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自闭症缺常态化关注和帮助 部分慈善被指带功利性--亲民维稳网络舆情监测室
2013-01-23
警惕慈善“功利化”倾向! Alert charity"utilization"tendency!
记者了解到,除了贵阳外,贵州其他市、州专业的自闭症康复训练机构很少。贵阳以外地区的自闭症儿童,往往要辗转多次甚至被送到外省份,才能得到确诊。而一旦确诊,又面临着难以就近得到专业化康复训练的困境。
The reporter understands,In addition to the guiyang,Guizhou other city/State professional autism rehabilitation training institutions rarely.Outside guiyang autistic children,Often toss many times and even be sent to the province,Can be diagnosed.Once diagnosed,It is faced with the difficult to get professional near the plight of rehabilitation training.
2003年,赵新玲等8名自闭症孩子家长因为自己患有自闭症的孩子无法入托、入学、社会无处接纳,筹办了贵阳爱心家园自闭症儿童康复中心,目前收治了来自贵州各地的70名自闭症患儿。每年4月2日的“世界自闭症日”前后,“爱心家园”都会受到社会各界关注,许多爱心机构会特地来送“温暖”。
In 2003,,ZhaoXinLing eight children with autism, such as parents for their children with autism may not nursery/entrance/Social acceptance is,For guiyang love home autistic children rehabilitation center,At present from guizhou were around 70 children with autism.Every year on April 2,"The world autism day"Before and after,"Love home"Will be the social from all walks of life pay attention to,Many love mechanism will be specially to send"warm".
然而在寒冷的冬天,记者在“爱心家园”看到,门口破损的廊灯、其他公司在楼下租赁的仓库、嘈杂的环境与康复中心内认真的老师和天真的孩子很不相称。
However, in the cold winter,Reporter in the"Love home"see,The door broken corridor lamp/Other companies in the down stairs rental warehouse/Noisy environment and the rehabilitation center is serious teacher and innocent child is not match.
“虽然关心我们的人很多,但可能因为贵州经济欠发达,我们又是民办机构,能得到的实质性经济支持依然很小。”“爱心家园”负责人赵新玲说。
"Although many people care about us,But perhaps because guizhou economy less developed,We are private institutions,Can get a substantial financial support is still small.""Love home"Person in charge ZhaoXinLing said.
目前,中央相关部门已开展了自闭症免费康复培训项目,但因为对患儿有年龄限制,项目的覆盖面仍较窄。卓德桥的儿子已经十岁,只能参加地方政府组织的短期康复培训项目,在培训期间接受一些生活补助。
At present,The relevant departments have launched autism free rehabilitation training program,But there is an age limit for children,The project is still a narrow coverage.ZhuoDe bridge son has ten years old,Only to take part in local government organization short-term rehabilitation training program,During the training process to accept some living subsidies.
“这些培训只有一两个月,时间太短,对孩子起不了太大作用,我没送孩子参加。”卓德桥说。
"These training only one or two months,Time is too short,To the child not too big effect,I didn't send their children to participate in."ZhuoDe bridge said.
业内人士认为,越来越多的人开始关注自闭症,但并不是常态化的关注和帮助,而是当社会热点和焦点在哪里,这些帮助就奔向哪里,一些企业的慈善活动带有明显功利性。
The personage inside course of study thinks,More and more people begin to pay close attention to autism,But not normalization concern and help,But when the social hot spot and focus in where,These help will run to where,Some enterprise charity activities with obvious utilitarianism.
一位贵州的自闭症康复机构负责人告诉记者,曾有企业联系他们在“世界自闭症日”搞慈善活动,并承诺儿童节继续合作,但由于媒体报道活动时没有提到该企业的名字,儿童节的活动最终不了了之。(记者 李惊亚 李放)
A guizhou autistic rehabilitation agency person in charge told reporters,There have been enterprise contact them in"The world autism day"Make charitable activities,And commitment to continue to cooperate with the children's day,But as a result of media activities did not mention the name of the enterprise,Children's day activities ultimately nothing.(Reporter li jing and LiFang)
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