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少女怪病缠身十年皮肤严重溃烂 尚无明确诊断(图)--亲稳网络舆情监测室
2012-08-08

  

阳春少女重病缠身广州区伯爱心接力 Spring girl very ill guangzhou area "love relay

  

在阳春、广州热心网友协助下,女孩昨日来到广州接受治疗 In the spring、Guangzhou enthusiastic help users,The girl came to guangzhou yesterday to receive treatment

  本是花季少女,但5岁的一场病让她身患皮肤顽疾,从此受尽病痛折磨。如今快15岁的她,体重不到20公斤,骨瘦如柴。8月7日中午,在广州、阳春两地热心网友的帮助下,这个不幸的女孩王敏转入广东省中医院芳村分院。院方诊断显示,目前她身患重度营养不良、中重度贫血,左侧大腿畸形。

This is adolescent girl,But the age of five a disease has often let her skin,From then on torture in sickness。Now almost 15 years old her,Weight of less than 20 kilograms,skinny。August 7, at noon,In guangzhou、Both warm-hearted solo under the help of the Internet,The bad girl written into the guangdong hospital fangcun sorting。The hospital diagnosis showed,At present she suffers from severe malnutrition、Moderate to severe anemia,The left thigh deformity。

  

怪病缠身十年 受尽各种折磨 Strange disease suffered by ten years of torture

  1997年10月出生的王敏是阳春马水镇人。“5岁时,毫无征兆地得了一种皮肤怪病。”王敏的母亲吴如丽哽咽着说,“先是额头上长了脓包,然后逐渐扩散到脸部、腿部,现在是全身多处皮肤严重溃烂。”过去九年,王敏的父母一直带着她到各地求医,民间偏方也都尝试过。“各家医院先后给出了粉瘤、肉芽瘤、孢子真菌感染等等不确定诊断,也有医生说病情罕见、病因复杂。”

In October 1997 the ma is born MaShuiZhen solo。“5 years,No warning from a skin strange disease。”Ma's mother WuRuLi SOB to say,“First the forehead long pustule,Then gradually spread to face、legs,Now the whole body is in serious skin decay。”Over the past nine years,The parents have been written with her doctor to all over the country,Folk remedies are also tried。“Various hospitals has given these atheromatous plaques、Granulation tumor、Spore fungus infection and so on not confirm the diagnosis,Also have the doctor said rare condition、Causes complex。”

  王敏的家人从未放弃。父亲王基棠曾在广州当建筑工,近年女儿病情每况愈下,王基棠也只能留在家中,一边耕作一边照料女儿。王敏还有一位刚念完高中的哥哥,“靠种田的微薄收入糊口,主要用于小敏的治疗费。”王基棠说,这些年,王敏的医药费花光了他们家所有的积蓄。直到去年,“广州有家医院说小敏的病可以在半年内治好,但可能需要二三十万元的医疗费。”他很是无奈,家里再也无钱无力让女儿接受这样的治疗。此后,“只能让小敏吃着一粒十几元钱的药,每天总共花四十几元的医药费。”

Ma family never give up。Father WangJiTang was in guangzhou when builders,In recent years, daughter condition was deteriorating,WangJiTang also can only stay at home,Side farming side care for her daughter。Ma and a just finished high school's brother,“The low income by farming family,Mainly used for the XiaoMin treatment。”WangJiTang said,For years,The medical expenses that ma spent their home savings。Until last year,“There is a hospital in guangzhou XiaoMin said the disease could be cured within half a year,But may need twenty or thirty ten thousand yuan medical treatment。”He is so helpless,Home to let daughter without the money no longer accept such treatment。Since then,“Only can let the XiaoMin eating a grain of more than ten yuan medicine,Every day in their 40 yuan medical cost。”

  今年7月,王敏的父母再次带女儿来广州看病。当时,“抱着小敏上厕所时,她的左腿就突然断掉了。”吴如丽潸然泪下,“家中已无钱去医治,没有医院愿意帮小敏接骨,后来只能由她老爸用木板把女儿的双腿夹住固定。”

July,Ma parents take my daughter to guangzhou again see a doctor。At that time,“Hold XiaoMin when using the toilet,Her left leg is suddenly blocked。”Wu such as li weep,“The home has no money to heal,No hospitals willing to help XiaoMin biomechanical placement,Only by her dad later with board of the daughter legs clamped fixed。”

  

