中新网石家庄10月24日(刘广和 李宗海)24日，河北省首家中医“渐冻人救助服务示范基地”在河北医科大学附属以岭医院挂牌。

Beijing on October 24, in shijiazhuang(LiuGuang and LiZongHai)24,First the doctor of traditional Chinese medicine in hebei province"Gradually frozen people salvage services demonstration base"In hebei medical university affiliated ridge hospital listed.

　　据中国医师协会副会长蔡忠军介绍，“渐冻人”医学上叫做“运动神经元病”，简称“ALS”。一旦患病，会渐渐出现全身肌肉萎缩、无力、瘫痪，已至不能吞咽、呼吸困难，就像被“冻僵”一样，顾名思义俗称“渐冻人”。

According to the Chinese medical doctor association, vice chairman of CaiZhongJun is introduced,"Gradually frozen people"Medical called"Motor neuron disease",Referred to as"ALS".Once sicken,Will gradually appear whole body muscle atrophy/weakness/paralysis,Already to can't swallow/Difficulty breathing,like"frozen"as,Just as its name implies commonly known as"Gradually frozen people".

　　河北医科大学附属以岭医院陈金亮教授表示，该病是一种罕见病，致残率高，我国发病率为十万分之三到五，且有上升趋势，尤其在40多岁的中、壮年中发病最多。“据统计，目前我国有20万患者，需要被“解冻”。”

Hebei medical university affiliated ridge hospital ChenJinLiang professor said,The disease is a rare disease,Disability rate high,Incidence in our country for three over one hundred thousand to five,And a rising trend,Especially in more than 40 years old in/In most of disease."According to the statistics,At present our country has 200000 patients,Need to be"thaw"."

　　当日，“渐冻人救助服务基地”在河北医科大学附属以岭医院挂牌，这也是河北首家中医“渐冻人救助服务基地”。活动中，中国医师协会公益项目办公室主任刘杰、以岭医院教授陈金亮、主任李建军，共同为现场患者及家属解答了关于渐冻人治疗、护理等方面问题。

On that day,"Gradually frozen people salvage services base"In hebei medical university affiliated ridge hospital listed,This is also the first doctor of traditional Chinese medicine in hebei province"Gradually frozen people salvage services base".activities,The Chinese medical doctor association public welfare project office director liu jie/Ridge hospital professor ChenJinLiang/Director soloing,The common for patients and family members about the solution gradually frozen people to cure/Nursing problems.

　　中国工程院院士、河北医科大学附属以岭医院吴以岭教授表示，虽然患者得了世界性难题的疾病，但是我们不能放弃，中国传统医学两千年前就对运动神经元疾病有了记载，包括治疗方法和经验，相信通过我们的努力和医护人员的细心、关心，定能融化渐冻人的心，让他们过上好日子。

Chinese academy of engineering/Hebei medical university affiliated ridge hospital professor wu ridge said,Although patients got a worldwide problem of disease,But we can't give up,The traditional Chinese medicine two thousand years ago to motor neuron disease have records,Including the treatment method and experience,We believe that through our efforts and medical staff carefully/care,It can melt gradually frozen man's heart,Let them to live a good life.

　　陈金亮教授指出，虽然国际上对于渐冻人在医学上还没有治愈办法，但是目前中医对于延长病友存活时间、提高生活质量方面已经有了比较明确的治疗、护理方案，时刻关注自身营养状态、改善精神心理状况、加强家居护理水平、提早使用无创呼吸机治疗都是战胜该病的武器。

ChenJinLiang professor noted that,Although international on gradually frozen people on medicine, it can't be cured,But at present the doctor of traditional Chinese medicine to prolong survival time of patients/Improve the quality of life is more specific treatment/Nursing plan,Pay close attention to oneself nutrition state/Improve the mental condition/Strengthen the household care level/Early use of noninvasive ventilator therapy are win over the arms.

　　活动现场为河北省及周边地区捐赠发放了治疗该病的辅助用具。由国家财政支持民政部捐赠的辅助用具包括双水平无创呼吸机，手术用胃造瘘管，医用防褥疮床垫，电脑沟通辅助工具、血氧监测仪、洗澡/坐便椅、充气颈托、记忆海绵坐垫等8大类产品，将在今年11月底完成全部捐赠。(完)

The activity at the site for hebei province and around area donation issued to a cure auxiliary appliance.By national finance to support the ministry of civil affairs donated auxiliary equipment, including the double level noninvasive ventilator,With the stomach surgery made fistula,Medical prevent bedsore mattress,Computer communication auxiliary tool/Blood oxygen monitor/Bath/sit down and chair/Inflatable neck collar/Memory sponge cushion, eight categories of products,This year will be the end of November completed all donations.(finish)