中新网乌鲁木齐1月22日电 (杨喆)1月22日，借新疆红石基金会“与爱同行——迎新春感恩慰问系列活动”的契机，记者有机会走进自闭症儿童的家庭，近距离体验他们的生活，了解他们的难处。

Beijing urumqi on January 22 (xinhua) -- (杨喆)On January 22,,Through xinjiang redstone foundation"And love together - the new series of activities to meet gratitude"opportunity,Reporters have a chance to into the autistic children's family,Close experience their life,Understand their difficulty.

　　自闭症是一种广泛性、全面性的发育障碍性疾病，患有这一疾病的儿童拒绝同外界接触，总像是活在自己的世界里。很多父母为了自闭症的孩子过上了很艰难的生活，但更难面对的是外界的不了解甚至是偏见。对于一个家庭而言，将意味着生活中的各种困难，照顾孩子需要时间、金钱、人力，更加需要的则是耐心。

Autism is a kind of universality/Comprehensive development obstacle disease,Suffering from the disease of children refused to contact with the outside world,Always like to live in their own world.Many parents in order to autism children lived a difficult life,But more difficult to face is outside don't know even prejudice.For a families,Will mean life's difficulties,Take care of the children need time/money/human,More the need is patience.

　　“星星宝贝——爱心计划”项目负责人李涛告诉记者，这里的孩子一天要上10节课，每节课30分钟，但很多家长还是会来到这里陪同和照顾，这必然会牵扯家长的大量精力，因此，常需要父母两人轮番倒班。对于还要忙于工作上班的家长来说，便是严重的超负荷了。

"The stars baby - love plan"LiTao project leader told reporters,The kids here one day to 10 class,Each lesson 30 minutes,But many parents will come here and take care of accompanied,This will involve a lot of energy to parents,so,Parents often need two people take turns to shift work.For also busy with work to work for parents,Is the serious overload.

　　身为家长的高春霞对此深有感触，家在阿勒泰的她从2011年就辞掉工作，带着患有自闭症的儿子祥祥来到康复中心。她在附近租了一间房子，把全部的精力用来照顾孩子。

As the parents of this GaoChunXia emotionally,The home is in altay her from 2011 to quit working,With autistic son xiang xiang came to rehabilitation center.She rented a house nearby,Put all the energy used to take care of the children.

　　小祥祥从3岁的时候就开始显现出同其他孩子的不同，他很少对别人的话做出回应，而想要什么也不去表达，为了了解他的需要，做母亲的只能去猜测。

Small xiang xiang from 3 years old when he began to show different with other children,He rarely respond to others' words,And to want what also not to express,In order to understand his needs,A mother can only guess.

　　孩子6岁的时候情况仍未有什么变化，做母亲的终于坐不住了。作出辞职照顾孩子的决定令高春霞感到痛苦而艰难，而家中一下子少了一份工资，生活立刻就变得捉襟见肘。孩子的父亲每个月收入1000元，那便是整个家庭的经济来源。

Children at the age of 6 situation has not changed,A mother finally to sit still.To resign to take care of the children's decision to GaoChunXia feel the pain and difficulties,And at home less a wage,Life becomes immediately broke.The father of the child every month income is 1000 yuan,That is the whole family economic source.

　　提及最初的那段时间，高春霞难掩的苦涩：“每天早上起床都要考虑同一件事——从哪里能节省一点钱出来。”

Refer to the original time,GaoChunXia difficult mask of bitter:"Get up every morning to take the same thing - from where to save a little money out."

　　中国残疾人联合会每年为2到6岁的自闭症儿童发放10个月的补助，每个月1000元，但是小祥祥送来康复中心便已经超过6岁，为此，父亲只能在每天的工作后出去再打一份工以维系这个家。这种捉襟见肘的生活一直持续很久，直到得到基金会的资助才有所缓解。

Every year China disabled persons' federation for 2 to 6 years old autistic children issue ten months of subsidies,1000 yuan every month,But small xiang xiang sent rehabilitation center has been more than 6 years old,therefore,Father can only in everyday work out to have one job to sustain the house.Under this kind of life has been a long time,Supported by foundation grants until just to ease.

　　在高春霞简陋的房子中，记者看到的是一个安静地站在母亲身边的祥祥，对于母亲的话，他时而充耳不闻，时而简单回应。高春霞说，刚来的时候情况比现在严重很多，康复园里的祥祥每天都有哪怕一点点的改变，这就是她坚持下来动力。

In GaoChunXia humble house,The reporter sees a quietly standing in the mother's side of the xiang xiang,For the mother's words,He sometimes deaf,Sometimes simple response.GaoChunXia said,Just come than now a lot more serious,Xiang xiang rehabilitation campus every day even if a little change,This is she insists on down power.

　　“付出这么多，其实也没什么可说的，毕竟是做父母的嘛，”高春霞说：“其实与孩子的交流能更通畅一点，听到孩子更多的‘回响’时，那种欣喜的感觉就会让我们父母觉得所做的一切都值得。”

"Pay so much,In fact also nothing important to say,After all, is to do well the parents,"GaoChunXia said:"In fact and children can communicate more open a little,When their children more‘echo’when,That kind of happy feeling can make our parents feel everything is worth."

　　基金会副秘书长董秀丽告诉记者，如今全疆的自闭症儿童康复中心只有4家，它们自建立起到现在累计解决了约1000个患病的儿童，然而据统计，全疆自闭症儿童大约在3万人，这其中有康复中心建设不足的原因，但同时也源于很多家庭并不真正了解什么是自闭症，同时没法减少来自身边人们的普遍偏见。

Foundation deputy secretary general DongXiuLi told reporters,Now the additional autistic children rehabilitation center only four,They have accumulated from established now solved about 1000 sick children,But according to statistics,Autistic children in xinjiang in about 30000 people,There are the causes of deficiency of rehabilitation center construction,But it also comes from many families don't really know what is autism,At the same time can reduce the side from people's prejudices.

　　“自闭症儿童父母想要的其实很简单，只是盼望孩子长大后能像其他的正常孩子一样。”董秀丽说。

"Autistic children parents want actually very simple,Just hope children can grow up like other normal children."DongXiuLi said.