主治医生

The attending physician

　　这样血管瘤和软骨瘤同时存在的患者，从医20多年来都没有见到

Such hemangioma and cartilage tumor the presence of the patients，For more than 20 years in the medicine hadn't seen

　　患者愿望

Patients desire

　　想来西安上大学，学习针灸或者按摩，以后能为更多患者服务

Want to xian top university，Learning acupuncture or massage，For more patients after service

　　18岁的女生，3岁开始患上世界罕见的马弗西氏综合征，手指、腿上、耳朵、喉咙全身上下肿瘤几乎无处不在。“这样血管瘤和软骨瘤同时存在的患者，我从医20多年来都没有见到。”昨日，四医大口腔医院头颈肿瘤外科杨耀武教授说。

18 years old, girl，3 years old began to suffer from the world of rare muff west syndrome，fingers、leg、ears、Throat body tumor almost everywhere。“Such hemangioma and cartilage tumor the presence of the patients，The medicine I hadn't seen for more than 20 years。”yesterday，SiYiDa head and neck cancer surgery YangYaoWu oral cavity hospital professor said。

病痛折磨 Indisposition suffers

肿瘤遍及全身 女孩西安求医 Cancer throughout the body girl xian seek medical attention

　　昨日下午，记者在四医大口腔医院头颈肿瘤外科住院部，见到了从山西运城来西安求医的张倩茹。她看起来和常人并无异处。靠近看，多处的肿瘤已让张倩茹身体多部位出现畸形，因为肿瘤的堆积和压迫，导致下巴变形拉长。她的双手双脚上，布满了大大小小几十个紫红色的血管瘤。手指、脚趾因为肿瘤的压迫，都已出现畸形，双脚肿胀的像两块大面包。

Yesterday afternoon，Reporters in the oral cavity hospital SiYiDa head and neck cancer surgery the inpatient department，Seen from the yuncheng to xian the ZhangQianRu healed。She looks and ordinary people and in all。Close to see，Many place tumor has let ZhangQianRu body parts appear deformity，Because the accumulation of tumor and oppression，Lead to chin deformation spin。Her hands on your feet，Be full of the greatly small dozens of purple hemangioma。fingers、Toes because of the oppression of the tumor，Are already appear deformity，Feet swollen like two large piece of bread。

　　由于左边身体多处关节处出现的软骨瘤，导致她多处骨骼发育畸形，左腿比右腿足足短了十多厘米，而左胳膊也是短而弯曲，软软的没有力量。而在她身体的大腿、耳朵，乃至舌头和喉咙中，肿瘤也是无处不在。

Due to the left in the body joint cartilage tumor appeared，Led to her in more bone malformations，Left leg for shorter than the right leg more than 10 centimeters，And the left arm is short and bending，Soft have no power。And in her body thigh、ears，And even in the tongue and throat，The tumor is everywhere。

勇敢面对 face

不放弃学业 坚持参加高考 Don't give up your studies to attend the university entrance exam

　　3岁父母离异，母亲带着张倩茹和现在的继父张新中重新组成了家庭。4岁开始，张倩茹的全身，尤其是双手双脚都布满了大大小小的紫色血管瘤，而左腿关节处多处多发软骨瘤导致左腿发育不正常。

3 years old parents divorced，Mothers with ZhangQianRu and now stepfather ZhangXinZhong to form the family。The age of 4，ZhangQianRu body，Especially feet were full of hands greatly small purple hemangioma，And left leg in the joint cartilage in multiple tumors left leg growth is not normal。

　　除了行走不便，下巴巨大的肿瘤已经让她很难张大嘴巴，有次吃饭不小心刮破了舌头上的肿瘤，导致血流不至，之后三天几乎无法吃主食。还有一次，梳头刮破了耳朵上的肿瘤，流出的血擦完了一卷卫生纸，这让她从此以后再也没敢留过长发。

In addition to walk inconvenience，Chin huge tumor have let her difficult to a wide mouth，Once eat accidentally scratched his tongue of tumors，Cause blood flow not，Three days after almost can't eat staple food。And a，Comb my hair scratched his ears of tumors，The blood flow to wipe out a roll of toilet paper，It made her since then never dare kept long hair。

