中新网12月14日电 据卫生部网站消息，卫生部办公厅今天发布关于做好血友病医疗服务工作的通知，通知要求，各省级卫生行政部门应当根据当地医疗资源布局、血友病患者分布、血友病病例数据分析、成人与儿童患者结构等实际情况，至少指定一家血友病诊疗水平较高的医疗机构作为血友病定点医疗机构。

December 14, according to the ministry of health news website,General office of the ministry of health issued today about do hemophilia medical service work of the notice,Notice requirements,The provincial public health administrative department shall, according to the local medical resources layout/Hemophiliac distribution/Hemophilia case data analysis/Adults and children with the structure of the actual situation,At least specify a hemophilia diagnosis and treatment high levels of medical institutions designated medical institutions as hemophilia.

　　通知指出，要高度重视做好血友病医疗服务工作，从深化医药卫生体制改革大局，以对人民群众健康高度负责的精神，从建立血友病诊疗分级诊疗体系和加强血友病病例信息管理等方面着手，做好血友病医疗服务工作。

Notice points out that,Should attach great importance to do hemophilia medical service work,Deepening the reform of the medical and health system from the overall situation,To the health of the people in a highly responsible spirit,From the establishment of hemophilia medical diagnosis and classification system and strengthen hemophilia case information management aspects,Do hemophilia medical service work.

　　通知要求，各省级卫生行政部门应当按照有序就医、便民利民、加强协作的原则，确定分级诊疗和双向转诊标准，建立分工协作和双向转诊机制，逐步完善血友病分级诊疗体系。

Notice requirements,The administrative department of public health at the provincial level shall, in accordance with the order go to a doctor/The convenience and benefit/The principle of cooperation,Determine the hierarchical diagnosis and treatment and two-way referral standards,Establish division of labor cooperation and two-way referral system,Gradually improve hemophilia classification system of diagnosis and treatment.

　　(一)确定血友病定点医疗机构。各省级卫生行政部门应当根据当地医疗资源布局、血友病患者分布、血友病病例数据分析、成人与儿童患者结构等实际情况，至少指定一家血友病诊疗水平较高的医疗机构作为血友病定点医疗机构，承担省内一定区域范围内血友病的确诊、疑难重症病例的治疗工作以及对本区域内其他医疗机构的指导和培训工作。

(a)Determine to nod medical establishment hemophilia.The provincial public health administrative department shall, according to the local medical resources layout/Hemophiliac distribution/Hemophilia case data analysis/Adults and children with the structure of the actual situation,At least specify a hemophilia diagnosis and treatment high levels of medical institutions designated medical institutions as hemophilia,Assume a certain area in the province within the scope of hemophilia diagnosis/In the treatment of complicated cases and other medical institutions in this area of the guidance and training work.

　　(二)成立省级血友病专家组。各省级卫生行政部门应当成立省级血友病专家组。

(two)Established provincial hemophilia group.The provincial administrative department of health at the provincial level shall set up a group hemophilia.

　　(三)提高县医院和基层医疗卫生机构血友病筛查能力和常规治疗水平。县医院和基层医疗卫生机构承担血友病筛查和门急诊常规治疗工作。对于血友病可疑患者，由县医院和基层医疗卫生机构抽取血液样本后送血友病定点医疗机构确诊，必要时可以将患者转诊至血友病定点医疗机构确诊。

(three)Improve the county hospital and basic medical and health institutions hemophilia screening ability and conventional treatment level.County hospital and basic medical and health institutions to undertake hemophilia screening and this work routine therapy.For patients with suspected hemophilia,By the county hospital and basic medical and health institutions draw blood samples sent to nod medical establishment hemophilia after diagnosis,May, when necessary, will be patient referral to nod medical establishment hemophilia diagnosis.

　　(四)提高血友病患者的服务水平。各血友病定点医疗机构要大力开展血友病知识宣传，让更多的群众了解血友病及其防治常识。

(four)To improve the service level of the patients with hemophilia.The hemophilia to nod medical establishment will vigorously develop hemophilia knowledge propaganda,Let more people understand hemophilia, prevention and common sense.

　　(五)统筹推进药品供应和医疗保障工作。各省级卫生行政部门要积极协调相关部门，对凝血因子Ⅷ和凝血酶原复合物等紧缺药物，可探索实行定点生产、定向供应、定人使用、不列入医院药占比的管理模式。

(five)As a whole propulsion drug supplies and medical security work.The public health administrative department at the provincial level shall actively coordinate relevant departments,To clotting factor Ⅷ and blood coagulation preferment compound etc. In short supply drugs,Can explore a sentinel production/Directional supply/Personal use/Not included in the hospital for medicine than management mode.

　　通知指出，要完善血友病病例信息管理制度，加强血友病信息登记和报送网络建设，做好血友病病例信息登记和统计工作。国家和各省级血友病病例信息管理中心要加强对既有信息的应用，通过数据整理、分析和监测，及时、准确掌握血友病患者数量、分布、发病率和药物需求等情况，为血友病诊疗提供支持。

Notice points out that,To improve hemophilia case information management system,Strengthen hemophilia information registration and submit the network construction,Do hemophilia case information registration and statistical work.National and the provincial hemophilia case information management center to strengthen the application of both information,Through the data/Analysis and monitoring,timely/Accurately mastering hemophiliac quantity/distribution/Incidence of a disease and drug demand, etc,Provide support for hemophilia diagnosis and treatment.

　　此外，通知还要求，各省级卫生行政部门要强化政策衔接，加强督导检查，及时总结和推广工作经验。

In addition,Notice also requires,The provincial administrative department of health policy to strengthen cohesion,Strengthen the supervision inspection,Timely summary and promotion work experience.