阳春广州网友 联手爱心接力 Guangzhou net friend home to love relay

  眼看着女儿病入膏肓,双腿已经瘦得皮包骨头,懂事的王敏也只会在父亲为她擦中药膏时,轻轻地喊一声,“爸爸,我痛!”今年7月,王基棠找到“阳春在线”的网友寻求帮助。

Watched daughter gravely ill,His legs have is only skin and bones,The reasonable and ma also only will wipe for her father in the ointment,Gently to shout a voice,“dad,My pain!”July,WangJiTang find“Spring online”The net friend for help。

  在得知王敏的情况后,“阳春在线”的一群热心网友第一时间赶赴王敏家中。“看到小敏身上大大小小的疮疤,小的已经结痂了,大的有巴掌宽,肉都是向外翻出来,让人太心酸!”热心网友之一李先生说,几个网友讨论后,一边带王敏四处寻医,曾到过江门等地求诊,一边帮助王敏向当地红十字会申请款项,“能得到的善款太少了,当地的医疗条件也有限。”李先生很无奈。其间,也有热心人捐款,但比起二三十万元的医疗费来,仍是杯水车薪。

In the circumstances that ma,“Spring online”A group of zealous net friend the first time to the ma home。“See XiaoMin body greatly small scar,Small has scabby......,Large slap wide,All the meat is out to come out,Let a person too sad!”Zeal is one of the Mr Lee said,A few net friend discussion,One side with ma search cure around,Have been to jiangmen initially,Side to the local Red Cross to help ma for money,“To get the donation is too little,The local medical conditions are limited。”Mr. Li is very helpless。meanwhile,Also have helpful donations,But compared with ten thousand yuan of medical treatment cost to 20 to 30,Is still a drop in the。

  广州的热心网友开始了爱心接力!8月初,“阳春在线”的网友与广州的区伯取得联系,在获悉这一信息后,区伯一边发微博联系网友,一边联系本地医院。8月3日,区伯与几位热心网友来到阳春王敏家中,与阳春的网友一拍即合,区伯说:“自微博发出后,得到很多热心人的帮助,现在捐款已有1万多元了,与阳春志愿者协商后,决定尽早护送孩子到广州医治。”随即,好消息传来,广东省中医院芳村分院伸出援手,6日,区伯与热心网友范先生驱车前往阳春,7日一大早,范先生驾车将王敏送到省中医院芳村分院,院方立即组织内科、皮肤科、外科、骨科、伤口护理小组等多个专科会诊,同时实施生命体征监护、皮肤清创包扎、补液营养支持等治疗。

Guangzhou net friend started the zeal of love relay!Early August,“Spring online”The net friend of the area with guangzhou contact ",Learn this information,Area "FaWei bo contact the side,Side contact local hospital。August 3,,Area "with a few enthusiastic net friend came to solo home ma,The net friend of home and hit it off,Area "said:“Since the bo is issued,Get a lot of help are,Now has 10000 multivariate money......,Home after consultation with volunteers,Decided to escort children as early as possible to guangzhou healed。”immediately,Good news came,Guangdong hospital fangcun sorting lend a hand,6,,Area "and enthusiastic about Mr. Fan net friend drove to spring,7 in the morning,Mr. Fan will be sent to provincial hospital of driving ma fang village sorting,The hospital immediately organize the internal medicine、dermatologist、surgery、orthopaedic、Wound care group, and other specialized subject consultation,At the same time implement life signs monitoring、Skin debridement bandage、Rehydration treatment such as nutrition support。

  

女孩坚强好学 病榻手不释卷 The girl to ShouBuShiJuan strong on his deathbed

  弱小的身体只剩薄薄的皮肤包裹着,额头红肿,王敏看起来完全不像是个14岁的孩子。令人揪心的是,她的双腿已严重畸形,不能伸直,一直弯曲着,看上去就只是两根骨头在病床上竖立。由于王敏营养不良,不到四十斤的体重,原本白皙的她更显苍白,即使医生用棉签轻轻地碰她的双腿,她都会痛得忍不住哭喊了出来。

The weak body only thin skin package,Forehead red,Ma looks not like is a 14 years old。The disturbing is,Her legs already serious deformity,Never straighten,Curving has been,Look just the two bone up in a hospital bed。Due to the ma malnutrition,Less than 40 kg weight,Originally white her more show pale,Even if the doctor swab tapped her legs,She will be the pain can't help crying out。

  “区爷爷,我屁股很痛!”从阳春到广州的四个小时的车程中,王敏一动不动,实在忍受不住时,她轻轻地说了这句话。即使皮肤多处溃烂、大腿骨折处经常会疼痛难忍,“她平时很少会喊痛。”吴如丽说,“有时候见到我伤心落泪,她也会很懂事、乐观地安慰我。”王敏经常安慰母亲:“妈妈不要哭。”当区伯到阳春探望她时,她反复说:“区爷爷,我想我的病快点好,病好了就可以继续上学。”

