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坚强父辞职陪自闭症双胞胎训练 一声爸泪如雨下--亲稳舆论引导监测室
2012-10-16
两年时间学会用勺子吃饭,四岁时才会张口叫“爸爸”,六岁时知道如何拧毛巾……这是武汉市江岸区解放社区双胞胎姐妹英姿和飒爽的成长经历。这些普通孩子一学就会的自理能力,却是她们的父亲肖海斌1460个日子悉心照料换来的成果。
Two years to learn to eat with the spoon,Four years old will mouth call"dad",At the age of six know how to twist towel...This is the silk road in wuhan district liberation community twin sisters yingzi and valiant growth experience.These ordinary children to learn the self-care ability,But their father XiaoHaiBin 1460 day care for results.
2008年,英姿和飒爽2岁时被确诊为重度自闭症,不能开口说话,无法与人交流。为一心照顾女儿,肖海斌毅然辞去工作,成为一名“全职奶爸”。四年来,他承受生活的压力和世人的异样眼光,每天一刻不离孩子身边,和她们一同背起书包,走进教室上康复课,只为了换得一个接近于幻想的希望让孩子们能够生活自理。
In 2008,,Valiant and heroic bearing 2 years old are identified as severe autism,Can't speak,Unable to communicate with people.With all my heart to care for her daughter,XiaoHaiBin resolutely resigned from his job,Become a"Full-time milk dad".Four years,He bear the pressure of the life and the world different vision,Every moment not depart from children around,With them take up bag,Entered the classroom lesson on rehabilitation,Just to change a close to fantasy hope to make the children can look after themselves.
痛心!双胞胎姐妹花患上自闭症 hurts!Twin sisters flower autism
“拿到诊断报告,我觉得天都要塌下来了。” "Get diagnosis report,I think days is coming down."
10月11日,是肖海斌最疼爱的双胞胎女儿英姿和飒爽六岁的生日。
On October 11,,XiaoHaiBin is the apple of twin daughters yingzi and valiant six years old birthday.
记者走进位于解放社区内的麟洁康复中心,见到了这位坚强父亲肖海斌。就算是一对宝贝的生日,他也要陪着她们上康复课,这是四年来他每天的必修课。
The reporter walks into XieFangShe located in the area of clean our rehabilitation center,See the strong XiaoHaiBin father.It is a pair of baby's birthday,He also want to accompany their rehabilitation in class,This is four years, he compulsory every day.
2006年10月11日,已经36岁的肖海斌迎来一对双胞胎女儿,两个孩子出生时间只差了3分钟。看着摇篮中可爱的女儿,肖海斌的嘴角总是不自觉地笑着。对他来说,这是上天赐予的最美礼物。
On October 11, 2006,Already at the age of 36 XiaoHaiBin usher in a pair of twin daughters,Two children born time only 3 minutes.Look at the bassinet lovely daughter,XiaoHaiBin mouth always involuntarily smiled.For him,This is the most beautiful gift gift.
然而,随着孩子们一天天长大,一家人却发现她们和其他孩子有些不一样,最突出的表现就是她们不说话,不与人交流。两岁时,孩子们还不会开口说话,连“爸爸妈妈”都不会叫。
however,As children grow up day by day,The family found that they and other children some different,The most outstanding performance is they don't talk,Don't communicate with people.Two years old,The children can't speak,even"Mom and dad"Won't call.
肖海斌有了一种不好的预感:他曾在一本杂志上看过一篇关于自闭症孩子的文章,里面描述的种种表现与英姿和飒爽的情形惊人地相似。
XiaoHaiBin has a bad foreboding:He was in a magazine read an article about autistic children articles,It describes a variety of performance and heroic bearing and valiant strikingly similar situation.
