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中国红基会天使之旅在河南走访白血病患儿家庭--亲稳舆论引导监测室
2013-01-06

  中新网北京1月6日电 (蒋涛)胡可家住河南信阳平桥区邢集乡,她在河南省郑州市做完化疗回到家里,因为白血病患儿免疫系统脆弱,所以对健康人来说很常见的感冒,对她而言如不及时治疗,也是致命的。

Beijing Beijing, jan. 6 (JiangTao)HuKe in henan xinyang 平桥 area xing sets township,She is in zhengzhou city, henan province returned home after chemotherapy,For leukemia children with weak immune system,So it is very common for healthy people catch a cold,For her, if not timely treatment,Is the deadly.

  “去年胡可的一次感冒就用去了6000多元,家里一年的收入都不够她感冒一次的,千万别感冒。”胡可的父亲胡成斌告诉记者。

"Last year HuKe a cold went with 6000 yuan,Family's income is not enough she cold once a year,Don't catch a cold."HuKe father HuChengBin told reporters.

  胡可坐在火炉边,不发一言,志愿者拿出玩具与画笔,她还是一动不动地盯着前方。

HuKe sitting on the fire,Don't say anything,Volunteers took the toy with brush,She still kept staring at the front.

  2010年5月,胡可被确诊为白血病,至今已花去30余万元,胡可的爸爸妈妈为筹钱几乎跑遍了所有亲戚家。除了种地、做零工,胡可家每年都要欠下新的债务。经过治疗,胡可的病情已经得到控制,胡成斌对记者也表露出乐观,“人不死,债不烂,慢慢还。等孩子正常起来,就让她和别的孩子一样去上学。”

In May 2010,HuKe is diagnosed with leukemia,Has spent more than 30 ten thousand yuan,HuKe of mom and dad for money went around almost all relatives.In addition to sow the land/Doing odd jobs,HuKeGu every year new debt owed.After treatment,HuKe condition has been under control,HuChengBin to reporters also express optimistic,"People die,Debt is not bad,Slowly also.Children such as normal,Let her go to school like other children."

  2012年12月中旬,中国红基会“天使之旅”行动在全国募集的38名志愿者,走访河南省白血病患儿家庭,并组织2个医疗专家组对先天性心脏病患儿进行筛查。志愿者共走访41名白血病患儿,与当地医院配合,确定50名先天性心脏病患儿急需安排手术。

In the middle of December 2012,China red, will"Angel trip"Action and recruitment of volunteers in the country,Visit henan leukemia children with family,And organize two medical treatment expert group for children with congenital heart disease screening.Volunteers were visiting 41 children with leukemia,Cooperate with the local hospital,Determine the 50 children with congenital heart disease need arrangement surgical operation.

  中国红基会项目管理部副部长周魁庆说,河南“天使之旅”行动结束后,红基会依据天使阳光基金项目资助标准选取3个特别困难的家庭,河北大厂的爱心人士定向向他们捐助了每家庭3万元的款项,“暂时解决他们眼前面临的问题”,同时,红基会将根据走访患儿家庭情况继续进行救助

China red base will project management deputy minister ZhouKuiQing said,henan"Angel trip"After the action,Red base will be based on the sunshine angel fund project funding criteria to select three special difficulties of the family,Hebei due the love of people oriented to the money they contributed 30000 yuan per family,"Temporarily solve their eyes are faced with the problem",At the same time,Red, will according to visit children family continued assistance.

  据流行病学统计,中国目前白血病的自然发病率已由上世纪末的不足十万分之三上升至约十万分之四,而儿童白血病发病率已突破十万分之七,全国每年新增约5万名白血病患者中有约60%是儿童。尽管中国政府已出台提高重症治疗费用报销比例的政策,但由于医疗资源分布不均衡等原因,中国中西部不发达省份及农村地区的大量重症患儿家庭被迫选择异地就医,因此,医疗费用实际报销比例远低于理论水平。

According to the epidemiology statistics,China leukemia incidence of natural had risen by less than three over one hundred thousand at the end of the century on about four over one hundred thousand,And the incidence of childhood leukemia has reached seven over one hundred thousand,The new every year about 50000 about 60% of patients with leukemia in children.Although the Chinese government has issued to improve the intensive treatment expense proportion of policy,But due to the imbalance of the distribution of medical resources,China's western underdeveloped provinces and the rural area of a large number of children with severe families were forced to choose different treatment,so,The actual medical expenses reimbursement ratio is far lower than the theoretical level.

