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男孩罕见疾病旧疾复发 面临巨额医疗费--亲稳网络舆情监测室
2012-11-19
中新网乌鲁木齐11月19日电 (孙亭文 白黎明 杨吉红)看着躺在沙发上的陈海诺,看着那双稚嫩的小手,回想起孩子健康时的神态,小海诺的母亲李聪俐已欲哭无泪。李聪俐告诉中新网记者,第一次知道孩子有病的时候,因为家里面的经济状况不好,就把孩子的病给耽误了,这次发现病变了,就不敢再耽误,如果有需要就把房子卖了,多凑点医药费,给孩子看病去。
Beijing on November 19, urumqi (SunTing wen BaiLiMing YangJiGong)Look at the ChenHaiNuo lay on the sofa,Look at those childish hands,Recall the child health manner,The small's mother LiCongLi already too deep for tears.LiCongLi told a reporter,Know for the first time that children sick,Because of the bad economic situation at home,Put the child's disease for the delay,This found that the lesions,Will not dare to delay,If there is a need to he sold the house,Many gather together point medical expenses,Give the child to a doctor.
早在2008年11月,在新疆医科大学第一附属医院神经外科,当时只有2岁9个月的小海诺被确诊为是一种发病率不到万分之一的颈胸段髓皮样囊肿、椎管感。这种病症是由骨髓内感染、胸吧段藏毛窦、脑积水等多病合一造成,放弃救治也就意味小海诺的运动和感觉系统将会瘫痪。
As early as in November 2008,In the xinjiang medical university first affiliated hospital neurosurgery,At that time only 2 years old nine months of the small north are identified as is a kind of incidence of a disease less than one over ten thousand of the neck chest period of pulp dermoid cyst/Vertebral canal are.This kind of disease is made within the bone marrow infection/Chest it period of pilonidal sinus/Hydrocephalus, etc and cause disease,Give up treatment also means the small's motor and sensory system will paralysis.
四年前,陈海诺患病的消息传出后,当时因家庭经济条件困难,无钱救治。新疆阜康市文广局得知消息后,以电视、广播、网络等多种途径进行相关报道为其筹集善款,此消息先后也被新疆当地媒体转载,引起社会各界的共同关注,并开展了一次“救救小海诺”的社会救助活动。
Four years ago,ChenHaiNuo sick on the news,At that time because of the family economic conditions difficult,Without money treatment.Xinjiang FuKangShi article wide bureau learned that news,In television/broadcast/Network and so on the many kinds of ways for its reported raised,This message has also be xinjiang local media reprint,Cause the social from all walks of life of common concern,And carry out a"Save the small north"Social relief activities.
在媒体宣传下,社会各界好心人士伸出援手,为小海诺筹集善款,并在上海一家儿童医院进行手术,术后非常成功,但医生早在2008年检测报告上就已注明,将来有可能会发生病变。
In the media hype,The social from all walks of life kind people lend a hand,For the small north raised,And in Shanghai a children's hospital for surgery,Postoperative very successful,But doctors as early as 2008 on the test report has been marked,The future may be resulted.
四年来孩子病情较稳定,原以为运转时来,可近期小海诺的医院检测报告却让这个普通家庭再次陷入困境。李聪俐哽咽着说道:“报告单上就显示这个孩子的术后可能会病变,考虑复发的可能性大,然后他的脊髓已经开始肿胀、有水肿,脊髓明显的变粗,所以他现在已经开始感染了,挺着急的。”
Four years to the child the illness is stable,Thought running time,But recently the small hospital's test report but let the ordinary family is in trouble again.LiCongLi SOB said:"Report on display this child postoperative may lesions,Consider recrudescent possibility is big,Then his spinal cord have begun to swelling/Have edema,Spinal cord obvious coarsening,So now he has begun to infection,Quite disturbed."
近几年,小海诺的母亲为了照顾孩子,一直打零工,平均月收入不足1000元,父亲一直在外地打工,整个家庭月收入也不足3000元,眼前小海诺旧病复发的事实,对这个原本就不富裕的小家庭来说,就意味着倾家荡产与绝望。
In recent years,The small's mother to take care of the children,Has been's doing odd jobs to turn an,The average monthly income of less than 1000 yuan,Father has been working in the field,The whole family income is less than 3000 yuan,Small eyes's relapse facts,To the original is not wealthy family speaking,Means that break the bank and despair.
小海诺的病情发生状况后,李聪俐已和上海儿童医学专家取得联系,但因家庭经济状况,近10万元的巨额医疗费,让一家人一筹莫展。李聪俐说:“因为有第一次的病,因为家里面的经济状况不好,就给耽误了,这次发现病变了,就不敢再耽误,如果有需要就把房子卖了,多凑点医药费,给孩子看病去。”
The small's disease condition,LiCongLi already and the Shanghai children's medical experts get in touch,But because of the family economic conditions,Nearly 100000 yuan of major medical expenses,Let the family can find no way out.LiCongLi said:"Because there is the first disease,Because of the bad economic situation at home,The delay will give,This found that the lesions,Will not dare to delay,If there is a need to he sold the house,Many gather together point medical expenses,Give the child to a doctor."
中新网记者询问躺在沙发上的小海诺现在的状况,他告诉记者,不疼,就是腿抬不起来,腿上没有劲,很不舒服,特别想出去玩。
A reporter asked lying on a sofa focused on north the present situation,He told reporters,Don't hurt,Is leg to lift,Leg faintly,Very uncomfortable,Want to go out to play.
一个“想”字包含了小海诺对未来生活的期望,包含了小海诺对梦想的期望。一个年仅6岁的孩子,怎能不想出去和别的小伙伴一样,每天快快乐乐背着书包上学,蹦蹦跳跳的回家。为让这个年仅6岁的小海诺尽早减轻病痛折磨,早日接受治疗,我们只能呼吁全社会的好心人士伸出援手,尽己所能,共同为小海诺筹集善款,您可通过电话与小海诺的家人直接取得联系(陈海诺母亲李聪俐电话15309945871)。我们期望,在社会这个大家庭的共同努力下,小海诺能再次走出病魔困扰,重返校园。
a"Want to"Word contains a small's future life expectations,Contains a small dream's expectations.Annual only six years old,How can don't want to go out and the other as a,Happy every day back schoolbag go to school,Romper home.To make this year only six years old's small alleviate suffering torture as soon as possible,Early treatment,We can only called for the whole society kindness people lend a hand,Do what they can to,Together for the small north raised,You can through the telephone and the small family's contact directly(ChenHaiNuo mother LiCongLi phone 15309945871).We expect,In social this big family efforts,The small can promise again with out of disease,Return to campus.
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