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23岁“袖珍男孩”身患粘多糖病只能趴在床上(图)--亲民维稳网络舆情监测室
2012-08-13

23岁“袖珍男孩”身患粘多糖病只能趴在床上(图)尽管疾病缠身,但陈彬一直想当生命的王者。江灵光 摄 Although ailing,But ChenBin always wanted to be the life of the king。JiangLingGuang perturbation

  

“袖珍男孩”陈彬昨过23周岁生日,好多人送来祝福 “Pocket boy”ChenBin over 23 years old birthday yesterday,Many people send a blessing

  

狮子座男生“陈彬King”活着的每一天都是胜利 Leo boy“ChenBin King”Live each day is victory

  7月31日,本报《生日那天谁能陪我看场奥运比赛》的稿件,报道了从2003年以来,本报一直关注的身患粘多糖病,曾被医生断言活不过20岁的杭州“袖珍男孩”陈彬,他期望在他23岁生日的时候,能有人陪他一起过生日。“十多年来,钱江晚报不少记者关心过我,带我去上海找过医生,还带我去北京看姚明、罗纳尔多、黄健翔,我想谢谢大家,也让大家看看,十年了,我活得很好,还长大了。”

July 31,,This newspaper《Birthday that day who can accompany me to see a the Olympic Games》manuscripts,Reported since 2003,This newspaper has always been a concern of the polysaccharide from disease,Was the doctor assert that live but 20 years old of hangzhou“Pocket boy”ChenBin,He expects his 23 years old birthday,Can someone with him together for my birthday。“Ten years,Qianjiang evening news reporter cared me a lot,Take me to Shanghai looking for a doctor,Took me to go to Beijing to see yao Ming、ronaldo、Huang jianxiang,I want to thank you all,Also let you see,Ten years,I live very good,Also grew up。”

  昨天,8月12日,曾经报道过陈彬的记者们聚集一堂,来到杭州市第一人民医院分院石桥病区,看看这个坚强的男孩,为他唱上一首“生日快乐”。

yesterday,August 12,,Once reported ChenBin reporters gathered together,Came to hangzhou first people's hospital ward sorting the stone bridge,Look at this strong boy,Sing a song for him“Happy birthday”。

  陈彬说,8月12日出生属于狮子座。按照星座的解释,狮子座是夏天的第二个星座。炎热的夏天赋予狮子座的人果敢和胆略。而这位狮子座的男生,尽管疾病缠身,但正如他在微博上注册的名字“陈彬King”一样,他一直想当生命的王者。

ChenBin said,Born on 12 August belongs to Leo。According to the interpretation of the constellation,Leo is summer in the second sign。The hot summer give Leo one courageous and courage。The Leo boys,Although ailing,But as he in micro bo registered on the name“ChenBin King”as,He always wanted to be the life of the king。

  

这一天,陈彬的病房很热闹 The day,ChenBin room very much alive

  “陈彬,生日快乐,还记得我们吗?”记者们逐个走入陈彬的病房,陈彬趴在床上,笑得很甜,但是看着人一开始有些迷茫。等过了一会,他恍然大悟,然后就笑了:“我记得了。你陪我去上海找医生。你陪我找的黄健翔。”

“ChenBin,Happy birthday,Remember us?”Reporters into ChenBin one of the ward,ChenBin lie prone on the bed,Smile very sweet,But looking at a person a beginning some confusion。Etc after a while,He suddenly realize,And then laughed at the:“I remember the。You accompany me to go to Shanghai for a doctor。You accompany me find huang jianxiang。”

  陈彬一个个仔细认着人,超级高兴。

ChenBin confess with a carefully,Super happy。

  显然,我们不是昨天第一波去看陈斌的人。“有很多人来看过陈彬了,现在为他看病的医生送了花,下城区残联的也有人来,还有以前陈彬住院的杭氧社区医院的医生,很多很多人给他唱了生日歌,还有人给他送花、送蛋糕,他很高兴。”照顾了陈彬多年的保姆郎阿姨快人快语,笑得很开怀:“他不喜欢出门,就怕人家盯着他看,觉得不好意思。但是他是个孩子,有人和他聊天,他就高兴。”

obviously,We are not the first wave yesterday to see ChenBin。“Many people came to see ChenBin......,Now for his doctors sent flowers,The XiaChengOu also recommended one coming,And ChenBin before in hangyang community hospital doctor,Many people give him sing the birthday song,Others gave him flowers、Send cake,He is very happy to。”Take care of the ChenBin years of nanny lang KuaiRenKuaiYu aunt,Smile very fun:“He doesn't like to go out,Afraid the somebody else staring at him to look,Feel embarrassed。But he is a child,Someone chat with him,He was glad。”

  医生为陈彬点燃了“23”岁的生日蜡烛,一个特地购买的“心形”蛋糕,代表了对陈彬的祝福“用坚强、快乐的心度过每一天”。陈彬不肯说许了什么心愿,只是说:“不论活到几岁,我一定会开心地活。”

The doctor for ChenBin lit“23”Birthday candles,A specially purchase“heart-shaped”cake,Represents the blessing of ChenBin“With strong、Happy heart spends every day”。ChenBin would not say what made a wish,Just said:“No matter how old to live,I will be happy to live。”

  

郑武捎来一份“最好的礼物” ZhengWu to get a copy“The best gift”