肖海斌和妻子领着双胞胎,走进省妇幼保健院检查。经过各类诊断,医生初步确定为疑似自闭症。“自闭症”三个字如同晴天霹雳,让肖海斌一家陷入极度痛苦中。肖家人无法接受这一结果,之后又三次到医院反复诊断,最终确诊为重度自闭症。
XiaoHaiBin and his wife led the twins,Into the provincial maternal and children health care centers of inspection.After all kinds of diagnosis,The doctor preliminary determined for suspected autism."autism"Three words like a bolt from the blue,Let XiaoHaiBin a into extreme pain.Shaw family can't accept the results,Then three times repeatedly to the hospital diagnosis,Final diagnosis of severe autism.
“拿到诊断报告,我觉得天都塌下来了。”肖海斌说。
"Get diagnosis report,I think days came down."XiaoHaiBin said.
辞职!走进康复中心当“全职奶爸” resign!Into the rehabilitation center when"Full-time milk dad"
“看着孩子额头青一块紫一块,我的心像被刀扎一样。” "Look at the child forehead black and blue,My heart is like be the same knife."
在万念俱灰的同时,肖海斌又心存不甘。他将一对女儿送到家附近的普通幼儿园学习,希望她们能像正常孩子一样,在老师的教导下慢慢学会自理。然而,在幼儿园不开口说话的女儿无法和老师同学正常交流,5个月的尝试以失败告终,肖海斌只好将女儿接回了家。
In desperation at the same time,XiaoHaiBin and be unwilling.He took a daughter to the neighborhood of ordinary nursery school study,Hope they can be like normal children,In the teacher under the teaching slowly the academic society to themselves.however,In the kindergarten don't speak daughter can't teacher and classmates normal communication,Five months attempt ended in failure,XiaoHaiBin had to his daughter back home.
2009年,为一心照顾女儿,肖海斌动起辞职的念头。正在犹豫不决之际,岳母的一句“努力过就不会遗憾”,让他下定决心辞去厨师工作,回家当起“全职奶爸”。此后,肖海斌顶着外界“一个大男人不出去赚钱”的异样眼光,带着女儿走进专门针对自闭症的麟洁康复中心,开始日复一日的训练。
In 2009,,With all my heart to care for her daughter,XiaoHaiBin moving up the idea of resignation.Is the hesitant,Mother-in-law's a"Tried won't regret",Let he made up his mind to quit the chef,Home when the"Full-time milk dad".Since then,XiaoHaiBin top with the outside world"A big man not to go out to make money"Indifferent eyes,With her daughter walked into the specific to autism Lin jie rehabilitation center,Start day after day of training.
肖海斌告诉记者,进康复中心前,女儿连上楼梯都不会,只会用双手爬。看着孩子满手灰尘,他心痛不已,当时就暗暗发誓:一定要让女儿们学会生活自理。他至今还记得,刚到康复中心时,由于自己心急,总要求孩子们快点学会动作,哪知,就是这种求成心切,让他度过一段最难的日子。
XiaoHaiBin told reporters,Before into rehabilitation center,Daughter won't even up the stairs,Will only use both hands to climb.Look at children hand full of dust,He the heartache,Then secretly swear:Must let the daughters learn to independent living.He still remember,Just to rehabilitation centers,Because of his impatient,General requirements children learn fast action,Which know,It is this eager for success,Let him have a most difficult days.
那会儿,两个女儿由于做不了老师教授的动作,会时不时地哭闹起来,甚至会自己用头撞墙。“看着孩子额头青一块紫一块,我的心像被刀扎一样”。为避免孩子“自伤”,他只能时时拉着她们。“当时是冬天,可我每天都要出一身汗。”后来,在老师的建议下,肖海斌不再强求孩子学动作,有时还故意忽略她们,这才让姐妹俩不再用撞墙反抗。
That moment,Two daughters because can't do the teacher professor's action,Will regularly up crying,Even with his banging your head against a brick wall."Look at the child forehead black and blue,My heart is like be the same knife".To avoid the child"self-injury",He can always took them."It was winter,But every day I shall go out a sweat."later,In the teacher's suggestion,XiaoHaiBin not importune children learn action,Sometimes deliberately ignore them,This just let two sisters will no longer use against knock at the door.
