两岁半男孩被弃ICU两年 Two and a half years old boy forsaken ICU two years

患重症手足口病致残，靠呼吸机维持生命，年治疗费超50万；其父母要求医院赔几万元就接孩子，但医院担心孩子出院就会没命而拒绝 Suffer from severe hand, foot and mouth disease disability,Rely on breathing machine maintain life,Years treatment exceeds 500000;His parents asked hospitals compensate tens of thousands of yuan took the child,But worry about the children hospital discharge will die and refused to

　　这个长假，原本应该是个花好月圆、一家团聚其乐融融的日子。然而，因患手足口病而不幸导致瘫痪的两岁男童鸿弟，却躺在揭阳市人民医院的ICU病房里。两年来，亲生父母只是偶尔来看一看，幸运的是，ICU的医护人员们始终悉心陪护小鸿弟，陪着孩子度过中秋节。

It's a long holiday,Originally should be a happy together/A reunion day happy.however,Because suffer from brothers mouth disease and unfortunate lead to paralysis two years old boy's hon brother,But lie in jieyang city people's hospital in the ICU.Two years,His natural parents only occasionally see,fortunately,The ICU medical researchers always good to the little brother,Accompany children for the Mid-Autumn festival.

　　小男孩为何会有如此遭遇？故事需从两年前的一场变故讲起———

The little boy why so encounter?The story from two years ago to a misfortune speak up -- -

不幸 unfortunately

仅靠呼吸机维持生命 Only on breathing machine maintain life

　　2010年10月的一个晚上，一对夫妇抱着一个6个多月的男婴到揭阳市人民医院求诊。当时男婴正发高烧，由于男婴的症状与当时流行的手足口病潜伏期症状相似，医生果断安排其入院，并采集样本送往省里相关部门确诊。

October 2010 a night,A couple holding a more than six months baby boy to jieyang city people's hospital initially.When baby boy is a high fever,Due to the baby boy symptoms and popular at that time of hand, foot and mouth disease symptoms similar incubation period,The doctor decisive arrange its admission,And collecting samples sent to the province related departments.

　　不料，还没等到诊断结果出来，男婴的病情突然恶化，胸部呼吸肌完全瘫痪无法自主呼吸，生命一度垂危。尽管孩子的父母一时拿不出来足够的费用，医院还是第一时间将孩子转入ICU室紧急抢救。经过努力，孩子的性命总算是保住了，不幸却留下了重症手足口病所产生的后遗症：脑干受损导致上半身瘫痪，丧失发声功能，无法自主呼吸，只能依靠呼吸机来维持生命。

behold,Haven't wait until the diagnosis came out,Baby boy condition worsened dramatically,Chest respiratory muscle paralysis completely unable to spontaneous breathing,Life was once.Although the parents of the children at the cost of take not to come out enough,The hospital or the first time will be the child into the ICU room of emergency rescue.After efforts to,The child's life was finally saved,But unfortunately left a severe hand, foot and mouth disease produces sequela:The brain stem damage cause paralysis of the upper part of the body,Voice function loss,Unable to spontaneous breathing,Can only rely on breathing machine to maintain life.

　　孩子的父母认为是医院把孩子“治坏”了，非要医院给一个说法。院方多次解释，甚至先后3次请来广东省手足口病的权威专家进行会诊，向孩子的父母提出会诊意见。尽管慢慢明白了孩子的病情，但这对夫妇却把孩子丢在医院，不再支付孩子的医疗费用，也不再给孩子带奶粉和生活用品。迄今近两年里，这对父母只来医院看过孩子寥寥几次。

The child's parents think is the children hospital"Cure bad"the,Don't want to hospital gives a view.The hospital many times to explain,Even has three times of guangdong province, please hand, foot and mouth disease authority experts consultation,The parents of the children to put forward opinions consultation.Although slowly understand the child's illness,But the couple has put them in hospital,No longer pay for the child's medical expenses,Will no longer give children with milk powder and articles for daily use.So far the last two years,The parents came to the hospital only seen a child several times.