　　这样的日子，张倩茹过了近15年，她没放弃学业。今年张倩茹参加了高考，480分的成绩可以上个专科学校，可她自己并不满意，和家人商量之后，决定来年继续复读，她告诉记者，对于西安这座城市，不知道是不是因为离家近的缘故，一直有着莫名的好感，她想来西安上大学，而由于身体影响，她也想上一所医学院，学习针灸或者按摩，以后能为更多患者服务。

So of the day，ZhangQianRu after nearly 15 years，She didn't give up his study。ZhangQianRu attended the university entrance exam this year，480 points on a school achievements，But she was not satisfied，And after consulting his family，Decided to continue to answer read a year，She told reporters，For xian the city，Don't know if it was for the sake of near home，Always have a sense of good will，She wanted to xian top university，And because the body effects，She also wants to go to a medical school，Learning acupuncture or massage，For more patients after service。

父爱如山 Mountain the father loves the

继父如对亲生女儿般照顾她 His stepfather to her own daughter if a look after her

　　张倩茹说，她是个在继父自行车上长大的孩子，只要出门，总是继父用自行车载着她。2008年时，张新中因为在外地打工时从高空坠落，导致腿轻度残疾，之后只能在村子里做点零工。最近他带着女儿来西安求医，妻子还继续打工，顺便照顾13岁的儿子。

ZhangQianRu said，She is a bicycle in his stepfather grown up children，As long as go out，Always use bicycle carrying her stepfather。In 2008，ZhangXinZhong because when working in the field from high above the fall，Lead to leg mild disability，Only after in the village to do odd jobs。Recently, he takes his daughter to xian seek medical attention，His wife has also continued to work，By the age of 13 care son。

　　问起女儿有啥兴趣爱好，还没等张倩茹回答，张新中就抢先说：“她就爱看韩剧，暑假在家没事就看韩剧。”说话的时候，父女俩的神情都是同样的淡然，看着坐在医院的小花坛边上这对瘦弱父女的身影，一切都显得那么安然、宁静。采访时张新中说：“跟我亲生的一样，我从来没有多想过。”

Asked about his daughter have what interests，Before ZhangQianRu answer，ZhangXinZhong will beat said：“She is watching Korean dramas，Summer stay at home watching Korean dramas。”speaking，Both father and look it's all the same insignificant，Looking at to sit on the edge of the small flower bed hospital to thin the figure of the father，Everything seems so enron、quiet。ZhangXinZhong said in an interview：“With my own，I never want to think more。”

医院救治 hospitals

一期手术预计本周四进行 A surgery this week four is expected to issue

　　据四医大口腔医院头颈肿瘤外科杨耀武教授介绍，张倩茹目前的情况，初步确定为罕见的Maffucci（马弗西氏）综合征，在他从医20多年来，这还是他接诊的第一位该病的患者。目前正在对她进行基因筛查，以进一步查明病因。

According to SiYiDa head and neck cancer surgery oral cavity hospital YangYaoWu introduced professor，ZhangQianRu situation at the moment，Preliminary determined for rare Maffucci（Muff west's）syndrome，In his 20 years in the medicine，This is his first became the patients。At present is gene screening for her，To further to find out the cause。

　　杨耀武介绍，由于病情罕见，目前在他们院内经过会诊后，已经把患者的详细资料发往美国，等待进一步确诊。院里初步为患者制定了治疗计划，首先切除下巴病变，改变她目前的面部畸形，二期将切除手掌、脚掌上的肿瘤，一期手术预计本周四进行。

YangYaoWu introduced，But it was rare，At present in their hospital after after consultation，Have the patient of detailed data sent to the United States，Waiting for further identified。For patients in the preliminary formulated treatment plan，First resection chin lesions，Change her present facial deformity，Phase ii palm will be removed、On the sole of the foot even the tumor，A surgery this week four is expected to issue。

　　由于张倩茹家境贫困，医院目前已经发起了院内募捐，并决定为其减免部分治疗费用。再次，呼吁社会上的爱心人士，如果想帮助她，请伸出您的援手。（记者 梁璠 实习生 史锦楣）

ZhangQianRu due to the poor，The hospital has been launched in the collection，And for its part to relief treatment costs。again，Calls for social love people，If want to help her，Please stretch out your hands。（Reporter LiangFan interns ShiJinMei）