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女童眼生怪疾 父亲微博求救直播女儿就医路--亲稳网络舆情监控室
2013-02-01

  昨天,广受微博关注的福建眼肉瘤女童小雯晴进入上海交通大学医学院附属上海儿童医学中心治疗,经初步诊断为神经母细胞瘤。截至记者昨晚发稿,女童正在接受一系列入院检查,院方将据此确立具体化疗与治疗方案,并安排她尽快住院。据悉,女童目前情况并不乐观,儿童医学中心肿瘤专家希望据此提高大家对儿童肿瘤群体的关注,提高基层儿科医生辨识儿童肿瘤的能力,让更多患儿获得及时治疗。

yesterday,Wide attention by micro bo fujian eye sarcoma girl's small CAM mostly in Shanghai jiaotong university school of medicine subsidiary Shanghai children's medical center treatment,After the preliminary diagnosis of neuroblastoma.By the time reporter last night,Girl is undergoing a series of inspection to the hospital,The hospital will accordingly establish specific chemotherapy and treatment plan,And arranged for her to hospital as soon as possible.It is reported,The current situation is not optimistic,Children's medical center on tumor experts hope to improve you for the attention of children's cancer group,Improve the pediatrician recognition ability of children's cancer,Let more children get timely treatment.

  该福建女童名叫雯晴,今年刚满1岁。1月24日晚,他的父亲蓝文亮(微博名“更新观念4222”)在微博上求救,“谁能拯救我一周岁的孩子?大家给我献计献策!”随文发表的图片上,只见女童眼底肉瘤凸出,几乎侵占了左半脸。

The fujian girl named CAM mostly,This year just one year old.24 January night,His father LanWen bright(Micro bo name"Renew the idea of 4222")In micro blog for help,"Who can save me the age of a child?You give me of zhenhai!"Along with the article published on the picture,The girl's fundus sarcoma bulge,Almost encroached on left side of the face.

  去年年底,家人发现雯晴左眼有些红肿,在当地医院接受了涂眼药水等简单治疗。但过一段时候,雯晴的眼部红肿并未消退,还越长越大。很快,一家人开始了四处求医的道路。除了福建几家当地医院,他们又先后前往福州协和医院、天津医大附属二院、天津肿瘤医院、北京友谊医院、北京儿童医院等大型医院。几家医院最终指向的结论基本类似:神经母细胞瘤,一种儿童恶性肿瘤。考虑到女童情况(年龄太小,病情发展很快等),治疗异常艰难。

By the end of last year,The family found clear CAM left some red,In the local hospital for a simple treatment with eye drops.But after a period of time,Vivian clear eye irritation did not fade,Is getting bigger.soon,The family began to seek around the road.In addition to fujian several local hospitals,They also has been to fuzhou union medical college hospital/Tianjin YiDa attached two yuan/Tianjin tumour hospital/Beijing friendship hospital/Beijing children's hospital and other large hospital.A few hospitals to final conclusion basic similar:Neuroblastoma,A kind of children malignant tumor.Considering the situation(Age is too small,The illness develops very quickly, etc),Treatment of abnormal difficult.

  在抱着孩子辗转各地就医同时,父亲蓝文亮也在微博上直播着女儿的就医路,这个心焦的父亲“希望借助微博的力量救助小女一命”。蓝文亮的“求助”很快得到了网民响应。网友们开辟绿色爱心通道,最多一条微博一夜被转发了4000多次,他的呼救微博被网民转发给了慈善机构、医学人士、知名博主、媒体人士等。很快,爱心聚拢,有人向他推荐医院与医生,有组织机构或个人愿意给他募捐。经人推荐,1月28日,蓝文亮最终决定启程赴上海儿童医学中心寻求治疗。

In holding the children toss all at the same time go to a doctor,Father LanWen light also in micro bo live in the daughter's medical road,The worried father"Hope that through micro bo strength rescue my life".LanWen bright"help"Soon got the netizens response.Net friends love open green channel,The most a micro bo night be forwarding the more than 4000 times,His distress micro bo be netizens transmitted to the charity/Medical people/Well-known blogger/Media people.soon,Love together,Someone recommended to him the hospital and the doctor,Have organizations or individuals willing to give his collection.Recommended by the people,1 month and day,LanWen light finally decided to set out on a journey to the Shanghai children's medical center to seek treatment.

