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16岁女孩因药物副作用得多毛症 满脸络腮胡(图)--亲稳网络舆情监控室
2012-10-12
(浙江)金东区曹宅镇千人安村位于北山脚,山村并不大,有户人家曾经让村民羡慕:这家有个女儿叫娜娜,不仅人长得白净,读书也很好,在班级成绩一直是前五名。
(zhejiang)JinDong area CaoZhai town village is located in the north, one thousand foot,Mountain village is not big,A family that was once the envy the villagers:This had a daughter called nana,Not only people grow their robes,Reading is also very good,In class performance has been the top five.
可从2010年开始,娜娜却休了学,村民也很少见到她。
Can begin from 2010,Nana but had to learn,The villagers also rarely sees her.
有人问起原因,娜娜的母亲陈阿姨忍不住抹眼泪:16岁的她因为患上了再生障碍性贫血,需要依靠药物治疗,而药物的副作用,就是“多毛症”。
Someone asked reason,Nana's mother Chen aunt can't help wipe the tears:At 16 she because suffer from the aplastic anemia,Need to rely on drug therapy,But the side effects of drugs,is"hirsutism".
如今的花季少女,脸上长出了又硬又黑的胡子,胳膊和腿上也长满了体毛。
Now the flower girl,Face long out of the hard and black beard,His arms and legs with also body hair.
“她每天都哭着要上学,让人揪心……”陈阿姨说,她没有什么奢望,只希望女儿能早日康复,像正常人一样去上学。
"Every day she cried and go to school,Let a person come......"Aunt Chen said,She didn't expect what,Only hope daughter can recover soon,Like normal person to go to school.
因为药物的副作用 Because the side effects of drugs
她每天戴着口罩不敢出门见人 Every day she wore masks did not dare go out to see people
这是一栋三四十年前建的土木老房子,靠着山,地面高低不平。
This is a 40 years ago built civil old house,Against the mountain,Ground rugged.
三间房,除了父母和娜娜外,还住着79岁的爷爷。家里唯一的电器,就是电视机。
Three rooms,In addition to the parents and nana,Also lived 79 - year - old grandfather.The only home electrical appliances,Is television.
虽然家徒四壁,可客厅的土墙上,却挂满了“三好学生”的奖状,这些都是娜娜的。
Although in necessity,But of the sitting room on the wall,Has hung all over the"Merit student"Certificate of merit,These are nana's.
曾经,娜娜是个让父母自豪的孩子,让她读大学,是这对农民夫妻最大的愿望。
once,Nana is a let parents proud of children,Let her go to college,Is the biggest wish of husband and wife to farmers.
一切美好,都在2010年6月戛然而止。
All good,In June 2010 to an abrupt end.
那天,娜娜突然吃不下饭,还呕吐不止,家人把她带到了金华市中心医院检查。
That day,Nana suddenly can't eat rice,Also vomit not only,The family took her to jinhua central hospital inspection.
再生障碍性贫血,这种病,陈阿姨是第一次听到。直到医生建议他们到杭州治疗,她才感觉,娜娜的病可能很严重。
Aplastic anemia,The disease,Chen aunt is first heard.Until the doctor advised them to hangzhou treatment,She didn't feel,Nana's disease may be very serious.
“医生说,骨髓造不出血了,很严重,不治疗会没命的。”陈阿姨回忆说。
"The doctor said,Bone marrow could not make the bleeding,A serious,Don't treat the die."Aunt Chen recalls.
自那天起,娜娜的命运改变了,她每天要打交道的,不再是同学、书本,而是医生和药物。
From that day on,Nana's destiny changed,She would like to make contact with every day,Is no longer classmates/books,But the doctor and drug.
很快,她就住进了浙一医院,治疗30多天后,又转到了省中医院。
soon,She lived in a ZheYi hospital,More than 30 days after treatment,He turned to the provincial hospital of traditional Chinese medicine.
经过两年的药物治疗,娜娜的病情好了很多,血液指标也渐渐恢复了,可因为药物的副作用,她全身开始疯狂地长毛。
After two years of drug therapy,Nana was much better,Blood index also gradually restored,But because of the side effects of the drug,She began to frantically long hair.
昨天早上,记者见到了娜娜。她穿着灰色的长袖,黑裤子,戴着口罩,低着头一直不愿多说话。
Yesterday in the morning,Reporters saw nana.She is dressed in grey long sleeve,Black trousers,Wore masks,Low head has been reluctant to speak more.
在大家的劝说下,娜娜摘下了口罩,她的眉毛又粗又浓,满脸的络腮胡,看起来就像个男生。
In all persuasion,Nana take off the mask,Her eyebrows and big and strong,A full face of mutton chops,Looks like a boy.
陈阿姨拉起了她的衣袖和裤腿,她手臂上和腿上,长满了汗毛。
Aunt Chen pull up her leg and sleeves,Her arms and legs,Are covered with fine hair.
“医生说过,那种排异药物有很大的副作用,服药一个月,她手臂上的毛就变密了,脸上也长出了胡子。”
"The doctor said,The rejection drugs have a lot of side effects,Dose a month,Her arm hair will become a secret,Face also grown a beard."
