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4岁起下肢异常粗大 14岁男孩脚比姚明大一圈--亲稳网络舆情监测室
2012-07-28

   4岁起他的下肢开始变得异常粗大,拖着重重的双脚他无法正常走路,他得了罕见的巨肢症 4 years old up his lower limb began to become abnormal bulky,Dragging a heavy feet he cannot normal walk,He got the rare giant limb disorder

  

14岁男孩脚比姚明大一圈 14 years old boy than yao feet one circle

  “我的愿望就是能穿一双正常人的鞋,就像同学们一样……”这是14岁的小高峰在一次命题作文里写到的。因为,他拥有一双33公分长的大脚。这双脚,比小巨人姚明的脚还要大两号。7月23日,记者见到了这个特殊男孩。

“My wish is to be able to wear a pair of normal shoes,Like the classmates……”This is the age of 14 small peak in a proposition composition of wrote。because,He has a pair of 33 cm long bigfoot。These two feet,Than yao Ming feet larger number two。July 23,,The reporter saw the special boy。

  

4岁起,他的下肢异常粗大 4 years old up,His lower limb abnormalities bulky

  小高峰4岁起,他的双腿膝盖一下子变得异常粗大,双脚更是比正常同龄人大一倍还多。随着年龄的增长,小高峰的双脚越长越重、越长越大,肿起的双脚就像童话故事里米老鼠穿的大鞋一样。

Small peak since age 4,His legs knee suddenly becomes abnormal bulky,Feet is more than twice the normal peers。As the growth of the age,Small peak feet more long more heavy、Getting fat,Swollen feet like fairy tale of the big shoes to wear Mickey Mouse。

  然而,这看似卡通的形象却给小高峰带来不小的困扰,他拖着重重的双脚无法正常走路,上身和双臂也由于吸收不到营养而日渐消瘦,小朋友给他起外号叫“大脚”。好在小高峰乐观开朗,10岁那年终于走进课堂,现在已经是铁岭市调兵山镇小学四年级的学生了。

however,This may seem like a cartoon image but little peak to do a lot of trouble,He dragged heavy feet can't normal walk,Upper body and arms can't absorb nutrition and also due to thinner,Children give him the nickname called“bigfoot”。In small peak optimistic and cheerful,10 years old finally came into the classroom,Now is the soldier, tieling city primary school grade four students。

  “上学时爸爸抱我到校车上,放学时老师扶我上车,同学们在车上照顾我。老师给我安排在教室的第一排,上下楼梯扶着我慢慢走。同学们课间一起玩儿时,怕我一个人寂寞,就陪我玩儿一些不用跑跳的游戏。我爱上学。我喜欢我的老师和同学。”有些腼腆但却开朗乐观的小高峰对记者讲述他每天在学校的生活时,脸上总是露出天真的微笑。

“When I got to school go to school daddy to hold the vehicle,When school teacher helps me to get on the bus,The students in the car to take care of me。The teacher assigned me in the first row in the classroom,Up and down the stairs handed me to walk slowly。The students play with the break,Afraid I a person lonely,Will accompany me play some don't have to run jump game。I love to go to school。I like my teachers and classmates。”Some shy but optimistic small peak to reporters about his life at school every day,Face always peep out innocent smile。

  

“我想跟同学穿一样正常的鞋” “I want to talk to students wear normal shoes”

  “我想跟同学们一样穿正常大小的鞋,想和他们一起打篮球、滑滑板、上体育课。”说着,小高峰低下头,摆弄起自己的衣角来。

“I want to talk to students in normal size as the shoes,And they want to play basketball、skateboarding、Physical education classes。”said,Small peak bowed his head,Tinkering with up to thy skirts。

  自从小高峰的双脚被发现肿大以来,他一直穿妈妈亲手做的鞋,鞋底用矿上胶皮输送带做,鞋面用布缝,冬天天冷,就一层一层地加棉花。

Since small peak feet was found since enlargement,He has always been a mother handmade shoes,There the rubber conveyor belt with sole,Vamp sewing cloth,Cold winter,Just to add a layer of cotton。

  

“等爸爸妈妈攒够了钱,一定给你治病!” “And mom and dad saved up enough money,Certain give you the cure!”