  短短的交流,每一个关注过他的记者,都能描述他的变化:以前还是一个小孩子,现在长成了一个大孩子;比以前胖了,壮了;以前还能由爸爸抱在手里看看他最喜欢的体育比赛,出门走走,现在他只能趴在床上,通过电脑和外界沟通,身边要有氧气机;以前他听力挺好的,现在他听力下降得厉害,只有凑在耳边大声说话,才能听见,就连手机也配成了特大音效的“专用机”。

Short communication,Each concern about his reporters,Can describe his changes:Ago or a child,Now grew up and became a big kid;Fat than before,strong;Before by the father held in the hand to look at his favorite sports,Go out for a walk,Now he can lie prone on the bed,Through the computer and the outside communication,Side to aerobic angry machine;He used to hearing quite good,Now he hearing loss badly,Only in the ear up to speak loudly,Before he can hear,Even with a cell phone also big sound effects“steels”。

  坚强地活着,活得很满足,是大部分记者们对很不容易活下来的陈彬的印象。

Strong and alive,Live very satisfied,Is most of the reporters to is not easy to live down ChenBin impression。

  陈彬也保留了很多《钱江晚报》带给他的记忆,去北京见黄健翔时留下的照片,看姚明、易建联打球时的合影,2003年4月底郑武为他打专场篮球留下的照片……他用一本专门的相册把这些回忆都收录起来。

ChenBin also keep many《Qianjiang evening news》To bring his memory,To go to Beijing to see huang jianxiang was left in photos,See yao、Yi played ball group photo,At the end of April 2003 ZhengWu for him to play basketball pictures of special leave......He used a special album these memories are included up。

  我们也送出了一份特殊的礼物,现任稠州银行女篮教练郑武的连线祝福,“十年前,我见到你,这些年也惦记着你,祝你生日快乐,坚强活着就是你人生的胜利!”郑武在电话那边说。

We also sent out a special gift,The current state bank's women's basketball team coach ZhengWu thickening of attachment a blessing,“Ten years ago,I see you,All these years also thinking about you,I wish you a happy birthday,Strong to live is your life victory!”ZhengWu in telephone there said。

  “我会的,你当教练了,也要当常胜将军,我会看你带队打比赛的。”陈彬在电话这边笑得阳光灿烂。

“I will,You when the coach,Also want to be ever-victorious generals,I'll see you valladolid game。”ChenBin in phone side smile sunshine is bright。

  他转头告诉记者:“我没想到这么多年,他还记得我。这是我收到最好的礼物。”

He turned told reporters:“I didn't expect so many years,He also remember I。This is the best gift I received。”

  

只有小小的床,可一样活得很“潮” Only small bed,Can live very“tide”

  别看陈彬只能困在床上,但是他很“潮”。说他潮是因为他不仅仅上QQ,还玩微博,用“陈彬king”注册的微博有特殊含义,“king”的后缀代表的是“得分王”,也暗示着这个男孩一贯的生活态度。

Although ChenBin can trap in bed,But he is“tide”。He said because he not only the tide on QQ,Play micro bo,with“ChenBin King”The micro bo have registered special meaning,“king”Is representative of the suffix“Leading scorer”,Also suggests that the the boy always attitude of life。

  陈彬关注伦敦奥运会最火的金童玉女“孙杨、叶诗文”,这两位是他目前最喜欢的体育明星。当然他最喜欢的体育项目还是篮球,从姚明到王治郅,到2010~2011赛季的NBA总冠军诺维斯基都是他的心头好。

ChenBin London Olympic Games the most attention good fire“SunYang、Leaves verse”,The two is he the most like sports star。Of course he to like most of athletics item or basketball,From yao to wang zhizhi,The 2010-2011 season NBA championship nowitzki is his mind is well。

  除了体育,他关注周立波,还喜欢看“中国好声音”,刘欢和杨坤是他最喜欢的评委。

In addition to sports,He is concerned about zhou libo,Also like to see“China good voice”,Liu joyfully and YangKun is his favorite judges。

  记者看到,他甚至用微博联系医生,讨论自己的病情是否能使用无创呼吸机,解决困扰他的呼吸衰竭问题。

The reporter sees,He even with micro bo contact the doctor,Discuss his condition if you can use without and breathing machine,To solve the problem of respiratory failure to bother him。

  他还在网上开发出了一个新爱好:打牌,“这个也算是体育运动了,我只能玩这个。”陈彬说,他打牌打得很好,有些网上举办的比赛里还拿到奖。在医院里,医生还为他取了一个新绰号“牛牛”,因为他经常玩一款“斗牛”的游戏。

He is still on the net developed a new hobby:CARDS,“This is sports,I can only play with it。”ChenBin said,He play CARDS played very well,Some online game also held to award。In the hospital,Doctors also for he took a new nickname“niuniu”,Because he often play a“bullfighting”game。

  我们问陈彬,想过明年要怎么过生日吗,“等我想想,每个生日的机会都很珍贵的。”陈彬笑眯眯地说。

We asked ChenBin,Thought to spend your birthday next year,“And I think,Each birthday of chance is precious。”ChenBin smiling said。

  这个狮子座的男孩,一直有着自己对生命的态度,无论活着多么困难重重。(记者 黄莺)

The Leo boy,Always have a life of the attitude,No matter how difficult alive。(Reporter orioles)



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