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心脏病女孩筹建交友网 再柔弱的小草也有梦想--亲稳网络舆情监控室
2012-08-04
4个月大时,她被诊断为先天性“法鲁氏四联症”心脏病,医生称活不过20岁。如今,她坚强地活到了26岁,由于心脏供血不足,她四肢已严重变形,走不了几步就要停下来喘气。即使如此,她没有放弃梦想。
4年里,她每天在淘宝网上工作十余小时,用积攒的钱,和6个朋友一起打造湖北首个残疾人交友网站“中国阳光网”。
Four years,Every day she work more than 10 hours on taobao,With saved money,And six friends first disabled people build hubei dating site“China's sunshine nets”。
昨日,张娜告诉记者,凝聚着她心血的网站这个月就将运行。
yesterday,ZhangNa told reporters,Condensing she made web site this month will run。
在家自学,读完大学课程 Study at home,Finish college course
张娜家住硚口区古田三路肖家地社区,15平方米的房间里住着一家四口。纤弱的身材,清秀的面容,你无法想象这个漂亮女孩几乎从出生就大病缠身。
ZhangNa live in Qiao KouOu thou farmland and three shaw community home,The room of 15 square metre lived in a family of four。Slender figure,Comely face,You can't imagine this beautiful girl almost from birth by a serious illness。
1986年,4个月大的张娜被诊断出先天性“法鲁氏四联症”心脏病,当时医生说没法治,可能活不过20岁。张娜10岁时,医疗技术过关了,可她已错过了最佳的治疗时期。
1986 years,4 months of ZhangNa was diagnosed with congenital“Method LuShi quad disease”Heart disease,When the doctor says to did not the rule of law,May survive 20 years old。ZhangNa at the age of 10,The medical technology passed through,But she has missed the best treatment period。
张娜永远记得5岁那次,“我发病了,心脏疼得要命,妈妈大着肚子背我去医院,结果流产了。”
ZhangNa always remember the five years old,“I come on,The heart is killing me,Mother big belly back me to the hospital,The results have a miscarriage。”
由于血液不能供应全身,张娜左腿长右腿短,手指、脚趾都呈紫色,连毛巾都拧不动。小学四年级时,老师担心她的身体,建议退学。“那时,我做梦都是背着小书包上学。”
Because the blood does not supply the whole body,ZhangNa left leg long right leg short,fingers、Toes are purple,Even the towels are ning don't move。The fourth grade,The teacher worried that her body,Suggest dropped out。“then,My dream is carrying small bag to go to school。”
不能上学,张娜就在家自学,双休,朋友们就来给她当“老师”。就这样,张娜在家读完了大学课程,记了整整14本笔记。“我也做过大学试卷,差不多也能及格呢。”
Couldn't go to school,ZhangNa will study at home,Double cease,Friends to give her a when“The teacher”。so,ZhangNa at home after the reading of the university curriculum,Remember the whole and the notes。“I have college papers,Almost can also pass the exam。”
网店熬夜卖衣,月入千余元 The shop sells clothes stay up late,Income over yuan
张娜的记忆里总有这样一个画面:妈妈带她看病,爸爸找人借钱。
ZhangNa memory always has such a picture:Mother took her to the doctor,Dad for someone to borrow money。
15岁那年,张娜爬到阳台上想自杀。“一只脚已经悬空了,手一下子摸到了阳台上妈妈的衣服。闻到衣服上妈妈的味道,当时我就哭了。我是趴在母亲肩膀上长大的。她没有抛弃我,我却想自我解脱,太自私了。”
15 years old,ZhangNa climb to the balcony to try to commit suicide。“Have one foot impending,A hand touched the balcony mother's clothes。Smell the smell of clothes mom,At that time I wept。My mother is on shoulder to grow up。She never left me,But I want to self liberation,Too selfish。”
此后,她无论是吃多少药,打多少针,无数次从死亡线上被拉回来,要活下去的信念再也没有动摇过。
Since then,She either eat how much medicine,Make as many needle,Countless times, from dying is pulled back,Want to live life beliefs never wavered。
4年前,张娜在淘宝网上找了份女装客服工作。每天从早上11点工作到凌晨二三点,卖出一件衣服可以赚10块钱左右,为了多卖衣服,张娜常常熬夜。“终于能找到一份我可以做的工作,所以我一定要把它做好。”张娜说,刚开始,打“你好”两个字要5分钟,现在可以同时和4个人聊天。
Four years ago,ZhangNa in taobao found a women's customer service work。Every day from 11 am to work at two 3 o 'clock,Sell a clothes can earn 10 yuan,In order to sell more clothes,ZhangNa often stay up。“Finally can find a job I can do the job,So I must do it well。”ZhangNa said,Just began to,play“hello”Two words to 5 minutes,Can now also and four people chat。
现在,成为资深客服的张娜平均每个月能赚到1000多块钱。
now,The senior customer service ZhangNa become average every month can earn more than $1000。
筹建公益网站,服务残疾人交友 Public web site preparation,Service disabled friends
4年前,张娜在交友网上注册,管理人员建议她找一个残疾人网站交友。张娜搜遍网络也没有找到残疾人交友网站。“残疾人最怕的是孤独,特别是年轻人,很多人不能完全融入社会。”于是,张娜决定建一个为志愿者和残疾人交友交流提供平台的网站。
Four years ago,ZhangNa in making friends online registration,Management personnel advised her to find a disabled website making friends。ZhangNa search network also did not find dating site for disabled persons。“Disabled people fear most is lonely,Especially the young people,Many people can't fully integrated into society。”so,ZhangNa decided to build a for volunteers and the disabled friends to provide the platform of exchange website。
去年3月,张娜和6个朋友利用自学的专业知识一起动手,从网页设置、网面装修等,一步步的搭建网站。征求残疾朋友的建议后,中国阳光网设置了论坛、交友区、信息区三个版块。“一部分钱是我这几年淘宝网店赚的钱,一部分是借的。”张娜介绍,各级残联组织也在为他们争取政策和资金扶持。
Last march,ZhangNa and six friends use self-study professional knowledge to together,Page from the set、Net surface decoration of,Step by step to build its web site。Ask for disabled friends proposal,The nets set the BBS of China、Making friends area、Information area three areas。“Part of the money a few years this is I make money taobao shop,Part of it is borrowed。”ZhangNa introduced,Organizations are also recommended at all levels for they strive for policy and financial support。
谈及阳光网,张娜的脸上总是挂满了笑容。“我是不幸,但又很幸运。想起当时医生的说法,我觉得自己赚了6年啊。希望更多的人来关注阳光网,找到自己的幸福,让生命充满阳光。”(楚天都市报 记者吴质 通讯员杨丽 余都 袁永华 实习生孙丹妮 黄瑛)
About sunshine nets,ZhangNa face always hung a smile。“I was unfortunate,But a lucky。Think of when the doctor's claim,I think you make for six years, ah。Hope that more people to pay attention to the sun nets,Find your own happiness,Let life is full of sunshine。”(Hunan day metropolis daily reporter of more than YangLi all correspondent wu YuanYongHua interns SunDanNi HuangYing)
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