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吉林“肌无力”小伙欲捐眼角膜 渴望帮人看世界--亲稳舆论引导监测室
2012-07-31
中新网吉林7月31日电 (记者 苍雁)7月31日上午10时15分,在吉林市一家医院的病榻前,吉林市21岁的“肌无力”小伙王福建与当地红十字会签下了捐献眼角膜的协议。只能依靠他人帮助,才能按下手印的王福建,此刻终于了却心中多年的这个愿望。
Beijing on July 31, jilin (Reporters the ebon)On 31 July 10 a.m. 15 points,In jilin city in a hospital before on his deathbed,21 years old in jilin city“Muscle weakness”Small WangFuJian and local Red Cross the cornea donation to sign the agreement。Can only rely on others to help,To press the impression of the hand of the WangFuJian,Now finally at heart of this desire for many years。
因为肌肉日渐萎缩,使得21岁的王福建看起来很瘦小,总是一脸微笑的他,显得有些腼腆。进行性肌营养不良,已经折磨这个阳光男孩10余年。1992年8月9日,王福建出生在吉林市永吉县一拉溪镇前卫村,10岁起,王福建被检查出患有进行性肌营养不良。
Because a shrinking muscles,Make WangFuJian looks, 21, was very tiny,Always a smile of his face,Appear a little shy。Progressive muscle malnutrition,Has the sunshine boy tortured 10 years。On August 9, 1992,WangFuJian was born in jilin city, YongJiXian a daxi town avant-garde village,10 years old up,WangFuJian be check out with progressive muscle malnutrition。
“他小时候走路总摔跤,膝盖常常摔破,而且他摔倒后自己没办法站起来,所以只上了一年学就辍学在家。”王福建的妈妈史玉霞告诉记者,儿子很羡慕其他的孩子,可以有“蹦蹦跳跳”的童年。为了避免儿子时常摔跤,史玉霞一次又一次将家中院落的土地填平。
“When he was a boy walks always wrestling,Knee often drop,And he fell down after they couldn't stand up,So only one year study had dropped out at home。”WangFuJian mother ShiYuXia told reporters,Envy other children son,Can have“Leap to jump”childhood。In order to avoid son often wrestling,ShiYuXia again and again the courtyard and fill his land。
虽长年在家里养病,但王福建却拥有阳光、乐观的性格。王福建喜欢上网,因为肌肉无力,他只能选择触屏手机。他给自己取的网名叫“天涯飞雪”,渴望亲近山水的王福建只在就医时去过河北,多年来,因身体原因,他一直窝在家中。
Although years at home for illness,But WangFuJian but with sunshine、Optimistic disposition。WangFuJian like the Internet,Because the muscle weakness,He can only choose touch screen mobile phones。He give own take nets named“Tianya fly snow”,Eager to close the WangFuJian landscape in only when go to a doctor has been to hebei,For many years,Because of body reason,He has been in his home。
几年前,王福建通过网络了解到,有和自己患有同样疾病的人,在临终前将眼角膜捐献,让更多的人再现光明。“我也想捐献眼角膜,也想留点什么在这个世上。”王福建说,他渴望用自己的眼睛帮助他人“看世界”。
A few years ago,WangFuJian through the network to understand,Have the same disease and themselves with,Before his death will be donated corneas,Let more people represent the light。“I also want to donated corneas,Also want to leave something in this world。”WangFuJian said,He is eager to use their eyes to help others“See the world”。
7月31日上午,吉林市红十字会得知王福建的心愿后,来到医院,在病塌前,王福建签下“中国人体器官捐献自愿书”。因为没有力气,王福建只能在工作人员的帮助下,在自愿书上按下手印。
The morning on July 31,,The Red Cross in jilin city that WangFuJian desire,Came to the hospital,In the disease before the collapse,WangFuJian sign“China human organ donation voluntary book”。Because there is no strength,WangFuJian can only work in the help of personnel,In the voluntary book press impression of the hand。
每天都需要靠药物维持生命的王福建,如今只能坐在床上,从病房的窗口看外面的世界。“我想去湖边,想亲近一下自然。”王福建所在医院,离吉林市松花湖仅几十公里,但这样的距离仍是阻碍了王福建“亲水”的心愿。
Every day to need to rely on drugs WangFuJian to sustain life,Now only sat on the bed,From the window of the room look the world outside。“I want to go to the lake,Want to be close to the nature。”WangFuJian hospitals,From SongHua lake in jilin city only a few tens of kilometers,But such a distance is still WangFuJian hindered“Close water”desire。
王福建的主治医生李镇雨告诉记者,王福建所患的进行性肌营养不良系家族遗传,四肢肌肉已经萎缩,只能靠药物缓解,无法治愈。“发热、咳嗽、胸闷,随时会有生命危险。”李镇雨说,孩子的心肌细胞已经有损伤,已经无法经受长途颠簸。
WangFuJian chief doctor LiZhenYu told reporters,WangFuJian had progressive muscle malnutrition is familial heredity,Limb muscles have atrophied,Only by drug ease,Cannot be cured。“fever、cough、Chest tightness,At any time can have life risk。”LiZhenYu said,The child's heart muscle cells have damage,Cannot withstand long distance turbulence。
现在,王福建一天需要输液八次,并伴口服药。虽生命日渐消落,但王福建仍笑对每一个人。他说,他希望自己死后,骨灰可以撒在有山有水的地方……(完)
now,WangFuJian one day need transfusion eight times,And oral agent with。Although the life is back on,But WangFuJian still smile to every one。He said,He hope after his death,Ashes can and there is water in the place...(finish)
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