申请方式 Application methods

　　只要在中国医师协会“融化渐冻的心”公益活动项目办公室登记在册，且被三级甲等医院明确诊断为“渐冻症”的患者，就可以拨打免费救助电话800-810-3386申请免费救助，在通过相关部门和流程审核后，将会对患者进行救助。

As long as in the Chinese medical doctor association"Melt gradually frozen heart"Public welfare activities registered project office,And three level of first-class hospital diagnosis for"Gradually frozen disease"patients,You can dial 800-810-3386 to apply for a free phone free salvage salvage,In through the relevant departments and process after audit,Will be carried out on the patient assistance.

　　“渐冻症”与癌症、艾滋病等列入五大绝症，据了解，在四川，至少有7000名“渐冻症”患者，可目前在医院登记在册的不到1000人。昨日，中国医师协会和四川大学华西医院启动了“渐冻人”免费救助公益活动，符合条件的患者可以申请免费救助。

"Gradually frozen disease"And cancer/AIDS, etc on the five incurable disease,It is understood,In sichuan,At least 7000"Gradually frozen disease"patients,But at present in the hospital to register as less than 1000 people.yesterday,The Chinese medical doctor association and west China hospital of sichuan university launched"Gradually frozen people"Free salvage public benefit activities,To meet the conditions of the patients can apply for free salvage.

一位“渐冻人”的家属： a"Gradually frozen people"families:

希望她的病发展得慢一点 Hope that her illness development slowly

　　昨日下午2时，37岁的李兰(化名)在丈夫的搀扶下，走进华西医院“渐冻人”公益活动会场，找了一个位置坐下。在她旁边不远处，一位和她年纪相仿的男病友坐在轮椅上，神情呆滞，手脚都不能动。“来，擦一下！”男病友的妻子拿出一张毛巾擦掉其嘴角流出的口水。

2 PM yesterday,37 years old li LAN(alias)In her husband's helped,Into the west China hospital"Gradually frozen people"The public welfare activities,Looking for a place to sit down.Beside her not far away,A and her age of male patients was sitting in her wheelchair,Look dull,Hands and feet is not active."to,wipe!"Male wardmate wife took a towel to wipe off the mouth cape gore the saliva.

　　看到这里，李兰把头转了过去，泪水悄然滑落……半年前，李兰的双手突然动弹不了，四处求医后在华西医院被确诊为“渐冻症”。“现在她只能勉强走路，医生说接下来也只能坐轮椅……”李兰的丈夫说，他只好辞了工作，在家专职照顾妻子，“我就希望她的病尽量发展得慢一点……”

See here,Li LAN turns his head in the past,Tears quietly slipped...Six months ago,Li LAN hands suddenly move,After the doctor away around in west China hospital are identified as"Gradually frozen disease"."Now she can barely walk,The doctor said the next also can sit wheelchair..."Li LAN husband said,He had to quit the job,Full-time wife at home to take care of,"I hope her illness development as far as possible to slow down a bit......"

公益活动启动： Public welfare activity initiated:

80余万元辅助用具 More than 80 ten thousand yuan auxiliary appliance

捐赠“渐冻人” donated"Gradually frozen people"

　　华西医院神经内科商慧芳教授告诉记者，对于发病的原因，目前医学上尚无明确的定论，除了遗传因素占5%—10%外，环境、剧烈运动、饥饿都有可能致病，“一旦患上这种病，一般的生存期为3—5年。”

West China hospital neurology department ShangHuiFang professor told reporters,For the cause of the disease,On medicine at present there is no explicit conclusion,In addition to genetic factors accounted for 5% - 10% outside,environment/Strenuous exercise/Hunger could pathogenic,"Once suffering from the disease,Average survival period for 3 to 5 years."

　　商慧芳说，虽然目前没有治愈的办法，但可以通过及早就医来延长存活时间和提高生活质量。”

ShangHuiFang said,Although there is no cure,But can through a doctor as soon as possible to prolong survival time and improve the quality of life."

　　为了帮助更多的“渐冻人”能够得到治疗，昨日，中国医师协会和华西医院启动了“渐冻人”免费救助公益活动。记者了解到，此次共准备了呼吸机、防褥疮床垫、电脑辅助沟通工具等600余件共计80余万元的辅助用具，将免费捐赠给“渐冻人”使用。

In order to help more"Gradually frozen people"Can get treatment,yesterday,The Chinese medical doctor association and west China hospital started"Gradually frozen people"Free salvage public benefit activities.The reporter understands,The common prepared breathing machine/Prevent bedsore mattress/Computer aided communication tool and so on more than 600 a total of more than 80 yuan of auxiliary appliance,Will be donated to free"Gradually frozen people"use.

健康知识 Health knowledge

啥叫“渐冻症” What call"Gradually frozen disease"

　　“渐冻症”是一组运动神经元疾病的俗称，患者肌肉逐渐萎缩和无力，身体瘫痪如同被冻住，所以被称为“渐冻人”。但是这种疾病并不会影响患者的智力、记忆以及感觉，一旦患上该病，就意味着他们将清醒地面对死亡。英国著名科学家霍金就是一名“渐冻症”患者。(成都晚报记者 刘沁 摄影 李祥云)

"Gradually frozen disease"Is a set of motor neuron disease commonly known as,Patients gradually atrophic and muscle weakness,The body paralysis as frozen,So called"Gradually frozen people".But the disease will not affect the person's intelligence/Memory and feeling,Once suffering from the disease,Means that they will clearly facing death.A famous British scientist Stephen Hawking is a"Gradually frozen disease"patients.(Chengdu evening news reporter LiuQin photography LiXiangYun)