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我国农村白血病患儿数量激增 因巨额医药费致贫--亲稳舆论引导监测室
2012-10-28

我国农村白血病患儿数量激增 因巨额医药费致贫

▲齐鲁医院儿科病房里白血病儿童患者及其家属。

Box-and-one qilu hospital over the leukemia children patients and their families.

我国农村白血病患儿数量激增 因巨额医药费致贫

▲临沂杨先生和身患白血病的儿子。

Box-and-one linyi Mr Yang and suffering from leukemia son.

  本报10月初连续报道了菏泽单县双胞胎姐妹身患白血病一事,引起社会广泛关注。近日,不断有不少市民拨打本报电话求助,皆因家里有患白血病的儿童,但无力支付高额医疗费。

Our early October continuous reports the heze shan county twin sisters with the leukemia,A widespread social concern is caused.recently,Constantly have many people call the phone for help,All because of your home is with acute leukemia children,But the inability to afford expensive treatment.

  10月23日至25日,记者走访省城多家治疗血液病的医院了解到,很多家庭因孩子患有白血病致贫,而医院也陷入一床难求的窘境。

On October 23 to 25,Reporters visited several provincial capital treatment hematonosis hospital to know,Many families for children suffering from leukemia poor,The hospital is in a dilemma bed is hard to find.

  

现状>>不少白血病患者来自农村 status>>A lot of leukemia patients from the countryside

  10月23日,莱芜高新区小山村村民许升学致电本报,称自己9岁的儿子许岩烁今年5月在省立医院被确诊为再生障碍性贫血,为给儿子治病,家里已经花费15万元,负债累累。“我们已经找到骨髓移植的配型者,现在北京一家医院做进一步检查,看是否完全匹配。”许升学说。但是,面对30余万元的高额手术费,一家人犯难了。“家里的一套房子也卖了,农村的房子赶不上城里的,只卖了3万块钱。”许升学讲起此事时显得一筹莫展。

On October 23,,Laiwu high-tech zone small mountain village villagers make bound call our newspaper,Says his nine-year-old son XuYan experience in May this year in the provincial hospital were diagnosed with aplastic anemia,For the son of cure,Home has spent 150000 yuan,In debt."We have found a bone marrow transplant of those matches,Now a Beijing hospital for further examination,See whether completely matching."Hui studies said.but,In the face of more than 30 ten thousand yuan high operation,Family presented a conundrum."Home a house also sold,Rural house couldn't catch up with the city,Sold only 30000 dollars."Many studies about the matter is bewildered.

  23日至25日,像许升学一样向本报求助,因孩子患血液病而致贫的家庭多达4家。24日,临沂市河东区美埠镇杨湖村的杨先生称,自己10个月的双胞胎男孩均被查出患白血病。他说:“我在工地上做技术员,对象没工作,为给小儿子治疗已借了6万多元,可仍差几十万元治疗费。”

23 to 25,,As many as bound to our help,For children with blood and poor family as many as four.24,Hedong district, linyi city, beautiful port town YangHu village Mr Yang said,10 months of twin boys were found to suffer from leukaemia.He said:"I at the site do technician,Object didn't work,For the younger son treatment has borrowed 60000 yuan,Can still sent hundreds of thousands of yuan treatment."

  在齐鲁医院儿科血液病房里,来自农村的儿童白血病患者占了大多数。菏泽成武农村的张女士介绍,她有个女儿前几年因为白血病夭折,没想到刚出生没多久的儿子又患上了这个病。张女士说,自己邻村的也有几个孩子得了白血病,因为没钱救治,死了一个。

In qilu hospital department of pediatrics hematonosis room,From the countryside of childhood leukemia patients account for most.Heze ChengWu rural ms. Zhang is introduced,She had a daughter a few years ago for leukemia aborted,Didn't expect just was born before long son and suffer from the disease.Ms. Zhang said,His neighberhood also have a few children with leukemia,Because I have no money treatment,Died a.

  据济南血液病医院企划部主任周华介绍,目前很多白血病等血液病患者来自农村,经济条件比较困难。“治疗少则几十万、多则上百万元,光做骨髓移植手术就要三四十万元。”

According to the jinan hematopathy hospital planning department director ZhouHua is introduced,At present a lot of leukemia patients and blood from the countryside,Economic conditions more difficult."Treatment is hundreds of thousands of less/, millions of dollars,Light do bone marrow transplant is 40 ten thousand yuan."

