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两岁脑瘫女婴成遗体捐献者 网友称其“小希望”--亲稳舆论引导监测室
2012-08-14
生命陨落 留下希望 Falling life leave hope
——记捐献器官的“小希望” -just remember the donor“Little hope”
爸爸冯磊印在她额头上的最后一吻,心碎了整个世界。
Dad FengLeiYin in her forehead last kiss,Heart in the world。
她在这个世界停留的时间太短,只有不到26个月,不会走路,不会叫“爸爸”,几乎每天都要去医院,看得最多的就是病房里天花板。她知道有医院,有讨厌的针灸。
She stay in the world for a short time,Less than 26 months,Can't walk,Won't call“dad”,Almost daily to the hospital,See is what most of the ceiling in the ward。She knows there is a hospital,Have hate of acupuncture。
只要,她能呆得久一些,再久一些。她还会知道,有幼儿园,有好玩的木马。
As long as,She can stay longer,Again long some。She will also know,A kindergarten,Have fun of Trojan horse。
6月9日当晚,在离她350多公里外的北京,七个月大的小萌咪移植了她的肝脏。
That night, June 9,,In her more than 350 kilometers from the Beijing,Seven months of small sprouting her liver transplantation microphones。
第二天凌晨两点,她的肾脏被送到天津第一中心医院,一位尿毒症中末期的女患者接受了它们。
The second day two o 'clock in the morning,Her kidney was sent to tianjin first center hospital,A uremic female patients who undergo situations ofillegal exploration them。
妈妈说她在这个世界上的日子过得太苦,后面的时光就让别人帮你轻松快乐了地过吧。
Mother said she in the world of the day is too bitter,The back of the time let other people to help you relaxed happy to let。
她叫冯峻熙。
Her name is FengJunXi。
大家都叫她小希望。
Everyone called her little hope。
2010年4月12日,雨夹雪 On April 12, 2010,sleet
那天,王晓菲躺在产床上,虽然打了麻药,但她还是觉得疼,痛感之中,时间过得分外慢,她甚至清楚地听到大夫们在小声嘀咕,“怎么这么……”
That day,WangXiaoFei lying in ChanChuang,Although dozen anesthetic,But she still feel any pain,Pain of,Time particularly slow,She even clearly heard the doctor in the small voice whisper,“How so......”
她的预产期是在4月6日,时间到了,肚子疼了好几天,可孩子一直都没动静,没法再等了,只能剖腹产。
Her due date is on April 6,time,The stomach for several days,The children always have no action,Can't wait,Can only cesarean section。
隔着帘子,王晓菲无法跟这些看到孩子的人对视,除了屏住呼吸忐忑等待,再没有别的法子。
Across the curtain,WangXiaoFei unable with these see their children's person,In addition to hold your breath was waiting for,No other way。
“女孩,六斤八两。”
“The girl,Eight pounds six two。”
孩子抱了出来,但是不哭,手术室的医生护士轮番上阵拍打脚心,王晓菲终于听到一声啼哭。
Child out,But don't cry,The operating room doctors and nurses rotated pat arch,WangXiaoFei finally heard a loud cry。
手术室外的冯磊,抱着闺女一阵傻乐,电梯太慢了,他决定走楼梯,好尽快跟等在病房的亲人分享那股子从心里荡起的喜悦。接着,他又一步几个台阶返回手术室,等着迎接做完手术的妻子。
The operation of the outdoor FengLei,Holding the girl a silly joy,Elevator is too slow,He decided to take the stairs,Well, as soon as possible in the ward that share share relatives from the heart of the joy of just once more。then,And he step several steps back to the operating room,Waiting to receive finish operation wife。
王晓菲在病房见到了女儿,小小的,皱皱的,脸色有点发紫,大人把一个手指放到孩子小手里的时候,没有被紧紧包裹的感觉。家里的老人们觉得不对劲儿,“这孩子怎么没劲儿?”
WangXiaoFei see a daughter in the ward,small,crumpled,Look a little blue,Adult put a finger to small hands of children,Not be wrapped tightly feeling。The old people think home is wrong,“The child was how do not?”
