepsy,Parents should pay attention to adjust state of mind,Epilepsy is actually can be controlled.
在预防癫痫上,新婚夫妇要做到优生优育,做好遗传咨询。孕期要避免病毒或细菌感染、避免辐射、定期做好产检、避免产伤,这些对预防继发性癫痫有重要意义。
On the prevention of epilepsy,Newlyweds to eugenics,Ready for genetic counseling.To avoid a virus or bacterial infection during pregnancy/To avoid radiation/Regular prenatal/Avoid maternal injuries,These have important significance on prevention of secondary epilepsy.
相关链接:
A link to the:
广州三家医院
Three hospitals in guangzhou
免费招募癫痫患者
Free to recruit people with epilepsy
本报讯 (记者冯冯)经国家食品药品监督管理局批准,一项针对癫痫患者的临床观察项目正在包括广州医学院第二附属医院、中山大学附属第三医院、广州医学院第一附属医院等全国20多家三甲医院的神经内科开展,对于符合条件的患者除可免费获得核磁共振等相关检查和治疗药物外,还可获得癫痫专家的悉心指导和精心治疗。
Report from our correspondent (The reporter feng feng)Approved by the state food and drug administration,A study of epilepsy in patients with clinical observation project is including the second affiliated hospital of guangzhou medical college/Third affiliated hospital of zhongshan university/Guangzhou first affiliated hospital, school of medicine, such as the national more than 20 of the 3 armour hospital neurology,For eligible patients in addition to the freely available outside the nuclear magnetic resonance (NMR) and other relevant examination and treatment,Can also be epileptic expert guidance and careful treatment.
如果您或您的亲友符合以下条件可报名参加:年龄在16周岁及以上,体重在40kg及以上,正在应用一至三种抗癫痫药物仍无法完全控制的癫痫患者。以上为部分入组条件,最终入选标准由医生掌握。
If you or your friends and family can enter meet the following conditions:Aged 16 and above,Weight in kg and above 40,Application is one to three kinds of antiepileptic drugs are still unable to fully control of epilepsy patients.Above for the part into the set of conditions,Inclusion criteria held by doctors in the end.
报名请先电话预约:020-87275696或400-630-3390(周一至周日9:00~17:30)。为保障医院的正常医疗秩序,未经预约者恕不接待。
Please sign up first telephone appointment:020-87275696 or 400-630-3390(From Monday to Sunday at 9 ~ 17:30pm).In order to guarantee the normal medical order of the hospital,Without an appointment will not be received.
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