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家族遗传怪病“代代传” 百年间吞噬47条生命(图)--亲稳网络舆情监测室
2012-08-13
看着大儿子的遗照,杨凤英十分难过
百年间,神秘怪病吞噬47条生命,8人发病多年 Hundred years,Mysterious strange disease devour 47 life,Eight years of
厄运为何会一代代“恶性循环”? Why would a generation of bad luck“Vicious cycle”?
这原本是一个二十几口人的大家庭,却被一种怪病残害得支离破碎;一个79岁的老人,本应该养老弄孙,却屡屡遭遇白发人送黑发人的痛楚。
This used to be a more than 20 mouth people in one family,But be a strange disease who have fragmented;A 79-year-old man,This should endowment get sun,But often encounter outliving your offspring the pain。
从清朝光绪年间起的一百多年来,庆阳怪病通过家族血缘垂直遗传,已扩展到庆阳多个地区至少十个姓氏以上的家族,吞噬了47条生命,8人发病多年,另有多人有疑似发病症状。而杨凤英的坚持,述说着这个家族与悲惨命运的顽强抗争。同时,他们明明知道家族的遗传病史,为什么还要一代一代生那么多孩子,然后眼睁睁地看着孩子长大后被怪病折磨而死呢?一个百年家族的悲惨经历,希望能从遗传学角度给广大市民带来思考。
From the qing dynasty emperor guangxu period within one hundred years,Qingyang carry strange disease through the family blood vertical genetic,Already expanded to more than ten in qingyang at least above the family name,Article 47 engulfed the life,Eight years of,Otherwise people have suspected the symptom。And YangFengYing insisted,Telling the family and the tragic fate of stubborn resistance。At the same time,They clearly know the family genetic history,Why a generation so many children born,And then watched helplessly as the children grow up to be strange disease torture and death?A one hundred family of miserable experience,Hope from the genetics Angle to the general public bring thinking。
感动:79岁老妪坚守“最后的家” moved:79 years old LaoYu stick to“The last house”
8月12日,杨凤英格外难过。她平时能吃一碗面的小女儿小娟,这天早上从9点开始一直吃到11点,半碗面都没有吃完,而到最后,碗还被摔碎了。“从去年底开始,小娟的饭量开始下降,今天吃了这么少,估计日子不多了。”杨凤英,一个79岁的农家妇女,自从19岁那年嫁到赵家,她眼睁睁地看着一个个亲人患同一种怪病离开了人世,而这种悲惨的厄运还在一代代循环。
August 12,,The sad YangFeng eng。She usually can eat a noodles little daughter youngster,This morning from 9 PM to 11 points have been eating,Half a noodles are not eating,And to the last,Bowl was broken。“Start from the end of,The youngster appetite started to decline,Today eat so little,Estimated days were numbered。”YangFengYing,A 79-year-old peasant women,Since the age of 19 to marry into zhao home,She watched helplessly as the one with the same kind of strange disease relatives died,And this terrible misfortune is in a generation of circulation。
从1974年开始的30年内,丈夫赵喜发和二儿子、三儿子、六儿子、大儿子先后发病离世;五儿子发病后离家出走5年,凶多吉少;小女儿小娟发病后被婆家抛弃,带着外孙女来到娘家。目前,只有四儿子可能没有发病,常年在外不敢回家。
From 1974 to and 30 years,ZhaoXiFa husband and two sons、The third son、Six sons、The first son of has passed away;Five son after 5 years of to run away from home,'re caught behind;Daughter of the family's home after youngster was abandoned,With her maiden granddaughter to。At present,Only four sons may not have the disease,Have migrated dared not go home。
“从第二个儿子被怪病害死,我就想过不活了。”每一句话,杨凤英都说得认真、悲泣。如今,几个儿媳都已带着子女改嫁,家里只剩40岁的小娟和外孙女王丹,杨凤英还得继续坚守着“最后的家”,生病了不敢吃药,要把钱省下来给她们买药,还要被神志不清的小娟厮打着、喝骂着,默默地伺候着她们的衣食住行。
“From the second son was strange disease die,I just thought to not live。”Every word,YangFengYing said earnestly、weeping。now,Several daughter-in-law with children has remarried,Home only 40 years old and the youngster's wang Dan,YangFengYing still have to continue to hold“The last house”,Sick can't take medicine,To put the money to come and give them to get medicine,Be lightheaded takes the youngster、Drink scold,Silently served their basic necessities。
“厨房最近一下雨就漏水,说不定哪天就把我压死了。如果没地方住,我就去火葬场旁边的窑洞里,四个儿子都是在那里火葬的,我要去陪他们。”小娟老是折腾着不睡觉,多少年来,杨凤英几乎没有睡过几次好觉。
“The kitchen is a recent rain leaking,Maybe one day I the crushed。If no place to live,I will go to the crematorium next to the cave,Four sons are there in the cremation,I want to go with them。”Youngster is always tossing about sleep,For many years,YangFengYing almost no sleep a few good sleep。
连日来,提及杨凤英,当地人都说:怪病害死了这么多人,真让人害怕,杨凤英真的很了不起。
In recent days,Mention YangFengYing,Local people said:Strange disease died so many people,That's the fear,YangFengYing are really great。
“唉,没办法,已经生病了,你说我能不管吗?”调查中,根据史料记载和家族成员回忆,庆阳怪病已经追溯到清朝光绪年间。在这期间,很多步入高龄的家属对于患者不离不弃的照料值得称赞,而这种坚持,也可能是这个百年家族最让人尊敬和感动的地方。
“alas,Can't,Has been ill,You said I could no matter?”survey,According to historical records and family members memories,Qingyang carry strange disease have traced back to the qing dynasty emperor guangxu period。In this period,Many of the families of the age for patients into sticking care deserves praise,And that adhere to the,Also may be the one hundred the family make people respect and moving place。
辛酸:为什么厄运还在一代代“复制”? poignant:Why bad luck also in generations“copy”?
