8个月女婴期盼一只肝源 Eight months baby girl look forward to a liver source

因无法肝移植正在逼近医学寿命临界点 Unable to liver transplantation is approaching medical life point of no return

　　“她还那么小，都还没有开始活呢，我怎么舍得放弃她呢？”抱着怀中的婴儿，25岁的徐娜眼睛里含着泪。她8个月大的女儿赵誉雯看上去只有满月婴儿那样娇小。小誉雯患的是先天性胆道闭塞，医生说患上此病的婴儿平均寿命只有12个月，救治最好的办法是肝移植。但是要等一个肝源谈何容易，医生正在和病魔抢时间。

“She was so small，Have not begin to live it，How do I willing to give up her？”Hold the arms of the baby，XuNa 25 eyes in tears。She 8 months old daughter ZhaoYuWen look only full moon baby so delicate。Small reputation CAM are suffering from congenital biliary block，The doctor said the disease baby average life expectancy is only 12 months，Treatment is the best way of liver transplantation。But to wait for a liver source easier said than done，Doctors are fighting the clock with the illness。

青黄色皮肤肚大如球 Greenish yellow skin belly as big as a ball

　　在武警总医院的肝脏移植中心病房，807病房里住着6位小病人，病房很安静，孩子们很少哭闹。他们都患有胆道闭塞，肝移植是孩子们唯一的生路。

In the armed police general hospital liver transplantation center ward，807 ward lived in the six small patients，Ward was quiet，The children rarely crying。They all had biliary block，Liver transplantation is the children only resource。

　　赵誉雯斜躺在徐娜的怀里，小姑娘长得很漂亮，大大的眼睛扑闪扑闪，嘴里含着安抚奶嘴。由于胆汁无法排除，她的皮肤呈青黄色，肚子鼓得像一个小皮球，肚皮上的青筋撑得清晰可见。

ZhaoYuWen recline in the XuNa arms，The little girl is pretty，Big eyes blink blink，In the mouth holds the pacifier。Because of bile could not be ruled out，Her skin is greenish yellow，Belly drum like a small ball，Belly on the blue veins brace clearly visible。

曾被下死亡判决书 Was the death judgment

　　徐娜说，别看孩子那么小，但是她也懂得自己生病了。4个多月前，徐娜和丈夫带着孩子到儿童医院就诊，当时誉雯就被下了“死亡判决”。徐娜说：“在儿童医院住院家长不能陪床，每到我离开时她的眼泪吧嗒吧嗒就流下来了。”在老家包头市，小誉雯虽然每天得吃药，但是心情特别好，她喜欢笑，这给这个悲伤的家庭带来一丝快乐。可是再次住进武警总医院的病房后，小姑娘似乎意识到了什么，不笑了。

XuNa said，Don't look so small children，But she also know that his sick。More than four months ago，XuNa and her husband took the children to the children's hospital，At that time it was under a CAM praise“Death sentence”。XuNa said：“In the children's hospital parents can't PeiChuang，Every when I left her tears click click is wiped them away。”In their hometown of baotou，Small reputation CAM although every day have to take the medicine，But the mood is very good，She likes to laugh，This gives the sad bring a happy family。But to live in the armed police general hospital after ward，The little girl seems to be aware of，Don't laugh。

　　武警总医院肝脏移植中心副主任医师李威告诉记者，胆道闭塞患儿最佳治疗期是3个月以前，在此之前发现都可做手术，术后三分之一的患儿无须肝移植，手术成功便可长期存活；三分之一的患儿寿命可至七八岁；另有三分之一的患儿手术失败，需进行肝移植方能生存下来。

Armed police general hospital liver transplantation center of doctor of vice director of li wei told reporters，Biliary block children the best treatment period is 3 months ago，Before this discovery will do surgery，A third of the children do not need to liver transplantation，The operation is a success can be long-term survival；A third of children life to the age of seven；And another one third of children surgery failure，For liver transplantation can survive。

尽力争取下月手术 Try to strive for operation next month

　　李威说，胆道闭塞患儿的平均寿命只有1岁，少部分可以挺到2岁，小誉雯已经8个月大，正在逼近医学上寿命临界点，她的希望是赶紧找到合适的肝源进行移植手术。说到肝源，李威叹了一口气：“肝源紧缺不单是北京，是全国都面临的难题。我们医院患者的平均等待时间是3个月至6个月，但是因为誉雯月龄已大，我们争取下月找到肝源。”李威介绍，婴儿所需的肝源可以用成人肝源，只需通过劈离式肝移植手术，取一小部分给婴儿移植就可以。

Li wei said，Biliary block the patient's average life expectancy is only 1 year old，A few can be quite to 2 years old，Small reputation CAM has eight months old，Is approaching medical life point of no return，Her hope is to find the right liver source transplant surgery。Said to liver source，Li wei sigh：“Liver source shortage is not only Beijing，The whole country is facing the difficult problem。Our hospital patients with a mean waiting time is three months to six months，But because reputation CAM months already big，We strive to find next month liver source。”Li wei introduced，Baby the liver source can use adult liver source，Only through the split type liver transplant，Taking a very small portion of the baby to transplantation can。

　　另外一个不可回避的现实是，即使肝移植手术成功，但患儿仍需长期服用抗排斥药物，而且也存在死亡的风险，不过这些徐娜都已经不在乎了，她说：“说实话，当听到劝我放弃的时候，我也曾动摇过，但是她还那么小，连活都没活过，我是她的妈妈，不忍心就这样让她去另一个世界。即使以后失败，我也不会遗憾了。”

Another unevadable reality is，Even if the liver transplant success，But children still need long-term taking anti-rejection drugs，And there are also the risk of death，But these XuNa have don't care anymore，She said：“To tell you the truth，When heard advised me to give it up，I also had wavered，But she is still so small，Even live didn't live，I am her mother，Don't have the heart to just let her to go to another world。Even after failure，I won't regret。”

　　小誉雯来自内蒙古的农村家庭，徐娜没有工作，丈夫是名水泥厂的维修工，为了给孩子治病，这个家庭的生活已经捉襟见肘。孩子的健康也牵动着社会爱心人士的心，医院方面表示将减免誉雯的医疗费用、床位费等，著名歌唱演员韩红也表示将尽自己所能资助孩子康复。

Small CAM praise from Inner Mongolia rural family，XuNa no job，Her husband is a cement plant of maintainer，In order to give the child cure，The family life has been rebuilding。The child's health is also affects social love the heart of people，The hospital said will derate reputation CAM medical costs、Bed fee, etc，The famous singer han hong also says will do what I can sponsored child rehabilitation。

　　在采访时，徐娜不断地说：“谢谢大家的关心。也请大家关心和誉雯患有同样疾病的孩子，只有社会的爱心、父母的坚持才能让这些可怜的孩子获得生的希望。”(记者 吴亭/文 首席摄影记者 蔡代征/摄)

In the interview，XuNa constantly said：“Thank you for your concern。Also please care and CAM reputation with the same disease children，Only social love、The parents insist to let these poor children get the hope of life。”(Reporter WuTing/text chief photographers tsai levying/taken)