6岁女童患绝症饱受病痛折 6 years old girl from a terminal illness sickness fold

她的心愿是看看广州的美景 广州日报今日帮她圆梦 Her wish was to see the beauty of the guangzhou guangzhou daily today to help her dreams

　　目前在广州生活、老家在湖北十堰的吴远方有个6岁的女儿小爱民。小爱民曾在武汉协和医院确诊髓母细胞瘤，是不治之症。孩子的病情一天天恶化，现在走路像喝醉了酒。孩子病痛中曾说“浑身好痛，妈妈，我想回到你肚子里。”

At present in guangzhou life/Their hometown in hubei shiyan wu distance have a 6 year old daughter little love.Small love was in wuhan union medical college hospital diagnose medulloblastoma,Is an incurable disease.The child's illness worse day by day,Now walk like a drunk.Children in pain said"Was so,mother,I want to return to the inside of your belly."

　　孩子得病后，吴远方决定万一孩子去了，就将孩子的角膜捐赠出去。

Children after they get the disease,Wu distant decided to one thousand children went to,Will the child's cornea donation out.

　　中秋节前，孩子随妈妈来到广州和爸爸团聚，他们希望在孩子眼睛看到的时候，带她去看看广州最美的风景。

Before the Mid-Autumn festival,Children with mother came to guangzhou and father together,They want to see in the eyes of children,Take her to see the most beautiful scenery in guangzhou.

女儿患绝症根治无望 Daughter with incurable disease effect a radical cure hopelessness

　　“自从女儿小爱民患病后，我就给自己定了一个任务，每天给孩子攒一点钱，到了中秋节就可以实现他一个计划好久的愿望。”这些话，从这位湖北汉子口里说出来，充满了无尽的酸楚。

"Since loving daughter small after illness,I will give their set a task,The child every day save a little money,To the Mid-Autumn festival can be achieved him a plan for a long time wish."These words,From the mouth of hubei man say it out,Filled with endless sour.

　　今年7月，吴远方从广州回到湖北十堰老家时发现，每到晚上，女儿小爱民都会喊头痛，而且持续了将近一个月。内心忐忑的吴远方夫妇带着小爱民到武汉的医院进行检查，结果比他们能够想到的还要令人心碎——医生在小爱民的颅内发现了鸡蛋大的髓母细胞瘤，检查当日已经出现积水。看着痛心的吴远方夫妇，医生无奈地告知实情：“我们会尽全力，但这种病的死亡率高达70%~100%。而且，初期治疗费需要5万元左右。就算治好了，复发率也是100%。”

July,Wu far from guangzhou back to hometown hubei shiyan found,Every night,Loving daughter small will shout headache,And lasted for nearly a month.In the heart of wu distant couples with little love to wuhan hospital for examination,The result is better than they can think of even a heart - a doctor in the love of the small intracranial found the egg big medulloblastoma,Check the water has appeared.Look at harrowing wu distant couple,The doctor helplessly told the truth:"We will try our best to,But this kind of disease mortality rate as high as 70% ~ 100%.and,Initial treatment need 50000 yuan.Even if healed,The recurrence rate is 100%."

　　吴远方转头看着病床上的女儿，顿时心如刀绞。返回家乡借了一圈债仍难以凑齐前期医疗费后，他也曾找到湖北省里的媒体寻求帮助。当地一位媒体记者武叶迅速关注并帮其联系了北京天坛医院的专家为小爱民会诊。然而，由于小爱民患的是恶性肿瘤，很难根治。曾有专家对吴远方说：“孩子最多有2年的时光，但随时有生命危险，可能今天还好好的，明天就看不到她的笑脸了。”而想要通过手术改善小爱民的生存质量，光引流脑积水等前期费用，就需要五六万元。这对于这个仅靠吴远方一人在广州打工赚钱的家庭来说，只能用一个“难”字来形容。

Wu far head looked at the daughter of bed,Immediately XinRuDaoJiao.To return home borrowed a circle debt is still difficult to gather together together after the medical treatment,He was also find hubei province media for help.A local media reporter wu leaf quickly attention and help its contact Beijing tiantan hospital experts for small love of the consultation.however,As a result of small love had malignant tumor,Difficult to effect a radical cure.There have been experts to wu said far away:"Most children have 2 years of time,But always have dangerous life,Maybe it was fine,Tomorrow is to see her smiling face."And want to through the surgery to improve the survival of the love of the small quality,Light drainage hydrocephalus pre-project cost,Will need five or six ten thousand yuan.This to the only on wu distant one in guangzhou earn money for the family,Can only use a"difficult"Word to describe.

　　住院两天就花费了近3000元。吴远方夫妇看着银行卡上仅剩的三位数余额，默默地回了老家。

Two days in hospital cost of nearly 3000 yuan.Wu distant couple looking at bank card last three digits balance,Silently back to their hometown.