  

调查>>患者增量从每年4万提高到8万 survey>>Patients increment from 40000 a year increased to 80000

  24日,齐鲁医院儿科病房一位护士介绍,治疗白血病患者的床位已经满员,现已收治60多名血液病儿童患者,白血病儿童患者占大多数。欢欢、乐乐的父亲李志岭说,他们早上8点就赶到齐鲁医院排队挂号,“但是24日和25日的床位已经排不上了,只能等26日了。”

24,Qilu hospital pediatric ward a nurse is introduced,Treatment for leukemia patients bed has full strength,Has been treated 60 children with blood,Patients with leukemia children majority.huanhuan/Lele father LiZhiLing said,They arrive at 8 in the morning qilu hospital queue up to register,"But 24 and 25 beds are already lining up,Such as the only 26."

  不单是齐鲁医院,省城其它医院如山东省立医院、济南血液病医院如今也是一床难求,两医院的患者床位无论是成人还是儿童都已排满。省立医院一位不愿意透露姓名的血液内科医生介绍,山东省人口9000多万,按照约4/10万的发病率计算,省内白血病患者不下3万人。

Not only is the qilu hospital,Provincial capital such as other hospital of shandong provincial hospital/Jinan hematopathy hospital now is also a bed is hard to find,Two patients with hospital beds whether adults or children are already full.Provincial hospital of anonymity blood physicians is introduced,Shandong province population more than 9000,According to about 4/10 incidence computation,Province leukemia patients are not less than 30000 people.

  据中国血液病协会委员、济南血液病医院首席专家王佐庭说,家族性白血病约占白血病的千分之七。单卵孪生子,如果一人发生白血病,另一个人的发病率为五分之一,比双卵孪生子高12倍,“这一因素也促使白血病患者增加。”

According to Chinese hematonosis association members/Jinan hematopathy hospital chief expert WangZuoTing said,Familial leukemia accounts for about seven over one thousand of the leukemia.Identical twins,If a person has leukemia,Another man's incidence of one 5,More than double egg twins 12 times higher,"This factor also prompted leukemia patients increase."

  王佐庭介绍,目前中国约有500万白血病患者,儿童白血病患者约占一半,白血病患者数量的增长速度从过去每年约4万人提高到每年约8万人。“我们针对白血病的治疗相对欧美、日本等国家和地区起步晚,但最近几年国家扶持力度有所加大。”周华说。

WangZuoTing introduced,At present China has an estimated 5 million leukemia patients,Childhood leukemia patients about half,Leukemia patients number of growth rate from the past each year about 40000 people a year increased to about 80000 people."We in the treatment of leukemia relative to Europe and the United States/Japan and other countries and regions starting late,But in recent years country the support strength has increased."ZhouHua said.

  

探因>>过度使用农药等可诱发白血病 Agent for>>Excessive use of pesticides, etc., may induce leukemia

  王佐庭指出,白血病诱因很多,有生物因素、化学因素和遗传因素等。一位医生说:“由于环境恶化及大量使用化学物品,导致白血病患者比例有所上升。”

WangZuoTing pointed out that,Leukemia cause many,Have biological factors/Chemical factors and genetic factors, etc.A doctor said:"Due to the deterioration of the environment and the use of chemicals,Lead to leukemia patients ratio increased."

  “放射性污染、室内含苯装修材料、过度使用农药、临床医疗垃圾乱丢弃、食品受污染(使用地沟油、有害添加剂)等多方面的原因,都有可能诱发白血病,但只是可能,真正具体到案例上,人类白血病的病因尚不能完全确定。”王佐庭说。

"Radioactive pollution/Indoor decorate material containing benzene/Excessive use of pesticides/Clinical medical waste disorderly discard/Food contaminated(Use trench oil/Harmful additives)And so on various reasons,May induce leukemia,But just may,Real specific to the case,The cause of human leukemia is not completely sure."WangZuoTing said.