  小高峰家住铁岭调兵山,父母都是农民,靠种地为生。这几年,小高峰的父亲只有夏天跟着村里的人一起来沈阳的工地打工,其余时间继续在家务农。夫妻俩年收入仅万元多点。小高峰还有一个大他三岁的姐姐,刚刚考上大连的一所学校,学费东拼西凑,也还差一半。前两年家里盖房子,至今欠亲戚朋友的钱还没还清。

Small in the mountain peak from soldiers,Parents are farmers,By people who depend on farming。Over the past few years,Small peak father only summer with people in the village of working together to shenyang construction site,The rest of the time to continue at home on the land。Both the husband and wife income only ten thousand yuan more。Small peak and a big him three years old sister,Just take an examination of dalian to a school,Tuition in either direction,Also sent half。The first two years home building a house,So far the money owed relatives or friends didn't pay off。

  小高峰的爸妈每天省吃俭用,勤俭持家,两个孩子每天穿校服,衣服洗得干干净净的。“这次是孩子的校长把孩子送来医院,劝我们赶紧给孩子看病,我们才下决心留在沈阳治病的。”孩子的父亲哽咽着说,“要不是有好心人的帮助,我们可能一辈子都付不起医药费了。”

Small peak parents live every day,thrifty,Two children wear uniforms every day,Clothes clean。“This is the child's President took the children send hospital,Advised we hurriedly give children a doctor,We just determined to stay in shenyang cure。”The father of the child SOB to say,“If it were not for the help of man,We may all the life can't afford the medical expenses。”

  

“这罕见病,越早治越好” “This rare disease,Conducted the better the more”

  小高峰患的是罕见的重度复合型双下肢巨肢症,14岁的孩子脚长和周径都已达到33厘米左右,右腿膝盖以下足足有10公斤,属于过度发育畸形。姚明的双脚有30厘米,相当于54的鞋码,而小高峰的脚还要更大一圈。

Small peak are suffering rare severe compound of lower limbs giant limb disorder,Children at the age of 14 feet long and weeks up to 33 cm diameter to the left,The right leg below the knee for 10 kg,Belong to excessive malformations。Yao feet have 30 cm,The equivalent of 54 shoe size,And the little peak more feet one circle。

  上周五,小高峰来到沈阳医学院奉天医院手足外科治疗。由于现在还在做检查,病因还未确定。手足外科副主任医师王彦生告诉记者,像小高峰这样双脚都大的巨肢症是极为罕见的。虽然不会有生命危险,但不及时医治,不仅影响正常活动,还会影响孩子的营养状态,影响孩子成长发育。医院初步打算为小高峰切除下肢多余部分,修整软组织和骨骼,争取最大程度恢复他的行动能力。“在刚发现双脚肿大的时候就应治疗,现在确实有些晚了,增加了手术的难度。”王医生说。

Last Friday,Small peak in shenyang medical college hospital up to the brotherhood of surgery。Because now, in the examination,Cause it's not for sure。Brotherhood of doctor of vice director of surgery WangYanSheng told reporters,Like small peak such big giant limb both feet disease is extremely rare。Although not life-threatening,But not seasonable cure,Not only affect the normal activities,Will also affect children's nutrition,Affect children growth。Preliminary plan to hospital for small peak resection of lower limb redundant,Trim soft tissue and bone,For maximum resuming his action ability。“In just discovered that when they should be feet swollen treatment,Now does have some late,Increased the difficulty of the surgery。”Dr. Wang said。

  

“感谢好心人帮孩子圆梦” “Thank good intention person to children come true”

  7月23日下午,小高峰的病房里来了一群小伙伴,他们是东北育才双语小学三年级的学生。他们刚刚参加完夏令营从北京回来,家长们得知小高峰的事儿,便自发组织孩子们为小高峰带来书本、文具、玩具、食品和钱,希望给小高峰以微薄的帮助。

July 23 afternoon,Small peak ward to a group of partners,They are the northeast yucai bilingual third grade students。They just took part in the summer camp back from Beijing,Parents know little about the peak,And spontaneous organizations for small children peak bring books、stationery、toys、Food and money,Hope to give to the poor little peak help。

  “我们得知小高峰的故事,就想带孩子来献献爱心。我想这既能为帮助小高峰尽微薄之力,也能让孩子看看在她生活的社会上还有很多不幸的人,我希望他们能学会珍惜。”爱心小女孩苗苗的妈妈说。

“We learn that small peak of the story,Just want to take children to offer to offer the compassion。I think it can help the little peak do poor power,Also can let the children see her life in society and many of the unfortunate people,I hope they can learn to treasure。”Love the little girl miao miao's mother said。

  高峰的爸爸告诉记者,从他们来医院起,医院的医护人员和好心的陌生人都来看望小高峰并给他捐款,这群小朋友来之前已经收到善款800多元,小朋友带来的钱加在一起有几千元了。“我真的很感激社会上的好心人,正是因为有了他们的帮助,我的孩子才有了做个正常人的可能。谢谢大家帮我们的孩子圆梦。” (沈阳晚报 高级记者 唐葵阳文并摄 唐心萌)

Peak dad told reporters,They come from the hospital,The hospital's medical staff and kind of strangers come to see little peak and to give him money,This group of friends to have received money before 800 yuan,Children bring money together thousands of yuan。“I really appreciate the kind people in society,It is because of their help,My children have a normal may。Thank everybody to help our children come true。” (Shenyang evening news senior reporter rest respectfully and taken TangXinMeng favors)


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