▲肿胀变形的舌头让人触目惊心。 Box-and-one swelling deformation tongue let a person deceived.

　　▲舌头又疼又痒无法收回口腔内，这让3岁多的小丽丽异常痛苦。 Box-and-one tongue and pain and itching can be retrieved in the mouth,It makes more than 3 years old little lily abnormal pain.

　　3岁多的小丽丽(化名)坐在大连医科大学附属一院口腔科的病床上，一张漂亮可爱的小脸上全是痛苦的表情，孩子的舌头肿胀变形，只能伸在口腔外。这个春节，小丽丽一口饭都没吃，喝水都得靠吸管……

More than 3 years old little lily(alias)Sitting in dalian medical university affiliated hospital department of stomatology a bed,A beautiful and lovely little face is full of expression of pain,The child's tongue swelling deformation,Can stretch in the oral cavity.The Spring Festival,Little lily didn't eat a meal,Drink water have to rely on straw...

　　丽丽出生时就患有先天性舌部血管瘤。今年2月1日，这种怪病突然发作，丽丽的舌头不断肿胀，直至目前这种情况。除了舌头肿大之外，丽丽还持续高烧不退。孩子的父母带着她跑遍了大连的医院，还赶到上海求医，好不容易有家上海医院能够治疗该病，但苦无床位……

Lily born with congenital tongue department hemangioma.On February 1,,The strange disease suddenly attack,Lily tongue swollen continuously,Until now this kind of situation.In addition to outside tongue swelling,Lily has sustained fever.Parents of children with her went around dalian hospital,Shanghai is to seek medical advice,Very not easy to have a home Shanghai hospital can treat the disease,But bitter no bed...

舌部血管瘤突发作 Tongue department for a hemangioma

　　昨日下午，在大连医科大学附属一院口腔科见到丽丽时，记者也被吓了一跳——这个漂亮可爱的小姑娘舌头肿胀得可怕，已经变成了紫红色，一直伸在口腔外面。

Yesterday afternoon,In dalian medical university affiliated a hospital department of stomatology see when lily,Reporters were shocked, the beautiful and lovely little girl tongue swelling, terrible,Has become a purple,Has been stretched out in the mouth.

　　丽丽的姑姑周女士告诉记者，丽丽今年3岁多，从小就得了个怪病。“她患的是先天性舌部血管瘤。”周女士说。在大医一院的诊断病志上，也清楚地标明了孩子的怪病。“刚出生时我们就发现孩子的舌头有点大，但当时没人在意。”周女士说。

Lily's aunt weeks lady told reporters,Lily this year more than 3 years old,Since the childhood got a strange disease."She had congenital tongue department hemangioma."Ms zhou said.In a court of the medical diagnosis of disease on volunteers,Also clearly show the child's strange disease."At birth, we will discover the child tongue a little big,But then no one CARES."Ms zhou said.

　　在出生后至今的3年多时间里，孩子的病情时有发作。“发病时舌头会迅速肿胀，不得不伸到口腔外。”周女士说，之前几次发作都没有这么严重，靠服用中药也能慢慢好转。但今年2月1日，丽丽的怪病突然“爆发”，短时间内孩子的舌头就肿成了现在的模样。“关键是她还持续高烧不退，治疗都很困难。”

After birth to 3 years,The child's illness is attack."When the tongue can quickly swelling,Have to stretch to the oral cavity."Ms zhou said,Before a few times are not so serious,By take Chinese traditional medicine can also improve slowly.But on February 1,,Lily's strange disease suddenly"outbreak",A short time the child's tongue is swollen became like now."The key is she still continued high fever is not retreated,Treatment is very difficult."

