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陕北贫困先心病患儿:医疗条件不足 常规体检困难--亲民维稳网络舆情监测室
2012-12-28

陕北贫困先心病患儿:医疗条件不足 常规体检困难12月22日,“为了我们的孩子——贫困家庭先心病儿童救助行动”来到陕西省延安延长县,对4所幼儿园2所小学的学生进行先心病筛查。图为医生在给孩子检查。新华网记者李莹 摄 On December 22,,"For the sake of our children - poor families FCHT children relief efforts"Came to the shaanxi province 延安市 YanChangXian,To 4 kindergartens and primary schools students FCHT screening.The graph is a doctor in check to the child.Xinhuanet reporter chin perturbation陕北贫困先心病患儿:医疗条件不足 常规体检困难12月22至24日,“为了我们的孩子——贫困家庭先心病儿童救助行动”来到陕西省延安市延长县进行贫困家庭先心病儿童筛查。图为延长县幼儿园孩子在家长陪伴下在诊室外等候检查。新华网记者 李莹 摄 On December 22 to 24,,"For the sake of our children - poor families FCHT children relief efforts"Came to shaanxi province 延安市 YanChangXian children for poor families FCHT screening.The graph is YanChangXian kindergarten children in parents accompanied by at the office for inspection.Xinhuanet reporter chin perturbation

  冬天的陕北冰冷异常。上午8点多,太阳已高高升起,空气中却感觉不到一丝暖意,延安市延长县街道两边与周围的山被一层灰白的冰冻与积雪覆盖。

The shaanxi province in the winter cold.More than eight o 'clock in the morning,The sun has risen above,But do not feel a trace of warmth in the air,延安市 YanChangXian street on both sides with the surrounding mountains covered by a gray layer of frozen with snow.

  这是12月22日,延安的最低气温已达零下18摄氏度,由中国武警总医院心脏科12位医生组成的一支医疗队从北京来到陕北,对延安市6个县区53663名贫困家庭儿童进行先天性心脏病筛查,并进行免费救助。新华网记者跟随其中一支医疗小分队,来到延安市延长县、延川县跟踪采访。

It is on December 22,Yanan has reached the lowest temperature 18 degrees Celsius below zero,By the armed police general hospital heart and a doctor of a medical team from Beijing to shaanxi,To 延安市 6 counties and 53663 poor families children congenital heart disease screening,And assistance free of charge.Xinhua reporters follow one medical teams,Come to 延安市 YanChangXian/YanChuanXian follow-up interview.

  在延长县城幼儿园筛查点,一间办公室成为临时诊室。很多家长得知有北京来的医生给孩子检查身体,早晨7点就带着孩子来排队。

In an extended county kindergarten screening point,An office as a temporary office.Many parents find Beijing examined the baby to the doctor,Took his children to line up at 7 o 'clock in the morning.

 

 小雨飞父母:“手术费要几万,家里负担不起” Light rain fly parents:"Operation to tens of thousands of,At home can't afford it"

  诊室前的队伍中,有位小姑娘十分引人注意,她一直被妈妈抱着,看起来很乖巧,不爱说话。她叫雨飞(化名),就读于延长县幼儿园,今年3岁。

In front of the office,There is a little girl is very eye-catching,Her mother has been holding,Look very cute,Don't love to talk.Her name is the rain fly(The allotted time periods specified by the),Enrolled in YanChangXian kindergarten,This year 3 years old.

  医生对她初步听诊,听到她的胸部有明显杂音。用便携式超声机进一步检查后,武警总医院心内科专家马东星医生诊断认为,雨飞患有室间隔缺损和房间隔缺损两种病症合并心脏畸形,是先天性心脏病中较为严重的一种。

The doctor for her initial auscultation,Heard her chest has obvious noise.With portable ultrasound machine after further check,The armed police general hospital heart medicine experts (star the doctor diagnosed,The rain fly with ventricular septal defect and asds two disease with cardiac anomalies,Is a kind of serious in congenital heart disease.