温暖 warm

ICU里有“干爸干妈” In ICU"Dry dad to let them know"

　　记者在医院的ICU重症病房看到了这个男孩，他身上连着呼吸机，两个护士正用碘伏液细心地为他清洗、消毒呼吸机入口。这个仅有下半身能活动的小家伙，正摆动他的双脚碰着护士的手臂给予回应。看到熟悉的护士姐姐，孩子会咧咧嘴，无声地笑起来。

Reporter in the hospital in ICU ward saw the boy,Him for breathing machine,Two nurses are now using iodine solution to clean his carefully/Disinfection breathing machine entrance.This is only the lower half of the little guy can activities,Is swinging his feet touch the response to arm.See familiar nurse sister,The child will hung about grinning,Silently laughing.

　　男孩乳名叫鸿弟，父母是揭阳市揭东县本地人，父亲李某做点小生意。记者向院方询问孩子在医院住一天所需的费用，结果令人咋舌：仅是每天使用呼吸机，接受基础护理就需要1600元左右，恢复期用药甚至达到2000元-3000元。而男孩的父母只是在为孩子办理入院手续时缴纳了1000元按金。至今，医院已为其垫付了近百万的医疗费用。记者了解到，小鸿弟今后要靠呼吸设备维系生命，每年的医疗费用至少需要50多万元。

The boy child's pet name called the brother,Parents are jieyang city locals jiedong county.the author put forward,Father li mou do some small business.Reporter to ask the child in hospital of the cost of a day,The result is be left speechless with wonder or fear:Is only for everyday use breathing machine,Accept basic nursing will need 1600 yuan,Convalescence medicine even reach 2000 yuan - 3000 yuan.And the boy's parents just for the child to the hospital for procedure pay 1000 yuan deposit.So far,The hospital has its advances nearly medical costs.The reporter understands,Small hon his brother in the future must depend on breathing apparatus of sustaining life,Every year at least 50 medical costs more than ten thousand yuan.

　　ICU工作人员告诉记者，近两年以来，ICU里的医生护士们，都把小鸿弟当成了自己的亲人，他们中大多数人均未成家，却都个个当起鸿弟的“干爸”、“干妈”。他们自掏腰包给鸿弟买来奶粉、生活用品，医生何询经常给鸿弟理发、买玩具，还用摄像机记录下鸿弟从小到大的成长历程。护士们还到医院食堂为小鸿弟配营养餐，把小家伙养得白白胖胖。

ICU staff, told reporters,Since the last two years,The doctor in the ICU nurses,All the small hon brother as his relatives,Most of them did not start a family per capita,But when all the hon brother"Dry dad"/"Dopted mother".Since they dig down to the younger brother to buy milk powder/Articles for daily use,The doctor for how often to the younger brother a haircut/Buy toys,Still use camera to record the brother since the childhood growth processes.The nurses are still coming to the hospital for small dining room the nutrient food with his brother,The little guys keep fat in vain.

担忧 concerns

孩子离开医院就没命 The child would leave the hospital

　　医护人员说，小鸿弟的父母偶尔有来医院里看望，但每次来都是隔着ICU玻璃窗看看孩子。医院领导和医务科负责人曾多次到其所在县、镇政府联系解决医疗费用问题，由政府协助通过农村合作医疗及慈善机构解决一部分医疗费用，但遭到小鸿弟父母的拒绝，他们始终认为是医院的过失导致孩子现在的状况，要求医院赔偿。

Medical researchers said,Small hon his parents occasional to the hospital to visit,But each time to is all across the ICU window look at children.The hospital leadership and the medical department person in charge has repeatedly to its place county/The connection solves the problem medical expenses,By the government to help through the rural cooperative medical service and charity organizations solve part of the medical expenses,But were small hon brother parents refused,They always think is the fault of the hospital in children the present situation,Requirements hospital compensation.

