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关注脑瘫儿童大会在京举行 专家吁政府加强立法--亲民维稳网络舆情监测室
2013-01-05

  中新网1月5日电 据民政部网站消息,北京师范大学中国公益研究院、中国儿童福利和收养中心以及壹基金联合举办的“爱我的请举左手——关注脑瘫儿童大会”日前在京举行,旨在呼吁社会各界关注脑瘫儿童。

Beijing on January 5, according to the ministry of civil affairs web site,Beijing normal university, China academy of public welfare/China children's welfare and adoption center and hosted by the one foundation"Love my please raise hand - focus on cerebral palsy children"Recently held in Beijing,Designed to appeal to the social from all walks of life attention cerebral palsy children.

  举起左手,对于任何一个普通人而言,是一个再简单不过的动作,但对于患有脑瘫的孩子而言,他们每一次举手的背后都是无数次反复训练和疼痛劳累的成果,每一次举手都充满了对健康的深深向往。因此,2012年12月12日第二个中国困境儿童关注日的主题命名为“爱我的请举左手”,举起你靠近心脏的手,给脑瘫儿童爱与支持。在这一天,北京师范大学中国公益研究院、中国儿童福利和收养中心以及壹基金联合举办“爱我的请举左手——关注脑瘫儿童大会”,旨在呼吁社会各界关注脑瘫儿童。

Lifted his left hand,For any one person,Is a simple but action,But for children with cerebral palsy,Behind them every time I lift up my hands are countless times repeatedly training hard and pain,Each hand is filled with the deep yearning for health.so,On December 12, 2012, the second China dilemma the theme of the children's attention, named"Love my please raise hand",Raise your hand near the heart,For cerebral palsy children's love and support.On this day,Beijing normal university, China academy of public welfare/China children's welfare and adoption center and one foundation held jointly"Love my please raise hand - focus on cerebral palsy children",Designed to appeal to the social from all walks of life attention cerebral palsy children.

  本次会议共有“政策分享”、“福利研究”、“服务经验介绍”、“基金会在脑瘫领域项目介绍”、“福利院经验介绍”等五个内容。

The meeting were"Policy to share"/"Welfare research"/"Service experience is introduced"/"Foundation project is introduced in the field of cerebral palsy"/"Welfare homes experience"Five content such as.

  中国儿童福利和收养中心主任张世峰重点介绍了“残疾孤儿手术康复明天计划”在脑瘫患儿救治方面的经验与成效。由于福利机构里脑瘫患儿比例很高,多年来,“明天计划”在脑瘫救治上积极探索,通过采取部级定点医院救治、设立脑瘫康复训练示范基地、开展中医药脑瘫康复治疗等举措,建立了脑瘫患儿从救治到康复到特教的工作体系。下一步,随着儿童福利制度由补缺型向适度普惠型转变,“明天计划”将不仅关注机构内的脑瘫儿童,还要逐步拓展服务对象,对机构外的脑瘫儿童提供服务,特别是脑瘫康复训练示范基地会逐步向社区辐射开放。

Director of the center for Chinese children's welfare and adoption ZhangShiFeng were mainly introduced"Disabled orphans surgery rehabilitation plan tomorrow"The experience and effectiveness in treatment of children with cerebral palsy.A high proportion as welfare institutions in children with cerebral palsy,For many years,"Plan tomorrow"Active exploration in the treatment of cerebral palsy,By taking ministry designated hospitals/Establishment of cerebral palsy rehabilitation training demonstration base/For cerebral palsy rehabilitation therapy of traditional Chinese medicine and other measures,Established the cerebral palsy children from treatment to recover to teach the work of the system.The next step,Along with the child welfare system by the addition to moderate pratt & Whitney type transformation,"Plan tomorrow"Will not only pay attention to the organization of the cerebral palsy children,And gradually expand the service object,Provide services to institutions outside the cerebral palsy children,Especially the cerebral palsy rehabilitation training demonstration base will gradually open to the community of radiation.

  会上,北京师范大学公益学院王振耀院长积极呼吁,对于儿童福利制度建设以及脑瘫等困境儿童救助,政府应加强规划,专家学者应予以关注,民间组织需要转型,几方积极互动,形成更大合力。会议期间,壹基金的杨鹏秘书长通过对两个案例的分析,指出中国儿童福利立法缺失以及特殊教育体系不完善,呼吁政府应尽快加强立法,完善制度建设。

At the meeting,Shi President of the college of Beijing normal university public actively appeal,For the child welfare system construction as well as cerebral palsy children's assistance,The government should strengthen the planning,Experts and scholars should be attention,Non-governmental organizations need to transition,A few positive interaction,To form larger.During the meeting,One foundation of YangPeng secretary based on the analysis of two cases,Points out that the missing child welfare legislation in China and special education system is not perfect,Called on the government should strengthen the legislation as soon as possible,Perfecting the system construction.

  大会本着“多元互动分享”的理念,增进大众对脑瘫儿童的认知,唤起全社会对脑瘫儿童以及家庭的重视与关爱。来自国内外的专家、学者、机构代表、脑瘫儿童及家长代表等共同梳理了近年来脑瘫儿童及其家庭的生存现状,回顾了影响脑瘫儿童福利服务的关键节点事件,总结了脑瘫儿童福利政策发展得失,分享脑瘫儿童康复与自强自立的经验与感受。曾经的脑瘫儿童、现在的北京理工大学的计算机专业在读博士生张大奎等三人代表大会共同宣读了“关注脑瘫儿童政策倡议书”。

Conference in"Multiple interactive share"The concept of,Increase public understanding of cerebral palsy children,Arouse the attention of the whole society of cerebral palsy children and family and love.Experts from home and abroad/scholars/Organization representative/Cerebral palsy children's parents and common combed the cerebral palsy children and their families in recent years the survival of the status quo,Reviewed the influence of cerebral palsy children's welfare service key nodes,Summary of the gain and loss of the cerebral palsy children welfare policy development,Share the experience of cerebral palsy children rehabilitation and self-reliance self-reliance and feelings.Once the cerebral palsy children/Now in Beijing university of science and technology and my major is computer reading doctoral ZhangDaKui three people congress read together"Focus on cerebral palsy children's policy in suzhou".

  大会还发布了以下两项重要报告:

Congress also released the following two important report:

  1、“2012关注中国困境儿童年度十大进步事件”榜单,该榜单由浙江大学新闻传媒与社会发展研究所和北京师范大学中国公益研究院首次共同发布。

1/"2012 children focus on China dilemma year ten big progress"The list,The list by the news media and social development research institute, zhejiang university and Beijing normal university, China's public welfare institute jointly issued for the first time.

  2、中国脑瘫儿童十大生存状况信息报告。该报告以精炼的标题和文字从社会统计、政策、社会援助系统、医疗发展、优秀个体等方面给出了系统信息,全方位地介绍了目前中国脑瘫儿童的现实状况。

2/China cerebral palsy children's living situation of ten information report.The report by refining the title and text from social statistics/policy/Social assistance system/Medical development/Excellent individual aspects of the system information is given,In all the reality of cerebral palsy children in China are introduced.


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