4.昔日的辉煌。

4. Its former glory.

　　意识清醒却不能吃饭、不能说话、不能活动，甚至不能表达苦楚，直到不能呼吸……5年前的王甲不明白“渐冻人症”是什么。这个与艾滋病、癌症并称三大绝症的怪病，国内的患者人数达到20万，但他们中的绝大多数不为人所关注。

Conscious but can't eat/Cannot speak/Cannot activities,Can't even express suffering,Until can't breathe...Five years ago WangJia don't understand"Gradually frozen human sickness"Is what.The AIDS/Cancer and three terminal illness strange disease,Domestic patients with a total of 200000,But most of them do not a concern.

身患绝症却不认输 Forking did not give up

　　2006年，还在上大三的王甲被一家国企提前录用，并获北京户口，工作不到一年便当上部门负责人。2007年底，曾在单位运动会上夺得百米冠军的王甲被确诊“渐冻人症”。人类对此病的了解几乎为零，更无法治疗。如今，王甲唯一能动的是眼球。

In 2006,,Was in junior WangJia of by a state-owned enterprises employ in advance,And the Beijing hukou,Work less than a year on lunch department head.By the end of 2007,Once in the unit sports meeting meters champion won the WangJia are identified"Gradually frozen human sickness".The human understanding of the disease is almost zero,More cannot treat.now,WangJia only active is the eye.

　　王甲的父母一直照顾着儿子，擦拭身子、按摩肌肉、注射营养液……5年来，他们卖掉了吉林老家的房子，债台高筑。

WangJia parents always take care of her son,Wipe body/Massage muscle/Injection of nutrient solution...Five years,They sold the jilin hometown house,Deep in debt.

　　王甲忍受着苦痛坚持上了4个月班。瘫软在轮椅上后，他还继续练习书法，并写了大量的博客。在网友帮助下，他还成为一家杂志社的特约美编。

WangJia endure pain insist on the four months class.After the collapse in a wheelchair,He also continue to practice calligraphy,And write a lot of blog.In the net friend help,He has become a magazine of the special MeiBian.

　　2010年，王甲的两幅海报作品拍出30万元高价，他却把钱全捐给一家脑瘫患儿基金。“只要有生命，就会有希望。”2010年6月，世界上最著名的“渐冻人症”患者、物理学家霍金给王甲回信，鼓励王甲将目光放到残疾不能阻挡的事业之上。王甲很激动，在他心里，有一个梦想的事业要做。

In 2010,,WangJia two poster works patted 300000 yuan prices,But he did all your money go to a children with cp fund."As long as there is life,There will be hope."In June 2010,The world's most famous"Gradually frozen human sickness"patients/Physicist hawking WangJia to reply,Encourage WangJia will look on the disability cannot stop above career.WangJia very excited,In his heart,Have a dream career to do.

五年期盼终成大业 Five-year wish will find a great undertaking

　　利用一台名为“全能眼”的视控电脑，王甲只需转动眼球，盯住虚拟键盘上的字母，就能拼写完整的句子。

Use a name"All-around eye"Visual control computer,WangJia just rotational eyeball,Stare at the virtual keyboard letters,Can spell a complete sentence.

　　资料显示，我国目前有约20万“渐冻人”，这一群体很少为人所知，绝大多数人没有获得合适的治疗和护理。患病之初，王甲便想为这个群体做些什么，他参加了很多关于“渐冻人”的论坛和活动，设计公益海报，更呼吁社会关注“渐冻人”。

Data shows,At present about 200000"Gradually frozen people",This group rarely known,Most people don't get the right treatment and nursing.At the beginning of the illness,WangJia will want to this group do,He took part in a lot about"Gradually frozen people"The BBS and activities,Commonweal poster design,More calls for social attention"Gradually frozen people".

　　11月4日，经过长期的沟通协调，隶属于中国宋庆龄慈善基金会的“王甲渐冻人关爱基金”正式成立，首日便收到了170余万元善款。与此同时，书写自己心路历程的新书《人生没有假如》出版，这本书由知名学者周国平作序，王甲将所有的稿费都捐给基金。

On November 4,,After a long communication and coordination,Belongs to the Chinese song ching ling charity foundation"WangJia gradually frozen people love fund"Formally established,He received the first 170 yuan funds.meanwhile,Write your journey new book[Life without if]publishing,This book by the famous scholar zhou guoping preface,WangJia will all fees to fund.

　　“这个基金我等待5年了，用一句话真是不易啊。我的想法是，边远农村和山区的患者救助，然后呼吁政府关注，筹集更多善款。”这是王甲用眼神打出的一句话，用了5分钟，他眼中含泪。

"The fund I wait for 5 years,Use a word is really not easy ah.My idea is,Rural and mountainous area of the patients rescue,And then called for the government to pay attention to,Raise more money."This is WangJia use eyes to hit a word,In five minutes,His eyes with tears.

名词解释 Nouns explain

　　“渐冻人症”，医学名称为肌萎缩侧索硬化症，其最明显的特征是患病后肌肉逐渐无力以至瘫痪，说话、吞咽和呼吸功能减退，直至呼吸衰竭死亡，但智力、记忆力、感知能力不受影响。

"Gradually frozen human sickness",Medical name for amyotrophic lateral sclerosis,The most obvious feature is sick and weak gradually after muscle paralysis,speak/Swallowing and breathing hypothyroidism,Until the death of respiratory failure,But intelligence/memory/Perception is not affected.

　　本版采写本报记者雷军

This concludes our reporter lei jun

　　本报记者潘之望

Our reporter PanZhiWang