中新网海口5月2日电 (琼芬)刚刚做妈妈8个多月的姜女士每天内心都备受痛苦煎熬。她的宝宝果果出生即不幸患上先天眼睑缺失及粘连病。此病较为罕见，是海南首例。更不幸的是，今年1月份在北京手术后，经3个多月的恢复，发现手术失败。姜女士一家心急如焚希望为孩子寻找更好的治疗。

中新网海口5月2日电 (Joan Finn)Just mom more than 8 months of jiang, heart is suffering every day.Her baby born blended unfortunately suffering from congenital eyelid defects and adhesion.The disease is relatively rare,Hainan is the first.More unfortunately,今年1月份在北京手术after,After more than three months of recovery,Surgery to lose.Jiang, a desperate hope to find better treatments for children.

男婴先天性上眼睑缺失 Baby boy with congenital missing upper eyelid

　　2012年8月28日，在海南省保亭黎族苗族自治县工作的姜女士和丈夫喜得一个男宝宝。但随之不幸也降临。姜女士发现宝宝左眼先天性上眼睑缺失。雪上加霜的是，3天后婴儿体检时双耳听力筛查也未通过。宝宝的到来让姜女士一家由喜转忧。

2012年8月28日,Working in BaoTing li and miao autonomous county, hainan province jiang, and her husband have a male baby.But unfortunately also subsequently.Jiang, find baby left eye congenital absence of upper eyelid.To make matters worse,3天after婴儿体检时双耳听力筛查也未通过.The arrival of the baby to a ms jiang from joy to sorrow.

　　宝宝未满10天，姜女士尚在月子里，就让丈夫带着孩子来到海南省人民医院。经医生检查确诊宝宝得的病是上眼睑缺失及粘连，且是海南首例先天性上眼睑缺失及粘连的病人。

宝宝未满10天,Ms jiang is in lili,Let the husband brought the children came to the people's hospital of hainan province.After the doctor examination diagnose diseases of the baby is missing of upper eyelid adhesions,And hainan's first congenital missing of upper eyelid adhesions patients.

　　医生建议家长带婴儿到更大医院做手术。但是看着襁褓中的小小孩儿，姜女士和丈夫暂时选择了等待。

医生建议家长带婴儿到更大医院做手术.But look at the small boy in infancy,Ms jiang and her husband chose to wait for the time being.

　　孩子满45天后姜女士再次为孩子做了双耳听力检测，还是未通过。孩子是否会先天性耳聋？家人心中既为孩子担忧，又为孩子心痛。

孩子满45天after姜女士再次为孩子做了双耳听力检测,Or not by.Whether children congenital deafness?Both family heart worried about children,And heartache for the children.

　　去年10月，姜女士和先生带孩子到解放军301医院海南分院再次作检查。301医院的医生建议姜女士到北京同仁医院给孩子做手术。

去年10月,Mr Jiang, and took the kids to the people's liberation army 301 hospital of hainan branch for check again.301 hospital doctor advised ms jiang in Beijing tongren hospital for surgery on children.

　　赴北京手术不幸失败 赴北京手术不幸失败

　　同年10月，姜女士和丈夫带着孩子果果到了北京。经北京同仁眼科的医生诊察后，孩子的眼部手术安排到了2013年1月。其间的3个月时间，姜女士和丈夫带着婴孩一直留在北京，因为他们心中还有一颗未落下的石头：孩子的听力问题。

同年10月,Ms ginger blended with children and husband came to Beijing.经北京同仁眼科的医生诊察after,The child's eye surgery to January 2013.In 3 months time,Ms jiang has been to stay in Beijing and her husband with the baby,Because their hearts have a falling stone:The child's hearing problems.

