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图片故事:等待肝源的孩子面临1:150供需比--亲稳网络舆情监测室
2012-09-29
9月17日,北京武警总医院,21个月大、B型血的凡凡患有胆道闭锁,肤色和眼睛都呈深黄色。患胆道闭锁的孩子会身上发痒,凡凡的脸上是抓破的伤疤。
On September 17,Beijing armed police general hospital,21 months/Type B blood all all with biliary atresia,Color of skin and eye has a deep yellow.With biliary atresia children will body itch,Whoever whoever face is grazed scars.
两个不满一岁的胆道闭锁患儿哲哲和团团(均为化名)亟需通过肝移植手术摆脱病魔侵袭,而他们的母亲罗丹、尹春林经QQ群认识后发现,彼此与对方孩子的血型正好相符,她们选择了肝源互换。9月15日零时40分许,全国首例交换活体肝移植手术在北京武警总医院成功进行,目前,两对母子仍在医院治疗。
Two less than a year old children of biliary atresia zhe zhe and round and round(Are alias)Need through the liver transplant to get rid of disease attacks,And their mother rodin/YinChunLin via QQ group after knowing found,With each other each other the child's blood type was consistent,They chose the liver source interchange.On September 15, zero hour 40 points make,The country's first exchange living liver transplantation was performed in Beijing armed police general hospital for success,At present,Two pairs of mother and child is still in the hospital for treatment.
他们是幸运的,但与他们曾同处一个病房的几个孩子还在等待肝源,他们面临的是1:150的供需比,幸运与否,能做的或许只有等待。
They are lucky,But have they are together in a a ward several children waiting for liver source,They face is 1:150 than supply and demand,Lucky or not,Perhaps you can do is wait.
瞅一眼凡凡(文中孩子均为化名)的眼睛,你就会发现点异样。和别的孩子不同,他眼睛发黄,21个月大,体重好几个月没见长。“没变轻就不错了。”凡凡爸爸万金强面前的笔记本电脑上,正弹出胆道闭锁QQ群的窗口。因为过了一岁才查出患有胆道闭锁,凡凡错过了接受肝门空肠吻合手术(又称葛西手术)的最佳时机。他只能期望通过肝移植手术来治愈。
Took one look at all that(The children are all aliases)eyes,You will find something special.Different with other children,Yellowness of the eyes he,21 months,Weight for several months not to grow perceptibly."Don't change the light is good."Whoever whoever father from the presence of strong notebook computer,Is the popup biliary atresia QQ group window.Because after a year just diagnosed with biliary atresia,All who missed the accept porta jejunum anastomosis surgery(Say again GeXi surgery). The best time.He can only expect through the liver transplantation surgery to cure.
病房的墙边,停着一排婴儿车。 Ward of the wall,Stop a row baby carriage.
这个病房,除了广受媒体关注的哲哲外,还有3个因胆道闭锁等待肝源的孩子,只有笑笑是女孩。笑笑的妈妈徐娜习惯管这些婴儿车叫“大奔”,几乎每天,她都要和其他家长一起推着几个孩子走出医院遛弯儿。人们看着几个同样黄皮肤、黄眼睛的小孩,还以为是多胞胎。
This ward,In addition to wide media attention by the wise men of the philosophy,There are three for biliary atresia waiting for liver source children,Only smile is a girl.Smile mother XuNa habit tube these pram call"Big rush",Almost every day,She and other parents to push a few children out of the hospital go for a stroll.People look at a few the same yellow skin/Yellow eyes child,Thought is multiple births.
他们都在等待合适的肝源。 They are waiting for the right liver source.
万金强的血型是AB型,而凡凡是B型,无法配型。凡凡的妈妈是B型血,但在凡凡11个月大时,她选择离开这个家。也许这是儿子最后的希望,万金强打电话给妻子,她说5天后可以来北京。
Gold strong blood type is AB,And all those who type B,Cannot type-specific.Whoever whoever mother is B type blood,But all in all 11 months old,She choose to leave the house.Maybe it's son last hope,From strong to call his wife,She said five days later can come to Beijing.
结果,她没有来。 The results,She didn't come.
患有胆道闭锁的孩子会身上发痒,凡凡经常用小手抓发痒处,弄得脸上、脚上都是抓破的伤疤,万金强流着泪,给儿子拍了一段视频。他期待这个视频能让妻子回来救儿子。与凡凡妈妈不同,笑笑妈徐娜想为孩子捐肝,且血型匹配,但她自身的免疫系统出现了问题,被告知不能进行手术。
With biliary atresia children will body itch,All who often use small catch itchy place,Make face/Feet are scratches scars,Gold strong in tears,To his son took a video.He is looking forward to this video can let his wife back save son.And whoever whoever mother different,Smile mom XuNa want to donate for the children of liver,And blood group match,But her own immune system problems,Surgery has been told not to.
前晚,她发现笑笑的舌头两边长了黄色的“圆片片”,笑笑这段时间很能睡觉,无精打采的,她担心孩子等不及肝源了。
The night before last,She found that smile on both sides of the tongue of the long yellow"Circular patches of",Smile this period of time is can sleep,listless,Her worry about the children can't wait the liver source.
9月13日,病房里面年龄最大的午午等来了肝源。 On September 13,Ward inside the oldest noon noon have liver source.
这个喜讯让午午爸妈高兴坏了,一会儿的工夫,他们就从租住的房屋出发,带着午午和一大堆护理垫、一次性口罩等术后用品,来到病房。能通知的亲属都通知了,能分享的喜悦也都分享了,但因为云南昆明遭遇暴雨,运送肝源的飞机晚点2小时,导致肝源冷保存时间过长,无法及时“劈肝”给午午,手术被迫取消。
The good news let noon noon parents happy is broken,Work for a while,They will start from to rent houses,With the noon lunch and a lot of nursing pad/Disposable masks and postoperative supplies,Came to ward.Can inform relatives all notice,Can share the joy are Shared,But because of yunnan kunming encounter heavy rains,Transport liver source plane was delayed two hours,Lead to liver source cold storage for a long time,Not in time to"Splitting liver"To noon noon,Surgery was forced to cancel.
“好像一下子从天堂坠入地狱。”午午妈黄女士擦着眼泪,一时接受不了。为这个机会,他们已经等了5个月。
"As if from heaven to hell at a draught."Noon noon mother ms wong, wiping away tears,At that time I cannot accept it.For this opportunity to,They had been waiting for five months.
北京武警总医院副主任医师李威介绍,该院共有约30名胆道闭锁患儿在等待肝源,大部分患儿只能在医院登记排号。
Beijing armed police general hospital of doctor of vice director of li wei is introduced,The hospital there were about 30 children with biliary atresia in waiting for liver source,Most of the children in hospital can only register a row number.
据估算,1个肝源背后,约有150个患者在等待。 It is estimated,A liver source behind,About 150 patients in the waiting.
庆幸的是,供体紧缺现象已引起卫生部高度关注,新版《人体器官移植条例》也已纳入国务院法制办2012年立法计划内。一个真正推动建成我国器官捐献体系,缓解供体紧缺现状的系统或将于今年正式启动。
The good news is,Donor shortage phenomenon has aroused attention the ministry of health,new[The human organ transplant regulations]Has also included in the legislation office of the state council in 2012 in the legislative plans.A real push built organ donation system in our country,Ease the shortage of donor of the present situation of the system or will be officially launched in this year.
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