中新网上海10月20日电 (记者 陈静)中国首个由儿科心血管医师发起的专门关注儿童先天性心脏病的专家委员会(专委会)今日成立，中国30多位知名的小儿先天性心脏病专家学者联合加入。

Beijing on October 20, Shanghai (Reporter reiter)China's first by pediatric cardiovascular physician launch special attention of experts committee of congenital heart disease in children(Branch of)This day was established,China's more than 30 well-known children congenital heart disease experts and scholars to join united.

　　该专委会已制定包括“更新和修订中国先天性心脏病经导管介入治疗指南；编写先天性心脏病诊疗常规”等在内的一系列“爱心创造未来行动计划”。2012首届中国儿童先天性心脏病学术论坛同日举行。

This branch established including"Updated and revised Chinese congenital heart disease transcatheter therapy guidelines;Write congenital heart disease diagnosis and treatment routine", a series of"Love create the future plan of action".2012 the first Chinese children congenital heart disease academic BBS held at the same time.

　　据悉，先天性心脏病是儿童时期最常见的心脏病，占中国出生重大缺陷发病率和死亡率的首位。中国每年新出生的先心病患儿约为15万，发病率为0.7-0.8%。今日成立的专委会主任委员孙琨表示，从2000年到2011年，围产期先心病发生率呈上升趋势，占所有监测发现出生缺陷的26.7%。

It is reported,Congenital heart disease is the most common childhood of heart disease,Birth defects of China's major morbidity and mortality in the first place.Every year China new born children with congenital heart disease is about 150000,Incidence of a disease is 0.7-0.8%.Today established branch of the chairman of the committee SunKun said,From 2000 to 2011,Perinatal congenital heart disease incidence shows ascendant trend,Of all monitoring found that 26.7% of birth defects.

　　据介绍，对于先心病患儿而言，越早发现，越早治疗，治愈的机会就越高。目前，早期筛查先心病最简单有效的方法是进行超声检查，但由于缺乏专业技术过关的医师，许多地区的筛查结果仍不令人满意，有些病患甚至到成年以后，失去手术机会才被发现。

According to introducing,For congenital heart disease in children,The earlier found,The earlier treatment,The higher the chance of cure.At present,Early screening congenital heart disease the most simple and effective method is to ultrasound examination,But due to lack of professional and technical pass physician,Many parts of the screening results are still not satisfactory,Some patients even to adulthood,Lose surgery opportunity that was found.

　　孙琨表示，长期以来，不仅公众对先心病的知晓率和认知度不够，基层儿科医生也对先心病缺乏足够的认识，小儿先心病专业医生严重匮乏。同时，中国是发展中的人口大国，大部分患者分布于医疗卫生条件较差的农村，受经济条件所限以及基层儿科医生的认知问题，仍有相当一部分先心病患者未能及时发现和及时诊治，因而延误了治疗的最佳时机。

SunKun said,For a long time,Not only the public awareness of FCHT and awareness is not enough,Grassroots pediatricians to congenital heart disease and lack of understanding,Children congenital heart disease serious lack professional doctor.At the same time,China is a developing country of the population,Most of the patients is distributed in the medical and health conditions of the rural poor,Is influenced by economic conditions, which limit and the grassroots pediatricians cognitive problems,There are still quite a number of congenital heart disease failed to timely find and timely diagnosis and treatment,So the best time delayed treatment.

　　孙琨说，如今，每年接受治疗的先心病患儿数量不足50%，而在8万经传统开胸手术或者介入治疗的先心病患儿中，接受介入治疗的比率只有12.5%。这意味着每年只有1万人可以接受专业医师的介入治疗。

SunKun said,now,Each year the number of children with congenital heart disease treated less than 50%,And in the best of traditional thoracotomy or intervention treatment of congenital heart disease in children,Accept the ratio of interventional treatment for only 12.5%.This means that each year only 10000 people can accept professional doctor in interventional therapy.

　　据介绍，介入治疗在先心病早期诊治中有着巨大的优势，避免了传统的开胸手术需要深麻醉，要输血，创伤大，术中心脏要停跳，应用体外循环，对胸心肺肾各器官有一定损伤，以及恢复周期长，术后残留疤痕，影响美观等问题。

According to introducing,Interventional treatment for congenital heart disease diagnosis and treatment in the early has a huge advantage,To avoid the traditional thoracotomy need deep anesthesia,To a blood transfusion,Traumatic big,During the operation, the heart to arrest,Application extracorporeal circulation,To bosom cardiopulmonary renal different organs have certain damage,And recovery cycle is long,Postoperative residual scar,Problems such as affect beautiful.

　　长期以来，中国在儿童先天性心脏病领域缺乏专门的学术组织。虽然成人心血管领域已成立了相应的学组，但儿童并不是成人的缩影，儿童先天性心脏病不能等同于成人结构性心脏病，相关的诊疗指南也不能沿用成人的标准。孙琨说，此次中国医师协会儿科医师分会先天性心脏病专业委员会的成立将为更多的先心病专科医师提供培训及技术规范，大力促进中国儿童先天性心脏病专业的健康发展，推动儿童先天性心脏病诊断和介入治疗的规范化。

For a long time,China in the field of congenital heart disease in children lack of special academic organization.Although adult cardiovascular field has been established the corresponding committee,But children and not the epitome of adults,Children's congenital heart disease does not equal to adult structural heart disease,Related medical guide also cannot use adult's standard.SunKun said,The Chinese medical doctor association pediatricians branch of the establishment of the professional committee of congenital heart disease for more congenital heart disease specialist to provide training and technical specifications,Vigorously promote Chinese children congenital heart disease professional health development,To promote children's congenital heart disease diagnosis and interventional treatment for standardization.

　　目前，该专委会已制定了一系列“爱心创造未来行动计划”，包括：协助国内相关先心病管理措施、规范的实施；协助儿童先天性心脏病介入治疗培训基地的建设；更新和修订中国先天性心脏病经导管介入治疗指南；编写先天性心脏病诊疗常规；对儿童先心病专科医师，尤其是中西部地区、基层医院医生进行规范化培训，制定详细的培训计划和执行标准；在全国范围内进行先心病疾病意识普及与推广；建设专业宣传、交流网站；推动公共政策支持，以逐步将先心病介入治疗在全国范围内纳入医疗保险范畴，并协助卫生行政管理部门，在全国范围内建立起完善的病人转诊机制；结合社会公益力量，建立爱心基金会；推进先心病诊疗的新技术、新术式、新产品的开发研究和学术进步等。

At present,The branch has formulated a series of"Love create the future plan of action",including:Assist the domestic correlation congenital heart disease management measures/Standard implementation;Assist interventional therapy of congenital heart disease in children the construction of training base;Updated and revised Chinese congenital heart disease transcatheter therapy guidelines;Write congenital heart disease diagnosis and treatment routine;On children's congenital heart disease specialist,Especially in the Midwest/Grassroots hospital doctors for standardization training,Formulate detailed training plan and execute standard;In the national scope for congenital heart disease disease consciousness popularization and promotion;Construction professional propaganda/website;To promote public policy support,By using the interventional therapy will be congenital heart disease in the nationwide into medical insurance category,And to assist in the health administrative department,Across the country set up complete patient referral mechanism;Combined with social public welfare strength,Establish love foundation;Propulsion congenital heart disease diagnosis and treatment of the new technology/The new procedures/The development of new products research and academic progress, etc.