流泪!一声“爸爸”让他等待了四年 tears!A sound"dad"Let him wait for four years
“正常孩子学一遍就会,她们要学一千遍,甚至一万遍。” "Normal children learn again will,They want to learn one thousand times,Even ten thousand times."
在系统的康复训练下,姐妹俩每天都会有一点小进步:现在她们已经学会用勺子吃饭,会自己脱衣服,会抛球、上楼梯,前几天还学会了拧毛巾。而最让肖海斌高兴的,莫过于女儿终于学会开口叫“爸爸”。
In the system of the rehabilitation training,Two sisters have a little progress every day:Now they have learned to use spoon to eat,Will take off clothes,Will throw the ball/Up the stairs,A few days ago also learned to twist towel.And the most let XiaoHaiBin happy,Daughter finally learn to open that way"dad".
肖海斌清楚地记得,2010年的一天,老师对他说,两个孩子学会了“啊”、“呜”等一些简单的发音,甚至可以开口说“爸爸”。听到这个消息,肖海斌眼睛一下就红了。他连忙找到两个孩子,想亲耳听听她们的小嘴中如何喊出“爸爸”。“来,叫爸爸,爸爸。”在他的引导下,两个女儿也模仿着叫“爸爸”。听到两个简单发音组成的词语,肖海斌的眼泪止不住地流出。为了这一天,他已经整整等了四年。
XiaoHaiBin clearly remember,One day in 2010,The teacher said to him,Two children learned"ah"/"blare"And so on some simple pronunciation,Can even speak"dad".Hearing the news,XiaoHaiBin eyes to the red.He hurriedly find two children,Want to ears to listen to their small mouth of how to shout"dad"."to,Call father,dad."In his guidance,Two daughters also imitate the call"dad".Listen to two simple pronunciation of words,XiaoHaiBin tears can't help to outflow.To this day,He has been waiting for four years.
如今,“久病成良医”的肖海斌,已没有了当初的不知所措。现在,他每天6时起床,给女儿梳洗打扮后,将她们送到康复中心,搬个小板凳坐在孩子身后,时刻不离地陪着她们捏橡皮泥、做手部操。看到哪个孩子表现好,他会打开随身带着的零食盒,将掰碎的薯片一点点喂进她嘴里。“正常孩子学一遍就会,她们要学一千遍,甚至一万遍。”肖海斌告诉记者,自闭症儿童的认知能力很差,一个把盆中水倒掉的动作,甚至要教几千次。刚开始,他也会不耐烦,但只能咬着牙坚持,并为孩子一点点微小进步高兴不已。
now,"Into long illness;"XiaoHaiBin of,Has not the original at a loss.now,He woke up at six every morning,After the dress for her daughter,They would be sent to the rehabilitation center,Move a little the bench sit children behind,Time from the local guide they pinch plasticine/Do hand operation.See which children behave well,He will open carry zero hamper,Will break crushed potato chips in a little bit of feed into her mouth."Normal children learn again will,They want to learn one thousand times,Even ten thousand times."XiaoHaiBin told reporters,Autistic children's cognitive ability is very poor,A basin of water away action,Even to teach thousands of times.Just began to,He will also impatient,But only bite a tooth insist on,And for the children a little tiny progress delighted.
坚持!训练再艰难也不抛弃不放弃 Adhere to the!Training again difficult don't abandon don't give up
“活着一天,就要对女儿努力一天。” "Live one day,Will one day to her efforts."
汪洋大海之上漂荡着一只孤舟,一位踌躇的父亲带着有自闭症的儿子,孤独地坐在船上,绝望地看着辽阔大海然后牵起儿子手,两个人一齐跃身跳入大海……这是电影《海洋天堂》里的一个镜头,这部反映自闭症患者的电影,肖海斌看了无数遍,却对这个镜头印象最深:“我很怕等我老了,还有谁能照顾她们。”
The great ocean drifting above with a in a boat,A tentative father with a son of autism,Sitting in the boat alone,Desperately looking at the vast sea and then take son hand,Two people together jump a body to jump into the sea...This is the movie[Marine heaven]One of the lens,This reflects the autistic film,XiaoHaiBin saw countless times,But to the lens impression:"I'm afraid I old,And who can take care of them."