在16岁的娜娜心里,这些浓密的毛发,就像针一样扎在她的肉里,见不得人。
At sixteen, nana heart,The thick hair,As the same as the needle into her in the flesh,gross.
原本活泼的姑娘,有时一天都不说一句话,偶尔清晨人少,她会一个人到山上转转,而更多的时候,是自己一个人躲在房间里看书。
Originally lively girl,Sometimes one day all don't say a word,Occasionally people less early in the morning,She will be a person to the mountains around,And most of the time,Is a person hiding is reading in the room.
家里卖田卖地 Home of sale sell field
治疗花去30多万元 Treatment of spent more than 30 ten thousand yuan
看病初期,前后短短53天,医药费就花去了十七八万元。
Early to see a doctor,53 days before and after just,Medical expenses is spent ten thousand yuan seventeen or eighteen.
陈阿姨常年在家,娜娜的父亲也只靠打零工赚点钱,对于这个清贫之家来说,医药费简直是天文数字。
Aunt Chen perennial at home,Nana's father also only by odd jobs to earn some money,To the poor for the home,Medical expenses can be astronomical.
那段时间,陈阿姨在医院照顾娜娜,娜娜的父亲赶回老家,四处筹钱。
time,Aunt Chen in the hospital care nana,Nana's father back to their hometown,Raise money around.
“医生,这个药能不用吗,实在没有钱了。”这是陈阿姨经常对医生说的话,看着一家人如此艰辛,医生建议娜娜回家调养,只需半个月到杭州复查一次。
"The doctor,This medicine will need not,Don't really have the money."This is Chen aunt often to the doctor said,Look at the family so hard,The doctor advised nana home rehabilitation,Just half a month to hangzhou review a.
这样一来,确实省下了不少钱,可每天四百多元的医药费,还是让娜娜一家无力承担。
so,Really save a lot of money,Every day can be four hundred yuan of the medical treatment expenses,Let nana a cannot afford.
前前后后,娜娜已经花去了30多万元,家里卖了田地,得到了10万元钱,可依旧是债台高筑。后期还需要多少钱?陈阿姨心里没底。
Up and down,Nana it has spent more than 30 ten thousand yuan,Home to sell the field,Got 100000 yuan,But is still deep in debt.Later still need how many money?Aunt Chen unavoidable heart.
为了省钱,娜娜的父亲经常清晨一人上山,走上一天的山路,为的就是给女儿找些土方;为了不让女儿被细菌感染,陈阿姨每天早上五六点就起床,用消毒液拖地、擦桌子。
In order to save money,Nana's father often early morning a man went up to the mountain,On a day of mountain road,In order to give daughter find some earth;In order not to let his daughter have been infected with the bacteria,Aunt Chen WuLiuDian every morning gets up,With disinfectant sweep the floor/Wipe the table.
在房间一角,一大塑料袋的空药盒,是娜娜半个月的药量。
In the room one horn,A big plastic bags empty medicine box,Is nana half a month dosages of the vaccine.
“自生病以来,她从没有照过镜子。”说到这里,陈阿姨眼眶湿了,“医生说,本来3年就能治好的,可我们没有钱,老是减少药量,治疗也会缓慢一些。要是治好了,药停了,她就能恢复正常了。”
"Since have been ill,She never as a mirror."here,Aunt Chen eyes wet,"The doctor said,Originally as three years can cure,But we have no money,Always reduce dose,Treatment will slow some.If healed,Medicine stopped,She could back to normal."
懂事少女伤心落泪 Sensible girls sad tears
她的愿望很简单——上学 Her wish is simple - to go to school
陈阿姨告诉我们,虽然经历着病痛的折磨,可是娜娜很少哭。只在最初,知道自己以后要休学在家,不能去上课,她闹过好几次。
Chen aunt told us,Although experiencing pain of torture,But nana rarely cry.Only in the first,Know they'll quit school at home,Can't go to class,She make several times.
在陈阿姨心里,这个女儿一直以来都很懂事,以前放学回家就看书、做作业,从不让他们操心;如今,她也宁可自己难过,什么苦都不跟他们说。
Aunt Chen in the heart,The daughter has always been very sensible,Home from school before is reading a book/Doing his homework,Never let them worry about;now,She would rather oneself sad,What bitter all don't talk to them.
“可是你知道我有多伤心吗?这么乖的孩子,让她上大学,是我和她爸爸最大的心愿。”陈阿姨忍不住抽泣,“如今,没钱看病了,病好不了,就不能停药,身上的毛也褪不下去,我和孩子她爸真的无能为力。”(记者 朱丽珍 实习生 陆欣/文 记者 陶玉其/摄)
"But you know how much I sad?So lovely children,Let her go to college,Is my biggest wish and her father."Aunt Chen SOB couldn't help,"now,Have no money to see the doctor,Disease not the,Can't stop drug,Body hair also tun not go down,My child and I her dad really powerless."(Reporter ZhuLiZhen interns LiuXin/text reporter TaoYu its/taken)
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