中新网9月24日电  学校已经开学近一个月了，但对于家住昌平区沙河镇铁路北宿舍的白崇汇来说，他的新学期却还遥遥无期，家在张家口红土梁镇跟随父母来京打工刚满10岁的他，如果没有爱心帮助将会无限期地以床为伴，而他的求学路也将被定格在五年级。血友病，在几乎击垮了他的赤贫家庭后，又一次成为了羸弱的白崇汇无法逾越的障碍。

Beijing on September 24,  The school has nearly a month,But to live in the north east of changping district railway dormitory for BaiChongHui,His new term but was still nowhere in sight,Home is in zhangjiakou clay beam town follow their parents to Beijing to work just over 10 years old,If there is no love will help the company with the bed indefinitely,And he study way will also be freeze-frame in grade five.hemophilia,In almost knocked out his poverty after the family,Once again become the pindling BaiChongHui cannot overstep obstacles.

　血友病男孩白崇汇最怕看到学生上学 Hemophilia boy BaiChongHui most afraid of see the students to go to school

　　早晨7时和下午5时是白崇汇绝不出门的时间，因为这两个时段总有背着书包的学生三三两两地从村口走过，他渴望像他们一样，但又不愿意看到父母为他伤感而背着他抹眼泪。“我多想去学校啊！但我不能这样告诉爸爸妈妈，因为他们太难了！”昨天，在昌平区沙河镇铁路北宿舍一间兼具了卧室、客厅、厨房的不足20平方米小屋里，白崇汇正认真地看六年级课本。10岁的他脸圆圆得，有着一双明亮的大眼睛，但与这个年龄段孩子不同的是，他的脸上没有红润，在昏暗的屋里显得更加蜡黄，话语间能明显感觉他气力不足。借着窗外射进的光柱，记者看见，小屋，特别是床上被各种布条包裹的严严实实。

At 7 in the morning and afternoon 5 is BaiChongHui never go out of time,Because the two time there is always back schoolbag students by twos and threes from the entrance through,He is eager to like them,But they are not willing to see his parents for his sad and carry on his tears."I want to go to school ah!But I can't tell mom and dad,Because they too difficult!"yesterday,Changping district in the east of north railway dormitory a both the bedroom/The sitting room/The kitchen and less than 20 square meters small house,BaiChongHui is seriously look at grade six textbooks.Ten years old his face to menu,Have a pair of bright big eyes,But with this age the child is different,His face no ruddy,In the dusk of the room appears more lately,Between discourse can obviously feel his lack of strength.Through the window into the beam of the shot,Reporters saw,hut,Especially the bed is all sorts of cloth package solid.

　　“我有血友病！就是血不凝固。”记者绕了几道弯想回避他的病，可独自在家的白崇汇马上平静而清晰地这样告诉记者。撩开裤管，他指着肿起有两厘米的腿说。

"I have hemophilia!Is the blood coagulation."Reporters around a few word bending want to avoid his illness,Can BaiChongHui alone at home immediately calm and clearly told reporters.LiaoKai trouser legs,He pointed at the swollen have two centimeters of leg said.

　　“我不能碰，也不能多走路”。小崇汇告诉记者，听妈妈说，他从很小就得了这种遗传却无法治愈的怪病。打小起，即便是轻微的磕碰，他的身上都会出现严重的淤血，少一个星期，多则一个月，淤血才会慢慢消退，而肿起的地方疼痛难忍，如果淤血出现在关节处，则整个关节都无法动弹。一个小伤口就可能致白崇汇于死地。2011年夏天，他在家钻到床下找东西，不小心被床脚碰了头，额头上仅仅出现了一个米粒大的小伤口，却流了好多血，当时家人用纱布帮他包扎了头部，没想到一个月过去，血还是没有止住。因为失血过多，他总是感觉头晕目眩。在白崇汇拿出了一张北京儿童医院的化验单上记者看见，在分析项目中，白崇汇的单个凝血因子促凝活性仅有0.86，而正常人的数值在50到100之间。

"I can't touch,Also can't walk".Small by chung told reporters,Listen to mother said,He got this from small genetic but can't cure strange disease.Play small up,Even slight knock against,His body will appear serious gore,Less a week,Is more than a month,Gore will slowly subsidise,And tumescent place is so painful,If gore appeared in the joints,The entire joints are unable to move.A small wound may cause BaiChongHui to death.In the summer of 2011,He was at home drill to find things under the bed,Accidentally the foot of the bed touched the head,Forehead just appeared a rice big small wound,But shed a lot of blood,At that time the family with gauze to help him bandaged head,Unexpectedly, a month later,Blood or not stopped.Because of excessive blood loss,He always feel dizzy.In BaiChongHui took a piece of Beijing children's hospital on paper reporter saw,On the analysis of the project,BaiChongHui individual clotting factor coagulant activity only 0.86,And the normal numerical in between 50 to 100.