肖海斌告诉记者,自从他辞职回家照顾孩子后,一家人就断了经济来源。妻子由于无法承受痛苦和压力,最终也离他而去。如今,他只能靠着低保金,以及残联等各方的补助生活。可是,由于孩子在康复中心,每月仅学费就得4000多元,还不谈他和孩子的其他的日常支出。
XiaoHaiBin told reporters,Since he quit after go home to take care of the children,The family is broken economic source.His wife unable to bear the pain and pressure,Finally also go from him.now,He can only by low gold,And disabled persons' federations and other parties subsidies life.but,Because the child in the rehabilitation center,Monthly tuition fee only have 4000 multivariate,Don't talk about his children and other daily expenditure.
肖海斌说,由于两个女儿时刻不能离开自己,自己没法工作,只能靠父亲和岳母的资助。为了两个孩子,年过六旬的岳母在退休后,还在解放公园找了一份保洁的工作,不时还要捡垃圾贴补家用。“有好心人劝我把孩子送到福利院去,可我哪里舍得啊!”
XiaoHaiBin said,Due to the two daughters moment can't leave himself,Himself could not work,Only by father and mother in law aid.In order to two children,Years past sixty mother-in-law after retirement,Also in the liberation park to look for a cleaning job,From time to time to pick up garbage to contribute to the family."Have good intention advised me to take the children to the welfare home to,Where can I make!"
当记者问起肖海斌今后的打算时,他说还是想出去工作。可是这样的愿望,也只能是在女儿训练很好的情况下才能实现。
When a reporter asked about XiaoHaiBin future when going to,He said still want to go out to work.But this desire,Only daughter training is good cases can be achieved.
尽管训练的日子十分艰难,但是肖海斌坦言不会放弃。“我活着一天,就要对女儿努力一天。”说到这时,42岁的肖海斌摸了摸自己后脑的白发,眼圈有些发红。
Although the day of training is very difficult,But XiaoHaiBin said won't give up."I live a day,Will one day to her efforts."Said at this time,42 years old XiaoHaiBin touched his afterbrain white hair,Eye some red.
【链接】 [link]
自闭症,又名孤独症,是一种广泛性发展障碍,以严重的、广泛的社会相互影响和沟通技能的损害以及刻板的行为、兴趣和活动为特征的精神疾病。自闭症患者一般表现为不愿与人接触,成长过程中少言寡语,言语交往能力差,行为重复刻板,固执任性,多动,注意力分散,自伤等。多数患者智力发育异常,约有70%的自闭症患儿智力发育迟缓,但其某些方面的智力活动又具有较强的能力。人们称这些自闭症孩子为“星星的孩子”。
autism,Also known as autism,Is a kind of extensive development obstacle,In serious/A wide range of social interaction and communication skills of damage and stereotyped behavior/Interests and activities for characteristic mental disease.People with autism average performance is not willing to contact with people,In the process of growth of few words,Verbal communication ability of the poor,Repeat stereotyped behavior,Stubborn willfulness,hyperactivity,distraction,Self-injury, etc.The majority of patients intelligence dysplasia,About 70% of the autistic children mental retardation,But its some aspects of the intellectual activity and has strong ability.People say the autistic children"Stars children".
据保守估计,目前仅武汉市就有近4000名自闭症患儿。(楚天金报 文/记者叶纯 通讯员陈美丽 祝丽芳 实习生陈露 金雪娇 图/记者邹斌)
According to conservative estimates,Currently, only wuhan have nearly 4000 autistic children.(Chutian 27 text/reporter correspondent music ChenMeiLi ZhuLiFang interns JinXue lu Chen jiao chart/reporter ZouBin)
(来源:荆楚网)
(Sources: JingChuWang)
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