  中国医学科学院血液病医院对2004年4月到2010年4月接诊的1236例儿童急性白血病患者分析显示:恶性肿瘤患者中,具有恶性肿瘤家族史者占6.8%,近3年家庭或学校有装修者占11%,发病前有可能诱因(1年内水痘、麻疹或不明原因病毒感染,有苯、汽油、杀虫剂等化学物品长期接触史)占12%,母亲孕期有异常(高龄孕妇、孕期服用药物、孕期接触苯、汽油、杀虫剂等化学物品)占5%。分析显示,虽然电离辐射、苯接触及某些病毒感染明确与白血病的发生有关,但尚不能推测这些因素与白血病发病的具体关系。

Chinese academy of medical sciences hospital blood to April 2004 to April 2010 accepts of 1236 cases of children with acute leukemia patients analysis showed that: in patients with malignant tumor,Family history with malignant tumor is 6.8%,Nearly three years the family or schools have to decorate is 11%,Before the disease may cause(1 years chicken pox/Measles or unexplained virus infection,A benzene/gasoline/Pesticides and chemicals long-term exposure)12%,Mother is abnormal pregnancy(Maternal age/Pregnancy drugs/Pregnancy contact benzene/gasoline/Pesticides and chemicals)5%.Analysis showed that,Although ionizing radiation/Benzene contact and some virus infection and the occurrence of leukemia clear about,But is not speculate that these factors and the relationship between the pathogenesis of leukemia.

  王佐庭介绍,白血病分为高危、中危和低危型三类。按照危险类型高低,治疗难度相应降低,现在治疗白血病最大困难是治疗费用过高,很多家庭因为经济因素难以坚持治疗,导致许多孩子耽误了最宝贵的治疗时间。

WangZuoTing introduced,Leukemia is divided into high risk/In the intermediate risk and low-risk type three categories.According to the dangerous type high and low,Treatment reduced the difficulty,Now the biggest difficult treatment for leukemia treatment costs are too high,Many families because of economic factors is difficult to adhere to the treatment,Lead to many children lose the most valuable treatment time.

  王佐庭说:“白血病如果早发现早治疗的话,治愈希望是非常大的,它并不是想象中的那么可怕。希望国家进一步加大扶持力度。”

WangZuoTing said:"Leukemia if early found earlier treatment words,Cure hope is very large,It is not imagination of so terrible.Hope that countries further increases the support dynamics."

  

福建双胞胎父亲为欢欢乐乐捐款 Fujian twins father for HuanHuanLeLe donation

  

曾有相同经历捐款也是对社会的回报 Had the same experience donation is also on social returns

  本报济南10月27日讯(见习记者宋磊记者刘帅)23日,福建漳州的杨晓辉联系到本报,他在得知双胞胎姐妹欢欢和乐乐的白血病病情后,一直在想办法联系他们一家,希望能够提供帮助。

Our newspaper jinan on October 27, -(Trainee reporter SongLei reporter LiuShuai)23,Fujian zhangzhou YangXiaoHui linked to our newspaper,He learned that twin sisters huanhuan and lele leukemia after illness,Has been trying to contact them a,Hope to be able to offer help.

  杨晓辉称,他是漳州市诏安县深桥镇樟朗村人,也有一对双胞胎女儿——大大和小小。同样的不幸曾降临在两个女儿身上,2006年,刚满周岁的女儿先后被查出患上白血病,后来在社会各界的关爱下,两女儿已治愈,现在已上一年级。

YangXiaoHui says,He is zhangzhou ZhaoAnXian deep bridge ZhangLang town village,Also have a pair of twin daughters - greatly and small.The same unfortunate was coming in two daughters body,In 2006,,Just full one full year of life's daughter has been found suffering from leukemia,Later, in the social from all walks of life love and attention,Two daughters have already been cured,Now already were in grade one last year.

  杨晓辉介绍,2009年3月,他开通了博客,取名“劳碌的猪”,记录他带着孩子治病的全过程。他说白血病治疗需要全方位的综合因素,希望博客能给病友一些帮助和信心,让他们少走弯路。

YangXiaoHui introduced,In march of 2009,He opened the blog,named"Labor of the pig",Record he took the child's disease process.He said leukemia treatment need omni-directional comprehensive factors,Hope the blog can give the patients some help and confidence,Let them less detours.

  杨晓辉一直很感恩社会对他的帮助,23日下午,杨晓辉在电话中说:“我很想为欢欢和乐乐尽点绵薄之力,这也算是我感恩的一种方式。”当晚9时,杨晓辉给李志岭转账2000元。

YangXiaoHui has been very grateful for his help society,23 afternoon,YangXiaoHui said by telephone:"I very want to huanhuan and lele do point to the development of force,This also is regarded as a way of my gratitude."That night when 9,YangXiaoHui to LiZhiLing transfer 2000 yuan.