　昂贵“人造凝血因子”压垮赤贫家庭 小崇汇最急去课堂 expensive"Artificial clotting factor"Overriding abject poverty small family worship collect the most urgent to the classroom

　　对于小崇汇来说，一种名为“人造凝血因子”的注射药物就是他的“守护神”，无论是身体红肿、出血，还是日常生活中，只要注射了它，小崇汇的身体就和常人无异，也就不会有问题，但问题在于这种药物的价格，一瓶药近400元，而让他保持正常的状态上学，需要一次注射两瓶每周注射两到三次，这对于几近赤贫的白崇汇家来说，这是不可能的。为给小崇汇治病，曾是矿工但多处受伤无法下井的父亲白秀现在在福田汽车打临工，母亲马美云也在福田汽车的宿舍当管理员，他们的月收入只有2000多元，此前，家里已经卖光了所有东西，现在，不仅要给小崇汇看病，还要供在上大学的姐姐，不要说正常的注射“人造凝血因子”，就是救急，爸爸妈妈都要去亲戚朋友那里借钱。

For small worship for remittance,A name"Artificial clotting factor"Injection drug is his"Patron saint",Whether the body red/bleeding,Or in daily life,As long as given it,Small worship exchange body and the ordinary people,Won't have a problem,But the problem is that the drug prices,A bottle of medicine nearly 400 yuan,And let him keep normal state to go to school,Need an injection two bottles of weekly injection two to three times,This for nearly as poor as a church mouse BaiChongHui for home,It is not possible.For small worship exchange cure,Was the injured miners but not the well's father BaiXiu now in futian automobile break to play,Mother horse beautiful cloud also in futian automobile dormitory when administrator,Their monthly income 2000 yuan only,after,Home has sold out all the things,now,Not only will give small worship by the doctor,For even in the university's sister,Don't say normal injection"Artificial clotting factor",Is emergency,Mom and dad are going to borrow money from relatives and friends.

　　过去，小崇汇在一所打工子弟学校上学，但来回一个小时坐车的颠簸和未知的危险让父母每天都提心吊胆，加之没有钱购买“人造凝血因子”，小崇汇只能这学期辍学了，但上学的渴望却每时每刻都煎熬着他，更严重的是，马美云告诉记者，如果长期不注射凝血因子，小崇汇可能以后会瘫痪，“现在解决他的上学比以后的瘫痪更急迫，我们急得几夜几夜睡不着”抹着眼泪，马美云这样告诉记者。

In the past,Small by chung at a school for children to go to school,But an hour ride back and forth the turbulence and unknown dangerous let parents every day in fear and trembling,And no money to buy"Artificial clotting factor",Small worship exchange can only be dropped out this semester,But go to school but for every moment with his suffering,More serious is,The horse meiyun told reporters,If long-term not injection clotting factor,Small worship exchange may will paralysis,"Now solve his school after more urgent than the paralysis,We rush to a few nights a few nights sleep"Wipe tears,The horse meiyun told reporters.

　　远洋之帆筹措6万元善款 3个问题还需解决 Ocean of the sail to raise 60000 yuan money 3 questions to be solved

　　小崇汇注射“人造凝血因子”问题暂时得到了解决。昨天的采访中，记者了解到，北京远洋之帆公益基金会志愿者在进行“打工子弟学校调研”时得知小崇汇的情况后，基金会专门带来了电视机、各种课本来看望小崇汇。远洋之帆公益基金会秘书长段涛告诉记者，基金会还紧急筹措了6万元善款，用于小崇汇的药物注射费用，这大约能用一年时间。

Small worship by injection"Artificial clotting factor"The question is solved.In an interview yesterday,The reporter understands,Beijing ocean of sail public welfare foundation in volunteers"School for children of research"That small when chung exchange the circumstances,Foundation specially brought the TV set/All kinds of books to see small by chung.Ocean's sail public foundation secretary general DuanTao told reporters,The foundation also emergency raised $60000 donation,For small by chung injection drug expenses,This can about a year.

　　9月15日，身体状态逐渐好转的小崇汇在远洋之帆志愿者的特别陪同照料下去了他梦想中的动物园。面对恢复了健康和欢笑的小崇汇，基金会表示正在内部发起捐款帮助他筹集更多钱，并与北京血友之家罕见病关爱中心联系建专门的基金以帮助小崇汇，如果善款多则能帮助更多像他一样的孩子。

On September 15,,Body state gradually improving little by worship in the ocean of the sail volunteers accompanied by special care down his dream zoo.In the face of the restored to health and laughter little by chung,Foundation says are internal launch donation to help him raise more money,And with Beijing blood friend home rare disease care center contact built special fund to help small by chung,If money is more like him to help more children.

　　段涛秘书长告诉记者，她们和小崇汇父母沟通后列出了急待解决的2个问题：首先是更多善款，小崇汇的病在短时间内无法治愈，这就需要社会各界和爱心人士的长期关注；其次，小崇汇今后每周都要到儿童医院进行注射治疗，往返至少5个小时，他不能走这么远的路，希望能有车友会或者附近有车的朋友一起帮忙，轮流接送孩子上医院，以减轻路途中的痛苦。有这方面条件的可与北京远洋之帆公益基金会联系。

DuanTao secretary-general told reporters,They and the little worship by after parents communication listed the presses for solution of the two questions:The first is more funds,Small worship exchange illness cannot be cured in a short time,This needs the social from all walks of life and love of people attention for a long time;secondly,Small worship in the future by every week to the children's hospital for injection for treatment,Return at least five hours,He can't go this far,Hope to have CheYouHui near the car or friends for help,Take turns to shuttle the child to the hospital,In order to reduce the pain of the way.Have the condition with Beijing ocean of sail public welfare foundation contact.