中新网台州1月25日电 (记者 邵燕飞 实习生 肖娜)在江苏南通，有个叫胡颂文的人，他自制“钢的肾”维持生命13年，他的故事成为了神话。然而，最近类似“钢的肾”事件在浙江台州市黄岩区上郑乡干坑村也悄然上演，一对年过半百的父母因支付不起儿子高额医费，自制“山寨呼吸机”维持儿子生命5年至今。

Beijing on January 25, taizhou (Reporter ShaoYanFei XiaoNa interns)Nantong in jiangsu,There is a call HuSongWen people,He made"Steel kidney"Maintain life 13 years,His story became myth.however,Recent similar"Steel kidney"Events in zhejiang taizhou HuangYanOu on zheng township dry pit village on quietly,A pair of middle-aged parents because son could not afford to pay high medical cost,homemade"Hold breathing machine"Maintain son life since 5 years.

一场车祸夺去儿子呼吸功能 A car accident took away son respiratory function

　　一个模具架子、一台压缩机、一个呼吸球，加上一根小皮带，就是这价值不过几百元、简单组合而成的“山寨呼吸机”，代替了价值高达10多万元的呼吸设备，维持着付学朋的生命近5年的时间。

A mold shelves/A compressor/A respiratory ball,Add a little belt,Is this the value but hundreds of yuan/A simple combination"Hold breathing machine",Instead of the value as high as more than 10 ten thousand yuan of breathing apparatus,Maintain the pay a friend's life learn nearly five years of time.

　　奇迹的背后却充满了辛酸。

Behind the miracle is full of bitterness.

　　在台州市黄岩区上郑乡干坑村的一个简易民房内，付学朋一家就住在这里。父亲付敏足今年已63岁，母亲53岁，30岁的付学朋7年来一直躺在病床上。据干坑村村委会主任黄米胜介绍称，付学朋家的房子建于1975年。

In taizhou HuangYanOu zheng township dry pit in the village of within a simple dwellings,Learn to pay a friend living here.FuMinZu father this year already 63 years old,53 years old mother,30, learn to pay a friend in the past seven years has been lying in bed.According to the dry pit village village committee director yellow rice - introduction says,Learn to pay a friend house was built in 1975.

　　据上郑乡乡政宣传办张杭军回忆，当时是因为工作任务到干坑村拍照，无意中发现村子里的这个房子有嗡嗡作响的噪音，询问了其他村民才发现这家在用发电机。

The government should XuanChuanBan according to zheng ZhangHangJun memories,At that time because of work task to the dry pit village photos,Accidentally found the village this house have a humming noise,Ask the other villagers found that the generator.

　　普通的农民家庭怎么会用发电机呢？带着满心的疑问，张杭军走进了付学朋家。当张杭军推开这间小屋的门，迎面看到的是一张古老陈旧的红木床，而安静躺在床上的就是付敏足的儿子付学朋，床旁边是一台嗡嗡作响、长相古怪的机器，床对面是一台被放置到2米多高立柜上的电视，电视机顶端几乎要接近房屋天花板了。“这是付学朋生活中唯一的娱乐。”

Ordinary peasant family how generator?With full of doubt,ZhangHangJun into the pay a friend home to learn.When ZhangHangJun push away the cabin door,Head to see is a old old annatto bed,And quiet lying in bed is FuMinZu son learn to pay a friend,On the side of the bed is a humming/Looks odd machine,The bed is a be placed to 2 meters high cabinet on TV,Top television almost close to house the ceiling."This is to pay a friend to learn in life the only entertainment."

　　“2006年3月的一天，苦难像恶魔一样降身到付学朋身上。”张杭军告诉记者，付学朋下班后骑着摩托车到超市买东西，摩托车后面还载着他的同事金光华。摩托车行驶到金桥集团附近时，与迎面开过来的一辆轿车相撞，付学朋身受重伤。法院判决轿车车主一次性赔偿30多万元，而据付敏足夫妇说，治疗和维持费用已经花去110多万，其中七八十万都是亲戚们凑的。

"In March 2006 a day,Suffering like a devil body down to pay a friend, to learn."ZhangHangJun told reporters,To pay a friend after work to learn riding a motorcycle to the supermarket to buy things,Motorcycle back carrying his colleagues JinGuangHua.Motorcycle driving near to jinqiao group,And head open over a car collision,Learn to pay a friend seriously injured.Court car owners one-time compensation and more than ten thousand yuan,And according to FuMinZu couple said,Treatment and support cost it has spent more than 110,The 7.8 million are relatives of the pool.

