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9岁女孩得怪病 视力从1.0骤降到0.1--亲民维稳网络舆情监测室
2012-12-26

9岁女孩得怪病 视力从1.0骤降到0.1                         吕鑫露的父亲拿着女儿病历单很是憔悴                          LvXinLou father took his daughter medical record single is gaunt9岁女孩得怪病 视力从1.0骤降到0.1                             小鑫露接受检查。(受访者供图)                              Small xin dew examined.(Respondents for map)

  目前,吕鑫露的视力已经从1.0降到左眼只有0.1,右眼已经不到0.2。“最大那个‘E’都看不清楚”。

At present,LvXinLou eyesight has left from 1.0 to 0.1,Right eye has less than 0.2."Maximum the‘e’Can't see clearly".

  经过医生诊断,认为是神经性问题,但无法确诊病因希望有专家帮忙找病因,保住女儿双眼。

After the doctor diagnosed,Think are neurological problems,But unable to diagnose the cause.Hope to have the expert to help find the cause,Keep daughter eyes.

  今年8月初,视力一向不错的吕鑫露突然发现看不清远处的东西了。尽管父亲带着她四处求医,但小鑫露的左眼视力已经从1.0降至0.1,右眼不到0.2。经医生初步诊断,小鑫露的眼睛是因神经性问题引起,查不出具体病因,随时有失明的可能。昨日,吕鑫露父亲致电华西城市读本96111热线,希望有专家可以为女儿找出病因,保住双眼。

early August this year,Vision has always been good LvXinLou suddenly found that can't see things in the distance.Although his father around with her doctor away,But small xin dew left eye eyesight has fell to 1.0 from 0.1,Less than 0.2 in the right eye.The doctor preliminary diagnosis,Small xin open eyes for neurological problems cause,Check out the specific cause,At any time the possibility of blindness.yesterday,LvXinLou father call, west China city reader hotline 96111,Hope to have experts can find out the cause for her daughter,Keep eyes.

  

病因不明 Unknown etiology

  视力从1.0降到0.1女儿站在一米外看不清父亲 Vision from 1.0 to 0.1 daughter stood in one meter outside can't see my father

  家住宜宾江北龙泉小区的吕鑫露,今年9岁,但身有残疾,在今年8月初时,视力一向不错的小鑫露突然发现看不清远处的东西了。

Live in yibin jiangbei longquan village of LvXinLou,9 years old this year,But a disabled,In early August this year when,Vision has always been good small xin dew suddenly found that can't see things in the distance.

  “有一次,一家商场门口放着玩具唐老鸭,却坚持说自己看不到,而且说看什么都很模糊,这让我很紧张。”小鑫露的父亲吕永孝是眼镜验光师,他说,女儿的眼睛外观上没有近视的症状,瞳孔比常人稍微大点。发现问题后,吕永孝立即带着女儿去了宜宾市第二人民医院检查,医生诊断后认为是神经性问题,但无法确诊病因。

"once,A shopping mall in the doorway lay toy Donald Duck,But insisted that he couldn't see,And say what is fuzzy,It makes me very nervous."Small xin dew father LvYongXiao is glasses optometrist,He said,Her daughter's eyes appearance without symptoms of myopia,A little bigger than normal pupils.Found problems,LvYongXiao immediately took her two daughters to the second people's hospital of yibin city inspection,The doctor diagnosed after considered neurological problems,But unable to diagnose the cause.

  找不出病因,也没法医治,小鑫露的视力却在不断下降。12月11日,吕永孝带着女儿去了重庆儿科医院西南医院,医院的病例单上写着多发性硬化?双眼球后视神经炎?但最终不能确诊,至今仍然无法找出病因。到目前,小鑫露的视力已经从1.0降到左眼只有0.1,右眼已经不到0.2。“最大那个‘E’都看不清楚。”吕永孝说,他站在离女儿一米远的地方,女儿都已经看不清他了。

Can't find out the cause,Can't heal,Small xin dew vision decreases.On December 11,,LvYongXiao took her two daughters to the pediatric hospital in chongqing southwest hospital,Hospital cases single written on multiple sclerosis?Double eye after optic neuritis?But in the end can't diagnose,Still can't find the cause.Up to now,Small xin dew eyesight has left from 1.0 to 0.1,Right eye has less than 0.2."Maximum the‘e’Can't see clearly."LvYongXiao said,He stood in the place of one metre away his daughter,Daughter have could not see him.

  “鑫露的名字是我给她取的,希望她能有富贵的人生,更希望她像雨露一样,滋润万物,成为大家的财富,也希望她能像露水一样晶莹透明。看着我这么可爱的女儿,我真的不知道失明后她将怎么办。”昨日,吕永孝致电本报称,希望能有专家可以为女儿找出病因,保住双眼。

"Xin dew name is me to take her,Hope she can have a rich life,More hope she like as rain and dew,Moist all,Become everyone's wealth,Also hope that she can like dew as glittering and translucent and transparent.Look at me so lovely daughter,I really don't know she will fail."yesterday,LvYongXiao call our newspaper said,Hope to have experts can find out the cause for her daughter,Keep eyes.