　　院长翁建东告诉记者，小鸿弟的父母李某夫妇最后曾提出，要求医院“承认责任”并赔偿几万元，他们就接小鸿弟出院，但被医院坚决拒绝。翁建东认为，虽然从经济上来衡量，医院支付几万块钱让鸿弟父母把孩子接走，对医院来说是省了后续无休止的麻烦，“只要符合转移条件，有呼吸机能确保孩子的安全，医院绝对同意。但如果给几万块钱把孩子接走，没有呼吸机的维系，孩子走出医院大门就肯定没命，这样的行为违背了医者的道义精神，医院绝对不会做。”

Dean WengJianDong told reporters,Small hon his parents li mou couple finally was put forward,Asks the hospital"Admit liability"And compensate for the tens of thousands of yuan,They took the little hon brother discharge,But be resolutely refused to hospital.WengJianDong think,Although the economic measure up,Hospital pay tens of dollars let the brother parents send their children picked,It is the province to hospital following the endless trouble,"As long as the accord with transfer conditions,Breathing function to ensure the safety of the children,Hospital absolutely agree to.But if tens of dollars to the child picked,Not breathing machine sustenance,The child out of the hospital gate will die,Such behavior violate the moral spirit healers,The hospital won't do."

　　记者多次拨打小鸿弟父亲李某的电话，试图了解他们的想法。第一个电话接通了，当记者表明身份后，李某称自己人在外地，在电话中李某辩称，自己并不是弃孩子不顾，他们打算把小鸿弟转到其他医院，具体情况等他回到揭阳再谈。随后的两个星期里，记者数次致电李某，他都以人在外地为由推托，中秋节前的最后一次致电，李某连电话都不接。

Reporters call the many small father brother li mou telephone,Try to understand their ideas.The first call has been put through,When the reporter that identity,Li mou say oneself person in the field,In a telephone call in that area,He was not abandoned children regardless of,They are going to the small hon brother turned to other hospitals,Specific conditions when he returned to jieyang to discuss.The next two weeks,Reporters call li mou several times,He has to people in the field for ifs and buts,Before the Mid-Autumn festival last call,Li mou even telephone all don't pick.

叩问 Make inquiries

孩子的未来怎么办？ The child's future?

　　小鸿弟的主管医生吴敏副主任介绍，小鸿弟属于极少数危重手足口病例：发病时脑干出现两个对称性的空洞、脑干脑炎、脑水肿、呼吸功能障碍等。目前孩子虽然病情稳定，但随着他发育成长，以后也会因呼吸机无法满足身体需要而再次病危。

The little brother competent doctor, deputy director of the users is introduced,Small hon brother belong to a few critical cases of hand, foot and mouth:When the brain stem appeared two symmetry hollow/Brainstem encephalitis/Cerebral edema/Respiratory dysfunction, etc.At present the child while in stable condition,But as he development growth,Later due to breathing machine can't satisfy the body needs to be terminally ill.

　　由于脑干严重受损，鸿弟出现明显智力发育障碍，再加上长期卧床，身体各方面机能也已萎缩，可以说，鸿弟就算长大了也是“废人”。有人问，既然如此，让鸿弟“活下去”的意义何在？还不如干脆拔掉呼吸机。

Because of the brainstem badly damaged,The younger brother appear obvious developmental disorder,Plus long-term stay in bed,The body function has also atrophy,Can say,The younger brother even grew up also"Disabled person".Someone asked,so,Let the brother"live"Significance of?Than simply pulled out breathing machine.

　　据相关医学专家解释，目前国际通用是以“脑死亡”作为宣布放弃治疗的标准。鸿弟的状况并未达到脑死亡，因此不能放弃治疗。至于救治鸿弟垫付的巨额医疗费，翁建东院长坦言，孩子的家庭根本无法承担，医院并没有指望能追讨回来。翁建东表示，讲出这个故事，是希望能引起政府与社会各界的关注，给予可怜的小鸿弟更多照顾。也希望尽量消除社会对医疗机构的误解，改善当前紧张的医患关系。(文/图 记者 王漫琪 通讯员 陈稀妮)

According to relevant medical experts explain,The international general is"Brain death"As announced that the standard of giving up treatment.The brother of the situation did not attain to brain death,So can't give up treatment.As for the treatment of the brother paid by the huge medical expenses,WengJianDong dean said,The child's family can't bear,The hospital did not expect to come back to visit.WengJianDong said,Tell the story,Is the hope can cause the attention of the government and the social from all walks of life,Give the poor little hon brother more care.Also hope to try to eliminate the misunderstanding of the society of medical institutions,To improve the current tense doctor-patient relationship.(Wen/diagram reporter wang diffuse jade correspondent Chen thin ni)