  中国红基会自2006年起开展14周岁以下白血病患儿的救助工作。“从2010年下半年以来,每月新增白血病患儿救助申请在300份左右,目前,正在排队等待救助的患儿还有1500左右。”中国红基会项目负责人朱爱晶表示,按照目前每年3000多万元的救助资金规模,以每位患儿资助3至5万元标准测算,年均资助人数不足1000名,而实际需求患儿有3000多人。“因此,救助行动还有6000万的资金缺口。”

Since 2006, China red base will develop leukemia children under the age of 14 relief work."Since the second half of 2010,Monthly new aid for children with leukemia in 300,At present,,Children were waiting in line to wait for rescue and around 1500."China red base will project principal ZhuAiJing said,According to the relief fund size of more than 3000 ten thousand yuan a year,With each children for 3 to 50000 yuan standard measure,Fewer than 1000 annual funding,There are more than 3000 people and the actual needs of children."so,Relief efforts and 60 million funding gap."

  “小天使基金”成立于2005年,是中国第一个白血病贫困儿童救助专项基金。截至2012年10月底,累计支出社会捐款看3472万元,救助患儿1181名。从2009年开始,财政部每年在中国彩票公益金中列支5000万元,用于支持“天使阳光基金”和“小天使基金”。2012年年中,为解决白血病贫困患儿资助申请积压问题,财政部特别向“小天使基金”追加了3000万元彩票公益金。

"Little angel fund"Founded in 2005,Is China's first leukemia children relief fund.By the end of October 2012,Accumulative total spending social donation at 34.72 million yuan,Help children, 1181.Starting in 2009,The ministry of finance in China each year listed in lottery welfare fund 50 million yuan,Used to support"Sunshine angel fund"and"Little angel fund".The middle of 2012,Applications to solve poor children with leukaemia funded the backlog problem,The ministry of finance in particular to the"Little angel fund"An additional 30 million yuan lottery welfare fund.

  4年来,中国彩票公益金累计向“小天使基金”和“天使阳光基金”投入资金2.3亿元,资助贫困患儿近7699名,其中白血病患儿5975名。加上使用社会捐款资助的2434名贫困患儿,剔除共同资助对象的重复统计数,截至2012年年末,这两项基金自成立以来累计资助贫困患儿人数已经超过1万名,其中,白血病患儿7146名。

In four years,China lottery welfare has to"Little angel fund"and"Sunshine angel fund"Investment capital is 230 million yuan,Nearly 7699 funding for poor children,Of 5975 children with leukemia.Coupled with the use of social donation 2434 poor children,Eliminate mutual aid repeat some of the object,By the end of 2012,These two funds since the establishment of accumulative total funding the poverty stricken children number has more than 10000,Among them,Children with leukemia in 7146.

  “卫生部计划从新农合基金中每人抽取15元到20元用于购买商业保险,以弥补政策性医保报销的缺口。此外,大病救助也需要社会公益慈善组织发挥更大作用。”周魁庆说。

"Health plan new farming and funds from $15 to 20 yuan per person to purchase commercial insurance,In order to make up for the gap of policy coverage.In addition,A serious illness relief also need social charity organizations play a bigger role."ZhouKuiQing said.

  “一方面需要社会捐赠,一方面也需要国家政策的扶持。虽然社会募集资金的量一年只有约三、四百万,但更多人关注和参与白血病患儿的救助,有助于社会共同解决这一问题。”中国红基会秘书长助理雷淑敏说。

"On the one hand, need social donation,On the one hand, also need the support of national policy.Although social amount of raising money for one year only about three/Four million,But more people attention and participate in the relief of children with leukemia,Contribute to the society to solve the problems."China red base will assistant secretary-general LeiShuMin said.

  雷淑敏介绍称,“天使之旅”行动是中国红基会启动的一项崭新的志愿者行动计划,通过向全社会公开招募志愿者,协助寻找和发现更多的人道主义救助需求,并由志愿者全程参与救助需求的调查和评估、后续救助方案的制定、实施和监督等各个环节。

LeiShuMin said,"Angel trip"Action is red, China will start a new volunteer action plan,Through to the whole society public recruiting volunteers,To assist in search and find more demand for humanitarian aid,And the volunteers participate in rescue demand survey and evaluation/Subsequent rescue plan formulation/Implementation and supervision and so on each link.

  本次活动志愿者们通过网络报名自费来到信阳。来自北京的61岁志愿者付春来是年纪最大的志愿者,爱好摄影的他希望用自己的镜头记录白血病患儿家庭的真实生活状况,活动结束后为患儿们举行一次摄影展,“希望有更多的人去关心这些孩子”。(完)

The event volunteers through the network registration privately to xinyang.Volunteers from Beijing's 61 - year - old FuChun to is the oldest volunteer,Hobby photography he wants to use their own camera record the real life situation of leukemia children with family,After the activity for the children have a gallery,"Hope to have more people to care about these children".(after)


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