临高临城田军村12岁女孩身体扭曲变形，体重不到30斤，不能站立，不会说话，无法自理；怪病的症状，更早是出现在女孩的弟弟身上，夺走了他4岁的小生命。两个孩子都身患怪病，让他们的父母心力交瘁，也让这个家庭举步维艰。距离女孩第一次发病，已经10年过去。10年的时间里，母亲就围着两个孩子转，做小学老师的父亲将全部的收入都投入给孩子治病上了。只是，两个孩子究竟患的什么病？孩子的父母用了10年，花了不少的钱，还是没有找到答案。

The high velocity city TianJun village 12 year old girl body distortion,Less than 30 jins weight,Can't stand,Can't talk,Cannot themselves;Strange disease symptoms,Earlier is appeared in the girl's brother body,Take him four little lives.Two children all with strange disease,Let their parents be mentally and physically exhausted,Also let the family life difficult.Distance girl first onset,It has been ten years.10 years of time,Mother made around the two children turn,Do primary school teacher's father will all the income in the cure to the child.just,Two children with what what disease?The child's parents use for 10 years,Spend a lot of money,I haven't found the answer.

12岁临高女孩患怪病 In the 12 high girl has strange disease

　　24日一大早，临高临城镇的一栋民房里，李贞巧给12岁的女儿小妍洗脸、梳头、穿衣服。小妍12岁了，身高1米2左右，却只有27斤。早上7点，和之前的每一次出门一样，李贞巧抱着12岁的女儿，坐车到海口。这段时间，她感觉自己有些不舒服，想到海口检查一下。最主要的，她希望通过南国都市报向社会求助，为夺走小儿子生命和女儿健康的“怪病”寻一个答案。

24 early in the morning,The high LinChengZhen house billets,LiZhen coincidence to 12 year old daughter small yan face/Comb my hair/Wear clothes.Small yan 12 years old,Height 1 meter about 2,Only 27 jin.7 a.m.,And every time before go out the same,LiZhen qiao holding 12 year old daughter,Rode to haikou.This period of time,She felt a little sick,Think of haikou check.The main,She hope that through the south metropolis daily to social help,To take the younger son of life and the health of the daughter"Strange disease"Found an answer.

　　小妍是个不健康的孩子，发现这样的情况是在2002年春节过后。春节前，2岁的小妍还会说完整的话，还会跟守小卖部的妈妈撒娇，让妈妈多赚点钱，给哝哝(音译，小妍的昵称)盖楼住。那时，除了不会走路，只下地走过两次，走了不到2米，小妍并没有别的异常。不会走路，李贞巧夫妻俩也只是以为孩子学走路慢一点。直到快过春节的时候，小妍突然开始不说话。“我以为是我忙着做生意，没时间陪她，让她不高兴了。”李贞巧当时没太在意。直到春节后到海口检查，才发现女儿不会说话了。去检查，也查不出究竟是什么病。

Small yan is not healthy children,Found that such a situation is in 2002 after the Spring Festival.Before the Spring Festival,At the age of 2 small yan also complete words,Can still follow keep canteen mother coquetry,Let my mother make more money,To murmur(transliteration,Small yan nickname)Towers live.then,In addition to can't walk,Only through the earth twice,Go less than 2 meters,Small yan and no other anomalies.Can't walk,LiZhen coincidence a husband and wife just think the child learning to walk slowly.Until faster than the Spring Festival when,Small yan suddenly started not to talk."I thought I was doing business,Don't have the time to accompany her,Let her not happy."LiZhen qiao wasn't too care about.Until after the Spring Festival to haikou inspection,Found that daughter won't talk.To check,Also check out what disease.

　　随着年龄增长，小妍的病情也越发严重。整天哭闹、不会说话、不能走路，甚至连站立、将手指伸直都做不到。“她就像是一个巨大的婴儿，什么都需要人照顾。”李贞巧说，从小妍病发后，她就不再经营小卖部，在临高县城租了一间小房子，时时刻刻守着孩子。

With the age growth and,Small yan was also more serious.Crying all day/Can't talk/Can't walk,Even stand/The finger stretched all can't do."She is like a big baby,What all need someone to take care of."LiZhen qiao said,Shes after onset of illness since childhood,She is no longer operating canteen,In LinGaoXian city rented a small house,Every minute to keep their children.

母亲自学按摩照顾孩子 Mother self-study massage to take care of the children

　　小妍生活不能自理，李贞巧就把她当做婴儿一样，照顾了12年。除了基本的生活上照顾之外，只要有空，李贞巧就要给女儿按摩。拿着从超市买的按摩油，每天只要一有空，她就会用没有章法的按摩手法给孩子按摩。

Small yan the life cannot provide for oneself,LiZhen qiao took her as a baby,Care for 12 years.In addition to basic life outside of care,As long as free,LiZhen coincidence will give daughter massage.Take from the supermarket to buy massage oil,As long as a free every day,She would use no composition massage massage to the child.