孩子喝水都得用吸管 The children had to be drinking straw

　　采访期间，不幸的小丽丽一直试图用小手抓挠自己的舌头。“孩子又疼又痒。”周女士说，这次发病当天丽丽就被送进了大连医科大学附属一院，但治疗始终未见成效。丽丽的父母打听到，上海第九人民医院的范新东教授是治疗这方面疾病的权威人士，春节前就带女儿来到上海，医生检查后表示，若要治疗就得入院，但现在没有床位，让等有床位了再来上海。无奈下，一家三口只好回到大连，再次住进大医一院。

During the interview,Unfortunate little lily has been trying to use hands scratching his tongue."Children and painful and itchy."Ms zhou said,The day lily disease was sent to dalian medical university affiliated a court,But the treatment has not been paid off.Lily's parents find out,Shanghai ninth people's hospital professor is FanXinDong treatment of this disease authorities,Before the Spring Festival will take my daughter came to Shanghai,The doctor said after inspection,If you want to treat have to admission,But there is no beds,Let etc have beds to come to Shanghai.Helpless under,A family of three had to return to dalian,To live in a big medical school.

　　“哪有心思过春节啊……”采访中周女士表示，孩子特别可爱，爱说爱笑。可是这个春节孩子一口饭都吃不下。“舌头挡住了口腔，根本无法吞咽，只能靠输液和流食维持生命。”周女士说，丽丽现在喝口水都得用吸管。“看着这么小的孩子受罪，我们大人的心就像刀割一样。”

"Which have the Spring Festival mind......"Interview ms zhou said,Special lovely children,Love said love to laugh.But this Spring Festival children eat a rice."The tongue blocking the oral cavity,Can't swallow,Can only rely on transfusion and liquid to maintain life."Ms zhou said,Lily now drink saliva all have to straw."Look at such a small children suffer,We adults heart like a knife that cuts the same."

　热心人帮忙联系医院 Warm-hearted help contacting hospital

　　2月20日，丽丽一家人本打算再次赶往上海求医。但孩子的病情突然变化，高烧再起。“17日上午，孩子已经高烧41℃了。”周女士说，目前孩子的病情不适合接受治疗，更无法长途辗转赶往上海。“如果孩子的舌头继续肿胀下去，下一步可能导致窒息，会有生命危险。”周女士说，一家人眼下心急如焚。“可是即使到了上海，如果没有床位，孩子一样无法住院啊。”

2 months and days,Lily family planned to seek to Shanghai again.But the child's condition suddenly change,High fever again."17 morning,The child has a fever 41 ℃."Ms zhou said,At present the child's condition is not suitable for treatment,More can't long toss to Shanghai."If the child's tongue swelling continue to go down,The next step may cause suffocation,Can have life risk."Ms zhou said,The family now worried."But even in Shanghai,If there is no bed,Children can't hospital ah."

　　无奈的周女士在16日通过新浪微博向网友求助，孩子的不幸遭遇也得到了众多大连热心人的关注。记者看到，除了众多热心提供治病医院信息的网友外，很多人还提供偏方，更多网友鼓励小丽丽一家：“挺住，这个漂亮可爱的小姑娘一定能好起来。”

But ms weekly in 16 through the sina micro bo to net friend for help,The child's misfortune also got the attention of many dalian enthusiast.The reporter sees,In addition to many enthusiastic provide cure hospital information of the users,Many people also provide folk prescription,More net friend encouraged a little lily:"knowing,This beautiful and lovely little girl can better."

　　志愿者王官升说，为了帮助丽丽，自己正在通过各种途径和北京上海等各家医院联系，希望找到口腔科专家，治疗丽丽的怪病。如果您有相关渠道，也可以和本报联系，共同帮助不幸的丽丽能再次笑起来。(大连晚报 文/首席记者万恒实习生苏晨 -图/由家属提供)

Volunteers a surname rise said,In order to help lily,You are through various channels and in Beijing, Shanghai and other various hospitals contact,Hope to find department of stomatology experts,Lili's strange disease treatment.If you have related channels,Can also and the contact,Mutual help unfortunate lily can smile again.(Dalian evening news article/chief reporter WanHeng interns SuChen - chart/by family members to provide)