  雨飞妈妈在一旁不停擦眼泪。离母女俩不远处,雨飞爸爸一直低着头,手里拿着雨飞以前的病历本。其实,2010年雨飞在延安一家医院已被诊断为先心病,医生说需要在半年后再次复查。可雨飞的妈妈没有工作,而爸爸在县城打工,每月收入只有1千元左右。虽然家里只有雨飞一个孩子,但仍难以负担继续治病费用。

The rain kept fly mother in the side wipe tears.Not far away from the mother and daughter both,The rain fly dad always low head,The rain fly before BingLiBen in hand.In fact,In 2010, the rain fly in a hospital in yenan had been diagnosed with FCHT,The doctor said need to check again after half a year.Can the rain fly's mother has no job,And dad work in the county,Monthly income is 1000 yuan.Although only the rain fly a child,But it is still difficult to bear the cost continue to heal.

  “手术费要几万,家里负担不起。”雨飞爸爸说。

"Operation to tens of thousands of,At home can't afford it."The rain fly father said.

  先天性心脏病是胎儿时期心脏血管发育异常导致的心血管畸形,根据流行病学调查显示,先心病在新生儿中的发病率为6‰-9‰。

Congenital heart disease is caused by abnormal fetal cardiovascular development cardiovascular malformations,According to epidemiological survey,FCHT in neonatal morbidity is 6 ‰ 9 ‰.

  武警总医院医务部主任刘惠亮向记者介绍:“常见先心病有房间隔缺损、室间隔缺损、肺动脉狭窄、动脉导管微闭等6种,先心病可以根据适应症通过介入治疗或手术治疗。以我国现有医疗水平,95%以上患儿都可以通过手术一次治疗,并能像正常孩子一样生活。”

The armed police general hospital medical department director LiuHuiLiang introduces to the reporter:"Common FCHT are interatrial septum defect/Ventricular septal defect/Pulmonary artery stenosis/Of 6 kinds of artery catheter glows,FCHT may, according to the indications by interventional therapy or surgery.In China's current level of medical treatment,More than 95% of the patients can be treated by surgery at a time,And be able to live like a normal child."

  此次延安贫困家庭先心病儿童救助活动是启动于2001年的“为了我们的孩子——少数民族贫困家庭先心病儿童救助行动”中一项内容。救助行动发起人、中华慈善总会分支机构新闻志愿者促进委员会会长徐镱轩告诉新华网记者:“根据相关统计,每个孩子的治疗费用依据心脏畸形的严重程度而不同,一般费用在2.5万至5万元之间。有严重者费用会多达到十几万。现在我国有一半以上患儿因为家庭贫困得不到及时治疗,最终影响患儿一生。”

The yenan poor families FCHT children relief was launched in 2001"For the sake of our children - minority poor families FCHT children rescue action"An content.Aid the promoter action/China charity federation branch news volunteers, chairman of the council for the promotion of yb xu xuan told xinhua reporter:"According to relevant statistics,Each child's treatment according to the severity of the cardiac anomalies,Average cost between 25000 and 50000 yuan.There are serious cost will be up to hundreds of thousands.Now our country has more than half of children can't get timely treatment due to poverty,Ultimately affect children life."

  当地政府:“医疗条件不足,孩子常规体检困难” The local government:"Lack of medical care,Children routine check-up"

  记者跟随医疗队在延长县和延川县的幼儿园与学校走访筛查中发现,很多家长和当地学校老师对先心病其实并不了解。

Reporters in YanChangXian with the medical team and YanChuanXian kindergarten and school visit screening,A lot of parents and local school teachers of FCHT don't really understand.

  7岁的小嘉嘉(化名)就读于延长县某小学一年级,12月23日上午经过医疗队初步诊断,嘉嘉患有肺动脉狭窄,为先心病患儿。23日下午放学后,一脸焦急的嘉嘉妈妈赶到学校,找老师询问情况。

At the age of seven small jia jia(The allotted time periods specified by the)Enrolled in YanChangXian a primary school grade one,On December 23, in the morning after the medical team preliminary diagnosis,Jia jia with pulmonary artery stenosis,For children with FCHT.23 afternoon after school,A face of anxious jia jia mother hurried to school,To find the teacher asked.