  

□提个醒儿农村孕妇儿童要离农药远一点 Caution - son rural pregnant women children to stay away from pesticide away

  患儿童白血病的原因有多种,一方面可能与环境因素有关,环境因素包括暴露于磁场、杀虫剂、苯及其他烃类化合物,母亲酗酒、饮用水污染等是潜在高危因素。经多方调查发现,很多诱因是农药蓄积体内所致。

Children with leukemia many causes,On the one hand may and environmental factors,Environmental factors including magnetic field exposure/pesticides/Benzene and other hydrocarbon compounds,Mother drinking/Water pollution is a potential risk factors.In the survey found,A lot of incentive is caused by pesticide accumulation body.

  20世纪90年代初,美国加州大学的研究人员调查时发现,那些经常在自家庭院中给花喷洒农药的儿童要比家中不使用农药的儿童患白血病的机率高出3.8倍。(宗禾)

In the early 1990 s,The university of California researchers survey found,Those who often in their garden to spend crop-dusting children than home without the use of pesticides of developing leukaemia 3.8 times higher.(ZongHe)

  

早期症状 Early symptoms

  贫血常常为白血病的首发症状,主要表现为脸色苍白,自觉虚弱乏力、多汗,不论在活动或是在休息时,都觉得气促、心跳加快。

Anemia often for leukemia starting symptoms,Main show is pale,Consciousness weak/hyperhidrosis,No matter in the activity or at rest,Felt shortness of breath/Heart beats faster.

  发热半数以上的患者以发热为早期表现,可为38度以下的低热或39度甚至40度以上的高热。

More than half of the patients with fever fever for early performance,For 38 degrees below the low thermal or 39 degrees or even 40 degrees above the high fever.

  原因不明无痛肿大大部分白血病患者有浅表淋巴结的肿大,以颌下、颈部、锁骨上、腋下及腹股沟处多见,往往没有明显疼痛。

Reason unknown painless enlargement most leukemia patients with superficial lymph node enlargement,With jaws/neck/supraclavicular/Axillary and inguinal place see more,Often no obvious pain.

  出血白血病以出血为早期表现者近40%,常见于皮肤不明原因的淤斑、口腔、鼻腔、牙龈出血、月经过多等。

Bleeding leukemia with bleeding for early presenters nearly 40%,Common skin unexplained ecchymosis/oral/nasal/Gingival bleeding/Menorrhagia, etc.

  

儿童白血病已纳入我省新农合大病保险 Childhood leukemia already included in our province new farming together a serious illness insurance

  10月17日,山东省政府正式印发《山东省人民政府办公厅关于开展新型农村合作医疗重大疾病医疗保险工作的意见(试行)》,决定在全省开展新农合重大疾病医疗保险工作。

On October 17,Shandong province issued by the government official[Shandong province people's government office about to carry out the new rural cooperative medical major disease medical insurance work opinion(trial)],In the province to carry out the new agriculture close major disease medical insurance work.

  自2013年1月1日起,我省农民可享受大病保险,儿童白血病等20种大病纳入首批保险范围。医疗费用经新农合报销后,个人负担的合规医疗费用超出8000元的部分补偿比例不低于50%,8000元以内(含8000元)的合规医疗费用给予一定比例补偿。

Since January 1, 2013,Farmers in our province can enjoy a serious illness insurance,Childhood leukemia and other 20 kinds of serious illness in the first batch of insurance coverage.Medical expenses after new farming together after submit an expense account,Individual responsibility compliance medical expenses exceed $8000 compensation ratio of not less than 50%,Within 8000 yuan(Including 8000 yuan)Compliance medical treatment charge gives certain proportion compensation.

  我省城镇居民也将享受这项政策。24日,在全省县级公立医院改革试点暨新农合大病保险工作电视会议上,省人社厅相关负责人表示,近期我省将制定下发城镇居民大病保险工作实施意见。与新农合大病保险个人最高补偿20万元不同,城镇居民大病保险原则上不设封顶线。

Urban residents in our province will also enjoy the policy.24,At or above the county level in the trial reform of public hospitals and new farming together a serious illness insurance work conference on TV,Provincial people club hall officials say,In the near future will develop in our province issued by urban residents a serious illness insurance work implementation opinions.With the new agriculture close a serious illness insurance individual's highest 200000 yuan different compensation,Urban residents a serious illness insurance does not set a top line.

  负责人表示,城镇居民大病保险将参照新农合大病保险的相关政策,合理确定保障范围。(宗禾)

Person in charge said,Urban residents will be a serious illness insurance with reference to the new agriculture close a serious illness insurance policies,Reasonably determine the scope of protection.(ZongHe)



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