得怪病，脸肿似月盘 Have strange disease，Face swollen like month plate

　　连日来，本报武汉新闻中心微博上的一条求助信息引发关注。

For the last few days，Our newspaper wuhan the news on XinWei bo a help information cause attention。

　　求助者自称患有怪病，脸和嘴唇发肿，近两年来看遍了武汉、北京的多家医院，都没能确诊。眼下，她病情更严重了，吃饭都困难，希望大家来帮帮她，看得的是什么“怪病”。

Patient's claim to have strange disease，Face and lip swelling，Nearly two years to see times wuhan、Beijing's many hospitals，Haven't been able to diagnose。the，Her illness is more serious，Eat difficult，Hope everyone to help her，To see is what“Strange disease”。

　　记者联系上发帖者——小琴(化名)。正在武汉大学口腔医院复诊的小琴脸蛋和嘴唇肿胀，脸部皮肤粗糙。仅看面部，小琴像个胖姑娘，但她身材苗条，手脚细长，体重不足50公斤。

The reporter contact the bonusgiven - XiaoQin(alias)。Is wuhan university stomatological hospital return visit of XiaoQin face and lip swelling，Facial ministry skin rough。Only see the face，XiaoQin like a fat girl，But she has a slender figure，Slender hands and feet，Weight 50 kg。

　　“都是怪病惹的祸！”小琴黯然流泪。

“Are strange disease to blame！”XiaoQin cloudily tears。

一年半，看遍大小医院 A year and a half，Look through the size hospital

　　22岁的小琴，松滋市八宝镇人，患病前在广东东莞一家台资饭店收银管账。不幸在2011年初悄然降临，小琴发现右脸和下唇微微发肿，口腔内还有溃疡。

The 22-year-old XiaoQin，SongZiShi eight treasures in town people，Before sicken is in guangdong dongguan a taiwan-funded hotel cashier cashier。Unfortunately sadly in early 2011，XiaoQin found right face and lip slightly swelling，In the mouth and ulcer。

　　在附近小诊所打了消炎针后，一直不见好。到当地一家公立医院，走马灯似的看了内科、甲状腺科、口腔科等多个科室，还是没有结果。

In nearby small clinic hit antiphlogistic needle after，Has been no good。To a local public hospital，See the kaleidoscopic effect of internal、Thyroid families、Department of stomatology, and other departments，Or no results。

　　发病初期，小琴的面部只是看起来像略微发胖，不疼不痒。但脸部时肿时消，始终是小琴的一块心病。老板带她看中医，没想到，吃了中药后脸更肿了。去年9月，小琴辞职，踏上漫漫求医路。

Early onset，XiaoQin facial just look like a fat，Do not ache not to itch。But when the face swollen away，XiaoQin is always a piece of heart。The boss took her to see the doctor of traditional Chinese medicine，Didn't expect，Eat Chinese traditional medicine HouLian more swollen。Last September，XiaoQin resign，Step on the long road healed。

　　她先后在荆州中心医院、协和医院、同济医院，看过皮肤科、口腔科、免疫科、血液科，做过血液、过敏源等各种检查，甚至曾在同济医院住院做淋巴活检，结果显示正常。

She successively in jingzhou central hospital、Union medical college hospital、Tongji hospital，Seen dermatological department、Department of stomatology、MianYiKe、Hematology department，Done blood、Allergic source and so on all kinds of inspection，Even worked in tongji hospital do lymphatic biopsy，Results showed that normal。

　　小琴的病情牵动家人的神经。在北京打工的堂哥建议她到北京大医院看看。在北京一家著名医院，凌晨4点排队也没挂上专家号，求医心切的小琴只得花800元从号贩子手上买号。

XiaoQin condition affects family nerve。In Beijing to work cuz advised her to Beijing big hospital looking。In a Beijing famous hospital，At 4:00 PM queue also didn't hang ZhuanGuHao，Seek fulfillment XiaoQin had to spend 800 yuan from number dealers hand buy number。

　　在北京，第一次有了诊断结果：面部肉芽肿。医生建议，服用激素类药物治疗。然而，服药3个多月，小琴的脸部不仅没消肿反而肿得更厉害。

In Beijing，The first diagnosis：Facial granuloma。The doctor advised，Taking hormone drug therapy。however，Take medicine more than three months，XiaoQin face not only didn't instead detumescence swollen worse。

求解“我是什么病” solving“I am what disease”

　　“严重时，眼睛都快睁不开了！”小琴说，最近感觉病越来越重了：脸绷着感觉很不舒服，说话、吃饭都受影响，舌头上还长了一个瘤子。

“Serious when，I can hardly keep my eyes open！”XiaoQin said，Recently feeling disease more and more heavy：Face a sulky feel very uncomfortable，speak、Have a meal all affected，Tongue also long a tumour。

　　在母亲的陪同下，她再次到武汉求医。核磁共振检查的结果显示，小琴的口腔、颌面部软组织病变，医生称其可能患上了“木村病”，这是一种罕见的、病因未明的疾病，全世界也只有300余例。

In the mother, accompanied by，She again to wuhan seek medical advice。Nuclear magnetic resonance (NMR) the results of the exam revealed，XiaoQin oral、Maxillofacial soft tissue lesions，The doctor says it may be suffering from“Kimura disease”，This is a rare、The cause is unknown disease，The world only more than 300 cases。

　　服用激素效果不好，武汉有专家建议去肿瘤科放疗治疗，但效果不能肯定。小琴咨询北京专家，对方也不推荐放疗。

Taking hormone the result is bad，Wuhan is expert advice to oncology radiation therapy，But the effect not sure。XiaoQin consulting Beijing expert，Each other do not recommend radiotherapy。

　　小琴的父母都是农民，靠种地为生。为她看病辗转各地，已花去7万余元。小琴再次陷入迷茫：“我到底该怎么办？”(记者 江卉)

XiaoQin parents are farmers，By people who depend on farming。See a doctor for her around the flounder，Has spent more than 70000 yuan。XiaoQin into confusion again：“I really do？”(Reporter JiangHui)