　　为了给儿子看病，付敏足夫妇在起初的两年时间里辗转于台州与上海的几个大医院，上海的长征医院甚至还把车开到了他们家门口，但是都因为风险太大，没有给他做手术。

In order to give son to see a doctor,FuMinZu couples in the first two years in and taizhou and Shanghai several big hospital,Shanghai long march hospital even drive to their home,But because the risk is too big,Don't give him to do the operation.

父母24小时轮流为儿子捏呼吸球 Parents take turns 24 hours for son knead breathing ball

　　由于呼吸中枢神经和运动神经受损，导致付学朋颈部以下部位几乎完全瘫痪，呼吸只能靠插在喉部的外接塑料管辅助进行。

Due to the respiratory center nerve and motor nerve damage,Learn to pay a friend neck the following parts almost completely paralyzed,Breathing can only rely on stuck in the throat of the plastic pipe external supplementary.

　　“刚开始我们在台州市第一人民医院的呼吸科住了四个月，依靠医院呼吸机维持儿子生命，但是住院的费用太贵了，一万块钱还坚持不到一个星期就没了。”付敏足老人无奈的说，他们只能将儿子送回家里，利用简易呼吸器帮助儿子手工呼吸。

"At first we in taizhou first people's hospital of respiratory medicine for a period of four months,Rely on hospital breathing machine maintain son life,But the cost of the hospital is too expensive,Ten thousand dollars to persist in less than a week did not have."FuMinZu old man helplessly say,They will only son back to home,Use a respirator to help son hand breathing.

　　这种简易呼吸器是一种人工急救苏醒球，球的一端有气管连接到喉管，需要不停捏动才能帮助呼吸。付敏足夫妇便每天24小时轮流守在病床前捏苏醒球。哪怕停止3分钟，儿子便会呼吸终止，失去生命。

This simple apparatus is a kind of artificial first aid to the ball,The ball at one end connected to the tracheal tube,Need to keep knead move can help breathing.FuMinZu couple will take turns to keep 24 hours a day in bed before to pinch the ball.Even if stop 3 minutes,Son will be breathing termination,Lost their lives.

　　七年来，付敏足夫妇捏破了6个简易苏醒球，指关节也变得异常粗大。但是他们并没有丧失儿子能恢复健康的斗志，他们依然在憧憬着有一天付学朋能像以前那样健康地唤他们一声爸爸妈妈。

Seven years,FuMinZu couple knead broken six simple round ball,Knuckles also become abnormal bulky.But they have not lost son can restore health morale,They still look forward to one day learn to pay a friend like before healthy call them a sound mom and dad.

发明了“山寨呼吸机”延续生命 Invented the"Hold breathing machine"Continue life

　　刚接回家的一年多时间里，付学朋的呼吸全靠付敏足夫妇和两个女儿、女婿每天不间断捏球。直到第二年四月份，付敏足的弟弟在电视里看到自制呼吸机的办法，才结束了完全依靠手工捏球来延续生命的日子。

Just home more than a year of time,Learn to pay a friend breath all by FuMinZu couple and two daughters/Son-in-law daily uninterrupted kneading balls.Until the second year April,FuMinZu brother in the television see homemade breathing machine method,Before he finished completely rely on manual kneading balls to extend the life of the day.

　　他们模仿电视里的方法，买了电动机和调速器，再加装一个推动杆。电动机接通电源，带动调速器有规律地运转，之后与其连接的推动杆按相同频率挤压墙头的呼吸球，并通过管道将挤压出的空气送到病人喉部，帮助呼吸。

They imitate TV method,Buy the motor and governor,To add a push rod.Motor switch on the power,Drive the governor regularly running,After push rod connected to the same frequency extrusion wall breathing ball,And through the pipeline will squeeze the air to the patient throat,Help breathing.

