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成都草根组织呼吁为艾滋病患者发放免费治疗卡--亲稳舆论引导监测室
2012-11-26

  

成都艾滋感染者互助小组今日将提交建议报告,呼吁减低感染者和病人医疗费用 Chengdu infected group today will be submitted suggestion report,Called on to reduce infections and patients' medical costs

  从艾滋病确诊起,医药费就伴随一生。即便国家有免费药物发放,服药之前,需要做体检;服药之后半个月需要查肾功能;服药之后出现副作用需要治疗;出现机会性感染需要治疗……这一切费用都需自付

From the AIDS diagnosis,Medical expenses will accompany lifetime.Even if countries have free drug release,Before taking,Need to do physical examination;Take medicine after half a month need check kidney;After drug causing side effects need treatment;Appear opportunistic infection need treatment...All the expenses will be pays

  在“12·1”国际艾滋病日来临前夕,昨日,成都同乐/爱仁同盟感染者互助小组组织一些艾滋病感染者、艾滋病人与媒体见面。该互助小组志愿者今日将向成都市卫生局递交一份报告,建议减低成都市艾滋病病毒感染者和艾滋病病人医疗费用负担。

in"12 · 1"World AIDS day coming eve,yesterday,Chengdu to share/love kernel alliance infected group organization some people infected with HIV/AIDS people meet the press.This group volunteers will today to chengdu city health bureau to submit a report,Chengdu Suggestions to reduce the AIDS virus infection and AIDS patient medical expense burden.

  

一份建议 A suggestion

  

为感染者发放“免费治疗卡” For infection issue"Free treatment card"

  这份建议报告是草根组织首次发出声音,他们希望成都能效仿北京、广州等城市,为感染者发放“免费治疗卡”,每年向卡上划拨一定治疗费。另外,他们希望相关部门能制定针对艾滋病病毒感染者和艾滋病病人医疗费用规范、减免和救助方案,尽可能地减免感染者门诊和住院的治疗费用,减轻感染者经济压力。

The proposal report is grassroots organization the first sound,They hope to chengdu to follow the example of Beijing/Guangzhou city, etc,For infection issue"Free treatment card",Every year to card transfer certain treatment.In addition,They hope that relevant departments can set according to the AIDS virus infection and AIDS patients' medical costs specification/Relief and rescue plan,As far as possible, derate infections outpatient and hospitalization expenses,Reduce infections economic pressure.

  拟定这份报告前,志愿者小丁就艾滋病感染者、艾滋病人医药费在成都进行过一次调查。调查数据显示,除国家免费提供的治疗外,他们还要自行承担肝肾功能等检测费用、副作用治疗费用、机会性感染治疗费等。有的感染者在经济拮据时,选择了放弃治疗。

The report before worked,Volunteers xiaoding will people infected with HIV/Medical AIDS in chengdu conducted a survey.Survey data show,In addition to national provide free treatment outside,They also shall bear such as kidney function testing costs/Side effects of treatment costs/Opportunistic infection treatment, etc.In some infected when tight,Chose to give up treatment.

  据了解,我国已出台预防艾滋病“四免一关怀”政策,其中就包括,农村居民和城镇未参加基本医疗保险等经济困难人员中的艾滋病病人,可到当地卫生部门指定的传染病医院或设有传染病区(科)的综合医院服用免费的抗病毒药物。

It is understood,Our country has already issued to prevent AIDS"SiMian a care"policy,including,Rural residents and towns not attend insurance of primary medical treatment and economic difficulties in the personnel of AIDS patients,But to the local health department designated hospitals for infectious diseases or with infectious disease area(families)Comprehensive hospital take free of antiviral drugs.

