主要发病人群：10～25岁的成人儿童与60岁以上的老人 The main of the crowd:10 ~ 25 adult children and old people over the age of 60

治疗方法：造血干细胞移植和免疫抑制疗法 treatment:Hematopoietic stem cell transplantation and immunosuppressive therapy

医生建议：超过75%存活率 父母不要轻易放弃救治 The doctor advised:More than 75% surial parents don't give up easily

　　3年前的冬夜，9岁的小强在江西老家突然大口吐血，被诊断为再生障碍性贫血(简称“再障”)，当地医生估计他活不过一年。小强的父母带着他辗转上海、杭州，最后来到广州。如今，在各方的援助下，小强活了下来。

Three years ago the winter night,Nine-year-old jack Bauer in jiangxi hometown suddenly big vomiting blood,Diagnosed with aplastic anemia(Hereinafter referred to as"Aplastic anemia"),Local doctors expect him to live but for a year.Jack's parents take him in Shanghai/hangzhou,Finally come to guangzhou.now,Under the assistance of the parties,Jack Bauer survived.

　　然而，并非所有孩子都能像小强般幸运。据广州市第一人民医院血液科的专家介绍，如今，“再障”已非绝症。但每年都会有十几例因为耽误治疗而遗憾离世的孩子，“不少父母错误地放弃对孩子的救治。”

However,,Not all children can like jack Bauer lucky.According to guangzhou first people's hospital onset of experts,now,"Aplastic anemia"Has a terminal illness.But every year there are ten cases of regret for delay treatment from the children,"Many parents mistakenly give up treatment to the child."

两大“拦路虎”：认识误区和巨额治疗费用 Two big"obstacle":Misunderstanding and huge treatment costs

　　3年前的冬天，9岁的小强正在江西的家中烤火取暖，突然“哇”的一声吐起血来。医院诊断，小强患上再生障碍性贫血。“当时医生说，得了这种病没什么好治的了，小强最多就只能活一年。”小强的父母都是农民，家里根本没积蓄。但是，3年来，父母带着小强一路从上海、杭州，再辗转到广州，到处求医。为了给儿子治病，他们把家里值钱的东西都卖了，还背上了十几万的债务。小强去年来到了广州市第一人民医院血液科。经过一年多的治疗，小强如今已基本康复，很快就可以出院了。

Three years ago in winter,Nine-year-old jack Bauer is jiangxi home fire for warmth,All of a sudden"wow"1 of spitting up blood.The hospital diagnosis,Jack Bauer get aplastic anemia."Then the doctor said,There's nothing to get it,Jack Bauer can only live for one year at most."Jack's parents are both farmers,Home didn't savings.but,For three years,Parents with a small strong all the way from Shanghai/hangzhou,Traveled to guangzhou again,All healed.In order to son,They sold all the valuables at home,Also on the hundreds of thousands of debt.Jack came to the onset of the first people's hospital in guangzhou last year.After more than a year of treatment,Jack Bauer is now the basic recovery,Can was released from the hospital soon.

　　然而在医院，每年还是有不少“再障”患者尤其是儿童因为耽误治疗而死亡。“光是在我们医院一年就有十几例。”市一医院血液科的权威专家毛平教授说。

However, in the hospital,Every year there are still a lot"Aplastic anemia"Especially children patients with death because of the delay treatment."A year in our hospital alone is more than ten."A city authoritative experts in qilu hospital professor MaoPing said.

　　市一医院血液科主任王顺清分析说，“再障”之所以会被耽误治疗，认识上的误区和费用是两大原因。“很多家长，包括不少基层医院的医生对‘再障’的认识都很有限，不少人一听就以为得了绝症，就放弃治疗了。”

City a hospital director of qilu WangShunQing analysis said,"Aplastic anemia"The reason will be delay,Know the pitfalls and cost are two main reasons."A lot of parents,Including many grass-roots hospital doctor‘Aplastic anemia’Understanding is very limited,A lot of people to think that he had a terminal illness,Give up treatment."

　　其次，很多患者和家属不知道重型“再障”起病需要尽早到有治疗经验的血液中心治疗，以为只是贫血了，就在卫生站、社区医院输血，耽误最佳治疗时间。事实上，“再障”的最佳治疗时机是诊断后的40天内。

The second,A lot of patients and families don't know that heavy"Aplastic anemia"Onset need as soon as possible to have treatment the blood center of experience,Think only anemia,In the clinic/Community hospital transfusion,The best treatment time delay.As a matter of fact,"Aplastic anemia"The best treatment time is within 40 days after diagnosis.