“Area grandpa,My ass is very painful!”From spring to guangzhou's four hours away,Ma motionless,Really not endure,She gently said these words。Even if the skin in more mouths、Leg place often ached,“She seldom will shout pain。”WuRuLi said,“Sometimes see me sad tears,She will also very sensible、Optimistic to comfort me。”Ma often comfort my mother:“Mother do not cry。”When the area "home to visit her,She has said repeatedly:“Area grandpa,I think my disease get well soon,Disease could continue to go to school。”

  众人眼中,王敏是个懂事、坚强的女孩。患病初期,“那时她能正常走动,尽管腿会痛,还是坚持走路上学。”吴如丽说,直到去年病情急剧恶化,她才中断了初中二年级的学业。“小敏小学成绩非常好!”吴如丽说,上了初中后,因病情反复经常请假,成绩才稍微回落。勤奋的王敏依然喜欢读书,卧床养病的她还坚持阅读由阳春志愿者们带来的课外书籍。

All eyes,Ma is a sensible、Strong girl。Sick early,“Then she can normal move,Although leg hurts,Or stick to walk to school。”WuRuLi said,Until last year the illness dramatically worse,She was interrupted the junior middle school second grade school。“XiaoMin elementary school records are very good!”WuRuLi said,After the junior middle school,Repeated often leave because of illness,Results to slightly down。Diligent ma still like reading,His bed to read her by volunteers bring home the extracurricular books。

  

病情仍然复杂 尚无明确诊断 Still there is no explicit complex disease diagnosis

  7日下午,记者从医院获悉王敏的最新诊断情况:目前王敏全身严重消瘦,多发深度溃疡,上覆脓痂,痂下可见大量脓性分泌物,眼睑疤痕形成、外翻;左大腿畸形肿胀疼痛、皮肤溃烂,大量脓性分泌物,足背浮肿;心率偏快。

On the afternoon of 7,The reporter learned from the hospital the latest ma diagnosis:At present the whole body ma serious wastes away,Multiple depth ulcer,Overlying pus scab,The scab is a large purulent,Palpebral scar formation、evaginate;The left thigh deformity swelling pain、Skin canker,A large purulent,Foot back dropsy;Heart rate on the。

  医院胡医生介绍,王敏全身多发皮肤溃疡,伴随其疼痛大约10年,其中左大腿疼痛、活动困难1个月。5岁开始出现额部红色蚕豆大小结节,曾由当地医院切除,半年后在切除部位再发肿物,诊断肉芽肿,诊治情况不详。2010年曾就诊,病理提示“感染性肉芽肿”,近几年皮损反复,增多,持续恶化。1个月前出现左大腿疼痛、活动困难,伴发热。院方给予生命体征监护、完善血常规、生化、心电图、皮损分泌物病原体等相关检查。“初步考虑:重度多发皮肤、软组织感染;左侧大腿畸形,重度营养不良;中重度贫血。”胡医生说,患者病情重、时间长,病史不详,病情复杂,需完善相关检查,进一步明确诊断。目前针对其重度营养不良情况以营养支持为主,加强抗感染和护理,汇集全院及院外多学科专家全力救治。(记者 黄博纯 实习生 黄韵诗 )

The hospital hu doctor introduction,Ma skin ulcers are the whole body,With his pain about 10 years,Which left leg pain、Activity difficult a month。5 years old began to appear forehead red beans size nodules,Once the local hospital resection,After six months after resection of parts again hair neoplasm,Diagnosis granuloma,Situation of diagnosis and treatment。In 2010, took attendance,Pathological tip“Infectious granulomas”,In recent years and her lesions,increase,Continued to worsen。A month ago appear left thigh pain、Activity difficult,Associated with fever。The hospital to give life signs monitoring、Perfect routine blood、biochemical、electrocardiogram、Skin secretion pathogens and related inspection。“Preliminary consideration:Severe multiple skin、Soft tissue infection;The left thigh deformity,Severe malnutrition;Moderate to severe anemia。”Hu said the doctor,With a heavy、Long time,History of,Is difficult to,Need to perfect the relevant examination,Further clear diagnosis。Now according to the severe malnutrition in nutrition support primarily,Strengthen the fight infection and nursing care,Partial collection and multidisciplinary experts outside the hospital to treatment。(Reporter HuangBoChun interns HuangYun poetry )


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