一岁半的女孩，皮肤松弛，看起来就像个古稀老人。这不是电影里虚构的情节，而是现实生活中真实的故事。

One and a half girl,Skin relaxation,Looks like a years of age old man.This is not fiction movie plot,But real life true story.

　　除了皮肤松弛，女孩还患有多种疾病，经历了数次治疗。“不知道啥时候是头，走一步算一步吧。”对于女孩的家人来说，坚持成了他们唯一的选择，他们盼望着孩子的病能治好，不用再遭罪……

In addition to the skin relaxation,The girl with a variety of diseases,Experienced several treatment."Don't know what time is head,Walk the one step calculate step it."For the girl's families,Adhere to become their only choice,They are looking forward to the child's disease can be cured,No longer suffer...

　　怪病 Strange disease

　　一岁半女孩，看起来像老人 Half years old girl,Looks like the old man

　　1918年，一战进入尾声，新奥尔良一个姓巴顿的家里，一个男婴呱呱坠地，令众人惊奇不已的是，这个幼小的婴孩竟然是个满头白发、一脸皱纹的古稀老头。随着岁月的流逝，他却越活越年轻，最终又成为一个婴儿在襁褓中死去。

In 1918,,World war I come to an end,New Orleans a surname patton's home,A baby boy comfort,Make all awestruck is,This young child unexpectedly is a gray hair/A face of wrinkles years of age old man.As the years passed,He is living longer and young,And ultimately become a baby in long clothes die.

　　这是电影《返老还童》的故事情节，今年23岁的杨小丽没有想过，这个电影的“现实版”会在自家孩子身上上演。

This is the movie[rejuvenation]story,23 years old this year YangXiaoLi hadn't thought of,This movie"Reality version"Will be in their children stage.

　　昨日15时许，郑州市儿童医院呼吸内科的病房里，一岁半的小雨馨正在哭闹，和同病房的孩子比，雨馨格外显“老”：嘴边布满褶子，脸颊两侧皮肤下垂。和脸部相比，雨馨身上的皮肤更显松弛。

Yesterday at about 15,The children's hospital of zhengzhou city, respiratory medicine ward,One half of the light rain jasmine is crying,And with ward than children,Sweet rain especially show"old":Mouth is full of pleat,On both sides of the cheek skin sag.And face compared to,Sweet rain on the skin more show relaxation.

　　“看着就跟个老年人，上一次抱着孩子去看病，有个小孩儿捂着眼睛不敢看她。”雨馨的奶奶曹妞无奈地说，“抱着出去，人家都是围着看，我都不敢轻易带她出去。”

"With a look at the elderly,The last time holding the children go to the doctor,A child holding eyes can't see her."The rain scented grandmother CaoNiu helplessly said,"Hold out,The somebody else is around to see,I can't easily take her out."

　　讲述 tells

　　孩子刚出生时皮肤确实有些松弛 The child just was born skin does have some relaxation

　　“怀她的时候，做过检查，没有发现什么问题。”看着孩子哭闹，杨小丽也没有办法，孩子跟着在郑州做小生意的奶奶时间长了，不让她抱，“刚生下来的时候8斤6两，个头大着呢。”

"Bosom her,check,Don't see any problem."Look at children crying,YangXiaoLi to also have no way,The child followed in zhengzhou dicker grandmother for a long time,Don't let her hold,"Just was born when 8 jin 6 two,Is a."

　　杨小丽回忆，孩子刚出生的时候，皮肤确实有些松弛，当时并没有太在意，“想着长长就长开了，我在家带了她6个多月，中间孩子都没有生过病，快7个月的时候给她断了奶，我才又出去。”这之前，杨小丽和爱人都在外打工，爱人每月能有两三千元的收入。

YangXiaoLi memories,The child just the time of birth,The skin does have some relaxation,It wasn't too care about,"Thinking about it long long opened,I was at home with her for more than six months,Intermediate children are not been ill,It's nearly seven months when she weaned,I'm out."Before this,YangXiaoLi and lover are working outside,Love can have 23000 yuan monthly income.

　　“孩子9个月以前偶然有点小感冒，后来就经常生病。”曹妞给雨馨拿了一根香肠，雨馨津津有味地吃了起来，“有一次我带她去诊所看感冒，医生说我孙女有皮肤松弛症，让赶紧给孩子看看。”曹妞说，此后他们去了很多医院，但都不能确诊。

"The child 9 months ago by chance is a little small cold,Then is often ill."CaoNiu give rain scented took a sausage,The rain scented with relish to eat up,"Once I take her going to the clinic to see a cold,The doctor said my granddaughter have flabby skin disease,Let hurriedly give children see."CaoNiu said,Then they went to many hospitals,But can diagnose.

　　而孩子的身体似乎也越来越虚弱，“这大半年经常往医院跑，孩子有先心病、肺炎跟哮喘，刚看好，过一段时间就又复发了。”曹妞说，因为经常生病，孩子身上就不长肉，“现在还胖了，前段时间瘦得厉害。”

And the child's body seems to be also more and more weak,"This few months often went to the hospital to run,Children have congenital heart disease/Pneumonia and asthma,Just value,Over a period of time and the recurrence."CaoNiu said,Because often sick,Children will not long flesh,"Now also fat,Some time ago to thin badly."