  成都市疾控中心性病艾滋病防治科副科长何勤英介绍,当患者体内CD4-T淋巴细胞(人体重要免疫细胞,艾滋病病毒主要攻击对象)长期小于350个每立方毫米时,应该考虑进行抗病毒治疗。何勤英表示,符合治疗标准的患者,均可免费用药。目前,成都符合抗病毒治疗标准的艾滋病感染者和病人中,接受免费药物治疗的患者达83%。

Chengdu CDC venereal disease prevention and control of HIV/AIDS branch deputy head of the office HeQinYing is introduced,When the patients' bodies CD4 - T lymphocyte(The human body important immune cells,HIV mainly attacks object)Long-term less than 350 per cubic millimeter,Should consider arv treatment.HeQinYing said,Conform to the standard treatment of patients,All can free drugs.At present,Chengdu accord with antiviral treatment standard of people infected with HIV and patients,Receiving free drug treatment of 83% patients.

  

一种生活 A kind of life

  

一年住院六次医疗费近3万元 A year in hospital medical treatment of six times nearly 30000 yuan

  鹏鹏的脸色有点黑,有气无力地窝在沙发里,“今年我住院六次了,七八九十月是每月一次。”鹏鹏今年的医药费也已花掉近3万元。

PengPeng look a little black,Weakly nest on the sofa,"This year I hospital six times,The 789 October is once a month."PengPeng this year's medical expenses has also spend nearly 30000 yuan.

  鹏鹏是2007年4月确诊HIV阳性的,从当年12月开始服用抗病毒药物。2010年起到现在,他每年会因机会性感染住院,平均一个季度一次,“机会性感染,是因免疫力低出现的诸如发烧、皮疹等各种病症。”

PengPeng is April 2007 diagnosed HIV positive,From the December started taking antiviral drugs.2010 till now,He will be a year because of opportunistic infection in hospital,Average a quarter a,"Opportunistic infection,Because of low immunity appear such as fever/Rash, etc. Various kinds of disease."

  今年的6次住院中,费用最低的一次,鹏鹏自费了2000元,“那次我在社区医院治疗的,用的是基本药物,保险的报销比例大。”费用最高的一次,多达6000元,这一次几乎是全自费,“一般药物无法退烧,只能用自费药。”

This year's six times in the hospital,A minimum cost,PengPeng at one's own expense for 2000 yuan,"The I in the community hospital treatment,Use is essential drugs,Insurance expense proportion is large."One of the highest cost,As many as 6000 yuan,This time is almost all at one's own expense,"General drug cannot allay a fever,Only with the medicine at one's own expenses."

  从2010年起到现在,鹏鹏就因治病失去了工作,“没有老板愿意聘用一个长年住院的员工。”他的生活费、医药费全部由父母和哥哥姐姐资助。“我还申请了低保。”但即便如此,鹏鹏的生活仍然很成问题,他甚至表露出想“自我了断”的想法。新闻延伸>>>

From 2010 till now,PengPeng for cure lost his job,"No boss willing to hire a the elder hospital staff."His living expenses/All medical expenses by parents and brother and sister funding."I have applied for residents."But even so,PengPeng life is still a problem,He even show want to"Self break"idea.News extension>>>

  有病友告诉天府早报记者,从艾滋病确诊起,医药费就伴随一生。即便国家有免费药物发放,服药之前,需要做体检;服药之后半个月需要查肾功能;服药之后出现副作用需要治疗;出现机会性感染需要治疗……这一切费用都需自付。

Have wardmate tell tianfu morning paper reporter,From the AIDS diagnosis,Medical expenses will accompany lifetime.Even if countries have free drug release,Before taking,Need to do physical examination;Take medicine after half a month need check kidney;After drug causing side effects need treatment;Appear opportunistic infection need treatment...All the expenses will be pays.

  

各种自费检查感染者的不能承受之重 All kinds of at one's own expense check infections can't bear the heavy

  小丁和其他志愿者,从去年7月至今年2月,对成都市部分艾滋病人做了访谈式调查,内容包括年龄、工作状态、收入水平、生活状态、医疗支出、社会保障等。其中,医疗支出这块,是从确诊阳性开始的。

Xiaoding and other volunteers,From July last year to February,In chengdu part AIDS the interview type survey,Content includes age/Working state/Income level/Life state/Medical expenditure/Social security, etc.the,Medical expenditure this,From the start of the positive.

