中新网长沙11月21日电(梁辉 刘柱)一个出生后就被发现双手双脚没有皮肤，鲜红的皮下组织直接裸露在外；一个出生后手脚开始起水疱，水疱破溃后，表皮脱落露出红肉……

Beijing, nov. 21 in changsha(LiuZhu liou j w)One was born was found no hands feet skin,Bright red subcutaneous tissue directly exposed;A born hands and feet began to blistering,Blister burst after,Exfoliation show red meat...

　　就在一周内，湖南省人民医院新生儿科先后接收了两名分别来自湖南益阳和衡阳的新生男婴。据介绍，其中一个出生仅4天，另一个则是出生后第二天即被转送长沙，连名字都没来得及取。

In a week,The people's hospital of hunan province new pediatric has received two were from hunan hengyang yiyang and the new born baby.According to introducing,One was born only four days,Another is the second day after birth is forwarded changsha,Even the name could not take.

　　接收这两名症状相似的男婴后，湖南省人民医院新生儿科立即组织儿科医学中心各科室医生讨论病情，并请来皮肤科、烧伤整形科医生进行会诊后，初步判断两名男婴患的是一种名叫“遗传性大疱表皮松解症”的疾病。据教科书记载，这种疾病发病率仅为十万分之二，临床上十分罕见。

Receiving the two symptoms similar after baby boy,The people's hospital of hunan province new pediatric immediately organize the pediatric medical center each department doctor to discuss the illness,And dermatological department, please/Burn ZhengXingKe doctors after consultation,The initial judgment for two baby boy had a name"Hereditary bullosa epidermolysis disorder"disease.According to the textbook records,The disease incidence rate is only two over one hundred thousand,Clinical go up is very rare.

　　该院新生儿科主任张爱民主任医师表示，由于身体皮肤及口腔黏膜缺损，对外界环境没有屏蔽能力，患儿极易受到感染，因此精心护理、预防感染显得格外重要，而且即便闯过目前的感染关，孩子将来手脚的功能和行走等活动都将受到影响。

The hospital pediatric director of the new ZhangAiMin chief physician said,Due to the body skin and oral mucosa defect,On the outside environment is not shielding ability,Children vulnerable to infection,So careful nursing/Prevent infection appears especially important,And even if break through the current infection shut,The child future thumbs and functions and activities such as walking will be affected.

　　21日，记者隔着病房的玻璃窗可以看到，为了预防感染，医护人员都是洗手消毒，带好口罩、帽子、手套，穿好隔离服后才能接近患儿。护士隔几个小时就会将烧伤药膏涂抹在孩子的患处，为了避免感染，还将他们的手脚用纱布包裹起来。

21,Reporters across the ward Windows can see,In order to prevent infection,Medical personnel are hand washing,Bring mask/hat/gloves,Wear the good isolation suit to close to the children.The nurse every few hours will burn ointment daub in the child's affected part,In order to avoid infection,Will their hands and feet with gauze wrap up.

　　因这是一种遗传疾病，张爱民特别指出，孩子的父母生育二胎前一定要到医院接受遗传学相关分析和检查，避免再次出现类似情况。(完)

Because this is a genetic disease,ZhangAiMin special points out,The parents of the children two foetuses birth before you to a hospital for genetic correlation analysis and inspection,Avoid similar situation appear again.(finish)