  “我不知道这是啥病,只听娃娃回来说,有北京医生叔叔到学校查体说她身体哪里有病。”嘉嘉妈妈说,嘉嘉从小身体一直很好,只是偶尔感冒,听到孩子身体有病之后,她吓了一跳,一天心里七上八下吃不进饭,也没敢告诉在外地打工的嘉嘉爸爸,只是一个人四处打听这病到底多重。

"I don't know if this is what disease,Just listen to baby come back,Beijing uncle to school physical examination the doctor say she is sick."Jia jia said mother,Jia jia from body has been very good,Only occasionally cold,After heard the child's physical illness,She got a fright,A day on tenterhooks don't eat rice,Didn't dare tell 'doing a part-time job in the field of jia jia dad,Just one person ask it on multiple.

  “虽然每年学校都有查体,但是对于先心病并不了解。”延长县延长延安精神红军小学老师常红燕告诉记者:“除了每年卫生局组织的例行为学生查体外,学生平时身体不舒服也只是到校门口的县里人开的私人诊所去检查。”

"Although schools are performed each year,But for FCHT don't understand."YanChangXian extend yanan spirit the reds primary school teacher ChangGongYan told reporters:"Each year in addition to the bureau of the organization's routine check for students in vitro,Students at ordinary times body uncomfortable just to the school of the county people's private clinic to check."

  武警总医院心内科医生马东星说:“由于受各地自然条件、经济、医疗条件的影响以及知识的积累,并不是每个地方都对先心病有了解,也不一定都能检出先心病,但是先心病恰恰是早发现早治疗最好。”

The armed police general hospital heart medicine doctor (star said:"Due to all natural conditions/economic/Medical conditions, and the influence of the accumulation of knowledge,Not every place FCHT to have understanding,Not necessarily can detect FCHT,But FCHT is early found that early treatment is best."

  “先心病最好治疗期主要是在14周岁以前。”刘惠亮说,“因为先心病对人体的发育影响很大,早点治疗可以根治,到晚期治疗可能会从可治愈疾病变为不能治愈疾病。”

"FCHT best treatment period is before the age of 14."LiuHuiLiang said,"Because FCHT had a great influence on the development of the human body,Early treatment can be cured,To late treatment may be from treatable diseases become can't cure the disease."

  延长县卫生局局长刘柏林告诉记者,延长县近几年医疗卫生水平已有提高,全县3家公立医院已经全部进行医改试点,新农合参保率占到97%。2011年,延长县医院也在陕西省西安市医院分别引进了外科、心血管内科等4名专家。可是,由于医疗专业人才仍然短缺较多,很多大病还是无法在当地医治。

YanChangXian health bureau chief LiuBaiLin told reporters,YanChangXian health level has been improved in recent years,County 3 already all carry out the pilot reform of public hospitals,New farming participating insurance rate accounts for close to 97%.In 2011,,YanChangXian surgery hospital also in xian city of shaanxi province were introduced/Cardiovascular internal medicine, four experts.but,Due to the shortage of medical professionals still more,A lot of serious illness or not in the local healing.

  “2011年,延长县医院对外招聘30名本科生,后来只招进6人。”刘柏林说,因为缺乏医疗专业人员,现在延长县的各乡镇小学还无法达到每个学校都配有校医,这样孩子们查体等基本保障也很难达到。

"In 2011,,YanChangXian hospital foreign recruitment 30 undergraduate students,Later only for six people."LiuBaiLin said,Because of the lack of medical professionals,Now YanChangXian township of primary school is unable to achieve every school is equipped with a school doctor,Such children on examination and basic guarantee is difficult to achieve.

  延川县主管民政的副县长严明也告诉记者,虽然现在延川县已经开始实施大病医保,但对于人均年收入4000多元的延川县,先心病这样的大病还是不小的负担。

YanChuanXian competent civil affairs deputy magistrate of the strict also told reporters,Although YanChuanXian now has begun the implementation of a serious illness medical insurance,But for the average per capita income of 4000 yuan YanChuanXian,FCHT such a serious illness is still a lot of burden.