 

 女儿总是沉默“我安慰女儿,一定治得好”害怕失明 Daughter always silent"I comfort daughter,Must be good for"Afraid of blindness

  自从女儿眼睛开始看不清后,女儿有什么要求,吕永孝都尽量满足,给她买新衣服,买新书。家里条件困难一直没有电视,最近吕永孝常带着女儿去邻居家看电视、玩电脑。“我怕她现在不看,就再看不到了……”吕永孝再也忍不住了,把头埋在双手中哭起来。

Since the daughter could not see his eyes began after,Daughter have what demand is there,LvYongXiao all try to meet,To buy her new clothes,Buy new books.The condition in the home is difficult there has been no TV,Recently LvYongXiao often take my daughter to neighbor's watching TV/Playing computer."I'm afraid I don't see her now,Then see......"LvYongXiao couldn't stand anymore,To bury my head in hands crying.

  当被问及如果女儿真的失明了怎么办,这个35岁就已经白发丛生的男人捂住了脸,不断地摇头。孩子从视力下降以来,他一直吃不下睡不好,体重下降了二十斤。“我现在都是安慰女儿,一定医得好”,吕永孝说,自从女儿视力开始下降后,变得不爱说话了,也会发现她偷偷的哭。之前在家里很爱唱歌的孩子,虽然行动不便,但高兴时也会学着电视里的节目比比跳舞的动作,现在回家总是沉默着,把脸凑近书本,吃力地辨认着,一笔一画慢慢地写作业。

When asked if the daughter really blind,This 35 years, and he has white hair cluster man cover in the face,Constantly shook his head.Since the child from vision loss,He always can't eat can't sleep,Weight loss for twenty jin."I now is to comfort her daughter,Must have a good medical",LvYongXiao said,Since daughter vision after began to decline,Become do not love to talk,Also can find her cry secretly.Before the home love singing children,Although action inconvenience,But happy will also learn to television programs over dance movements,Go home now always silent,Her face low over the books,With difficulty identify with,A picture of a homework slowly.

 

 上课更加专心“害怕听漏上课内容”努力学习 Class to concentrate more"Afraid to leakage class content"Study hard

  “小鑫露是一个非常懂事的孩子,喜欢学习。特别是视力下降之后,上课更加专心,生怕听漏了老师讲的。”一提到小鑫露,班主任向老师爱怜地说道。“小鑫露的视力降低得越来越快了,前两周她父亲请假带她去重庆看病,回来后我发现她的视力下降了更多,现在我们都非常担心,希望能够找到原因,好对症下药。”

"Small xin dew is a very sensible child,Like learning.especially after the vision loss,Class to concentrate more,For fear that listen to leak the teacher said."At the mention of small xin dew,The teacher in charge to the teacher said lovingly."Small xin dew vision reduce the faster and faster,Two weeks before her father ask for leave to take her to see a doctor in chongqing,Come back after I found her vision loss more,Now we are very worried about,Hope to be able to find the reasons,Good suit the remedy to the case."

  小鑫露由于腿脚不方便,一直在班里都是坐前面。“现在我们教学模式是分小组合作学习,我们把小鑫露调到前几个小组,怕她看不见,但现在必须单独在讲台旁放一张课桌,她才能看到黑板上的字。”向老师介绍到。据介绍,由于去重庆看病耽误了学习,小鑫露回来之后利用课间和中午休息的时间希望能把落下的课程补上来。

Due to the small xin dew and inconvenient,Has been in the class are all sit in the front."Now we teaching mode is the cent group cooperative learning,We put the small xin dew transferred to the first few group,Afraid she can't see,But now must be individually in the podium put a desk,She can see the words on the blackboard."To the teacher introduced to.According to introducing,Due to the delay of learning to chongqing to see a doctor,Small xin dew came back using the class recess and noon rest time hope can drop courses fill up.

  “我现在最大的梦想就是能够好好学习,成绩好了,以后才能回报父母。”小鑫露在一次作文课上大声地说着自己的梦想。

"I now the biggest dream is to study well,Do well in the,After return to parents."Small xin dew in a composition loudly said on his own dream.

 

 亲人讲述 Relatives about

  两岁时不能正常行走 Two years old can't walk normally

  吕永孝在女儿两岁时发现她站不稳,走路总是打偏,腿上没有力气,去医院检查后得知女儿的神经受了损害,影响肌肉生长。刚刚学会走路不久的小鑫露,就要开始面对自己不能正常行走,更不能跳跑的现实。

LvYongXiao in two years old daughter found her standing instability,Walk always play partial,On the leg have no energy,Go to a hospital checking that daughter after nerve has been impaired,Influence muscle growth.Just learn to walk the near small xin dew,Begin with you can't walk normally,More can't jump the reality of the run.