　　姜女士说到此，眼里含着泪水，“医院不断给孩子做检查，孩子喝镇静剂不知喝了多少，做了一系列检查后，孩子的耳朵确诊为中耳积液，并非先天性耳聋！”这让姜女士和她的丈夫终于卸下了心里的一块石头。

姜女士说到此,With tears in eyes,"Hospital to do check constantly,I don't know how much children drink sedatives,做了一系列检查after,The child's ear diagnosis of middle ear effusion,Is not congenital deafness!"This let ginger lady and her husband finally break the heart of a stone.

　　今年1月8日，北京同仁医院给果果做了眼睑缺损修复及眼睑粘连眼球剥离的手术。医生在手术前告诉姜女士，这种手术是眼科最棘手的手术，有存在失败的可能性。

今年1月8日,Beijing tongren hospital gave blended eyelid defect repair and eyelid adhesions eye dissection surgery.The doctor prior to surgery tell ms jiang,This kind of surgery is the most difficult operation of ophthalmology,There is the possibility of failure.

　　手术结束后，北京医生让孩子的父母带孩子回海南，并嘱咐恢复期为半年。

手术结束after,Beijing the doctor let the children of parents with children back to hainan,And charge recovery for half a year.

　　手术后至今的4个月里，姜女士和丈夫没有睡一天安稳觉，夜夜守着孩子。因为怕孩子在睡着后会揉搓眼睛，导致缝合处受损。

手术after至今的4个月里,Ms jiang and her husband didn't sleep a day,Night after night watching children.因为怕孩子在睡着after会揉搓眼睛,Led to the stitching is damaged.

　　担惊受怕了数月，让姜女士感到心酸的是，果果的眼睛恢复得并不好，粘连仍很明显，也就是说手术失败了。

担惊受怕了数月,Jiang, was sad to see,Blended eye restore is not good,Adhesion is still obvious,That is to say, surgery has failed.

　　家长寻医冀治好孩子 家长寻医冀治好孩子

　　北京求医之行，姜女士一家花费了六万元。这笔费用对这个海南山区农场职工子弟家庭是一笔不小的支出。手术失败再次揪紧了孩子妈妈的心。因为姜女士和丈夫、家人靠自己的能力得到的医疗信息非常有限。姜女士向媒体求助，希望通过媒体寻找更多的医疗信息，让孩子得到更好的医疗救治。

北京求医之行,Jiang, a cost sixty thousand yuan.This charge in the hainan mountainous farm worker children the family is a big spending.Surgery once again pulled tight mother heart failure.Because ms jiang and her husband/Family on their own ability to get health information is very limited.Ms jiang to the media for help,Hope to find more medical information through the media,Let children get better medical treatment.

　　8个多月的果果特别爱笑。因为果果5个月以前的听力几乎为零，导致他目前对声音的反应会慢一拍。目前，果果的耳朵听力正在恢复中。但是，果果在模仿方面很有天赋，6个月听到爸爸妈妈数手指的指令，会自己数起小手指。果果还对音乐表现出非常的乐趣。

8个多月的果果特别爱笑.Because the blended listening is almost zero five months ago,Cause he is a step slow response to sound.At present,The blended ears listening is in recovery.but,Blended in imitation is very talented,6 months to hear mom and dad for finger command,Thin fingers will count.Blended also very fun with music show.

　　“我和果果爸爸现在比以前更加努力工作，希望给予孩子最好的医疗，让孩子健康快乐成长！”看着儿子胖嘟嘟的可爱笑脸，姜女士和丈夫呼吁：“帮帮我们的孩子吧！”

"My father now and blended to work harder than before,Want to give children the best of health,Let children grow up healthy and happy!"Looking at her son chubby cute smiling face,Ms jiang and calling for her husband:"Help our children!"

　　读者如有“上眼睑缺失及粘连”医治信息，恳请您伸出援手。姜女士联系电话：13086094163。邮箱：liqiuhai2007@126.com。(完)

读者如有"Missing of upper eyelid adhesions"For information,Please reach out to you.Jiang, contact phone number:13086094163.Your email:liqiuhai2007@126.com.(After the)