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白血病患者遇“悔捐”续:感动因何以遗憾收场?--亲稳网络舆情监测室
2013-01-29
一个本来充满感动的故事,最后却以遗憾收场。北京白血病患者吴志辉需接受干细胞移植,本来他幸运地找到两例配型“全相合”的志愿者,不幸的是,当他进入移植仓,免疫系统被摧毁的最后一刻,捐献者突然反悔。
One was full of touching story,The last but sorry end.Beijing leukemia patients need to accept WuZhiHui stem cell transplantation,He was lucky to find two cases of matches"In all"volunteers,unfortunately,When he entered the transplant bin,The immune system destroyed the last moment,Donors suddenly pull back.
最后一刻的反悔让受捐者“很受伤” The last moment opted for ShouJuanZhe"Is injured"
去年5月,吴志辉生病后被确诊为白血病,10月到空军总医院接受治疗。“打了几个化疗后效果不好,唯一的办法是骨髓移植。”空军总医院血液病中心主任、主任医师王恒湘说。
Last may,WuZhiHui ill after being diagnosed with leukemia,October to air force general hospital for treatment."Made some bad effects after chemotherapy,The only way is a bone marrow transplant."Air force general hospital, director of the center for blood/Chief physician WangHengXiang said.
在中华骨髓库中,吴志辉幸运地找到了两例配型“全相合”的志愿者。“志愿者进行了高分辨检测、体检,都合格。”中华骨髓库主任洪俊岭说。
In the CDMP data bank,WuZhiHui fortunately found two cases of matches"In all"volunteers."Volunteers high resolution detection/medical,Is eligible."Director of the CDMP data bank HongJunLing said.
随后,吴志辉进入移植仓开始化疗。“把他自身的造血系统、免疫系统都摧毁了。”洪俊岭说,“就相当于一块土地,种着庄稼但野草丛生,农夫干脆撒下除草剂,把庄稼和野草全部毁掉重新翻耕,然后拿一把优良的种子撒上,重新长。”
then,WuZhiHui into transplantation warehouse began to chemotherapy."Put his own hematopoietic system/The immune system is destroyed."HongJunLing said,"Is equivalent to a piece of land,The weeds grew in wanton profusion of crops but,The farmer simply and herbicides,The crop and weed all destroy to plowing,Then a good seed ",To long."
手术进入这一步,就回不了头。不幸的是,“配型‘全相合’的第一位志愿者此时提出,不同意捐献造血干细胞。医院征求第二个供者的意见,对方也不同意。”王恒湘说。
Surgery in this step,They returned to the head.unfortunately,"matches‘In all’The first volunteers put forward at this time,Don't agree to contribution hematopoietic stem cells.The hospital for the second donor opinion,Also don't agree with each other."WangHengXiang said.
洪俊岭说:“吴志辉当时的情景就如同一块土地上,除草剂已撒上去了,庄稼、野草都被消灭了,就等着把新的种子撒上、培育。然而,种子没有了,只好采取其他办法。”
HongJunLing said:"WuZhiHui scene then is like a piece of land,Herbicide already and up,crops/Weeds are destroyed,As soon as the new seed "/cultivation.however,Seeds without the,Have to take other measures."
面对这种局面,吴志辉的父母很着急,不知道孩子还能不能走出移植仓。“如果找不到供者进行骨髓移植的话,这个孩子可能就要在舱内死亡。”王恒湘说,在此情况下,只能让吴志辉的母亲作为配型“半相合”的供者,提供造血干细胞。
In the face of this situation,WuZhiHui parents worried,Don't know the child can not out of transplantation bin."If can't find words to donor bone marrow transplant,The child may be in in death."WangHengXiang said,In this case,Can only let WuZhiHui mother as matches"In half"donor,Provide hematopoietic stem cells.
“悔捐”根本原因还是科普力度不够 "Regrets to donate"Root cause or popular science is not strong enough
记者在采访时了解到,“悔捐”比较常见。中华骨髓库志愿者的捐献是遵循自愿原则,捐献行为随时可以终止。据中华骨髓库初步测算,“悔捐”的比例在20%左右。然而,最后一刻的“悔捐”还是让人揪心。“我们非常遗憾、心痛。”洪俊岭说。
Reporter in the interview to understand,"Regrets to donate"More common.The CDMP data bank volunteers contribution is to follow the principle of voluntariness,Donation behavior can be terminated at any time.According to the CDMP data bank preliminary estimates,"Regrets to donate"At the ratio of 20%.however,The last moment of"Regrets to donate"Or let a person so concerned."We are very sorry to/heartache."HongJunLing said.