这似乎是个不幸的征兆。
It seems to be a sign of misfortune。
4月13日,小孩子突然抽搐,住进了儿科病房。
April 13,,Child suddenly convulsions,In the pediatric ward。
冯磊喜欢女孩,他上面有两个姐姐,为了要他这个男孩,家里被罚得家徒四壁。蒙古族姑娘王晓菲也喜欢女孩,,这次原本想生个男孩,“我先要一个小子,再生就没有压力了”。
FengLei like girls,It has two sisters,In order to he the boy,Was sent home to destitute。Mongolian girl WangXiaoFei also like girls,,This was to have a boy,“First I want a boy,Regeneration without pressure”。
可是,他们还没来得及细细品味为人父母的感受,就陷入了深深的恐惧之中。“孩子要打营养药,输点钙”,冯磊一边这么跟妻子解释,一边一趟趟地往儿科病房跑,时不时地还要叮嘱爱掉眼泪的岳母,“千万不能让晓菲看出来”。
but,They haven't had time to savor the feeling of the parent,Sank into a deep fear。“Children will play nutrition medicine,Lose some calcium”,FengLei side so explain with his wife,YiTangTang to pediatric ward while running,From time to time and love tears mother-in-law told,“Never let xiao Philip see out”。
如果可以,冯磊宁愿永远瞒下去。
If you can,FengLei would rather never hide from it。
4月15日晚上,一张病危通知书彻底摧毁了全家对新生命的希冀。缺血缺氧性脑瘫,冯磊还记得自己第一次看到这个词的感受,“就像挨了一记闷棍”,头晕目眩。他不敢告诉刚刚遭完罪的妻子,医生让他们“放弃吧,没什么大用”。
On 15 April evening,A critically ill notice wiped out the whole family for new life's hope for。Ischemic cerebral palsy oxygen deficiency,FengLei remember your first saw this word of feeling,“Like got one remember SAP”,dizzy。He dare not tell just finish by the wife of sin,The doctor let them“Give it up,No use”。
他答,“哪怕有口气、能吃饭就行”。
His answer,“Even if have tone、Can eat line”。
4月16日,他带着女儿转到了赤峰市医院,一住就是半个月。
April 16,,He takes his daughter turned to chifeng city hospital,A live is half a month。
2010年4月29日,沙尘暴 April 29, 2010,sandstorm
这是王晓菲启程去赤峰的日子。她在家坐了17天“空月子”,焦虑不堪,满脑子只有一个念头:去赤峰,亲眼看看女儿怎么样了。
This is WangXiaoFei off to chifeng day。She sat at home for 17 days“Empty confined”,Anxiety is,Full brains had only one thought:To chifeng,See daughter。
那天,狂风肆虐,漫天黄土,沙子打在车窗上噼里啪啦乱响,王晓菲在车里颠簸了4个多小时,终于见到了躺在病床上的闺女,“她正在做雾化”。
That day,Raging winds,Whirling loess,Sand play in the car window a ring produced crackling,WangXiaoFei turbulence in the car for more than four hours,Finally met lay in bed with the girl,“What is she doing atomization”。
这个场景深深地印在了王晓菲的脑海里。
The scene is stuck in WangXiaoFei mind。
从这个时候开始,雾化治疗如影随形,小希望一旦着凉感冒,就会有粘稠的痰液咳不出来,必须要做雾化。只是,次数越做越多,效果越来越不明显。
From this point on,Atomization treatment ruyingsuixing,Small hope once catch cold catch a cold,There will be sticky sputum cough out,Must do atomization。just,The more times do more,More and more effect is not obvious。
女儿初生的那段日子是“土黄色”的,王晓菲记得,天黄蒙蒙的,看不到远处,被风卷起来的石子甚至砸碎了厨房的碗。
Daughter born that day is“yellow”of,WangXiaoFei remember,Day yellow crept to the,Couldn't see the distance,The wind rolled up stones and even smashed the kitchen bowl。
回到妈妈身边的小希望慢慢好转,不用吃抗癫痫的药,也胖了起来,皮肤特别好,白里透红,粉嘟嘟的,没有别的婴儿那样的湿疹;小胳膊小腿一节一节的,活脱脱一个莲藕娃娃。
Back to the mother nearby small hope slowly getting better,Need not eat antiepileptic drugs,Also fat up,Skin very good,White inside deeply red,Powder beeps,No other baby that eczema;Small arms crus section of the fourth quarter,Should be a lotus root doll。
王晓菲当时只有22岁,用老人的话说,“也是个孩子”。但是,她见过别的小婴儿,知道这么大的孩子“眼睛会逮人”了,三翻六坐,五个多月了,怎么也该能翻身了。可是,女儿的眼神是散的,甚至脖子都立不起来。
WangXiaoFei when only 22 years old,In the words of the old man,“Is also a child”。but,She saw other little baby,Know so big of the children“Eyes will arrest a person”the,Three turn six sit,More than five months,How also this can turn over。but,Daughter of look in the eyes is scattered,Even the neck all sign not to get up。
2010年10月,他们抱着孩子又去了赤峰市医院,之前所有好转的迹象都抵不上确诊之后的绝望,医生直白地告诉他们孩子就是“脑瘫”,严重的新生儿缺血缺氧性脑瘫,在婴儿早期,常表现为肌张力低下,以后会逐渐转变为肌张力增高。
October 2010,They embrace the child went to the hospital chifeng city,Before all signs of improvement are diagnosed the best-picture after despair,The doctor tell their children is straightforward“Cerebral palsy”,Serious neonatal ischemic cerebral palsy oxygen deficiency,In the early infantile,Often present as low muscle tension,Later will gradually shift to increase muscle tension。
直到王晓菲带着女儿做康复训练时,这些专业的医学词汇才形象起来,有个12岁的男孩,一只胳膊一直绷得紧紧地别在胸前,也就是肌张力太高的表现。
Until WangXiaoFei with daughter do rehabilitation training,These professional medical vocabulary to image up,There is a boy of 12,One arm has been tense tightly don't on my chest,Also is the muscle tone is too high performance。
不过,医生认为,小希望并没有这样的机会,“最多好也就到五六岁”。
but,Doctors think,Small hope and no such an opportunity,“Most good also to five or six years old”。
没有哪个母亲相信这样的预测。“她能活一天,我就伺候她一天。”王晓菲和冯磊在赤峰市医院附近租了房子,只有10分钟路程,她每天都带孩子去做康复治疗。
No mother believe this prediction。“She can live a day,I will wait on her for a day。”WangXiaoFei and FengLei in chifeng city hospital rented house nearby,Only ten minutes walk,Every day she take children to do rehabilitation therapy。
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