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女子患渐冻症怀孕 尚未找到医院可做剖腹产手术--亲稳舆论引导监测室
2013-01-22

  1月20日下午1点,飘了一上午的雪花终于停了。在北京东北二环小街桥附近的一间出租屋里,已经怀孕34周的“渐冻人”吕元芳躺在床上,望着空荡荡的房间发愣。丈夫罗忠木坐在床边低着头一言不发。

1 month and day afternoon 1 point,Gone with the wind the morning snow finally stopped.In Beijing on the northeast street near the bridge a rent the house,Is pregnant the 34 weeks"Gradually freezing"LvYuanFang lying in bed,Looking at the empty room be in a daze.Husband LuoZhongMu sitting on the bed, low head not say a word.

  他们在为寻找一家具备足够实力为吕元芳接生的医院发愁,她离最佳剖腹产手术时间只剩两周。

They are for looking for a has the enough strength to deliver LvYuanFang hospital worry,She is the best caesarean operation time there are only two weeks.

  北京一家妇婴专科医院答应为他们免费提供产前检查和剖腹产手术,2012年12月25日,吕元芳在丈夫罗忠木和母亲的陪同下从老家甘肃兰州来到北京,住在离该医院不远的一间出租屋内。但这家医院会诊后认为,医院没有呼吸科和神经科相关专家,吕元芳在破腹产手术中可能面临很大风险,急需一家实力雄厚的综合性医院提供帮助。

A Beijing penetration in the specialized subject hospital they promised to provide free prenatal care and caesarean operation,On dec. 25, 2012,LvYuanFang the husband LuoZhongMu and mother accompanied by gansu lanzhou from their hometown to Beijing,Live from the hospital near a let inside.But the hospital after consultation that,The hospital no respiratory medicine and neurology relevant experts,LvYuanFang production in the abdomen surgery may face a lot of risk,Need a strong comprehensive hospital to provide help.

  31岁的吕元芳和弟弟吕元明都患有渐冻症,症状是全身肌肉逐渐萎缩无力,如同被逐渐冻住一样,浑身无法动弹,俗称“渐冻人”。英国著名科学家霍金就是此类病症患者。

31 years old and younger brother LvYuanFang LvYuanMing had gradually frozen disorder,Symptoms are muscles gradually atrophic weakness,As was gradually as frozen,Was unable to move,Commonly known as"Gradually freezing".A famous British scientist Stephen Hawking is this kind of disease patients.

  2011年5月,吕元芳与丈夫罗忠木结婚,并在一年后怀孕。据吕元芳自述,目前她已经怀孕34周,各项检查显示胎儿发育正常,早前的绒毛穿刺检查也显示胎儿不存在渐冻症遗传,但是不能等到足月生产,最佳手术时间是两周之后的第36周。

In May 2011,LvYuanFang LuoZhongMu married with her husband,And in a year later pregnancy.According to LvYuanFang readme,Now she is pregnant 34 weeks,The tests show the normal fetal development,Earlier villi puncture inspection also shows the fetus does not exist gradually frozen genetic disease,But can't wait for full production,The best operation time is two weeks after 36 weeks.

  这家妇婴专科医院张姓负责人介绍,“渐冻人”怀孕的案例在世界上极为罕见。“医院专家组查阅许多资料,目前国际上可供参考的经验几乎为空白。”

The penetration in the specialized subject hospital ZhangXing chief introduction,"Gradually freezing"Cases of pregnancy in the world are very rare."The hospital group refer to a lot of material,The international experience for reference is almost blank."

  吕元芳告诉记者,“我知道‘渐冻人’生育风险很大,但我特别希望能生下这个孩子,将来给丈夫养老。”

LvYuanFang told reporters,"I know‘Gradually freezing’Birth the risk is very big,But I really hope that can gave birth to the child,The future husband endowment."

  “我们一开始把这个病想得太简单了。当初我也是想办一件好事,答应免费帮他们,但检查之后,发现妇产类专科医院实在没有条件做渐冻人的剖腹产手术。”上述张姓负责人说,他们医院承担了吕元芳进行产前检查和调理的全部费用,但现在根本不是钱的问题,而是需要神经科、呼吸科等科室的专家共同来完成。

"We began to make the disease to be too simple.At the beginning I also want to do a good thing,Promised to help them for free,But after check,And that kind of specialized subject hospital is not a condition do gradually frozen the caesarean operation."The above ZhangXing chief said,They take the hospital LvYuanFang for prenatal care and the cost of the whole,But now is not the problem of money,But need to neurology/Such as respiratory medicine department of experts common to complete.

  有妇产科专家在接受媒体采访时也表示,为“渐冻人”实施破腹产手术不是妇产科单独能解决的,手术过程中很难说会出现什么情况,必须要有大型呼吸机等设备和神经、呼吸方面专家参与,大型综合性医院才具备这个实力。

A department of gynaecology and obstetrics experts, when being interviewed by the media said,for"Gradually freezing"Implementation of the abdominal surgery is not produced in the department of obstetrics and gynecology alone can solve,Operation process is hard to say what would happen,Must want to have large breathing machine and other equipment and nerve/Respiratory specialists to participate in,Large comprehensive hospital did not have the strength.

  吕元芳夫妇现在为手术中可能面临的风险感到十分担心,但问题是孩子马上就要出生,吕元芳感觉自己快撑不住了,有时候会觉得呼吸困难。“请帮帮我,生下这个孩子。”吕元芳说。

LvYuanFang couples now for surgery may face the risk of felt very worried,But the problem is child ready to be born,LvYuanFang feel fast could not support the,Sometimes feel difficulty breathing."Please help me,Gave birth to the child."LvYuanFang said.

  “不仅仅是出于人道主义,实施‘渐冻人’破腹产手术同时也具有很高的医学价值,据统计,目前中国渐冻症患者超过20万。”上述妇婴专科医院张姓负责人说,“我们对吕元芳会一帮到底,如果没有找到合适的综合性医院接收他们,我们肯定会为她实施剖腹产手术,不可能让她们就这样回家。”韩元俊

"Not only is out of humanitarian,implementation‘Gradually freezing’Broken belly production operation at the same time also has the very high medical value,According to the statistics,China gradually frozen disorder patients more than 200000."The penetration in the ZhangXing specialized subject hospital official said,"We have a LvYuanFang will help exactly,If there is no find comprehensive hospitals receive them,We will implement caesarean operation for her,Can't let they come home."HanYuanJun


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