  

医疗队:“请一定留好联系方式,保证我们一定能找到您” The medical team:"Please keep good contact,Sure we can find you"

  资料显示,目前,我国约有200万先心病患儿等待手术治疗,每年大约有12万名新生儿患病。

The data shows,At present,,In China about 2 million FCHT children waiting for surgery,Each year about 120000 neonatal illness.

  2011年2月起,中华慈善总会主办,总会分支机构新闻界志愿者慈善促进工作委员会承办的“为了我们的孩子——千名少数民族贫困家庭先心病儿童救助行动”启动,他们与解放军系统的医院合作,一年多来分别在青藏高原、内蒙古、宁夏、广西、四川、云南等地对1615名患儿进行手术治疗。

In February 2011,Hosted by China charity federation,Always volunteer work to promote charity committee for the branches the press"For the sake of our children - thousands of ethnic minority poor families FCHT children rescue action"start,They cooperate with hospital of the people's liberation army (PLA) system,For more than a year in the qinghai-tibet plateau/Inner Mongolia/ningxia/guangxi/sichuan/Yunnan on 1615 children in surgery.

  “不让一颗先心病儿童心脏因贫困而停止跳动。”徐镱轩说,生命只有一次,对于很多贫困地区的孩子来说,如果因为经济条件、医疗条件错过了治疗,那么一生的命运就会完全不同。

"Don't let a FCHT children's heart stopped beating due to poverty."Yb xu xuan said,You have only one life,For many children in the poor areas,If because of economic conditions/Medical conditions missed the treatment,Then the fate of the life will be completely different.

  “请一定保留好你们的联系方式,保证我们一定能找到您。”每次筛查出有确诊的先心病患儿,武警总医院心内科专家马东星都会不断的提醒患儿家长。

"Please keep good your contact information,Sure we can find you."Each screening of a diagnosis of FCHT children,The armed police general hospital heart medicine experts (star will be constantly remind children of parents.

  武警总医院院长郑静晨告诉记者:“一个家庭如果有孩子得了先心病可能会背上沉重的包袱,有的家庭生活已经很好了,但有这样的孩子可能会把所有积蓄花在孩子看病中,导致很多家庭因病返贫,而这种筛查治疗的一次性救助,至少可以减少一个家庭的损失。”

The armed police general hospital dean ZhengJingChen told reporters:"If a family have children got FCHT may be the heavy burden on his back,Some family life has been very good,But there are such children may spend all their savings in a child to see the doctor,Lead to a lot of family poverty due to illness,And this kind of screening treatment one-time assistance,At least can reduce the loss of a family."

  据了解,此次贫困家庭先心病儿童救助行动有陕北企业家刘彪出资500万,救治目标是100例先心病患儿。

It is understood,The poor family FCHT children relief efforts have shaanxi entrepreneurs LiuBiao 5 million,Treatment goal is to 100 cases of FCHT children.

  “谢谢医生能给孩子查出来病,只要孩子的病能治好就好了。”嘉嘉妈妈说。

"Thank the doctor can give children found out,As long as the child's illness can be cured."Jia jia said mother.

  中华慈善总会新闻志愿者促进会相关负责人告诉记者,从22日至25日,武警总医院医疗队在延长县与延川县共筛查出40多名先心病患儿,6个县共筛查出104位确诊的先心病患儿。暂时已确认第一批有15位确诊的先心病患儿将于28日赴北京,进入武警总医院进行手术治疗。

China charity federation news volunteers council for the promotion of the related person in charge told reporters,From 22 to 25,The armed police general hospital medical team in YanChangXian together with YanChuanXian screening out more than 40 FCHT children,6 counties of screening out of 104 diagnosed FCHT children.Has confirmed that the first batch of 15 for diagnosis of FCHT in 28 patients will go to Beijing,Enter the armed police general hospital for surgery.

  延安先心病患儿到北京的手术能顺利吗?孩子们在北京怎样生活?本网记者将持续关注延安贫困家庭先心病患儿救治情况。(记者 李莹)

Yanan FCHT children to Beijing can operation smoothly?The children how to live in Beijing?This reporter will continue to pay close attention to yenan poor families FCHT children with treatment.(The reporter chin)



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