　　曾经，有一位好心人士在听说了小爱民一家的情况后，主动提出愿意出资为孩子动手术，这让吴远方夫妇于无数次的失望中看到了一丝希望。然而，当那位好心人听说，即使是为小爱民动了手术，最终治愈的希望也不太大时，思量再三，最终没有了消息。

once,There is a kind person in heard a little love of the circumstances,Capital contribution offered for children perform an operation,This let wu distant couple in the disappointment of countless times saw a glimmer of hope.however,When the man heard that,Even for the little love had the surgery,Finally cured hope is not too large,Deliberated over and over again,Finally no news.

　　这次“被放弃”的经历，让早已无力痛苦的吴远方坚定了一个信念：“即使孩子不能治愈，我也永远不会放弃，我要尽全力让她以另外一种方式生活下去。”

the"abandoned"experience,Let the already weak painful wu distant strengthened a belief:"Even a child can't cure,I will never give up,I will try my best to let her to another way to live."

将来愿捐出女儿的角膜 The future may contribute daughter cornea

　　最近，小爱民好像也清楚了自己的病情。有几次，她突然跟妈妈说：“我想回去了。”吴远方的妻子张锐问：“回哪里？”孩子答道：“我想回妈妈肚子里”。这句话，小爱民说过好几回。“孩子已经6岁了，隐约懂得很多事，她知道陪在爸爸妈妈身边的时间不多，即便笑着的时候，都让人感到苦涩”。张锐泣不成声。小爱民开心的时候，吴远方就在内心无数遍地祈祷：“孩子，你就这样，一直快乐下去吧。”

recently,Small love also seems to clear his condition.There are a few times,Suddenly she talk to my mom:"I'd like to go back to the."Wu distant wife ZhangRui asked:"Back to where?"The child said:"I want to go back to my mother in the stomach".This sentence,Small loving said several times."The child has 6 years old,Faint know a lot of things,She knew that accompany at mom and dad don't have much time around,Even if smiling when the,Let a person feel bitter".ZhangRui choked with sobs.Small love happy,Wu distance in heart prayer of the land:"children,You are such,Always happy go down."

　　一次偶然的机会，吴远方加入了一个名为“生命绿洲”的QQ群，这个聊天群聚集了100多名受困的父母，他们的孩子都患上了恶性脑瘤。其中，有不少父母在孩子离开世界后，捐出孩子的器官或遗体，“这让父母们觉得，他们的孩子又重生了。”

A pure chance,Wu distant joined a group called"Life oasis"QQ group,This chat group brought together more than 100 trapped parents,Their children are suffering from a malignant brain tumor.the,There are many parents in children after go out of the world,Donate the child's organ or body,"It makes the parents feel,Their children born again."

　　“如果爱民不在了，我也愿意捐出孩子的眼角膜，不过，希望是个同她一样可爱的小女孩。”吴远方承认，自己有一点点私心，他可以骗自己看到那个因爱民捐献眼角膜而重见光明的小女孩，就是重生的小爱民。

"If loving not,I am also willing to donate the child's cornea,but,Hope is a with her lovely little girl."Wu distant admit,You have a little bit of selfishness,He can cheat yourself see that because of the love of the cornea donation and rescue bright little girl,Is born again little love.

小爱民愿望是看看广州的美景 Loving little wish is to see the beauty of guangzhou

　　9月初，吴远方离开妻女，独自回到广州打工。前几天，妻子张锐经不起女儿因思念爸爸而哭闹，带着小爱民从十堰老家来到了广州，一家人团聚在中秋佳节。欣喜之余，吴远方陷入了深深的难过。半个月不见，女儿的病情更加严重了：瘦弱的身体因病情加重，走起路来像喝醉了酒一样东摇西摆，此前的头痛更加频繁了。看到女儿痛苦，吴远方心如刀绞。

In early September,Wu distant leave only,Back to guangzhou work alone.A few days ago,Wife ZhangRui daughter can not stand for missing father and crying,With a little love from shiyan hometown came to guangzhou,In the Mid-Autumn festival family reunion.More than pleased,Wu far away in the deep sad.Half a month of,Her daughter's illness more serious:Emaciated body because of illness,Walk like drunk wine east west pendulum wave,Previous headache more frequent.Seeing his daughter pain,Wu XinRuDaoJiao far away.

　　孩子在广州待着的这段时间，精神出奇的好，吴远方知道，是愿望的力量支持着小爱民。他告诉记者，在小爱民心里一直有两个梦想，第一个是来广州看看爸爸打工的地方；第二个，就是去看看美丽的广州景色。吴远方说：“这孩子跟广州有莫大关系。当初她妈妈就是在广州怀上她的，快生产的时候才回老家。她跟家乡的小孩一起玩，每次都得意地说自己是广州人。这次来之前，还说要将广州美景拍下来给小朋友们看。”(文/记者 刘冉冉)

The children stay in guangzhou this time,Spirit is exceptionally good,Wu distant know,Desire is the power of the love of the support small.He told reporters,In the small loving heart have two dreams,The first is to guangzhou see dad working place;The second,Is to look at the beautiful scenery of guangzhou.Wu said far:"The child has great relationship with guangzhou.When her mother is in guangzhou pregnant with her,Fast when it back production.She told the children home to play together,Every time satisfiedly say he is guangzhou people.Before this time,Also said to guangzhou beauty shoot down to see the children."(Wen/reporter liu slowly)