  昨天下午,雯晴进入上海儿童医学中心,血液肿瘤科主任医师汤静燕与副主任医师潘慈结合她此前的检查报告与查体情况,初步考虑为“神经母细胞瘤”。由于此前报告已显示骨髓转移超过80%,属于晚期肿瘤,失去了手术指征,治疗将以化疗为主。这几天,雯晴将在医院接受一系列生化指标、基因检测、骨髓穿刺等检查,医生将根据检查结果确立化疗方案。

Yesterday afternoon,Vivian shine into the Shanghai children's medical center,Blood oncology department chief physician ShangJingYan and associate chief physician PanCi combined with her previous inspection report and body condition,Preliminary consideration for"Neuroblastoma".Due to the previous report has shown that bone marrow metastasis of more than 80%,Belong to advanced cancer,Lost the surgical indications,Treatment with chemotherapy is given priority to.These days,Vivian fine will be in the hospital for a series of biochemical indicators/Genetic testing/Bone marrow puncture and check,The doctor will according to the inspection result to establish chemotherapy regimens.

  据悉,目前医院血液肿瘤科的专科社工已跟进这个病例,考虑到孩子的白细胞数非常低,易受感染,社工叮嘱家长:“在检查期间,家长抱着孩子要注意避开人流,最好带上口罩,以降低孩子被感染的风险。”此外,她还对家长做了饮食、卫生等方面的注意事项培训,以及就医流程上的指导、心理方面的疏导。

It is reported,At present the hospital blood specialized oncology social worker has follow up this case,Considering the child's white blood cell count is low,susceptible,Social worker told the parents:"During the inspection in,Parents hold children to pay attention to stay away from the crowd,Had better take a mask,In order to reduce the risk of children were infected."In addition,She also for parents to do the diet/Health and other aspects of training the matters needing attention,And the medical treatment process guidance/The psychological aspects of counseling.

  从目前情况看,雯晴的治疗情况并不乐观。儿童医学中心肿瘤专家希望通过这一个孩子的命运,让大家关注整个儿童肿瘤群体。数据显示,每100万15岁以下青少年儿童中,有120-130位儿童患肿瘤疾病,全国每年有4万-5万新发肿瘤儿童。“儿童肿瘤的发病率并不低,早发现是有希望治好的,但全国有能力诊治此类疾病的医院屈指可数,多集中在北京、上海等城市,许多患者找到我们时,大多已被耽误了一段时间。”

From the current situation to see,Vivian fine treatment is not optimistic.Children's medical center tumor experts hope that through this a child's fate,Let you pay attention to the children's cancer group.Data display,Every 1 million children under the age of 15 teenagers,There are 120-130 children's cancer disease,The national each year 40000-5 new TB cases children tumor."Children's cancer incidence of a disease is not low,Early detection is a hope of cure,But the national has the ability to make a diagnosis and give treatment such disease hospital can be counted on one's fingers,More concentrated in Beijing/Shanghai and other cities,Many patients find us,Most has been delayed for a period of time."

  肿瘤专家希望,未来加大对各地基层儿科医生培训,提高他们对儿童肿瘤的辨识能力,普及筛查手段,确保他们能及早识别疾病,引导患儿家庭走上快速正确的就医路径。(记者唐闻佳)

Tumor experts hope,The future increase in various grass-roots pediatricians training,To improve their children's cancer identification ability,Universal screening method,Make sure that they can identify disease as soon as possible,Guide the children to go to a doctor quickly family right path.(Reporters don WenJia)



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