父母一直在期待女儿站起来。

Parents have been looking forward to daughter stood up.

　　“每一次，都在徘徊孤单中坚强；每一次就算很受伤也不闪泪光；我知道，我一直有双隐形的翅膀，带我飞，飞过绝望……”老旧的车库中传出一个女童稚嫩的歌声，只有7岁大的宇馨或许并不完全理解歌词的含义，但听到的人不禁为之一怔。从18个月大查出患有脊肌萎缩症，她就没有下地独自行走过，穿上花裙跑到街上“臭美”一次成为她最大的心愿，也是年轻的爸妈从未放弃过的追求。

"Every time,Wandering alone in the strong;Every time even if very hurt nor flash tears;I know,I have had two invisible wings,Take me fly,Fly over despair..."Old garage from a young girl's song,Only seven year old yu scented may not fully understand the meaning of the lyrics,But hear a person can't help to YiZheng.From eighteen months diagnosed with spinal muscular atrophy,She hasn't had the earth walk alone,Put on the flower skirt ran into the street"boast"A be her biggest wish,Is the young parents have never given up the pursuit.

　她的异常身体无力拿不动一只跳棋 Her abnormal body cannot carry a Chinese checkers

　　在金州新区东山小区里的一处老旧车库，被收拾出来的一间只有10多平方米的屋子就是宇馨一家的小窝。昨日记者前来采访时正赶上万里爱心会的义工带着孩子来陪宇馨玩耍。乍一看根本瞧不出宇馨与其他小朋友有什么区别，只有在动弹时才会发现她的不足：因为无力她时常拿不动一只跳棋；因为下肢无法动弹她往前探身时常常压得喘不上气儿来；因为骨质疏松残缺的牙齿甚至撕不开一块糖纸。“妈妈，我要尿尿。 ”听了女儿的话武海侠赶紧跑过去，像婴儿一样抱着女儿的双腿帮她小便，武海侠明显感觉自己抱不住了，这时爸爸马成龙赶紧上前帮一把。 7年来，小两口就这样一直像对待婴儿一般伺候宇馨，而这样的日子以后还会继续。

In the new area of dongshan golden state in one place old garage,Be tidy up out of a only more than ten square meters of the house is a little sweet yu.An interview with reporters yesterday are catching up with the love of volunteers will bring their children to play with yu jasmine.At first glance fundamental couldn't see the space back and other children have what differentiation,Only when the move can find her shortage:She often because of inability to carry a Chinese checkers;Because of the lower limbs can't move her forward lean often atmospheric out in time to come;Because osteoporosis incomplete teeth even tear open a piece of wrappers."mother,I want to urinate. "Listen to the words of his daughter WuHaiXia ran,Like baby hold her daughter's legs to help her pee,WuHaiXia obviously feel hold not to live,When dad came hurriedly ringo ma (fourth from help a. In the past seven years,Young couple so had been treat babies tend to serve yu jasmine,This day will continue.

　她的病史18个月被确诊为“脊肌萎缩症” Her medical history eighteen months are identified as"Spinal muscular atrophy"

　　小宇馨的老家在黑龙江省绥化的明水县农村，这个出生在2007年元旦的漂亮小丫曾给一家人带来无数欢笑。可是当长到18个月大时，别的孩子已经到处乱跑，而宇馨还只能扶着炕头蹒跚学步，夫妻先后带宇馨到哈尔滨和北京看病，最后医生确诊，宇馨患的是“脊肌萎缩症”。

Xiaoyu back hometown SuiHua in heilongjiang province of MingShui county rural,This was born in 2007, New Year's day beautiful smiles send us light gave the family brings countless laughter.But when a long to eighteen months old,Other children have been running around,But yu back also can only hold a toddler kang,Husband and wife have take yu back to Harbin and Beijing to see a doctor,The doctor diagnosed,Yu jasmine had"Spinal muscular atrophy".

　　医生称这个病少见，不仅目前没有有效的治疗办法，而且尽量别感冒，因为一旦感冒咳嗽，吐不出痰孩子很有可能一口气儿上不来就死掉，尚不足50岁的奶奶为孩子的病上火竟骤然离世。

Doctors say the rare disease,Not only there is no effective treatment measures,And try not to catch a cold,Because once the cold cough,Emits no sputum child is very likely not a time to die,Fifty years old grandmother lack for the child's disease that fire suddenly from the world.

　　2010年，武海侠带着女儿来到大连和在此打工的丈夫相聚，住在这间远房亲戚的车库里，那时宇馨瘦得只有20斤。大连的气候宜人，自来大连后宇馨只感冒过两次，身体不仅高了、胖了，小姑娘也更加漂亮了。

In 2010,,WuHaiXia with daughter came to dalian and in this job husband together,Live in this distant relative of the garage,Then yu jasmine is only twenty jin.Dalian pleasant climate,Come back after dalian space only cold twice,The body is not only high/fat,The little girl is more beautiful.