　　因为怪病的缘故，小妍的身体已经扭曲变形。她的背部、腿部都向右上方突出，比较畸形。担心小妍身体的扭曲现象严重，李贞巧决定给女儿按摩。4年前的时候，他们曾经带着小妍在海口按摩。30元钱只能按半个小时，按了大概有半年时间。一直去医院找专业人士按摩，家里负担不起。于是，那半年时间，趁着女儿按摩的时候，李贞巧在一旁“死记硬背”下医生按摩的方向、手法。回家之后，她就学着给女儿推拿、按摩。

For the sake of strange disease,Small yan body has distortion.She's back/To the upper right legs were outstanding,Comparison abnormal.Worry about small yan body distortion is serious,LiZhen qiao decided to give his daughter massage.When four years ago,They have with the small yan in haikou massage.Only 30 yuan in half an hour,According to the time about half a year.Always go to a hospital looking for professional massage,Home can't afford.so,The half a year time,When the daughter massage,LiZhen qiao on one side"rote"Under the direction of the doctor massage/technique.Back home,She learn to daughter massage/massage.

买不起轮椅至今坐婴儿车 Can't afford to buy a wheelchair has sat pram

　　这么多年来，小妍的世界里，除了父母、早夭的弟弟，就没有其他的了。而她母亲李贞巧的世界，也都是围着小妍和她早夭的弟弟转。小妍的弟弟，也是和小妍相同的症状。只是，在年龄更小的时候就出现了。之前的体检，却一直没有查出异常，直到病发。2010年的时候，李贞巧夫妻俩把地买了，一人抱着一个孩子，坐火车到北京给一双儿女看病。那一趟，花去了所有积蓄和卖地的钱，但还是没有查出病因。2011年4月，小妍的弟弟夭折了，当时才4岁。

So for many years,Small yan in the world,In addition to the parents/Early dead brother,There is no other.And her mother LiZhen artful world,Are all around the small yan and her early dead brother turn.Small yan's brother,Also and small yan the same symptoms.just,In the age of the smaller when they appeared.Medical before,But there has been no find out anomaly,Until disease hair.In 2010,LiZhen qiao the couple bought,A man holding a child,The train to Beijing for a pair of children to see a doctor.That trip to,Spent all their savings and money of sale,But still do not have found out the cause.In April 2011,Small yan brother died,Only 4 years old at the time.

　　除了病发比较严重，小妍每个月还会有半个月左右口腔溃疡，吃不了饭。平常时候，一些感冒、发烧更是少不了。小妍的父亲，是临高县城的一个小学老师。每个月工资2000多元，每月要还给儿子治病欠下的1000多元，房租350元，小妍发烧、感冒等病400元左右，还有一家3口的生活，很是窘困。

In addition to disease hair is more serious,Small yan each month will have half a month or so oral ulcer,Can't eat rice.Usual time,Some cold/Have a fever is little not.The father of the small yan,LinGaoXian city is a primary school teacher.Each monthly pay 2000 yuan,Monthly return it to son cure owe 1000 multivariate,The rent is 350 yuan,Small yan fever/Cold and other disease 400 yuan or so,And a three mouth life,Is very out of it.

　　小妍渐渐大了，却还只能坐着婴儿车。腿太长，用婴儿车推着的时候，腿会拖地，很不舒服。因此，夫妻俩早就想着给孩子买个轮椅了。“去商场问了几次，要1000多块，哪里买得起？”李贞巧一脸苦笑。残联有配残疾儿童轮椅的，但小妍已经12岁，超过了年龄。

Small yan is big,Yet only can sit pram.Leg too long,By pushing baby carriages when,Leg will sweep the floor,Very uncomfortable.therefore,A couple already thinking about to buy a wheelchair the children."Go to the mall and asked a few times,To more than 1000 pieces,Where can afford?"LiZhen coincidence a face of forced smile.Disabled persons' federations with disabled children have a wheelchair,But small yan has been 12 years old,Over the age.

　　如果有医学专家有治疗小妍怪病的办法，或者有好心人愿意帮助这个可怜的女孩，请拨打本报热线电话0898——66810862联系。(南国都市报记者何慧蓉)

If there is a medical experts have treated small yan strange disease way,Or a man willing to help the poor girl,Please call our hotline 0898-66810862 contact.(Southern metropolis daily reporter HeHuiRong)