“她明明知道孩子会被怪病折磨死,为什么还要生那么多呢?还要让厄运一代代继续下去?”庆阳怪病引发关注后,很多网友在表达同情的时候,也表达着自己的疑问。
“She clearly know the child will be strange disease tortured to death,Why be so much?Also let bad luck generations to continue?”Qingyang carry strange disease cause concern,Many net friend in the expression of sympathy,Also expressed their doubts。
8个月大时,杨凤英的母亲就因病去世,她只能在缺“爱”的环境下艰难长大。19岁那年,家在庆城县的杨凤英来到西峰区,和赵喜发结了婚。“当时只见了一面,谁知道人家有这个病啊。”面对采访,杨凤英十分激动地重复着:“我如果知道家里有这种遗传病,肯定不生那么多孩子。”
Eight months,YangFengYing mother died because of illness,She can only in the short“love”Under the environment of the difficult to grow up。And at age 19,In a city county, home to YangFengYing xifeng district,And ZhaoXiFa married。“At that time only once,Who know the family has this ill。”Face interview,YangFengYing very excited to repeat:“If I know this genetic disease have in the house,Must not be so many children。”
可是,让很多网友百思不得其解的是:即使杨凤英在结婚时不知道家族的发病史,但是在赵喜发40岁发病之前的21年里,她不可能不知道婆家叔辈里发病的众多亲戚吧?
but,Let a lot of net friend is puzzled:Even if YangFengYing at the time of marriage, don't know the hair of family medical history,But in ZhaoXiFa 40 21 years before the disease,She could not know his family's home in the generation of many relatives?
在调查中记者发现,庆阳怪病的发病家庭均是兄妹众多,七八个孩子的家庭比比皆是。截至目前,庆阳怪病已经残害了55条生命,在某种程度上,这与严重超生有关。
In a survey reporter discovery,Qingyang carry strange disease onset family are many are brother and sister,Children family can be found everywhere。So far,Strange disease has destroyed the qingyang article 55 life,In some extent,This super to living with serious about。
新浪网友abou-spir说:“这个家族真的很悲催,明知道怪病‘缠’上了你们,发病概率很大,还生那么多孩子,这样一直传下去,什么时候是个头啊?”
Sina net friend abou-spir said:“The family is really sad reminders,Know strange disease‘bound’On you,Probability of a,Still living so many children,This has been handed down,When are we going to stop?”
记者手记 Journal reporters
杨凤英和与她一样同命运的人,是在和悲惨命运抗争,但他们,同样一代代把悲惨在传递,让厄运在一次次恶性循环,自己又反过来品尝着悲惨。这在婚前检查、优生优育政策已经实行多年的现在,不能不说是一种不应该发生的悲剧。
YangFeng with her fate with the U.K. and the people,Is sad fate in and fight,But they,Also in the tragic generation transmission,Let the bad luck in a meeting vicious circle,His taste in turn misery。This in the examination before marriage、Eugenic birth policy has been implemented for years now,Have to say a should not happen tragedy。
这个百年家族的悲剧警示我们,生命的传承值得敬畏,尊重科学,不要再让悲剧延续了。(记者 张鹏伟文/图)
The one hundred years of family tragedy warning us,Life is the inheritance of fear,Respect for science,Don't let the tragedy continues。(Reporter zhang WeiWen/figure)
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