她的心愿穿上裙子上街去“臭美” Her desire to put on the dress to go shopping"boast"

　　让武海侠苦恼的是带宇馨出去玩儿时，她既想让孩子去人多的地方凑凑热闹，又害怕陌生人投来的异样眼光伤害到孩子。“有一次，一帮小孩在小区内跳舞，宇馨远远看到，身体在小推车内不由自主地扭动起来。然而一个小朋友一句‘你怎么不来跟我们一起跳舞？’让宇馨骤然失落下来。”武海侠看在眼里默默推着女儿离开。好多次，武海侠抱女儿乘公交车到市内做针灸，看宇馨这么大了车内无一人让座，武海侠抱不稳女儿差点摔倒。“妈妈以后用绳子把我绑在你身上。”女儿的懂事儿让武海侠欣慰却更加难过。

Let WuHaiXia laden with yu is sweet when go out to play,She is to let the children go to many places add trouble to lively,And for fear of strangers to different eye harm the child."once,A group of children in a village inside dancing,Yu is sweet to see,The body in the trolley spontaneously twisted up.However a kid a‘Why don't you come with us to dance?’Let yu suddenly lost back down."WuHaiXia see in the eye silent push daughter left.Many times,WuHaiXia embrace daughter to take a bus to the city to do acupuncture,See yu scented so big car seat no man,WuHaiXia embrace unstable daughter almost fall down."After the mother with the rope tied me on you."Her daughter's understand business let WuHaiXia relief is more sad.

　　好在周围的邻居和义工能照顾体谅母女俩，经常带自己的孩子来陪宇馨玩耍，还给她带来好多玩具。在宇馨刚刚过去的这个生日，一下子收到三个生日蛋糕，宇馨为此高兴了好久。

Fortunately the surrounding neighbors and volunteers can take care of understanding both mother and daughter,Often take their children to play with yu jasmine,She brought back a lot of toys.In the space back past the birthday,Suddenly received three birthday cake,Yu scented feel happy for a long time.

　　随着年龄越来越大，小姑娘也越来越爱美。她让妈妈给她梳起了长发，开始挑剔衣服的颜色，用妈妈的口红涂在自己的小嘴儿上。

As you get older,The little girl is becoming more and more beauty.She let her mother gave up long hair comb,Began to fault the color of the clothes,With mother's lipstick besmear is on their own small on the mouth.

　　看别的小朋友拍写真，她也要求照相，小屋内那个装订精致的影集成了最大的奢饰品，尽管生活拮据，爸妈还是满足了她的愿望。写真中如花仙子般的宇馨扮着各种可爱的表情，只是没有一张照片宇馨是站着的。“妈妈，等我病好了，你给我买双靴子，我也要和其他小朋友一样穿上裙子到街上去‘臭美’一次。”这是宇馨最大的心愿，也成了夫妻俩追求的目标。

See other children photo shoot,She also calls for photography,House in the binding delicate series became the biggest and accessories,Although living in reduced circumstances,Parents or to satisfy her desire.Photo of such as beautiful faery jasmine yu as the all kinds of lovely expression,But no photo yu jasmine is standing."mother,I disease good,You give me buy a pair of boots,I also want to and the other kids on the same skirt to the street‘boast’a."This is yu scented greatest wish,Has become a couple pursuit of the goal.

她的父母夜以继日挣钱给女儿看病 Her parents day in and day out to earn money for his daughter to see a doctor

　　采访中记者了解到，武海侠夫妇结婚后曾在老家包过120多亩地，但是那年赶上大旱一下子赔了五六万元。这两年四处给宇馨看病，最多时这个小家庭曾欠过十多万元。如今马成龙在一家公司务工养活娘俩，为了还债、为了给孩子看病他夜以继日加班加点挣钱，年纪轻轻就已有了白发。几年下来，债务已经还了一多半。

Interview, the reporter understands,WuHaiXia couple after marriage was in their hometown bag over 120 acres,But that year to catch up with a severe drought during lost five or six ten thousand yuan.The two years back to space around to see a doctor,The long time the family was ten owe more than ten thousand yuan.Now work in a company ringo ma (fourth from NianLia support,In order to pay his debts/In order to give the child a doctor him day and night work overtime to earn money,At a young age he had already had gray hair.A few years down,Debt has also more than half.

　　这几年很多人都劝说夫妻俩既然符合政策就再生一个，但是看到宇馨，夫妻俩打消了念头，他们一直在期待女儿站起来。义工们知道夫妻俩的心思后，纷纷帮忙打听、搜集治疗脊肌萎缩症的医院，如果您知道，也一定要告诉这对年轻的爸妈。

Over the past few years a lot of people are persuade a couple now that conform to the policy is a regeneration,But see yu jasmine,A couple out of the idea,They have been looking forward to daughter stood up.Volunteers know the mind of the couple after,Have help to find out/Collect treatment of spinal muscular atrophy hospital,If you know,Also be sure to tell the young parents.

　　采访结束，当记者离开时，老旧的车库中又传来宇馨的歌声：“我知道，我一直有双隐形的翅膀；带我飞，给我希望……”她依旧不太懂得这歌词的含义，但是听到的人却能“看到所有梦想都开花”。(记者于雅坤)

The interview,When the reporters who had left,Old garage and came back yu song:"I know,I have had two invisible wings;Take me fly,Give me hope..."She still doesn't know the meaning of the lyrics,But man can hear"See all dreams are in flower".(Reporter YuYaKun)