在河南郑州，一群特殊的家庭组建了一个特殊的俱乐部，他们在俱乐部里分享彼此教养孩子的经验，对彼此提供情感上的支撑；他们希望能够获得来自社会的支持和理解，更希望自己的孩子能够被社会所接纳、真正融入社会。因为他们每一个家庭都有一个特殊的孩子，这些孩子不同程度地患有自闭症、脑瘫、唐氏综合症、亚斯伯格症、学习障碍、发育迟缓、多重障碍等病症。

In zhengzhou, henan，A group of special family has formed a special club，They share each other at the club to raise my children experience，To offer each other emotional support；They hope to be able to benefit from social support and understanding，More hope their children will be accepted by society、In the society really。Because they every family has a special children，These children with autism in different degrees、Cerebral palsy、Down syndrome、Asperger's syndrome、Learning disabilities、retarded、Multiple obstacles wait for disease。

　　7月30日，在郑州的这家特殊儿童家长俱乐部里，在志愿者的陪同下，几个患有自闭症的孩子正在进行简单的识别训练，一旁的妈妈不停地对孩子进行鼓励。

July 30,，The special children in zhengzhou parents club，Accompanied by the volunteers，Several children with autism may is the simple recognition training，One side of my mother kept children to encourage。

　　“孩子是在3岁多的时候被确诊患有自闭症的，那时候就觉得天塌了。”家住开封的成成妈妈告诉记者，成成今年10岁了，自从发现孩子有病后，曾带着孩子到北京、上海等地四处求医，但是效果都不是很好。

“The child is in more than three years old of time is diagnosed with autism，When it is feel that day has fallen。”Live in kaifeng into into the mother told reporters，Into this year at the age of 10 into，Since the discovery after the sick child，Once took the child to Beijing、Shanghai to the doctor around，But the effect is very good。

　　“家里有一个这样的孩子，已经没有办法正常的生活工作了，”为了照顾孩子，成成妈妈和丈夫商量，由丈夫挣钱养家，自己则辞掉工作，在家带孩子。“看着周围孩子都是健健康康的，总觉得命运不公平，为什么我的孩子不能健健康康的？觉得特别无助。”成成妈妈说。

“At home there is such a child，Have no way to normal life work，”In order to take care of the children，A mother and her husband to consult，The husband who earn money for the family，The quit his job，At home with the children。“Watched around the children are healthy，Always feel that fate is not fair，Why does my child can't healthy？Feel special helpless。”Into into mother said。

　　“其实这些家庭，需要帮助的不仅仅是孩子，还有他们的父母。”家长俱乐部的负责人徐冰告诉记者。几年前，在大学担任英语教师的徐冰，一次在给一家福利机构做翻译时，结识了几个特殊儿童家庭，“这种家庭压力最大的是父母，他们不仅仅要承受经济上的巨大压力，还要面对来自社会和亲朋的不理解，有很多家庭都是破碎的，由妈妈、甚至是年迈的爷爷、奶奶独自带着孩子。”

“Actually these families，Need help only the children，And their parents。”The person in charge of the parent club xu told reporters。A few years ago，In college English teachers as the ice，A time in a welfare institutions to do translation，Met several special children's family，“This kind of family pressure the largest is the parents，They not only to be under great economic pressure，Also face from society and their families or friends don't understand，Have a lot of families is broken，By mother、Even old grandfather、Grandma brought the children alone。”

　　后来因为工作的缘故，徐冰得以结识了很多来自海内外的公益组织，以及一些从事特殊儿童教育的专家学者，于是她就萌生了组织一个家长俱乐部的想法，为家长们提供一个交流经验、分享心路历程的平台，家长们还能够定期参加一些海内外专家的讲座，接受新知观念，减轻他们所面临的巨大的心理压力。

But for the sake of work，Xu made many at home and from abroad to the public organization，And some special children's education in the experts and scholars，So she initiation of the organization a parent club ideas，For parents provide an exchange of experience、Share the journey of the platform，Parents can take part in some of the experts at home and abroad regularly lecture，Accept new knowledge concept，Ease, they face huge psychological pressure。

　　2008年10月，在徐冰和几位志愿者的帮助之下，这个名叫杰弗(gift,礼物)的特殊儿童家长俱乐部正式成立。今年3月，徐冰也辞掉了自己在大学里的工作，全身心投入到俱乐部的工作中。

October 2008，In the ice and several volunteers under the help，The named Jeff(gift,gift)The special children's parent club formally established。In march this year，Xu also resigned from his work in the university，Devoting themselves to their club。

　　“这些家长在俱乐部里的所有培训和活动都是免费的、俱乐部的维持完全是依靠社会的捐助。”徐冰介绍说，目前俱乐部里共有600多个特殊儿童的家庭，这些家长都是经过朋友介绍，口口相传找到这里的，也有近600名志愿者在为这些家庭做志愿服务。平日这些志愿者会带着孩子们进行一些简单的训练、给家长进行培训、并且做一些简单的心理疏导。节假日还有一些来自美国、香港、台湾的特殊教育专家专程赶到这里义务为这些家长做培训。

“The parents in the club's training and all activities are free of charge、The club is completely depend on the maintenance of social donation。”Xu introduced said，At present the club of more than 600 special children's family，These parents are with friends，Mouth out here，Also has the nearly 600 volunteers for these families in do volunteer service。These volunteers fill with the children some simple training、To parents in training、And do some simple psychological counseling。Holidays and some from the United States、Hong Kong、Taiwan's special education experts here just to be here for these parents do training obligations。

　　“来到这里后，看到有这么多的家庭和自己一样，有什么困难了就说出来，大家都会积极的给你想办法，还有这么多的志愿者，至少不觉得无助了。”成成妈妈说，年4月，她经朋友介绍联系上了这家俱乐部，现在只要这里有活动，她都会带着孩子从开封专程赶过来。

“Came here，See so many families and myself，What difficult said out，Everybody will be positive to you think way，There are so many volunteers，At least not feel helpless。”Into into mother said，Years April，She introduced by friends made contact the club，As long as there is activity here now，She will be taking a child from kaifeng coming out. Come on。

　　“现在对于这些家庭来说，最大的愿望就是希望孩子能够融入社会，”徐冰说，现在这些特殊儿童家庭最担心的就是有一天父母老了，孩子怎么办？对于那些病情比较轻的孩子，生活基本能够自理的孩子，希望社会也能够接纳他们，有一些简单的工作机会给他们。(汤荔)

“Now for these families，The biggest wish is to hope that the child to integrate into society，”Xu said，Now these special children's family is most worried about the one day old parents，Children do？For those who illness lighter children，Life can provide basic of children，A hopeful society can also accept them，There are some simple job opportunities for them。(ShangLi)

　　(来源:中国新闻网)

(Source: China news service)