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两龄童先天食道闭锁经历11次手术 系试管婴儿(图)--亲民维稳网络舆情监测室
2012-08-20
先天食道闭锁 两岁童做了11次手术 Congenital esophageal atresia two years old child to do the surgery 11 times
两岁,出生后不久即被确诊患有先天性食道闭锁、食道气管瘘、吸入性肺炎。两年来,他已接受大大小小手术11次。父母为给他治病前后花费近50万元,已用光家中所有积蓄,借遍了亲朋好友。目前后续治疗费用没着落,期盼社会救助。
Two years,Soon after the birth of is diagnosed with congenital esophageal atresia、Esophagus tracheal fistula、Aspiration pneumonia。Two years,He has accepted greatly small surgery 11 times。Parents give him before and after cure spend nearly 500000 yuan,Already run out of home all their savings,Borrowing from the relatives and friends。At present the follow-up treatment costs no landing,Expect social assistance。
两年前,四十出头的陈先生利用试管婴儿技术费尽周折终于盼得宝宝出生,然而没多久他便发现儿子小泰安接连出现呛奶、咳嗽、呼吸困难等一系列症状,后经医院检查发现小泰安为先天性食道闭锁、食道气管瘘、吸入性肺炎。两年来,小泰安入院10次,住院天数接近一年,经历大小手术共11次。不久前,小泰安因“肠梗阻”再次入院接受手术治疗。为给爱子治病,陈先生夫妇前后花费近50万元,早已用光家中所有积蓄,借遍了亲朋好友,但他们表示不会轻言放弃。
Two years ago,Early forties to Mr. Chen of the use of test-tube baby technology with setbacks to finally have the baby was born,But soon he found little son in taian appear choke with milk、cough、Difficulty breathing and a series of symptoms,After the hospital inspection found that small taian for congenital esophageal atresia、Esophagus tracheal fistula、Aspiration pneumonia。Two years,Small taian admission 10 times,Days in hospital in close to a year,Experience size operation a total of 11 times。Not long ago,Small taian for“ileus”Hospital readmission surgery。For aiko cure,Mr. Chen couples before and after spending nearly 500000 yuan,Had run out of home all their savings,Borrowing from the relatives and friends,But they say won't give up。
陈先生说,因为妻子曾经两度宫外孕,两侧输卵管被切除,无奈之下他们只能选择做试管婴儿。2010年4月,他们的儿子小泰安出世了,然而没多久,他被护士告知宝宝出现异常情况:每次喂奶,宝宝都会出现呛奶,还伴有呼吸困难的症状。经过检查,这才发现小泰安患有先天性食道闭锁、食道气管瘘、吸入性肺炎,接着便入住NICU(新生儿重症监护室)治疗。小泰安在出生第三天就接受了食道闭锁的手术。然而,手术失败了。因无法用嘴吸奶,医生只好对小泰安进行食管颈部造瘘和胃造瘘来分流口水和注入配方奶。
Mr. Chen said,Because his wife had twice ectopic pregnancy,On both sides of the fallopian tube is removed,But under they can only choose to do test-tube baby。In April 2010,Their son was born the small taian,But it didn't take long,He was the nurse told the baby appear abnormal situation:Every time nursing,The baby will appear choke with milk,Also with difficulty breathing symptoms。After inspection,It found that small taian suffering from congenital esophageal atresia、Esophagus tracheal fistula、Aspiration pneumonia,Then you check in NICU(Neonatal intensive medicine)treatment。Small taian in was born the third day he accepted esophageal atresia of surgery。however,Surgery failed。Unable to use mouth suck,The doctor had to to the little taian for esophageal neck made fistula and gastrostomy tube to shunt the saliva and injection formula milk。
“宝宝上呼吸机上了近两个月,我一度都绝望了。”陈先生说,幸运的是,2010年6月中旬,小泰安终于下了呼吸机。
“The baby on the breathing for nearly two months,I once all despair。”Mr. Chen said,fortunately,In the middle of June 2010,Small taian finally off the breathing machine。
小泰安和父母回到肇庆老家后,依靠胃部置入的一根营养管,通过体外注射营养来维持生命。“他稍微平躺就会呛奶,一呛奶又会引起吸入性肺炎。”陈先生说,2010年9月因为肺炎,小泰安再次住院。到了年底,喂奶时出现呛奶,检查发现胃部幽门封闭了,医生只得在肠部置入一根营养管。
Small taian and parents back to hometown after zhaoqing,Rely on the stomach of the placement of a root nutrition tube,Through the in vitro injection nutrients to maintain life。“He slightly flat will choke with milk,A choke milk and can cause aspiration pneumonia。”Mr. Chen said,In September 2010 for pneumonia,Small taian hospital readmission。By the end of the,There was a choke milk feeding,Examination found that stomach pyloric closed,The doctor had to in intestinal placing a root nutrition tube。
“每小时只能推进去45毫升左右的配方奶。”陈先生说,他跑遍广州才买回一台输液助推器。从此,夫妻俩每天24小时轮班为儿子的进食忙活着。去年8月,小泰安接受了第二次食道闭锁手术,手术还算顺利。今年2月份,经过造影检查,医生告知可以喂食流质食物,但每次得控制在30毫升左右,大部分营养物质还是要通过肠道的营养管来从体外汲取。意外的是,今年6月,小泰安挠痒时不小心碰掉了肠道营养管,随后不久,他便因“肠梗阻”被送往医院治疗。
“Every hour can only promote to 45 ml formula milk。”Mr. Chen said,He go around guangzhou to buy back a transfusion booster。From now on,A couple 24 hours per day shift coverage for son eating be busy with。Last August,Small taian accept the second esophageal atresia surgery,The operation goes well。In February this year,After imaging,The doctor told to feeding liquid food,But each time to control in 30 ml,Most of the nutrients or through the intestinal nutrition tube to learn from in vitro。surprise,In June this year,Small taian scratching itchy accidentally touch off nutrition tube,Soon afterwards,He was for“ileus”Was sent to hospital for treatment。
陈先生翻开厚厚一叠单据说,从出生到现在,小泰安平均每两个多月就要住院一次,目前一共入院10次,住院天数加起来接近一年,而大大小小的手术一共经历了11次。
Mr. Chen turn over a thick stack documents said,From birth to now,Small taian average every two months will be in hospital one,At present a total of 10 times to the hospital,Add up the number of days in hospital in close to a year,And greatly small surgery has experienced a total of 11 times。
望着病床上瘦得几近皮包骨的小泰安,陈先生和妻子忧心忡忡。陈先生说,除了身上的刀疤,他更担心儿子的心理创伤。此前,小泰安还比较粘人,但近期开始他的反应越来越木然,有时呆呆地看着窗外,只是听到爱听的歌时会高兴地跟着节奏拍手。“听到一起玩游戏、洗白白等歌词,他就哭了。”
Looking at the bed is nearly skinny little taian,Mr. Chen and his wife worry。Mr. Chen said,In addition to body scar,He was more anxious about my son's psychological trauma。after,Small taian are clingy,But recently began his reaction more and more callous,Sometimes gawk out of the window,Just hear to hear song will glad to follow the rhythm clap hands。“Hear play games、Wash and in vain words,He is crying。”
现在,陈先生的妻子在肇庆一家公司做合同工,每月1200元的收入是一家唯一的收入。他哽咽地说,“小泰安是他们的心头肉,无论如何他们不会轻言放弃。”
now,Mr. Chen's wife in zhaoqing a company's contract,The income of 1200 yuan a month is a income only。He sobbed,“Small taian is their treasured flesh and blood,In any case they will not give up。”
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