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15岁农家少女患绝症需百万治疗费 渴望重返校园--亲稳舆论引导监测室
2012-11-07

15岁农家少女患绝症需百万治疗费 渴望重返校园张舒娜和母亲在一起 Zhang na and mother together

  (江西)鹰潭15岁女孩张舒娜不幸患上骨髓增生异常综合症,如果不及时治疗很快将转变成白血病。然而愈百万的治疗费用难住了这个普通的家庭。

(jiangxi)YingTan 15 year old girl zhang na succumb to a myelodysplastic syndrome,If not treated will soon be transformed into leukemia.However the millions of the cost of treatment baffled the ordinary family.

  15岁少女患上“MDS” 如不及时治疗将转变成白血病 15 years old girl from"MDS" If not treated in time will change into leukemia

  11月6日,大江网记者联系到张舒娜的父亲。据他介绍,今年年初的时候,突然发现女儿身体不适,脸色发白,呼吸困难。随后在鹰潭市184医院救治后,医生告诉他,不排除肺结核、骨髓增生异常综合症(MDS)的可能。

On November 6,,Great river network reporter zhang linked to her father.According to he introduced,Early this year,Suddenly found his daughter body unwell,pale,Difficulty breathing.Then in 184 after ying hospitals,The doctor told him,Don't exclude pulmonary tuberculosis/Myelodysplastic syndrome(MDS)may.

  为了进一步确定病情,张舒娜的父亲带着女儿来到南昌南大一附院进行救治,南大一附院的检查结果和鹰潭184医院的基本相似,不排除骨髓增生异常综合症(MDS)的可能。“当时我们不敢相信,又去了上海的医院,在上海交大附属第六人民医院检查,确诊为MDS。”张父对大江网记者表示。

In order to further determine the illness,Zhang na's father took his daughter came to nanchang university YiFuYuan for treatment,South YiFuYuan inspection results and YingTan 184 hospital basic similar,Don't exclude myelodysplastic syndrome(MDS)may."When we can't believe it,And went to Shanghai hospital,In Shanghai jiaotong university affiliated sixth people's hospital inspection,Diagnosed with MDS."ZhangFu to great river network reporter said.

  据张父介绍,上海的医生告诉他,如果想彻底治好女儿的病就必须进行骨髓移植,否则几个月内就会转变为白血病,其他的治疗办法都是在维持生命,不能根除。“医生说我女儿才15岁,太年轻了,如果不能救治的话太可惜,希望能进行骨髓移植。”张父对大江网记者表示。

According to ZhangFu introduced,Shanghai doctor told him,If you want to completely cured her daughter's disease there must be a bone marrow transplant,Otherwise within a few months would turn to leukemia,Other treatment is in the life support,ineradicable."The doctor said my daughter just 15 years old,Too young,If you can't cure words what a pity,Hope I can for a bone marrow transplant."ZhangFu to great river network reporter said.

  

“MDS”不在国家大病报销范围内 根治需要百万费用 "MDS"A serious illness is not within the scope of state reimbursement effect a radical cure need millions of cost

  在得知女儿患上这种病需要花很多钱后,张父曾经向鹰潭当地的卫生局咨询能否报销,对方表示,这种病不在报销范围之内。

On hearing that her daughter suffering from this disease need to spend a lot of money,ZhangFu once to YingTan local health consultation can submit an expense account,Each other said,The disease is not within the scope of submit an expense account.

  “在上海的时候,那里的主治医生告诉我们,如果现在开始接受系统治疗,完全康复的希望也只有50%,但不治疗的话,死亡的概率就是100%。女儿还非常年轻,医生也希望我们博一下。但是,整个治疗费用需要将近百万元。”张父对大江网记者表示。

"In Shanghai,There doctor told us,If you are now beginning to accept treatment system,Completely hope of recovery is only 50%,But if not treated,Death probability is 100%.Daughter is very young,The doctor also hope we bo once.but,The whole treatment costs to nearly one million yuan."ZhangFu to great river network reporter said.

  据了解,张舒娜家在农村,母亲是家庭主妇,父亲在外打工,每个月收入在2000元左右。为了给女儿治病,已经借完了所有可以借的钱。虽然张舒娜一家目前已经筹到了十多万元,但相较百万的治疗费用,无疑是杯水车薪。

It is understood,Zhang na house in the countryside,Mother is a housewife,Father working outside,Every lunar income is in 2000 yuan or so.In order to cure his daughter,Has been checked out all can borrow money.Although zhang na a has raised more than ten thousand yuan,But compared with millions of the cost of treatment,Barely begins to address the need.

  为了控制不断恶化的病情,张舒娜不到半个月就要去医院输一次血。由于输血造成体内的铁含量不断升高,她又必须每月去上海接受去铁治疗,而每次的费用都在1万元以上。

In order to control worsening condition,Zhang na less than half a month will go to a hospital to lose a blood.Due to a blood transfusion cause body iron content rising,And she must go to Shanghai to accept a month to iron treatment,And every cost is in 10000 yuan of above.

  花季少女渴望重返校园 大江网公布张舒娜爱心热线 Adolescent girl desire to return to school and zhang na love great published hotline

  现在,张舒娜的身体免疫力每天都在下降。由于白细胞数量比较低,只能在家里看电视或在自家院子里看书、晒太阳。“每天最快乐的事情就是吃完饭能出去走一下,但时间不能太长。现在最想做的事情就是和正常人一样重返校园。”张舒娜说。

now,Zhang na body immunity in down every day.Due to the number of white blood cells is low,Only at home watching TV or reading in our yard/bask."Every day the happiest thing is to eat a meal can go out the,But time not too long.Now most want to do is and normal people to return to the campus."Zhang na said.

  张舒娜说:“希望自己能快点好起来,现在最大的困难就是家里没钱。我感觉自己对不起爸妈,他们辛辛苦苦把我养这么大,而我却生了这么重的病。如果病好了,我一定要好好孝敬他们!”

Zhang na said:"Hope I can better soon,Now the biggest difficulty is that home have no money.I feel I'm sorry mom and dad,They worked hard to put I have so big,But I was born so heavy disease.If the disease,I must be a good obedience!"

  据了解,鹰潭市月湖区相关领导也曾发动多个政府部门为张舒娜捐款,筹集到了6万多元。“我真的希望鹰潭市,甚至江西省的爱心力量能够关注到张舒娜,帮帮这个小女孩!”鹰潭市月湖区人大副主任余藕花表示。

It is understood,YueHuOu ying related leaders have launched a number of government departments for zhang na donation,Raised 60000 multivariate."I really hope ying,Even the love of jiangxi province power to focus on to zhang na,Help the little girl!"YueHuOu ying, deputy director of the National People's Congress over OuHua said.

  在此,大江网也留下咨询帮助电话,如果网友愿意提供帮助可拨打爱心热线:0791—86849392、13979137762。(记者 秦海峰)

In this,Great river network also left consulting help telephone,If the net friend is willing to provide help can call love hotline:0791-86849392/13979137762.(Reporter QinHaiFeng)



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