  小丁说,感染者每次申请免费药物前,需要做一个体检,项目包括血常规、尿常规、肝肾功等,其中只有“CD4+T淋巴细胞计数”、“HIV病毒载量”是免费的。而服药之后半个月,需要做肝功能检测;服药后一个月、两个月、三个月都需要做体检,之后是每三个月检测一次。这样的体检是必须的,是为了明确药物的疗效,以及有没有损害病人的内脏器官。像这样的检查,一个病人一年大约需要承担1000元,特别是在抗病毒治疗前后要承担1000—3000元不等的检查费用。

Xiaoding said,For each application with free before drugs,Need to do a physical examination,Project includes routine blood/Routine urine/Hepatorenal work,The only"CD4 + T lymphocyte count"/"HIV viral load"Is free.And after medication half a month,Need to do liver function tests;One month after taking this medicine/Two months/Three months have need to do physical examination,After every three months is testing a.Such is the medical examination obligatory,In order to clear the therapeutic efficacy of drugs,And any damage the patient's internal organs.Such inspection,A patient a year is about to take responsibility for up to 1000 yuan,Especially in antiviral before and after treatment to take responsibility for up to 1000-3000 dollars checking expenses.

  另外,有的病人服用药物后,可能出现皮疹等副作用,治疗费用也需自理。“有保险的,可报销一部分”,小丁调查的病友中,35%最近1年有过这样的门诊治疗经历,年均门诊费用超过3000元;有50%最近一年曾接受住院治疗,平均费用接近2万元。

In addition,Some patients taking drugs,Possible side effects such as skin rash,Treatment costs also have to pay."insurance,Can submit an expense account part",Xiaoding survey in patients,35% recently 1 year have such outpatient treatment experience,Annual average outpatient costs more than 3000 yuan;A recent years 50% have received a hospitalization,Average cost of nearly 20000 yuan RMB.

  而对一个普通人来说,有工作有医保,即便一年2万元的医药费,报销后自费部分并不算太多。但从小丁的调查看到,感染者人均月收入只有1700元,收入最高的一位月收入也不到4000元,相当一部分没有工作。(鹏鹏、小丁均为化名)

But to a man,There is a job have medical insurance,Even if 20000 dollars a year in medical expenses,After submit an expense account part at one's own expenses do not calculate too much.But from xiaoding's survey to see,Infections per capita monthly income is only 1700 yuan,The highest paid a monthly income of less than 4000 yuan,Quite a number of no job.(PengPeng/Xiaoding are alias)

  

新闻链接>>> News link>>>

  

《社会救助法》列入立法工作计划 [Social relief law]Included in the legislation plan

  今年10月,民政部部长李立国向全国人大常委会作《关于社会救助工作情况的报告》时通报,我国将推动建立重特大疾病医疗救助制度,制定针对艾滋病机会性感染者、重性精神病患者等特殊人群的医疗救助政策。全国人大已经将《社会救助法》列入立法工作计划。世界艾滋病日>>>

In October this year,The ministry of civil affairs minister LiLiGuo to National People's Congress (NPC) for[About social rescue work report]Reported when,China will promote the establishment and great disease medical assistance system,Developing the AIDS opportunistic infections/Heavy psychosis patient and special groups of medical assistance policy.The National People's Congress has[Social relief law]Included in the legislation plan.World AIDS day>>>

  为提高人们对艾滋病的认识,世界卫生组织于1988年1月将每年的12月1日定为世界艾滋病日,号召世界各国和国际组织在这一天举办相关活动,宣传和普及预防艾滋病的知识。世界卫生组织将12月1日定为世界艾滋病日,是因为第一个艾滋病病例是在1981年此日诊断出来的。(天府早报记者宋建琴毛逸)

In order to improve the HIV/AIDS awareness,The world health organization in January 1988 to December 1st as the world AIDS day,To call on the world and international organizations on this day to hold related activities,Publicity and popularization of knowledge on AIDS prevention.The world health organization will be December 1st as the world AIDS day,Because the first cases of AIDS in 1981, out of the diagnosis.(Tianfu morning paper reporter SongJianQin MaoYi)


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