记者近日在医院看到,吴志辉戴着口罩躺在“无菌仓”内,每天16时至17时30分,他可以通过电话与玻璃窗外的父母对话。
Recently, reporters at the hospital to see,WuZhiHui wore masks lie in"Sterile warehouse"inside,Every 16 to 17 30 points,He can through the telephone and glass window parents dialogue.
记者问对于“悔捐”怎么看?吴志辉的母亲说:“不怨他们,一点也不。”她说这番话时,一脸真诚。
The reporter asked for"Regrets to donate"How to see?WuZhiHui mother said:"Don't blame them,Don't."She said those words,A face of sincere.
无论是中华骨髓库工作人员还是医院专家也都表示,“一定不要过多地谴责‘悔捐’的供者,他们可能承受着多方压力,可能对捐献过程不理解,心怀恐惧和担忧”。
Whether CDMP data bank staff or hospital experts say,"Do not condemn too much‘Regrets to donate’donor,They may suffer many pressure,May not understand the process of donation,Heart fear and worry".
“‘悔捐’的主要原因还是对捐献造血干细胞认识不足,科普力度不够。”洪俊岭说,志愿者捐献的实际上是造血干细胞。造血干细胞存在于骨头里,传统方式是用骨腔穿刺采集,现在则多通过注射动员剂,把骨腔里的造血干细胞释放出来进入血管,通过机器把造血干细胞从血液中分离出来。
"‘Regrets to donate’The main reason of donor hematopoietic stem cells or inadequate understanding,Popular science is not strong enough."HongJunLing said,Volunteers donated is actually hematopoietic stem cells.Hematopoietic stem cells in the bone,The traditional way is to use bone cavity puncture acquisition,Is now much through the injection mobilization agent,The bone cavity of hematopoietic stem cells released into the blood vessels,Through the machine the hematopoietic stem cells from the blood of separation.
洪俊岭说:“取一点造血干细胞不会对人体造成伤害。捐献造血干细胞全世界几十万例了,目前没有发现由于捐献造血干细胞而对身体造成伤害的案例。”
HongJunLing said:"Take a little hematopoietic stem cells will not cause harm to human body.Gifts hematopoietic stem cells around the world hundreds of thousands of cases of the,There is no find that the contribution hematopoietic stem cells and cause harm to the body of the case."
为避免捐献者的犹豫不决,能否调整骨髓移植手术的程序?洪俊岭说,一般不采取先采集的方法,因为操作复杂、费用更高。如果先采集,长期保存等待手术,就要把细胞放在液氮里面,由常温37摄氏度变为零下196摄氏度,使用时再恢复到常温。在这个过程中,细胞很容易失活,影响疗效。
In order to avoid the donor's indecision,Can adjust the bone marrow transplant program?HongJunLing said,Generally do not take first acquisition method,Because of the complicated operation/Cost higher.If the first acquisition,Long-term preservation waiting for surgery,The cells will be put in liquid nitrogen,The normal temperature of 37 degrees Celsius below zero to 196 degrees Celsius,When using return to room temperature.In this process,Cell is easy to inactivation,Affect curative effect.
专家倡导献爱心要谨慎考虑 Experts advocate to offer the compassion to consider carefully
尽管认为“社会不应把焦点放在谴责某个人上,我们要反思自己的工作方式和社会环境”,然而,洪俊岭、王恒湘等还是提出,人们在奉献爱心时要慎重考虑,尽量遵守承诺。捐和不捐是一步之遥,救与不救也在一念之间。
Despite claims that"Society should not focus on condemn someone on,We need to reflect on their way of working and social environment",however,HongJunLing/WangHengXiang wait or put forward,People love to careful consideration,Try to keep the promise.Donate and not to donate is one step away,Save and save in a nidea.
据悉,中华骨髓库共有165万人填写了志愿捐献同意书,我国每年都有几百例患者从中华骨髓库获得供体,现在共有3000多例实现了捐献。洪俊岭说,中华骨髓库正想方设法扩大规模,发挥最大的效应,让更多的人受益。“我们还要跟世界骨髓库联合,弥补自己的不足。”(李亚红、毛伟豪)
It is reported,CDMP data bank of 1.65 million people to fill in the voluntary donation agreement,Our country every year, hundreds of patients from the CDMP data bank for donor,Now there are more than 3000 cases of realize the gifts.HongJunLing said,CDMP data bank are trying to expand the scale,Display the biggest effect,Let more people benefit."We have to follow the world GuSuiKu joint,Make up for my own shortcomings."(LiYaGong/MaoWeiHao)
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