　　“另一方面，目前昂贵的治疗费用也让很多患者陷入困境。”一般来说，采取造血干细胞移植的治疗费用约为25万~30万，但造血干细胞供体十分难寻，所以病患普遍选择免疫抑制治疗，治疗过程需要用到的一些高级药品都属于自费药。据了解，目前我国医保和新农合都未将再生障碍性贫血列入重大疾病特别资助政策范围，非自费部分费用仅享受30%左右的一般性报销。

"On the other hand,The expensive treatment costs also let many people in trouble."Generally speaking,,Take the hematopoietic stem cell transplantation treatment costs about 250000 ~ 300000,But donor hematopoietic stem cells is very difficult to find,So patients generally choose immunosuppressive therapy,Treatment process need to use some of the senior drug belong to at one's own expenses.It is understood,At present our country medical insurance and new farming was close to aplastic anemia on major disease special subsidy policy,Not pay fees only enjoy 30% of general submit an expense account.

　　在昨日的病友会上， 王顺清向记者透露，目前，市一医院血液科和志愿者团体已经打造了一个名为“生命的呼唤——重型再生障碍性贫血患者救助”的项目，目标是能筹集到100万左右的资金，每年资助10个重型“再障”患儿。“对于低龄的患儿，有时十几万就能让他们重获新生，有志于此的企业和团体可以与我们联系。”王顺清说。

In yesterday's roommate at the meeting, WangShunQing revealed to reporters,At present,,A city hospital onset and volunteer groups have made a name"Life's call - patients with severe aplastic anemia"Of the project,The goal is to raise to about 1 million,Every year for 10 heavy"Aplastic anemia"children."For young children,Sometimes thousands can let them regain a new life,Interested in the group of enterprises and can contact with us."WangShunQing said.

医生：“再障”非绝症 The doctor:"Aplastic anemia"Non - terminal illness

　　再生障碍性贫血是血液科里仅次于白血病的“杀手”。王顺清介绍，10～25岁的青少年、儿童与60岁以上的老人是再生障碍性贫血的主要发病人群。“一旦发病，患者会出现严重贫血、皮肤黏膜出血、视网膜出血和感染症候群。”

Is second only to leukemia in the onset of aplastic anemia"killer".WangShunQing introduced,Adolescents between the ages of 10 ~ 25/Children and old people over the age of 60 is the main pathogenesis of aplastic anemia."Once the onset,Patients will appear serious anemia/Skin mucosal bleeding/Retinal bleeding and infection syndrome."

　　有数据显示，目前全球再生障碍性贫血的发病率约为2/10万，而中国的发病率估计是这个数字的2～3倍，其中近两成患者属于重症再生障碍性贫血。而在广东，市一医院血液科是“再障”患者比较集中的地方，从1998年到现在一共收治过80例“再障”患者。

Have data to show,The world is about 2/10 the incidence of aplastic anemia,While in China the incidence of estimation is 2 ~ 3 times of this number,Nearly twenty percent of patients to severe aplastic anemia.In guangdong,The onset is a hospital"Aplastic anemia"Patients were compared with a centralized place,From 1998 to now, a total of 80 patients treated"Aplastic anemia"In patients with.

　　毛平教授是市一医院血液科的权威专家，他表示，不少人把“再障”当成是白血病。“其实‘再障’是骨髓不造血了，而白血病则是骨髓造出了‘坏血’，发病机理完全不一样。”毛平教授形象地解释说。

Professor MaoPing is a city authoritative experts in qilu hospital,He said,Many people put"Aplastic anemia"As leukemia."In fact‘Aplastic anemia’Is bone marrow hematopoietic,Bone marrow and leukaemia is created‘Bad blood’,Pathogenesis is completely different."Professor MaoPing vividly explained.

　　十多年前，“再障”患者的死亡率高达95%。但近20年来，“再障”的治疗有了突破性的发展。现在治疗“再障”的主要方法包括造血干细胞移植和免疫抑制疗法，预计有超过75%的患者在采用这两种治疗方案后将会长期存活。“其中如果能在同胞兄弟中获得配型成功，进行造血干细胞移植，治愈率更高达80%~90%。”毛平说：“‘再障’治愈后基本不会复发。”(文/记者黎蘅 通讯员徐晶)

Ten years ago,"Aplastic anemia"The patient's mortality rate as high as 95%.But over the past 20 years,"Aplastic anemia"The development of a breakthrough in the treatment of.Now the treatment"Aplastic anemia"The main methods include hematopoietic stem cell transplantation and immunosuppressive therapy,Is expected to more than 75% of the patients in the two treatment after will live for a long time."Which if can matches success in their siblings,Of hematopoietic stem cell transplantation,Higher cure rate was 80% ~ 90%."MaoPingShui:"‘Aplastic anemia’Basic won't recurrence after curing."(The text/reporter LiHeng correspondent xu)