  跑遍了宜宾的医院,医生均告诉吕永孝,神经性的问题很难医治,更有医生告诉吕永孝说,孩子的病是医不好的,让他不要再耗钱。但小鑫露的家人没有放弃,至今仍然每天坚持给她按摩。现在的小鑫露,能够一拐一拐的缓慢行走,但上、下坡时需要扶着墙,不然就会摔倒。

Yibin went around the hospital,The doctor told LvYongXiao are,Neuropathic problem is difficult to heal,More doctors told LvYongXiao said,The child's disease is cureless,Let him not to loss of money.But small xin dew family didn't give up,Still give her a massage every day.It is now a small xin dew,Can limped slowly walk,But on/Downhill need to hold the wall,Or it will fall down.

  女儿开始上学后,吕永孝发现她的手也有萎缩的现象,握起笔来很吃力,写字的速度也比别人慢,但是女儿很好学,今年期中考试的时候,语文和数学两科都是97分。

After my daughter started to go to school,LvYongXiao found her hand has atrophied phenomenon,Hold a pen to hard work,Write speed is slower than others,But the daughter is very studious,This year the mid-term exam,Chinese and mathematics two section is 97 points.

  “这些年不知道摔了多少次”,吕永孝说,冬天还好,夏天的时候女儿的膝盖基本都看不到正常的肤色,青紫、破皮是常态。吕永孝给女儿买了护膝,但是夏天天气热,用起来很不舒服,也容易发炎。

"These don't know how many times fell",LvYongXiao said,Winter is good,Summer when her daughter's knee basic all could not see the normal color of skin,blue/Broken skin is normal.LvYongXiao give daughter bought knee,But it is hot in summer,It is very uncomfortable,Also easy to inflammation.

  吕永孝说,他一直在培养女儿的独立能力,女儿也很坚强,尽量自己走路,不让家人抱。女儿走路难,看她走路,父母的心也难过,吕永孝告诉记者,有几次看到小鑫露上厕所时因没有扶住,一屁股坐在地上,“真的很心痛”。

LvYongXiao said,He has been in the cultivation of the daughter's independent ability,Daughter is also very strong,Try to walk on his own,Don't let the family held.Daughter walking difficult,See her walk,Parents' heart is sad,LvYongXiao told reporters,There are a few times see small xin dew to the toilet because no hold,A bottom to sit down on the ground,"Really heartache".

   

   名词解释 Nouns explain

 

 多发性硬化 Multiple sclerosis

  它是一种常见的以中枢神经系统炎性脱髓鞘为特征的自身免疫性疾病。临床表现为:

It is a common to the central nervous system inflammatory demyelinating for features of autoimmune diseases.Clinical manifestation for:

  1.颅神经功能障碍视神经功能障碍常起因于球后视神经炎,不少病人以球后视神经炎或视乳头炎为首发症状,往往先于其他神经系统症状数月、数年、甚至数十年。症状表现为视力减退与视野障碍。视力减退轻重不一,但很少致盲。

1. The cranial nerve dysfunction optic nerve dysfunction often arise from the ball after optic neuritis,Many patients with ball after optic nerve inflammation or apparent nipple inflammation symptoms to start,Often before other nervous system symptoms for months/years/even decades.Symptoms for decreased visual acuity and disturbance of visual field.Ision loss weight is differ,But few of blind.

  2.感觉障碍往往由脊髓后柱或脊髓丘脑束病损引起。最常见的主诉为麻刺感、麻木感,也可有束带感、烧灼感、寒冷感或痛性感觉异常。

2. Feeling disorder often after the spinal column or spinal cord thalamus beam damage caused.The most common symptoms tingling/numbness,Also can have belt feeling/Burning sensation/The cold feeling or pain sensation anomaly.

  3.运动功能障碍常见的早期症状是手部动作笨拙和意向性震颤以及下肢易于绊跌。检查时可见多种体征,以腹壁反射缺失、跖反射伸性和小脑征最为常见。有的病例进展至后期,痉挛性截瘫明显,致行走不能。

3. Motor dysfunction common early symptoms are hand clumsiness and intention tremor and lower limb is easy to stumble.Inspection shows a variety of signs and symptoms,With abdominal wall reflection loss/Plantar reflection stretch sex and cerebellum sign the most common.Some cases progress to later,Spastic paraplegia obviously,Walk not to.

  以运动乏力、感觉异常、视敏度减退与复视为最常见。病人的临床表现以脊髓、视神经受累的机遇为最多,其次为脑干、小脑或大脑半球受损的征象。(记者 王欢实习记者 肖垚 摄影报道)

In sports fatigue/paresthesia/Visual acuity impairment and diplopia is the most common.The clinical manifestations of patients with spinal cord/Optic nerve involvement opportunities for the most,Followed by the brain stem/Cerebellar or cerebral hemisphere damaged signs.(WangHuan reporter intern reporter XiaoYao photojournalism)



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