　　迷茫 confusion

　　看病已花费数万 “不知道啥时候是头” The doctor have spent tens of "Don't know what time is head"

　　因为经常输液，雨馨的头发理成了短寸，活脱脱一个假小子，“不好扎针，她皮肤松，在153医院的时候，有次扎上针5分钟就跑针了。”杨小丽苦笑着说，每次孩子看病，她都要请假赶回郑州，儿童医院里很多人都认识她们，“这已经是第六次来了。”

Because often infusion,The rain scented hair became short inches,Should be a tomboy,"Bad needle,Her skin pine,In 153 hospital,Once reaches needle 5 minutes to run the needle."YangXiaoLi says with a wry smile,Every time the children to see a doctor,She would leave back to zhengzhou,The children's hospital many people know them,"This is the sixth time."

　　吃了零食的雨馨心情好了起来，挣脱大人的怀抱要下来走路。扶着病床挪动几步，雨馨就会开心地看着奶奶笑，“这孩子可好动了，静不下来，也聪明，别人做个啥表情，她立马就能学会。”

Eat snacks back the rain in a good mood to get up,From the bosom of adults to walk down.To hold the sickbed move a few steps,The rain will be happy to jasmine looked at grandma smile,"The child can restless,Static don't come down,Also smart,Others make a what expression,She can learn to immediately."

　　“这次来医院的路上，我告诉她不能睡、不要睡，她听不懂，但她知道大人着急，一直撑到这儿。”在杨小丽眼里，雨馨格外懂事，“不过她身体太弱，稍微着凉就生病，有两次差点就救不回来了。”

"The on the way to hospital,I told her she can't sleep/Don't sleep,She couldn't understand,But she knew that adult try so hard,Always stay here."In YangXiaoLi eyes,Sweet rain more sensible,"But her body is too weak,Catch cold is a little bit sick,There are two times almost can't save came back."

　　将近一年的时间，看病花了8万多元，“亲戚能借的都借过了，有人说治不好就别要了。”曹妞顿了顿，“都这么大了，哪儿舍得啊，也不知道啥时候是头，走一步算一步吧。”

Nearly a year's time,The doctor spent more than 80000 yuan,"Relatives can borrow borrow all over the,Some say not cure don't asked for."CaoNiu meal meal,"Are so big,Where be willing to part with or use ah,Also don't know what time is head,Walk the one step calculate step it."

　　分析 analysis

　　医生：皮肤松弛症很罕见 The doctor:The skin is flabby disease is very rare

　　“妈妈，妈妈……”听到孩子叫她，杨小丽笑了起来，女儿已经会叫奶奶和妈妈了。

"mother,Mom..."When their children call her,YangXiaoLi laughed,She was will call grandmother and mother.

　　爱人一直在外打工，赚钱给孩子看病，“现在还是先给孩子看肺炎，再想办法看皮肤上的病。”杨小丽说，她的心愿就是孩子的病能治好，以后不用再遭这么多罪。

Love has been working outside,Make money for children to see a doctor,"Now or give children watch pneumonia,To think of a way to see the skin disease."YangXiaoLi said,Her wish is the child's disease can be cured,Later need not again was so much sin.

　　“从外观上看，可以判定这就是皮肤松弛症。这种病很罕见。”郑州市儿童医院皮肤科宋副主任介绍，但要进一步确诊的话，还需要做医学病理的分析，“我们这里做不了，要到更高一级的医院。”

"Look from exterior,Can judge this is flabby skin disease.This kind of disease is very rare."The children's hospital of zhengzhou city dermatological department, deputy director of the song dynasty is introduced,But further diagnose words,Need to do medical pathology analysis,"We can't do here,Going to a higher level of the hospital."

　　“这个孩子本来就有一个基础病：皮肤松弛症。它是染色体突变引起的一个疾病，但是现在具体的发病机制还不是特别清楚。”雨馨目前的主管医生张磊说，皮肤松弛症在孩子身上最直观的一个表现就是皮肤松弛，面部看起来像老年人。

"The child had as a basic disease:Flabby skin disease.It is chromosome mutations cause of a disease,But now the specific pathogenesis is not very clear."The rain scented the competent doctor zhang lei said,The skin is flabby disorder in children the most intuitive a performance is the skin relaxation,The face looks like the old.

　　张磊说，以皮肤松弛症为基础引发其他病变，如呼吸系统、免疫系统疾病，“这个孩子应该是先天性发病，自身免疫力也比较低，病症容易反复发作。”

Zhang lei said,Based on the skin relaxation disease caused by other lesions,Such as respiratory system/Immune system disease,"The child should be congenital disease,Their immunity is low,Disease easily break out repeatedly."

　　“我们会尽最大努力治疗她呼吸方面的疾病。”张磊说，孩子的一系列疾病都有一个根源，也建议家长带孩子到北京、上海这些发达地区的医院寻求更好的治疗。河南商报记者 李亚沛 实习生 王杰

"We will try our best to treat diseases of the her breath."Zhang lei said,The child's a series of disease has a root,Also suggested that parents took the kids to Beijing/Shanghai these developed area hospital for better treatment.The henan business reporter LiYaPei interns wangjie