　　张杭军告诉记者，机器转动起来，每天需耗费五六块钱的电费，一个月就是一百四五十元的开销。“所以，两个老人只舍得晚上开，白天他们依然和以前一样捏呼吸球。”

ZhangHangJun told reporters,Machine turn,Every day can take five or six dollars charge,A month is the cost of the 100450 yuan."so,Two old man only willing to open in the evening,The day they still as before knead breathing ball."

　　可是，需要常年在家照顾儿子的付敏足夫妇，这些生活开销该怎么办？生活资金又从哪里来？

but,Need to take care of the son at home all the year round FuMinZu couple,The costs of living do?Life and money come from?

　　“政府也给与这个家庭一定的帮助。”黄岩外宣办主任喻益杰在接受中新网记者采访时说道，干坑村村政府为付敏足一家办理了低保户，每人每月280元。另外，该村政府还为付敏足夫妇安排村里“保洁员”的工作，一年可以有6000元的收入。中国残疾人联合会也会在逢年过节时给付敏足一家发送补贴金及生活用品。再加上社会上也陆续的有爱心人士捐资帮助这个家庭。

"The government also give the family a certain help."Huangyan propaganda bureaus and foreign affairs offices in Beijing YuYiJie director accept reporters said,Dry pit for every government FuMinZu a dealt with low door,Each every months 280 yuan.In addition,The government has for FuMinZu couples arrange the village"cleaner"work,A year can have an income of 6000 yuan.The China disabled persons' federation will also in holiday when FuMinZu a send subsidies and articles for daily use.Plus the society also have a love of people around the world contributed money to help the family.

　　“这夫妇俩实在很辛苦，但他们对待孩子那种不离不弃的精神也着实感动世人。”喻益杰告诉记者，“他们守着那份1%的希望，做出了100%的努力，这份感动不是言语能够表达的。所以，我也想借机呼吁广大的社会群众，能够给予这个家庭一些帮助，凝集起社会的正能量。”

"The couple is very hard,But they treat children that buchibuqi spirit also really touched the world."YuYiJie told reporters,"They keep the copy of 1% of hope,Make 100% of the effort,This move is not the words to express.so,I also want to looking appealed to the social people,The family can give some help,Agglutination up social positive energy."

　　专家称：“山寨呼吸机”有风险

Experts say:"Hold breathing machine"risk

　　“这种简陋的自制呼吸机的确能够维持生命五年，但是存在风险。”浙一医院呼吸科副主任浦其斌在接受中新网记者采访时称。

"This kind of crude homemade breathing machine is able to maintain life for five years,But there is risk."ZheYi hospital respiratory medicine, deputy director of the Beijing PuJiBin told reporters said.

　　浦其斌介绍道，呼吸功能丧失分为两种情况，一种是肺功能不好，第二种是肺功能健全，但其呼吸系统等功能不好。付学朋就属于第二种情况，付学朋是由于呼吸中枢神经核运动神经受损而丧失了呼吸功能，这是说明该病人的呼吸肌肉力量不够，但他的肺动力是存在且健康的，所以这类病人对呼吸机的要求不高。

PuJiBin said,The loss of respiratory function can be divided into two kinds of circumstances,One is lung function is bad,The second is lung function perfect,But the respiratory system function is bad.Learn to pay a friend will belong to the second,Learn to pay a friend is due to breathing central nervous nuclear motor nerve damage and lost respiratory function,It is indicated that the patient's respiratory muscle strength is not enough,But his lung power exist and healthy,So this kind of the breathing machine's request is not high.

　　如此简陋的自制呼吸机对病患究竟有没有副作用呢？浦其斌说，这种自制呼吸机是极不安全的。由于呼吸机的整体运作没有处在一个安全监控范围内，在这个呼吸的过程中，病人的肺部很有可能受到外界的感染，容易受伤。“对于付敏足为儿子自制呼吸机维持生命五年的做法，绝对只是个案，不宜模仿和复制。”(完)

So crude homemade breathing machine for patients? What if any side effects?PuJiBin said,The homemade breathing machine is very safe.Due to the breathing machine operations not in a safety monitoring range,In the process of the breathing,The patient's lungs are likely to be infected with the outside world,Vulnerable to injury."For FuMinZu son for homemade breathing machine maintain life five years of practice,Absolute just case,Unfavorable imitation and copy."(finish)